TRILEPTAL Reviews (OXCARBAZEPINE)

Average Rating: 3.1 (368 Ratings)

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 Type: Rx Drug

  

TRILEPTAL  (OXCARBAZEPINE):  Oxcarbazepine is used alone or with other medications to treat seizure disorders (epilepsy).   FDA Approval Date: 2000-01-14 (Sources: U.S. Centers for Medicare Services, FDA)

  

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5=HIGH (this medicine cured me or helped me a great deal.)

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More on TRILEPTAL: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR TRILEPTALCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Bipolar Made me feel like a zombie the whole day and night Didn't help with anger. Made my life miserable, could barely drive to work I was so tired and almost fell asleep on the job many times, thankfully I was never let go. M 24 1 years
300 MG 1X day
1/24/2021
Email
 1  Bipolar Anxiety, confused, forgetful, 25 lb. weight gain in 11/2 years, peripheral neuropathy, horrible horrible insomnia, dry mouth 24/7, dry eyes, double vision. F 64 1 years
300 2X day
12/20/2020
 1  More than 40 side effects 18 of more than 40 side effects are due to the reaction Trileptal has with Sodium. The lips begin to chap, heavy levels of Flem buildup in the lungs, throat and sinus track, Oedema Peripheral, balance disorder, speech disorder, Dysphagia, Dyspnoea, Hot Flashes, dry mouth and throat, syncope, Asthenia memory impairment, memory impairment, balance disorder, number and letters are reversed, High sodium levels in the body short circuit the direction of the fingers while typing, even though I a verbally saying the proper letter. Insomnia comes when fluid retention reaches its peak lasting approximately two and a half hours. Fluid retention, the urethra shuts down urine flow to almost nothing and later opens like an uncontrollable flood. Sodium level drops so lower surgery was canceled. Weight increase increases in several days and then decreases 3 to 7 pounds in less than 8 hours dropping sodium level in the body. Trileptal and Naproxen do not work well together, urine turns in t Bone density continues to be destroyed by Trileptal. Forteo has been used three different times to increase bone density, when stopped bone density declines. Hypothyroidism, RESTLESS LEGS SYNDROME, acid reflux, The nerves begin to tingle on the scalp and begin to spread down into the chest and arms. As the patient, I have been dealing with more than what has been entered, doctors have a difficult time accepting what I am experiencing. They doubt what is being said until they uncover what is taking place. Approximately 12 to 18 months after starting Trileptal I was told I was massively asthmatic. The medications did not work. When seeing a different doctor he did not believe me until one appointment there was no wheezing, no phlegm build-up anywhere to be found. Sodium had been completely dropped from the diet, when I began to use sodium a few weeks later it returned. In the beginning, I was prescribed three 600mg tablets daily. The information I have entered covers some of what I have experienced. I began lowering the Trileptal intake down to just two 300mg pills a day late last year. When I moved to Washington State last November, I began to lower the Trileptal intake and began using RSO - Rick Simpson Oil - Cannabis Oil. The Trileptal was down to just 150mg when I woke up and RSO when I went to bed due to the reaction that took place when taken at the same time. On August 4, only RSO was taken for the Epilepsy and has seizure activity controlled. The major F 62 20 years
150mg 3X day
9/5/2020
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 1  Epilepsy Double vision I hate it 68 7 years
150 mg
6/24/2020
 1  Bipolar disorder Warm feeling in face; dizziness; double vision; extreme drowsiness but inability to sleep; hallucinations when I first began but stopped; migraines with aura; nausea; jerk in limbs; eye movements; unsteady when on feet. Awful. I complained to my dr but she wants to increase it. She does not listen to me but sadly she is the ONLY psych in town. Be careful with this medication. F 35 3 months
900 mg
6/9/2020
 1  Witch doctor forcing me to take it Shaking, tremors, chest pains, coordination issues It’s a horrible medication they should not prescribe it. F 26 2 weeks
300 MG
1/21/2020
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 1  My ragers I took my meds this morning and after about and hour i started feeling my brain was in a fog and then it go weirder I cant stop grinding my teeth and they are broken now then my stomach hurt so bad it wrapped around my back and left lung. I dont know what to do I feel I will get fussed at if I quit it but my jaw hurts so bad I cant stop crying F 32 1 days
300mg
11/25/2019
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 1  Depression anon epileptic seizures At first I told my Dr I was having panic attacks because of the meds, so we tried lower dosage of 75mg per day for 2 weeks. No more panic attacks. However, dizziness, vomiting, nausea and some how weight GAIN through all the vomiting. Irritable at the drop of a hat, constantly angry for NO reason. Rapid mood swings. I have never had mood swings, not even with "that time of the month" that were this rapid or this terrible. I was diagnosed with bipolar but I have NEVER had manic episodes. I do believe this is a misdiagnosis. The side effects are interfering with my day to day life and making it hard to get up for work or even complete my job. I would not recommend. Drs seem to not give a care when the side effects outweigh the therapeutic uses. Why does the pamphlet with the meds say "tell your dr right away if..." if they don't do anything about it? F 30 17 days
150mg 1x d
11/17/2019
 1  Epilepsy Read long term side effects. I hope to ween off it, medical cannabis in place of it, I didn't need more bone issues,ect. 😡😩😬I want to be me. F 50 13 years
600 mgs
6/26/2018
