TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Daily Migraines Weight loss...30 pounds in 2 months. Word retrieval issues...minor trouble in conversation remembering what I was talking about...only for first couple of months. Topamax has helped me tremendously! I went from daily migraines since the age of 3...yes 3!!!....to 1 per week. I lost 30 much needed pounds...it has changed my life! I didn't like feeling like I couldn't think of a word from time to time..but big freakin' deal...beats going to the emergency all the time to be druged up for 24 hours. I also take Imitrex injections...which I was giving myself at least 4 times per week...VERY bad for YOU!!! Not everyone has the horrible side effects listed one this site...some have none...some are just minor. You have to try it to see if it's for you. F 29 1 days
10/31/2007
 5  Migraines Weight loss, intermittent tingling and numbness in toes, change in taste of carbonated beverages, mild occasional eye twitch. My neurologist is my new best friend--I went from 2-3 migraines a week to 1-2 a month. Also love the weight loss; I've lost 20 pounds so far, and still losing, on 200 mg. Seems to affect my perception of fullness, hunger, and cravings, which is great--eliminates most need for willpower. F 30 2 months
11/6/2007
 5  migraines/seizures little tingling in fingers and toes lost five pounds in a month so far. No headaches, no seizures, and greatly reduced pms. I love this drug. 50 mgs at night. A little tired during the afternoon, but I just have a cafe latte if I need it around lunch time. I've taken topomax before, higher doses (100mg or more) caused a rash and hair loss for me.Reduced the dose to 75, then to 50, then stopped for several months. Started again at 25, very slowly, over several weeks moved to 50 mgs every night for about eight weeks now. No side effects, other than some fatigue and tingling, which I feel is helped with additional B-complex vitamins. Topamax is a great drug for me. No headaches, and no more "deja-vu/seizures". The smaller dose seems to work very well to control headaches/seizures, without all the side effects. Have tried all the others - neurontin, gab, teg, zon, everything - was having six seizures a day (dej-vu's) 2-3 headaches a week, especially near period, Topamax was the ONLY thing that worked, but those sid F 46 2 months
11/3/2007
 5  Trigeminal Neuraligia AND Migraine Early--tingling hands and feet, fuzzy, severe depression first 8 weeks. Tired. Some hair loss and finger nails look strange, at times aphasia and confusion when spelling (generally if I am tired) I am generally very good at spelling and this has been the most odd symptom of all! I went from 50 mg. twice a day to 200 mg twice a day. While some symptoms have been difficult it has been most effective in controlling very severe and disabling pain. I believed in time the depression would lift and indeed, it did, as hard as it was. Living without the horrendous pain is a gift and I understand there may be some things I may have to exchange. I laugh about the loss of words and try and keep a sense of humor. I pray it continues to work well for me without serious side effects that would cause me to have to d/c the medication and require surgery. F 50 20 months
11/5/2007
 5  severe frequent migraines weight loss, which is ok since I gained weight on other migraine preventives, soda tastes funny, but that's ok, who needs it? I don't know if I have any cognitive side effects because I already have them from hypothyroidism, so it's hard to tell if I've gotten worse. I love this drug. I'm so glad I don't have any major side effects because so far there has been no other preventive that works for my migraines, and in some years I have had them daily. Once, on depakote I was gaining 10 lbs a month, and still getting migraines several times a week. I get menstrual migraines in addition to 'regular' migraines the rest of the month, and I'm too old to use the year round birth control pill to prevent those. So far, topamax is my best option. F 45 1 years
11/18/2007
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 5  Migraines Insomnia is the biggest side effect for me. Tingling in toes and fingers, mild hair loss which stopped *AFTER INCREASING VITAMIN B INTAKE*, occasional diarrhea, trouble coming up with the "right words", cognitive difficulties. I get hormonal migraines, and Topamax has made a world of difference for me! I used to get severe migraines, and now I might get one once every other month, and they're less intense. The biggest issue I have now is the insomnia. I take 100 mg in the a.m. to avoid sleeping issues, which has worked for over a year. But due to increased headaches my doctor just increased the dose by 25 mg which I have to take in the afternoon, and now I'm averaging 3 hours sleep a night... other than that, I love Topamax! F 48 14 months
12/18/2007
 5  migraines, bipolar, addiction, weig good sleep, increased appietite The comments on this site had me so afraid I almost missed a great thing! I couldn't imagine getting any stupider then I already was. I finally got the nerve up to take 25 mg. Didn't feel a thing. Had to take 50 mg. Got tired. Slept good that night and had better mood, clearer thoughts, all around better. Called Dr. upped to 75 still not at max dose. Just hoping Dr. won't stop right before the miracle because I can tell this is the drug for me. Except the weightloss thing. Taken the obession of alcohol and drugs away. Lifted the haze of depression slightly for the first time since I don't know when. I feel sorry for those who have such bad side effects. F 39 4 days
12/21/2007
 5  Migraine Headaches Dry mouth, so I just make sure I drink more water. Occasional tingling in feet. I am really glad to be on Topaxmax. I take 25 mg 3x a day. I had tried practically every prescription drug out there for migraines and nothing helped and I was getting them more frequently (3-4 a month)and missing a lot of work. When I get migraines, they start with blind spots, in one eye (TERRIBLE pain), then my head feels like it is ready to explode, then comes nausea, etc. At my insistence, I had an MRI which revealed that I had six small white spots on my brain (equivalent to small mini strokes)which was a big surprise to both me & my doctor. Fortunately there has been no previous/permanent damage done to my brain. Doctor said that I will be on Topaxma for the rest of my life. That is fine with me. A friend of mine became permanently blind in one eye after she had a migraine. Of course, I would not want to take that chance of becoming permanently blind, since I do get the blind spots and the intense pain with my migraines and also the possibility that one more migraine could h F 52 3 months
