Drug Ratings for ARAVA

Average Rating: 3.0 (170 Ratings)

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)   

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    Charts & graphs: Reviews Summary for ARAVA  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR ARAVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
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 1  RA headache, nausea, loss of appetite (but not worth death) sweating profusely as in sopping wet on my clothes sheets, extreme weakness in legs and feet, chest pain, vision, confusion or just blah brain, worsening of dry eyes, nose and mouth, dizziness, sleepiness and also sleeplessness, over all feeling of severe side effects started on 4th day of taking the medication. Took for 3 more days and then just had to stop it. After 3 days off side effects are going away and first noticable was sweating and headache thank god. I have been on just about everything and methatrexate started to make me feel sicker then usual after 12 yrs on it. Very strange that I started to suffer all of the worse side effects after so long. So then the PA said, OH LETS try Arava, wihtout telling me anything about these horrible side effects I now read about. This is insane to take this medication as I have felt I was dying and I still do not feel well at all. I am still on Humera but now hesitate to take this weeks dosage. Anyone is free to contact me about this drug or any other RA information. Do I have to take that other drug to get 7 days of Arava out of my system??? F 54 7 days
10 1X D
10/21/2014
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 1  spondylitis severe hair loss, cysts/cystic acne, headaches, high blood pressure, rash, itching, chronic yeast infection I started on the 10 mg dose and was fine, increased to 20 mg after a month and my hair was coming out by the hand fulls. Headaches and cysts in my face followed. I literally have a small hole in my cheek one was so deep. I had bug bites on my legs that grew into what looked like eczema and needed a week or two of rx hydrocortisone to heal. I had a chronic yeast infection-not sure if related, that took numerous OTC treatments, diflucan and finally resorted to coconut oil to control it. I stopped the drug and my hair continues to fall out, and now I am starting to itch all over and am nauseous with cramping. I plan to do the wash out-not sure what is worse the side effects, especially the hair loss, or the stress from all this. I have lost at least half the hair on my head, and it is to the point that I am afraid to brush my hair as I blow dry it as it pulls so much out. This is emotionally devastating. F 43 3 months
20 1X D
10/7/2014
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 1  ra Got verry ill i got confused memory loss tingling left side went numb frequent urine vomiting severe stomach ache light color stools insomnia and my daughter thought i had a stroke it cause neurological problems stroke symptoms i fell out while at the store this medication almost killed me i wouldnt wish tht on anyone the ra meds they have are dangerous i have tried methotrexate embriel amd now this make sure if ur gonna take tgis medicine do research first they were gonna do surgery cause thwy thought i was suffeeing from gallbladder problems F 51 7 days
10
9/14/2014