 1  Anger/Somewhat Bipolar Many side effects. My Doctor said no weight gain and that was bs. Weird dreams and nightmares, very weak and lazy,sore teeth,dark urine,No sex drive,depression and negative thoughts worse,can't think clearly,flu like symptoms,drymouth,etc. Started out on 150mg once a day, didn't like how I felt and the doctor doubled the dose after three days to 300mg. Didn't really feel any better, so I switch the dose to night time instead of morning. No difference. So after another two weeks he upped it again to 600mg.at night. Felt the same. I've tried splitting the dose every twelve hours and nothing.The only thing I felt was worse physically and mentally. I feel like I have no more feelings of happiness, anger, or sadness. Just a zombie. These doctors make me laugh when they tell you, you have to give it time while it's going on months now. Praying to God I don't suffer any lasting side affects like the sodium levels, etc. I was previously on Lamictal and that was a joke too. M 54 4 months
600mg.
11/17/2017
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 1  Burning Mouth Syndrome On the third day of taking this med my joints became painful and my urine has gotten darker. I've been off the med for a week now and none of the side effects have gone away. I had NO pain in my joints at all prior to using Trileptal. The fact that the joint pain isn't going away concerns me. I already have Burning Mouth Syndrome and Tardive Dyskinsea as a permanent present from Rispadril. F 55 3 days
150 1X day
4/9/2017
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 1  Bipolar Type 1 Not bad, but led to sexual side-effects of impotence. M 34 4 months
300 MG 2X day
1/29/2017
 1  my grandson for epilepsy Suicidal aggressive depressed mind races self harm spacey and anti social Unbelievable a neurologist would let a young boy be like this on this drug and do nothing I'm so angry M 9 1 years
600 ngs
11/8/2016
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 1  BIPOLAR 1/ANXIETY Great if it works for you BUT DONT USE LONG TERM It took 3 years to find a med that would work for me where the side effects weren't worse than the problem. Triliptal was good for 6 years then the side effects started happening. It was mild at first then quickly it went to what it is now – I would get stroke like events where I was unable to stand, walk, I couldn't talk right, my eyes rolled back into my head, double vision, tremors. This has happened 9 times in the past 2 years. This week was the straw the broke the camels back for me. Went to ER for earache, shortly after I get there I had an 'EPISODE'. My blood pressure was off the charts, My eyes were rolling back into my head, sometimes I had the double vision and sometimes it was both, I had tremors, I just wanted to go to sleep. They brought the crash cart and everything. 3 days of 'Observation' later, they knew what I didn't have: stroke, heart attack, aneurysm, clogged arteries or a tumor. I tried to tell them it was the Triliptal but no one would listen/believe me. It was also the first time there was any medical evidence of it actually happening. I have 11 of the 13 symptoms of the long term use side effects I am concerned about how much brain damage it is doing with every one of these episodes. If this drug works for you – awesome! But don't stay on it too long. It will mess you up. F 57 9 years
2400 1X day
9/15/2016
 1  Bipolar I I lost my mind. I attacked someone and was charged with felony assault. I am non-violent and don't remember what I did.(Written for my child.) I would ban this drug. Do not take because it can ruin your life. M 34 2 days
900
8/21/2016
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 1  for sleep and mood stabilizer Could not sleep at night,,very sleepy throughout the day and couldn't perform at work,headachesstomach ache Terrible drug,,,I think the dosage was too much F 64 1 weeks
300mg 2tim
7/22/2016
 1  Facial nerve pain I felt Ok until day 3 and starting feeling strange. Then I had a blackout and fell and injured my knee and broke my hand. Later that evening I told my husband I was going to lay down as I didn't feel well. He heard a crash and came in the bedroom and found me getting up from blacking out and hitting my face on the edge of the nightstand. I ended up with a badly cut lip that left me with a nasty scar. I ended up in the hospital where they ran all kind of test and discovered I an one of 3% that they know of that has this happened as a result of the med. Maybe it would be more if more doctors reported it. It causes loss of sodium in the blood and I had water on my brain or in my brain forget which they said. No, I would not recommend this to anyone. 72 4 days
3X day
6/13/2016
Email
 1  Bi-Polar Anxiety DO NOT USE I'm 51 and very accepting and a caring person, talk to anyone. Getting charged with assault 6 days into my medicine, $2,000.00 and counting. Wonderful do not use! Very Iritable!! short fused. MORE vanxiety. M 51 6 days
1/2 for 7 2X day
1/4/2016
Email
 1  Panic Disorder, GAD Nausea, dizziness, headaches, agitation, anger, fatigue, blurry vision, lower GI problems HORRIBLE drug for my anxiety. It only made it worse. I became more agitated and started being a b***h to my friends an family for no reason. I was also getting just plain angry and pissed over the littlest things. It also made me feel sick and gave me headaches. That and my vision got blurry at times. It also made it harder for me to fall asleep, but I would feel very tired during the day. HORRIBLE MEDICATION, WOULD NOT RECOMMEND! F 20 2 weeks
Forgot 1X day
12/29/2015
 1  Borderline Personality Disorder Worsened chronic migraines. Worsened insomnia. When I do sleep I have trouble forcing myself awake. Tired all the time. Nausea. Lower abdominal pain/cramping. Severe lower back pain. Constipation. Confusion. Absent-mindedness. Memory loss. Occasional blackouts. Worsened mood swings. Worsened aggressiveness. I don't recommend this drug. The side effects are preventing me from functioning efficiently. I'd rather be suicidal twice a week than have to give up my life to this medication. F 18 2 weeks
300 MG 2xD
11/18/2015
  

TRILEPTAL  (OXCARBAZEPINE):  Oxcarbazepine is used alone or with other medications to treat seizure disorders (epilepsy).   FDA Approval Date: 2000-01-14 (Sources: U.S. Centers for Medicare Services, FDA)

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