12/30/2007
 5  Chronic Daily Migraines Tingling in hands and feet. Slight drowsiness. Both of these symptoms subsided after a couple weeks. I started Topamax at 25mg and was increased to 50mg, then to 75mg, finally to 100mg (50 in morning/50 in evening). When I was taking 75mg all at once in the evening...the next morning I would wake up with pins and needles in my hands and feet. Once my dose was adjusted again, this went away. Topamax has changed my life. I went from having a constant daily migraine to only having one every several months, and it's always triggered by something I can't control (usually weather). I say that's a TREMENDOUS improvement! :) F 25 18 months
1/2/2008
 5  Partial seizures Continuous thirst. Heat intolerance. Eye strain. May need to consider changing job, but as the drug at lowest dose of 15 mg sprinkle formulation controls my seizures, I am happy to make those changes. I can still compete in road running/cross country At lowest dose possible, I am pleased with this. Concerns if having to up the dose......would rather make other life changes than do this. F 50 3 months
1/7/2008
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 5  Migraine Soda tastes flat. Weight loss (40 lbs). Occasional tingling in my hands and in feet. Memory Loss - hard to recall words... always on the tip of the tongue. This medicine changed my life! I used to get 2-3 migraines a week. I am now down to 1-2 a month and even they aren't debilitating anymore. I am a totally new person. F 33 1 years
1/14/2008
 5  alcohol abuse tingling in feet and hands, very tired for first few weeks, strange taste in mouth, slight mental confusion that I noticed a few times. This was a miracle drug for me. Started at 25mg and slowly dosed up to 150mg and then back down over a 12 week period. Almost from the first day, my desire to drink (and smoke) completely disappeared. No cravings or thoughts about drinking. It just went out of my brain.... At the end of the day I wanted a cup of tea instead of a bottle of wine. The only thing better would have been weight loss...but I didn't have any. oh well. F 50 12 days
1/8/2008
 5  MIGRAINES tingling at first, brain fog, mixed up words, weight loss, nausea with increased dose, carbonated beverages tasted bad in beginning I started off with 25mg about 2 years ago and gradually increased to 50 and Im now up to 100mg in the morning and 200mg at night. It has been a wonder drug for me! I occassionally have a migraine about once or twice every month or two...usually due too something beyond my control (weather). Topamax has been my lifesaver. Yes, it has a few side effects at first but they subside. I do have my moments where I feel like I cant get out what Im trying to say, but thats pretty much it. I only lost like 7 or 8 lbs. Went from 135 to 128. It has helped me SO MUCH! I went from having a migraine everyday of my life to once or twice a month. It has helped me have a "normal" life. I thought at one time I was gonna have to quit my job bc of my migraines and topamax has helped me to get through my everyday life!!! F 28 2 years
1/21/2008
 5  mood disorder migraine slowed thinking, tingling, thirsty, weight loss. I was on Topamax for a year and a half before. I lost almost 40 pounds and was able to be myself. I was not bogged down by the misery of my mood disorder. I have gotten back on Topamax after alomst a year of not being on it, and it's amazing to me to see the differenc it makes in my life. I am willing to live with the few annoyances so that I can enjoy a fulfilling life. F 28 2 weeks
1/28/2008
 5  seizures Haven't had a seizure in almost 3 years. Tried 4 different medications, and this one was the only one that seemed to work. Side effects include fatigue, and word finding. F 51 3 years
2/28/2007
 5  Migraine weight-loss I started Topamax after being on a series of medications that caused weight gain, dry mouth, nausea, and fatigue. Topamax changed my life by eliminating the side effects that I had been dealing with and reducing the frequency of migraines. When I started on the medication I had a continual headache for over a year and weekly migraines. I now have 3-4 migraines a year. F 25 6 years
5/6/2007
 5  Occular Migraines Decrease of sexual desire, tingling in hands and feet, numbness in hands this stuff is god's gift. occular migraines are about as odd as you can get. for no reason i go blind for about 10 min. sounds like fun ehh??? topamax is great!! F 26 8 months
3/6/2007
 5  Migraines Tingling in hands,feet and lips. Loss of appetite. All carbonated beverages tastes flat. Occasional blurred vision No more Migrianes and that's all that matters. I had a few mirgaines when I was on the 25-75mg but now that I am on the 100 mg I have not had a migraine and I feel great. F 27 5 weeks
3/6/2007
 5  Migraine 3 xs a month Tingling in hands, feet and face. Can not spell. Memory loss. Not hungry ever. Pop taste nasty. I am the world's biggest motor mouth and I don't try to speak anymore, because I forget what I am saying. But it is getting better. Typing is a issue also. :) Wake up every 2 hours at night. I have had migrines since I was 9 years old. I black out with my migrines. Not fun going to the hospital all the time. I have had 1 headache not a migraine in 6 months. In my opinion that benifit out weighs all the side effects I have had on Topamax. I do have to force myself to eat I have lost 38 lbs. I am 5'5 and now weigh 112 lbs. The weight has been the hardest for me. I and now taking and staying at 200 mg a day 100 in morning and 100 at night. And HAPPY TO SAY MIGRAINE FREE!!! F 32 6 months
5/12/2007
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 5  migraines loss of appetite, slight tingling in feet, very slight pain in eyes, thristy, loss of concentration/memory, hair loss. i love topamax. even with the side effects, they werent bad enough compared to how much the migraines were interrupting my life. i had migraines 3 times a week, on average, now i get them once a month or less and the actual pain is much less... about a 3 versus a 10. i dont really even notice the side effects to tell you the truth, unless i have to think about them. topamax is actually improving my grades in school, bc i can go to class more often bc im not home sick with a migraine. F 23 8 months
4/26/2007

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