ACTIQ Reviews (FENTANYL CITRATE)

Average Rating: 3.4 (104 Ratings)

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 Type: Rx Drug

  

ACTIQ  (FENTANYL CITRATE):  This medication is used to help relieve sudden (breakthrough) cancer pain in people who are regularly taking moderate to large amounts of opioid pain medication. Fentanyl belongs to a class of drugs known as opioid (narcotic) analgesics. It works in the brain to change how your body feels and responds to pain. This medication should not be used to relieve mild or short-term pain (such as due to headache/migraine, dental procedures, surgery).   FDA Approval Date: 1998-11-04 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Satisfaction highest to lowest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR ACTIQCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Fibro, Lupus, migraine,chronic pain None The only medication that made my life bearable. I was on it for 16 years and then they stopped. Now the pain is so bad, and nothing works like Actiq. It made it possible to live, I am a disabled senior with a husband who is partially paralyzed and brain damaged and a paralyzed dog. I have to take care of both of them myself without help. F 61 16 years
800 mcq 3X day
12/26/2016
 5  Spinal injuries Was in a fog. Worst of all my teeth fall out, break, major pain. No warning Warnings should of been clear. M 30 5 years
1600mcg
1/16/2016
Email
 5  6kyphplasties drunk hit me 75MPH Rotted out teeth over $20,000 to try to save them(teeth) it didn't.! it is the only thing that stops my pain. F---in insurance as if Cancer was the only pain the reason cancer gets terminal is because it doesn't hurt usually until its advanced,then its the chemo&radiation that causes the majority of pain.The lobbyists want to make it hard to get &more profit if denied these suckers &I've never had a drug dealer say I got these suckers that wont get you high but if you stub your toe for a mere $55 for a 5 cent sucker I can hook u up. This product that costs 5 actual cents 2make & is 95% sugar. People we are getting scammed.What about a burn,MS, Lou Gerhigs,arthritis. Since when does this government have a right to dictate what is prescribed between me & my doctor who studied pain for 12 college years alone.The politicians are funded by big Pharma & they dont want to pay 4 it.The best way to do that is make it only 1 thing it will pay for it under think of how r Can you please help us fight these insurance companies & the government on the suckers? Why dont they make them like they were in 2002 where they weren't made of chalky, crumbly stuff they were make of real sucker material. I didn't have to go threw a whole days worth due to them crumbling in seconds. The LAST of my life savings is going to a billion dollar industry and thats not enough. Hello immigrating to Canada here I come.Medicine shouldn't be dictated by ability to pay can Canada, England, Australia, New Zealand etc all be wrong to get rid of these blood suckers insurance companies.I am paying the price for some jerk who wants to get high off of this pain that feels like someone hit me in the back with a bat while putting out a fire on my back. Also stabbing when I get back spasms. All this headache & heartache & scare tactics because some idiots probably 1 person put the patch in their mouth. I dont care if those opiate addicts die for screwing things up because Mommy didn't want to say no to Jr male or female and that created unbearable treatment by doctors & people who dont know me in pain and they are usually spoiled young & healthy. Id give anything to get my health back & never touch this medication. I have Sarcoidosis and Lupus due to TCE or trichlorolethyline in our well drinking and cooking and bathing water which gets more potent with steam.I was never sick before this chemical was in my body and I developed rashes and couldn't breathe F 56 12 years
400mcg 6X day
10/7/2014
Email
 5  Adhesive capulitis in shoulder None and don't understand all the people that complain when they are taking it not what it was approved for and most are taking 2 to 3 times the strict recommended dosage of no more than 4 a day F 54 8 years
600 mcg
4/22/2013
 5  clinic pain syndrome not much other than the teeth decay, root canals, ect, the up side was it was the only medicine that worked for me, for the break through pain I have, this all due to multiple surgeries,I think around 30 or so, for one problem or another, so always had this constant cronic pain, that for the most part can be unbearable. now at my wits end I'm through pain management x 12 some years now. Dr started me on percecets, but they don't help any, and still taking my Oxicontin. wish my insurance would pay for my actiq, would be cheaper than the hospital, which I know it's going to end up back to. is there anything out there that is around the same strength as my actiq, that I can take. I take Oxicontin 80 mgs,3 times a day for the past couple of years now. insurance just changed through husband's employment, so the new insurance no longer covers my actiq, So looks like I'm back to square one, prob and up in the ER Again on a weekly basis for pain control. tried everything else nothing helped like the actiq, and my Oxicontin combo, and even the Oxicontin insurance after may 1st is going to stop. F 43 8 years
