XYREM Reviews (SODIUM OXYBATE)Average Rating: 4.0 (26 Ratings)Filter ResultsCompare XYREM with similar:
Type: Rx Drug
|
Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 |
More on XYREM: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR XYREM | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Hypersomnia/Cataplexy | High BP, renal (kidney) abnormalities on bloodwork, & because of xyrem I'm on 4 additional medications which have almost killed me (heart issues). Personally, I'd love to know how much of a kickback the Dr. receives for each prescription of xyrem filled! BTW, I am at the top dose & it takes approximately 45min for me to feel the effects. :( | F | 35 | 2 years 4.5g 2x PM | 10/24/2012 | 2 | Narcolepsy | Caused anxiety during the day. Sometimes mild, sometimes serious. On higher doses, the anxiety turned to a mild to moderate depression and frequent crying. | It definitely made me less tired/sleepy during the day, but caused a persistent anxiety, sometimes depression, and sometimes irritability. It was not worth the trade off. I tried stopping eating 3+ hrs before bed before the xyrem dose, spacing the 1st and 2nd nighttime dose earlier and later, lowering the 1st and 2nd dose down from 2.25 to 1.5 or less, and increasing the 1st and 2nd dose. The higher the total dose, the worse the anxiety and depression, but the less tired I was. Fortunately, my diagnosis of narcolepsy without cataplexy is a borderline case, so just allowing myself to sleep 9-10 hrs/day combined with adderall is enough to prevent sleepiness from being a problem. Many people will probably benefit from this medication and wouldn't have these same side effects. This is just my experience. | M | 32 | 3 months 4.5 1X day | 10/31/2017 | 5 | Fibromyalgia | Occasional nausea | Xyrem gave me my life back! I started taking it for sleep disturbances related to fibro, and now I don't know what I'd do without my nightly Xyrem dose. It makes me feel refreshed and ready to go the next day, without any grogginess. | F | 30 | 2 years | 10/10/2009 | 4 | Complex Sleep Apnea | Restless legs in the morning, feeling that I have to move my legs to get any comfort. Started initially as a general ache, but has progressed to what feels like full blown RLS. | Overall, however, Xyrem has helped a lot with the EDS. It's now a tradeoff if I can deal with the RLS and keep reaping the benefits of being less sleepy. | F | 29 | 2 years 4 2X day | 8/31/2011 | 5 | Narcolepsy w/ cataplexy | Slight dehydration, "munchies", mild intoxication, euphoria, increased sex drive | Great medication. Truly life changing. Titration can be rough, but totally worth it. | F | 27 | 3 months 4 & 3.75 | 7/17/2017 | 5 | hypersomnia/insomnia | if you fight sleep when it kicks in, watch out. some nausea and clumbsiness. extreme hunger once medicine starts to work. | drug has been a miracle for me. I actually take .5mg of clonazapam (klonopin) as well. and yes thank god for insurance. The crazy things I have noticed is that if you fight the sleep it brings on, it will make me out of my mind-- nauseous, disoriented, etc. i do much better on it when I take it and just turn out the lights. A+ | F | 25 | 3 months | 12/12/2009 |