 1  RA I took this approximately ten hours ago for the first time ever. I immediately felt nauseous which subsided somewhat after eating. I then began feeling anxious for some reason and then came the nonstop itching. I can't seem to stop. My throat itches, my neck itches, my scalp itches, my torso itches. I should have been to sleep three hours ago, and have had no relief from the itching two hours post-benadryl. I hate this drug. I can't imagine what it is doing to my organs. I was diagnosed with RA a year ago. Fortunately, I worked at my job for 21 years and received STD and LTD until my SSD was approved. What a ride. I have tried methotrexate, Plaquenil, prednisone, Humira. The drugs for this disease have caused me to be so sick at times I thought I would die. The worst was the methotrexate cough that turned into bronchitis. I literally laid in bed for five weeks taking monstrous antibiotics which seemed to make me more sick. I have a bad feeling about this Arava and will be calling my rheumatologist in the morning to report the annoying itching and anxiousness. This drug isn't for me. F 49 1 days
20mg 1X D
9/11/2014
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 1  arthritis lethargy, severe hair loss that has not abated. what a nightmare! I stopped the drug a month ago and my hair's still coming out in clumps (even though I've been taking 10mg biotin, 3mg folic acid, and using Rogaine every day). I started the cholestyramine wash-out a few days ago. Still losing hair in clumps, worried about bald spots on otherwise waist length hair. Arava made me lethargic, the cholestyramine's not slowing the hair loss yet, but it's making me sick and I'm missing work because of this. Horrifying experience. F 50 2 months
20mg 2X D
9/10/2014
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 5  For RA I have thinning hair, bouts of diarrhea, and weight loss. F 64 2 years
10 mg
7/9/2014
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 4  RA It worked great for 2 years, and all of a sudden, it's quit working. I wake up with terriblebpain and headaches and nausea every day. I'm sorry to have to say this, but I don't even have the strength to wipe after going to the bathroom. I don't understand why it worked for 2 years and then just quit? F 47 2 years
20mg
7/9/2014
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 4  Rheumatoid Arthritis In the past 14mos. of being on Arava I have experienced severe weight loss, thinning of hair, diarrhea, occasional sores that do not heal quickly and occasional feelings of tiredness, headaches & body aches. F 37 1 years
20mg
6/9/2014
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 3  RA I've only been on Arava for 6-7 days, so hard to tell if it will work yet or not. First day, I took right before bed. Made my asthma active. Since, I've been taking around 1pm & that hasn't happened again. Side effects now are mainly just worsened aching and sharp pains in my joints, hands especially. I'm hoping the weight loss side effect will kick in. I could stand to lose about 5-10 lbs! :) F 50 7 days
20 MG
5/31/2014
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 2  RA frequent nausea and diarrhea So far, I have not seen the RA get better with leflunomide but it has not gotten worse either. The nausea is really hard to deal with, however, and I wonder if it is self-limiting. F 32 4 weeks
10mg 1X D
5/23/2014

 2  rheumatoid arthritis Feverish feeling, fatique, sore eyes, blurriness, light sensitivity, slight itchy rash F 61 6 weeks
20 mg.
5/20/2014

 5  Rheumatoid arthritis Doing great. Helped so much!!! F 44 8 months
10mg
4/16/2014

 2  RA Minimal hair loss, fatigue, muscle weakness, blurry vision, persistant cough, involuntary muscle spasms, loose stools, memory loss. F 42 1 months
20mg
4/14/2014

 5  exhausted all other RA meds eccept Diarrhea Many Times a day& frequent urination F 56 4 years
5 mg
4/6/2014
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 2  RA I have been feeling nauseous a few hrs after taking the pill and will then throw up. I am always feeling itchy but there is never any rash. I get terrible headaches that can last almost all day. I also have been needing to constantly pee and have stomach cramps and occasionally chest pain. F 18 3 weeks
20mg
3/16/2014

 3  Osteoarthritis The worst side effect has been the hair loss. My Dr. put me on 1 mg of folic acid to help stop the hair loss, which seemed to help for a short time and then the hair started falling out again. I actually have a spot that has stopped growing. And, just recently my arthritis symptoms came back. My Dr. wanted to up my dose, but I decided to get off of it. I am now taking 2 mg folic acid and 10 mg Biotin, I hope this works to get my hair back.. F 45 4 months
10 mg 1X D
3/5/2014
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 1  Ankylosing Spondylitis Horrible drug. Very harsh and irritating to my body. Got over the stomach issues that happened first, but got severe headaches all the time. The pain from inflammation and join pains got worse. I got off the drug after six days because I feared for my life. Felt like I was going to have a stroke. My PCP said that Arava made the inflammation in my sinuses worse and probably made vascular inflammation worse. Got off it asap. I understand the drug stays in your system for two entire years. One has to take another horrible drug with side effects to 'wash out' the Arava. Never will touch this poison again. It's not worth it. F 67 6 days
30 MG 1X D
3/3/2014
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 5  RA Arava has worked wonders in my life and I'm almost symptom free of joint pain, swelling and fatigue, BUT I'M LITERALLY ALMOST BALD AND IT DEPRESSES ME! F 39 8 years
10 MG
2/18/2014
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 4  Inflammatory Arthritis/Sjogren's Hair loss! Arava has significantly helped my arthritis and general well being. The down side is that I've had EXTREME hair loss. I'm trying various remedies, including high dose Biotin (10mg). I hope it works. I'm seriously considering going off of it. I'm on plaquenil as well and failed methotrexate. F 44 3.5 months
20 MG 1X D
9/21/2013
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 3  lupus Big toenails PAIN w/horizontal indentation, dry itchy skin w/tingles/paleness, painful loose bowels 1st month everyday, moderate/severe head hair loss/GRAYING/brittleness, existing tinnitus Worse, dry nose/mild bleeding, existing calf/ankle/foot edema Worse, existing brain fog Worse Lessened knee, hand, shoulder, arm joint pain for about 2 weeks, after 1 month, then increased somewhat. All over unwell feeling returned. I sometimes don't know if it's worth it. F 54 6 weeks
20 mg 1X D
9/14/2013