800
3/6/2013
Email
 5  chronic back pain&stomach pain Lost teeth and can't afford new ones.it is the only medication that lets me live without severe pain and now no doctors want to prescribe it because of the ridiculous price and the fda won't approve for chronic back stomach pain and they don't care how much pain u are in they can provide a better quality of life pain is curable but they don't care about people who need it for chronic life changing pain can't work and missing out on my kids best years because of junkies who ruin it for people who need it to live and work and I would like to enjoy life and be able to sleep more then ten hours a week if it wasn't for my kids I wouldn't want to live for much it is sad I loose all my teeth and they went from less then a thousand a month to fifteen thousand a month just because of the fda won't approve for back pain and the clinical trials proved it is a safer and faster breakthrough medication that is a shame in the best country in the world I wish doctors would prescribe it and take their oath seriously there the doctors not insurance company's M 40 7 years
1600&800mc
10/9/2012
 5  Bilateral TotalJointReplacement TMJ I LOVE this medication because it has been the only medication that has really helped my severe chronic pain from my total joint replacement of my tmj. I also take avinza. From the first day that I started this medication I had NO idea that I would lose all of my teeth. It has been literally terrible on my quality of life. There should be a class action lawsuit because all most EVERYONE that has taken this drug has lost most or all of their teeth. Since my total joint replacement I cannot open very wide at all. I just had to have a total mouth extractions last Oct. and I have had terrible problems. One being that they (meaning the dentist) left me with literally NO ridge at all so I am unable to wear a bottom denture. Now I have to have implant surgery that my insurance will NOT pay for even though all of my doctors say it is medically necessary because my total joint replacment will fail since I have no proper support. My top denture is completely crooked and I have been in more extre If there are any attorneys who are considering a class action lawsuit please email me as I would be interested in getting on board. Although I am not sure that if you sue you would have to stop using the medication and Actiq has been the only pain med to really help my severe chronic pain. It is a very difficult situation and now since my insurance will not pay for my medically necessary implants I don't know where to turn. I cannot eat anything but very soft food and have lost my appetite and only eat 1 meal a day. It is usally oatmeal or applesauce or something along those lines. F 42 8 years
1600 MCG 7X day
11/12/2011
Email
 5  severe degenerative disc disease only side effect; I did eventually lose all my teeth except 5 on the bottom Actiq was the very best medication for pain relief without causing sleepiness and lethargy. I was able to care for my mother who had a terminal illness and live a productive lifestyle. I'd trade my teeth again for a quality life. They would not prescribe it for my mother for fear of her falling asleep with it in her mouth; gave her fentanyl patch instead, which I believe contributed to her respiratory failure. She was 79 yrs. old. F 62 6 years
400mcg 3X day
4/14/2011
Email
 5  arachnoiditis,5 spinal surgeries I had perfect teeth, always from childhood til date seen dentists and kept great oral hygene. I began a couple of years ago with extensive decay to now 2 teeth and 16 drilled to the gum all of which will be extracted on or about March 1st. Dental Caries cause by Actiq has caused me to need a full mouth recunstruction after 60k of root canala,prostho to help save and oral surgeon as well as infections. Just yesterday my face blew up and I waqs rushed over and had two teeth removed and grafted to releive the serious infection. I have been hopitalized for c-diff colitis fro clindomyacin 3 times. I am at my wits end and now a full mouth recunstruction after all this work.I have been so sick physically and mentally and without our Government thinking out mouth is part of our bodies when it comes to medical coverage it is making people struggle even disbled with no where to go when these problems occurr except blogs like this for us to vent and know we are all not alone. I think we all need to get a class action started, I am sure any attorney would take this on as there are enough of us out there if anyone agrees or is interested respond here or to my email and put it on any site you see someone has to help us all get some help with our teeth and medical issues compromised from this as well. thank you F 48 6 days