 4  Rheumatoid arthritis I've been itchy and had a little gastrointestinal distress but has been manageable Starting to see a glimmer of my old self. Moving more and a bit easier. Woke up feeling rested for the first time on years. I'm hopeful that this will be a good fit. There seems to be light at the end of the tunnel and for a change it's not a train. F 63 2 months
20 mg 1X D
7/29/2013
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 4  mixed connective tissue diseases I was excited over the weight loss as I need to lose a lot. However, after losing 61 lbs. I have now started to gain rapidly (over 5 lbs. in one week). I am so bummed because I do not want to gain it all back. It seems to have lowered my sed rate. I have also lowered my prednisone but since prednisone actually helps me LOSE weight and feel so much better I don't see that as a good thing. Prednisone has always been my friend. I am not sure now about the Arava. So far my liver functions are normal. Plaquinil did nothing for me. Arava seems to help. F 62 5 months
20mg 1X D
6/29/2013
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 2  Psoriatic Arthritis Hair loss, decreased appetite, weight loss, diarrhea, abdominal pain, ITCHING(!!!), pneumonia. I started Arava for psoriatic arthritis towards the middle-end of April. Initially the side effects seemed to be tolerable...weight loss and mild diarrhea. Recently I came down with a chest infection that turned into pneumonia. I ended up in the hospital on IV antibiotics for 6 days. I have since resumed the Arava, and now I am noticing quite a bit of hair loss. Most recently, I have discovered that it is making me very itchy. I have stopped it and restarted it twice, due to the pneumonia. Each time I restart it, within a few days, I become very itchy again. It is literally from head to toe, but there is no rash that I can see. I was previously on MTX, which was helping, but I was diagnosed with liver disease and am unable to take MTX at this point in time. However, given these new side effects, I may talk to my rheumatologist about switching back to MTX. I am also unable to take biologics at this point in time, due to a rare Remicade reaction. F 31 2 months
20 mg 1X D
6/14/2013
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 3  rheumatoid arthritis Dizziness in the morning upon waking is my only complaint so far. It only last for 2 hours and goes away. But so far my joints hurt less and I have more energy! I am super excited about the changes so far and I have only been taking it a few days. Hopefully I only get better. F 29 2 days
10mg
6/8/2013

 5  Mixed Connective Tissue Disease Texture change in hair, minimal hair loss. Arava was a life saver to me! I have more energy and my joint pain and swelling has lessened. I am starting to see glimpses of my old self coming through after 5 years of trying everything from Imuran to Plaquenil. It took me about a month before I noticed a difference. F 44 4 months
20 MG 1X D
4/18/2013
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 5  RA no side effects , works brilliantly for me. F 46 5 years
20 mg
4/18/2013

 5  rheumatoid disease Loosing my hair F 31 5 months
20
4/12/2013

 3  RA Hair loss, fatigue F 35 6 months
20mg
4/11/2013
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 1  RA Loose stools, bad stomach cramps, badly blurred vision, fatigue, nausea. I ended up in ER over holidays. Thought it was influenza but it was Arava and it was awful. Stopped med for 3 weeks and started again to be sure...it is the Arava. It works wonders for the RA but I lost three jean sizes in 3 weeks from the side effects...too sick to eat. F 48 4 weeks
10 mg
2/3/2013

 2  RA Considerable fatigue, constant dry mouth/eyes/skin, tingling in feet/fingers, some hair loss. Extreme joint pain/swelling/immobility and muscle achiness. RA Dr. doubled my dose yesterday to 20 mg a day, because I haven't had any relief from the 10mg daily dose.After reading everyone's experiences here, I'm a little nervous as to the worsening side effects. Sure hope this helps because I don't want to go on Biologics. F 53 6 months
10 MG 1X D
2/1/2013
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 5  RA no side effects at all F 46 4 years
30 mg
12/18/2012

 1  RA loose stools, nausea, blurred vision, tingling/numbness in feet/arms/face I had no side effects with humira and mtx but after my baby was born, they weren't as effective. Changed to Actemra and MTX but rheumatologist was still not happy with results so replaced MTX with leflunomide. Worked wonders for my RA but the side effects negated the positives. Took cholestyramine to flush leflunomide out of my system 2 weeks ago but still recovering. Going back to MTX pills. F 34 3 months
20 mg 1X D
11/14/2012

 5  Psoriatic Arthritis It makes me a little sleepy so i take it at night. No other side effects so far. This drug has made all the difference for me. I was taking a combination of MTX and Humira. The MTX left me in a constant state of nausea. Now on Humira and Arava and I feel like a new person. Out of all my symptoms the fatigue was the most debilitating. With Arava I have more energy, almost no stiffness and joint pain is minimal. I feel normal. :) I hope it continues to work for me. F 39 4 months
10mg 1X D
11/12/2012
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 2  Lupus/RA Bad diarrhea for a day yesterday, but it hasn't helped feet pain so far Was taking MTX for 5-6 years, but liver played up, so rheumatologist has switched me to Arava. Feet very painful still - I wonder if that will subside... F 66 3 weeks
10mg 1X D
10/26/2012
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 4  RA Initially, I experienced reduction in the severity and length of flair-ups with the help of steroids. After 6 months, hair started falling out in handfuls, numbness in balls of feet and toes, rash under the arms. Also, weight gain from intermittent steroid use. Dermatologist cured rash, Rheumatologist recommended folic acid for hair loss (taking 2400 MCG per day to stop hair loss). Still have numbness in feet that is tolerable. Blood sugar has slowly creeped up along with cholesterol and am borderline diabetic. I moderate diet by almost eliminating red meat and sugar. Eating more salmon and chicken and eliminating wheat helps. I also take ibuprofen and Hydrochlorothiazide 25 mg when i sense the occasional flair-up coming to reduce symptoms. If the flair is severe, I have to add a dose of steroids, too. Early on, my rheumatologist recommended a dose of MTX with Arava. I could not tolerate it, so have managed to moderate my RA for years with Arava only. I go through spurts of fair ups and then nothing for months. I guess you could call me lucky that I don't experience some of the more drastic counter interactions of this drug. I wish i could be off of Arava indefinitely but am glad that it has brought my symptoms somewhat under control. I am investigating taking an Indian homeopathic called Zyflamend recommended by a doctor to reduce inflammation. Have not tried this yet. F 65 8 years
20 1X D
10/14/2012
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 4  Inflamatory Arthritis Loose stools but knee now much better. Started Avara after 12 years on methotrexate, this used to knock me for six once a week and had ceased to be affective. So far so good, 3 weeks without metho and 3 weeks on Avara. Swelling has gone in knee, aided by gym/physio exercise. Bloods all cleat, exercise has kept blood pressure in the right range, even managed to walk and play 18 holes of Golf for the first time in 4 months... fingers crossed it keeps working... M 43 3 weeks
20 1X D
10/10/2012
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 2  RA After MTX respratory problems, Enbrel severe reaction, no effects with Orencia after 9 months (even though tolerable),3 weeks on Arava, i am exhausted and the last three days have had heart palpitations and increased blood pressure (this am 160/100), cough like i had on MTX - not looking good F 49 3 weeks
10 1X D
8/6/2012
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 2  RA I just recently started the med. Stomach tore up bad and cramping daily. Irritability. So far I have increased pain.. in areas where I wasn't before. Will check back often. M 51 2 weeks
20mg
7/29/2012