600 mcg 4X day
2/19/2011
Email
 5  Fibromyalgia Tooth decay & sleepiness I actually take 12/day, but the pull-down menu didn't offer that choice! This is a miracle drug for me! I tried just about every other pain medication out there, and few worked. The few that did work, I quickly built up a tolerance to and they quit working after 3 months to a year. I was mostly bedridden from Fibromyalgia and osteoarthritis in my right knee before using Duragesic patches (3 50mcg patches at once, change oldest patch each day) and Actiq. My husband's company switched from Express Scripts to Cigna, and now I'm having to fight to get my Fentanyl. We got my patches approved with just a preauthorization. But it's taking us forever to get the Actiq approved. I just pray that they eventually do approve it. I don't want to go back to being bedridden. For me, it's worth losing my teeth to get my life back. I have two young daughters who need me. F 44 3 years
800mcg 10X day
1/24/2011
Email
 5  Chronic Pain You WILL Loose ALL your Teeth eventually with Actiq. There is no question as to if it will happen. Rather it is when. The damage is slowly occurring from the first pop. But, we have the Correction. You CAN Now USE Your ACTIQ with NO Future Tooth Decay resulting from Actiq. We are the first and ONLY to develop a FIX to this issue. Contact us at www.DentalCorrections.com USE your Actiq for now on, with NO DECAY future resulting from your future Actiq use. Our new Program is 100% Success Rate! Now 25% Discount for Internet Purchases. www.DentalCorrections.com M 45 2 years
1600mcg 4X day
12/8/2010
 5  severe cronic back pain neck &low b Like just about all pain meds. DRY MOUTH is main one. if these other people would have read the inclosed drug info they would have read that BRUSHING YOUR TEETH more is necessary with sugar content of Actiq. Any dentist will tell you side effects of dry mouth: the decaying of teeth & gum disease!! drinking soda is the worst...but it worked for me. Dentists can also prescribe special toothpaste to help. The best side effect.....I was able to have somewhat of a more normal quality of life! So many meds. make you feel so tired, ACTIQ didn't for me. Can someone tell me why it's so expensive?????? The cost is just not right. The people that need it can't afford it. ACTIQ name brand works. It's the only one. The first generic to come out did not! Not at all. Pharmacists kept telling me they were the same. Who would you believe the person one it for years or someone that never used it! Most Insurance company's would then only pay for generic (which wasn't much cheaper) then they said unless you have a severe form of CANCER that they will not pay for it. It was the best pain regiment I had when ACTIQ was included. I told my Dr. that it made me feel like a real person again. I felt great! now I can"t have it. Why is it so expensive?????? F 50
800mg 4X day
7/31/2010
 5  chronic breakthrough pain worked great back to a normal life again insurance stopped paying for actiq in 2009 now my quality of life went from 85%-10% cannot afford without insurance. insurance won't pay unless I have cancer, why did they pay it for 5 years? F 43 6 years
1200mcg 4X day
3/22/2010
Patient History
 5  DDD, Cervical Radiculopathy, etc. 4 surface cavities plus 11 teeth with no enamel at the gumline (high risk for future cavities). These were my first cavities ever. I brush my teeth 3x/day & that's probably why I went 6 years with no problems, but now my teeth are a mess. It is not just the sugar, but also the citric acid in Actiq that supposedly contributed to them. I always put the medication on one side of my mouth -- that's where all the cavities were & most of the teeth with the stripped enamel. Works great for pain. Fentanyl is the only narcotic I'm not allergic to. Tried Duragesic, but even the lowest dose available caused an overdose. No other side effects besides the tooth decay. I've gone off it for a month or so at a time to manage tolerance & didn't have any issues. F 32 7 years
12/19/2009
 5  Chronic Back Pain Syndrome; RSD My ONLY side effect was the rotting, decay, breaking of, all my teeth that are in desperate need of extraction, to the average person this side effect is similar to photos of "meth mouth!" When first prescribed Actiq it contained NO dental warnings, approximately 1 year later the package insert was changed and included consulting and visiting your dentist. However the damage to my teeth had already been done. I'm in desperate need of dentures with no way to pay for them due to this medication. No physician, pharmacist, or dentist warned me of this problem. My dentist seems to be unaware of the problems it has caused to date. Next: I will find a caring dentist. Actiq allowed me to participate in my life; for the first