 1  RA Fatigue (more like complete exhaustion), shortness of breath, heart palpitations, persistant cough, hair loss (hair down to my waist. I had to cut it up to my shoulders. It was coming out in handfuls) F 36 4 months
20mg
7/23/2012
Email
 5  lupus/arthritis None! My dose was increased to 20mg 4days & 40mg 3 days/week, alternating. I had great results after few months, with the severity & frequency of flares decreasing. Still had a few bad ones, though, so added the additional tab about 6 weeks ago. NO FLARES!!! I also take Plaquinil. Didn't want to take MTX & love my Rheumatologist for trying Arava!! F 44 9 months
20-40
7/14/2012

 1  rh burning sensation hands & feet . Head aches .ulcr type rash M 54 4 months
10mg daily
6/10/2012
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 4  I am taking Arava/Leflunomide SO FAR, I have had NO Diarrhea!!! No Hair Loss. BUT, had lost a whole Head of Hair on MTHX. I have Headaches and Ringing in my Ears, a little Stomach Pains, Tolerable Nausea, ON Arava. Arava Seems to be Helping so far. I had NOT had any Set Backs in this Short time. I Can Tolerate this Pill as Opposed to Methotrexate @ .06ml Injections (Which I did MySELF!) On Methx I Couldn't Keep Loosing Hair cause I was Near BALD. The Nausea was Horrible and the FATIGUE was WORSE! I was Drinking Tons of Coffee to Stay Awake and taking Sleep Pills to Fall Asleep, I was EXCELLENT in Reducing My Masses on my Lungs. It Arava Doesn't continue to work then Back on the Mthx;( ~ Jan I am Taking ARAVA for SARCOIDOSIS. I was Diagn in 09, But Im Sure Ive had it for YEARS. My health(Fatigue, Breathing) became worse, and this is what they found, Masses in My Lungs. It has Now Spread to My Nose, Fingers and Arms... Hope this was Helpful! Jan F 47 1 months
20mg 1X D
6/4/2012
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 5  Reactive Arthritis loose stools on occasion, burning/tingling feet My symptoms were quickly treated by Prednisone while I waited for Arava to kick in. I was on Arava and Sulfasalazine for a year then just Arava for the last six months. I believe my loose stools are connected to the Arava and the burning/tingling feet. I will never know if my arthritis was kept away by the Arava or just b/c I'm in b/w flairs. Either way my experience with Arava was positive for the most part. I hardly felt like I was on any med at all. The loose stools and burning feet symptoms were infrequent and were tolerable. I think the Arava also helped clear up some eczema on my scalp. My liver checks were always clear. F 36 18 months
1X D
5/24/2012
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 1  RA Started Arava 10 mg daily "test" dose late 2/2012 w/out obvious incident after a MISERABLE failure of methotrexate. Dose increased to Arava 20 mg daily 3/1/2012 w/immediate improvement in pain, fatigue BUT ALSO SIDE EFFECTS. These started w/ SEVERE BLURRED VISION, BURNING SOLES OF FEET, SEVERE BRUISING, RECTAL BLEEDING, NEW ONSET SUPRAVENTRICULAR TACHYCARDIA (SVT) REQUIRING HEART TO BE "STOPPED"/"RESET" IN E.R., NEW ONSET ANGINA. *I* am a Physician Assistant and know in my gut that this IS due to the drug as I have normal cholesterol, hormal blood pressure and no risk factors for heart disease other than family history. Was initially thrilled to be painfree for the first time in over a decade but AFTER READING THESE POSTS (FOUND AFTER MY HEART EPISODE) REALIZE THAT THE RISK:BENEFIT PROFILE IS **NOT** WORTH TAKING THIS MED. Did Arava 10 mg "test" dose X 15 days, then was on 20 mg X 15 days before heart went into SVT and had to be stopped to "reset" in addition to multiple other side effects. F 50 15 days
20 mg 1X D
3/19/2012
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 1  ra Just gathering data. Not taking it yet. Want to know what I'm doing. I have my rx on my nightstand, but I'm afraid. F 37 3 days
30?
1/12/2012
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 1  RA I am a Senior Nurse Educator, so I know what I am talking about, and Arava almost killed me. I started taking it Oct 4, 2011, and by October 31, I was admitted through the Emergency with DKA, and I had never had diabetes in my life. My blood sigars were uncontrollable, I had nausea and vomitting, and diarhea the whole time I was taking the medicine. All food tasted strange with a horrible after taste ( when I could eat a bite). My Amylase, and ALT were extrememly high as was my Creatinine. They though I would need dialysis. I had a UTI, and uncontrollable blood sugars when I was admitted. I had problems with feet, numbness and tingling, and massive echymosis from any blood draw. I have a cough that makes me pee my pants even 2 months later. I will be diabetic, and take insulin the rest of my life, had foggy brain, and even forgot words at times. I almost died in the hospital where I was admitted for 10 days while they tried to get my body back to normal. It did work on my RA pain, but F 50 25 days
20mg 1X D
12/26/2011
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 1  RA I went to see my RA doctor and she was out, her PA was there and told me she was starting me with Arava She told me that if I had diarrhea, not to stop taking Arava because after one month the diarrhea would eventually go away. I followed the doctors instructions, after four weeks of diarrhea I started having severe rectum pain, I was not able to move without hurting. I could not urine without my rectum hurting. I continued to take avara not realizing that it was the cause of my pain. After a month and one day, I stopped taking avara and my diarrhea stopped but, I still continued with severe rectum pain, I made an appointment with a Rectum specialist and two months later I was diagnosed with a fissure. A fissure is caused by repeated episodes of diarrhea, I ended up having surgery. One month after surgery I am still in pain and I have to wait until my appointment next month, Oct 2011 to see what else can be done. I would have rather put up with the pain and suffering of RA t If you develop diarrhea don't let it go to far. Stop taking Arava. F 50 1 months
20mg 1X D
9/25/2011
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 2   Psoriasis flairing, no help with PSA I have Psoriatic Arthritis and Psoriasis...my psoriasis is 100 x worse than when I started this drug and my arthritis is not getting bette...not to mention the bronchitis and asthma that has only started in the last two weeks! This drug sucks F 41 21 days
20 mg 1X D
9/8/2011
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 1  psoriatic arthritis My brother was taking this and it killed him. Don't take this, it is highly toxic and very dangerous. Look at natural remedies instead, they may take a little longer to work but they'll fix the problem rather than mask your symptoms M 34
1X D
8/29/2011
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 1  Arthritis Enlarged Heart, Fluid around lungs and Heart, Loss of Hair and Eye Lashes, Severe Indigestion Taken with Methotrexate. Would never take either of these drugs again even though Arthritis symptoms were a lot less. Far too many side effects. F 61 10 months
10 1X D
7/6/2011