time in over 5 years! The back pain and bilateral radioculpathy was so unbearable became totally bedridden for 5 years. Actiq afforded me the luxury of a pain tolerant life. (I controlled the pain, the pain no longer controlled me.) During my divorce proceedings I quickly learned that Medicare and Medicaid would not pay for this MIRACLE drug. I stop taking this medication because I lost the luxury of private health insurance during my divorce in 2004. I stopped Actiq cold turkey on my own without side effect or symptoms (pain came back with a vengeance). Was placed on 100mg MS Contin, 3x a day and 2 Narco 10mg 3x a day. I am bedridden again! I hope one day all clinicians will learn to be more sympathetic when treating their pain patients and realize they're not "drug seekers" attempting to get high. We need more medications like Actiq, and less governmental control and limitations over the usage of such wonderful medi F 48 2 years
9/4/2008
 5  Chronic pain (degenerative joints) Lost all my teeth, constipation (mestinon provides relief along with otc stuff), hearing loss Actiq is a godsend for me as well. I couldn't even get out of bed before I started taking it. I was taking tons of morphine until I collapsed with respiratory failure, double pneumonia from loss of cough reflex. Actiq allowed me to live again. M 56 10 years
8/17/2008
 5  Chiari pseudotumor cerebri ischemia Severe tooth decay while taking brand name Actiq is the worst! I was lucky enough to find a pharmacy that makes sugar free fentynal pops I get 1200 mcg 120 per month for 300! They actually work better for me then actiq. But after 5 yrs of brand name my teeth are shot & I'm only 36! I think the new formula did more damage with its sweettart texture! Swirling those against your teeth was bound to eat away at enammal! So my 5 is not for actiq but the ones my pharm. Is authorized to make. If you live in IL email me for info. I also take Mscontin 75 mg 3 times a day soma & a few other things. I can't use patch due to systemic lupus. Actiq was 5 yrs generic is 3 plus F 36 8 years
8/9/2008
 5  chronic facial/head pain bad constipation,but my doc recommended MiraLax powder,works wonders but take daily as long as you take daily meds. ask your doctor.can buy over counter. I take 1600 mcg x4 a day, insurance will allow no more. how do some of you take more? Also I have new ins., Aetna and I think they are going to cut me off.. Anyone with experience w/Aetna? F 48 4 years
4/4/2008
Email
 5  rheumatoid arthritis dry mouth This is an excellent medication for severe breakthrough pain. I have rheumatoid arthritis and use this for my severe pain mainly in the evenings. It works quickly and has been a wonderful medication for me. F 31 4 years
3/8/2008
 5  DDD Spine collapsing 3X Surg/fusion First month was hard in summer getting used to slow breathing/then no side effects until 5+ yrs later teeth began to decay/breaking off. Though part my fault-poor dentist habits may have been controlled otherwise. Issues with coming out of anesthesia from surgery. I have such a tolerance-I wake up way too soon and am totally coherant within minutes while everyone around me is out cold. Nursing staff amazed. Euphoric when I'm very tired and sleep deprived. Weak cough reflex. All in como w/fentanyl patches-lethal dose. I see alot of the remarks about Actiq and wonder how many of these neg. issues are from a combination of the additional narcotics we are on. I don't believe Actiq on its own is causing all of these dependency problems. I have been taking Duragesic patches for nearly 7 years along with Actiq for break through. Quickly got up to lethal doeses @ 400mcg every 48rs and 1200mcg Actiq 6X a day and could easily raise both of those now to 500 & 1600 mcg's. Have been at current dose for 3 years. Took 5+ yrs b4 teeth became an issue, though I take care of them at home I also have not seen a dentist in over 18 years since I had perfect teeth and no known problems. Was wheelchair bound and could not stand/walk straight. Fentanyl has been an amazing drug after the full gamit of pills for years ending w/oxycontin 80mg and the 20+ useless epidural injections. Within 1 month I was walking and now living in a warmer climate can go 90% of the day pain free! However it is not a cure. My pain F 40 6 years
2/28/2008
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ACTIQ  (FENTANYL CITRATE):  This medication is used to help relieve sudden (breakthrough) cancer pain in people who are regularly taking moderate to large amounts of opioid pain medication. Fentanyl belongs to a class of drugs known as opioid (narcotic) analgesics. It works in the brain to change how your body feels and responds to pain. This medication should not be used to relieve mild or short-term pain (such as due to headache/migraine, dental procedures, surgery).   FDA Approval Date: 1998-11-04 (Sources: U.S. Centers for Medicare Services, FDA)

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