 4  RA nausea, headache, diarrhea, metallic taste, loss of smell and taste Within a few days of using this drug, I noticed a headache, nausea and severe abdominal problems. I started taking the drug at night and the nausea and headache stopped, I guess because I was sleeping! The diarrhea continues, but much less severe now. I have recently begun having a metallic taste in my mouth and have lost my sense of smell and taste. This is pretty annoying. I was wondering what was causing this so I happened upon this website. I hadn't associated it with the Arava until I read this, so I will be talking with my MD. I am taking the Arava along with 5 mg of prednisone and have found a ton of relief! I wonder, though, if it's from the prednisone, because I had to get a steroid injection every 3 months prior to starting the prednisone. I really need to get mroe proactive about my care since I was diagnosed with Sjogren's Syndrome and RA about 10 years ago and i've just been going with the flow and doing whatever the MD tells me. I am fortunate that I have never had any thinning of hair or rash, either with the MX or with the Arava. F 52 9 months
20 mg 1X D
5/16/2011
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 3  RA High blood pressure, night sweats, rashes and spontaneous bleeding of the feet on occasion; Note: if you send me a question leave me your e-mail address or I cannot respond. Arava works fairly well as far as drugs go but I also needed anti-inflammatory NSAIDS. However all drugs wear off and are eventually rejected by the body as poison. I have discovered from internet sources that natural cures work better; such as honey and vinegar and vitamin B 100 complex (with niacinamide); see for instance Dr Saul's website doctoryourself.com or his book Fire Your Doctor, excellent advice. Everything can be cured, 'just say no to drugs'. (Nancy Reagan) M 55 15 months
20 mg 1X D
2/3/2011
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History
 2  RA diarrhea,red spots on chest, hair loss, muscle pain, and just now after 10 yrs, elevated ALT and AST(2x the norm), stopped taking due to ALT 84 ,now rash on arms and legs (symmetrically) that really doesn't itch, top lip numb. Why now??? Anyone know??? Please help. Arava did help a little but I still had lots of pain. I knew when a storm was coming 1 day in advance. Taking 5 mgs of prednisone.I stopped taking the Arava 12-31-10 , and oh god I feel better than ever?? I don't know why. My doc prescribed the questran to get it out because of the rash and elevated liver enzymes. I hope this works.. I just hope this rash isn't serious. I am going to see my p.c.p. tomorrow and talk to a dermatologist to see what going on. I don't think this medicine is as good as it seems. I even contacted Arava makers and they didn't know what to tell me... UGHHH!!! F 43 10 years
20MGS 1X D
1/18/2011
Email
 2  RA rashes, high BP I have found natural solutions; please provide your actual e-mail address and not just your acronym if you want answers. many of you are suffering for nothing. M 55 6 months
20 mg 1X D
1/13/2011
Email
 2  RA Mouth sores that lasted forever, itchy red bumps (looked like bites) on face, neck and chest. Finally rash spread all over arms and my doctor discontinued Arava and all is now healing. F 48
20 mg 1X D
12/13/2010
Email
 5  RA Do have few s/e itching skin, and tingling occasionally. I am concerned about liver damage, but almost died with pneumonia while taking MTX, before I went to Arava. Don't know what else to take in its place. I do have alot more mobility, do have some fatigue and very few flare ups. So far blood tests have been OK. F 64 2 years
20 mg. 1X D
11/7/2010

 2  Psoriatic Arthritis Almost immediate headache, ringing in the ears, blurry vision, racing heartbeat, increased sweating, irritability. I am on so much medication that it was hard to identify which one was causing these awful side effects. Finally, I was able to identify it by the process of elimination. I thought for sure it was the Plaquinil because of the blurry vision, but I guess not. I'm sure the Plaquinil is causing many of the other issues & that I will have to stop taking it as well. That leaves Methotrexate & Enbrel. Am hoping for some relief with these two. F 40 4 months
20 1X D
11/7/2010

 2  PA Extreme fatigue, blisters in the mouth. I have found the joints are still swollen and stiff with new joints becoming affected. The fatigue is extreme and I am now wondering if this is the drug for me or not? F 37 35 days
20mg 1X D
11/2/2010

 4  RA Arava helped for five years, though frequent diarrhea, some hair loss, fatigue and dry skin. Now diarrhea got so violent that social life became intolerable. Off the drug for two months now but no easing up. Still think it's the Arava, but my physician doubts that - i doubt my physician. F 69 5 years
10 mg 1X D
10/24/2010
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 2  RA First side effect was diarrhea, but it wasn't too bad. The bottoms of my feet were very itchy and felt "hot". Then came the tingling feet and legs which kept me up at night. After about three months of taking Arava I noticed hair loss. This is what concerns me the most now. I've had some weight loss which is a side effect that I welcome! Arava started working in about two weeks in helping with joint pain in my feet, ankles and knees. It did not help with joint pain in my wrist, which actually got worse. After four months my doctor added Enbrel to my treatment along with 2 mg of Prednisone, which helped with the wrist pain. Hair loss got worse so I am off Arava now. Dr. didn't think I needed to take cholestyramine to get arava out of my system since I was on it for only four months. But it stays in your system for up to two years! I can't keep losing my hair for that long...won't have any left. I'm calling the doctor again next week and ask again about taking cholestyramine. F 54 4 months
20mg 1X D
9/24/2010
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