TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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Results are sorted by Gender with females listed first (reviews with no gender reported listed before females). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | migraines | tingling in fingers and toes, weight loss | cut migraines in half, side effects were minimal glad I took it. I have been on Topamax for 3 years and still on same. | F | 64 | | 1/9/2007 | 5 | migraines | fatigue, weight loss, mild confusion, ZERO APPETITE, tingling in fingers | topamax saved my life. for over 8 months, i would start each beautiful morning with a headache and end my evenings with a headache. i was about ready to jump off a cliff head first. within the first few weeks after taking the topamax, the headaches stopped. the only downfall (for me personally) is the extreme weight loss (for most americans though thats not a problem) but for small/petite girls, losing 15 pounds can make you look borderline anorexic. so if you're a tiny person to begin with, be careful! | F | 19 | 2 months | 1/10/2007 | 5 | PTSD (Post Traumatic Stress) | Weight loss comes and goes. The Brain-less effect seems to stay forever. Have found help with that though. Drink V8 juice daily when going up to counteract potassium block. Also continue to experience hair breaking and shedding--hope bald is in 10 years from now. | Put an almost instant stop to PTSD symptoms. Stupidity drove me crazy until DR put me on Exelon. I'd sugest anyone feeling the same stupidity symt. look into it. The only bad thing is Topamax seems to build up in my system after a while, then I have to take a break. Weird--it's supposed to be in and out. | F | 27 | 3 years | 1/13/2007 | 5 | migraine prophylaxis | altered taste with carbonated drinks, easily lose train of thought (kind of spacy?), tingling in nose and hands when first started med and occ. now, my eye twitches sometimes | this medication is wonderful. i used to have very dabilitating migraines several times a week and had tried everything. within a week of starting topamax, they went away. i have had 6-7 migraines in the last 2 1/2 years. the tingling is a little annoying, and soda is pretty gross, and i don't like feeling lost in my own mind feeling like i know what to say but i can't find it, but i'd take that over another horrible migraine any day!! | F | 23 | 2 years | 9/7/2006 | 5 | migraines | Can't find some words (but I couldn't before, so not a huge deal), decreased appetite, although food tastes the same to me...weight loss of 20 lbs. over 4 months, some of that muscle, ugh. And major HAIR LOSS!!! | I love this stuff, but the hair loss makes me want to cry. I am taking major vitamins now...wish the doctor had mentioned this might happen when I started the med so I could have started the vitamins then. I am also irritated because I took Topamax from July until October and had not one migraine or tension headache (and I had a really bad headache almost every day), and then my 100 mg completely pooped out on me in October. My new neurologist suggested splitting the 100 mg dose into two 50-mg doses, which helped for about 3 weeks, then the headaches returned again. I am now up to 125 mgs. After 150 mgs, he wants to change my med if it stops working, ugh. | F | 30 | 5 months | 12/18/2006 | 5 | Migraines | Tingling in my fingers & hands, word loss, major appetite loss. No longer crave any sweets or chocolates. Carbonated drinks taste very flat. Drowsy after I take the dosage. | I have not had one migraine since. I used to get migraines daily. I am only on 25mg & was supposed to increase to 50 if not working. Since it has worked I have not increased it at all. With the appetite loss i think this drug just makes you eat when you are hungry instead of because it is there. I no longer crave anything at all. The best part of all is that I haven't had a migraine for almost a month. | F | 36 | 1 months | 12/18/2006 | 5 | Migraines | Tiredness, loss of appetite, aggression, tingling in the hands, feet and nose in the first couple of months. I've also lost 15 pounds. | Most of these side effects have gone away for me now that i've gotten used to the medication. It also seemed the more water I drank throughout the day, the less bothersome these side effects were??? I'm now on 100mg taken all at once at night. I started on the sprinkles and moved to the 100mg tablets. I sleep better and have almost no side effects with the 100mg tablets???? I felt like a zombie in the beginning and with the aggression (lasted about a week) I almost stopped taking Topamax but I decided anything was better than constant migraines. I stuck it out and i'm so glad I did because Topamax is a blessing. I have been migraine-free for 4 months now!!! | F | 37 | 4 months | 2/18/2006 | 5 | Weight Loss | Tingling, dropping things, couldn't grip them at all, found out thought it was because i can't mix caffene with Tmax, after it left my system it went away. Dry mouth and I'm finally losing weight! | I was to the point of having weight loss surgery. I went in for a consult and my surgeon noticed I was on Zyprexa, so she sent me to a phychiatrist and he put me on Topamax to wein me off of Zyprexa, well that was On December 15th and this is Feb. 13th, I have lost 21 pounds so far and I haven't even been exercising or dieting. Plus I'm only on 100mg of Tmax. | F | 23 | 2 months | 2/13/2006 | 5 | Migraine prevention | tingling in fingers, some loss in appetite | F | 38 | 60 days | 2/18/2006 | 5 | Complex Migraine Syndrome | Brief tingling in hands / feet - soda tastes somewaht flat, but certainly tolerable. | It took a year, a very long difficult year, for my neurologist to come to the diagnosis of complex migraine syndrome, partly because headaches / migraines were the least of my complaints. I had twitching, numbness and tingling ALL over my body - literally from the top of my head to the tips of my toes, although the body part(s) affected varied day to day. There was also a feeling of tightness around my limbs and / or my face. Major muscles would twitch uncontrollably and then be sore for days. I had vertigo and nausea. I had hand tremors. I had hand, foot and leg “twitches”. I was always tired. The scariest symptom was the leg weakness. And because of all of this I have gained a significant amount of weight. Then came Topamax. Here I am, a mere 3 weeks later and I would say I am 85 - 90% symptom free. I started on 25 mg and increased it to 50mg after a week. My neurologist did give me the option of increasing in again if I’d like but why chance increasing the side e | F | 35 | 3 weeks | 2/20/2006 | 5 | migraines | speech difficulties, confusion, loss or hard to find choice of words to use, diffulty falling asleep, hair loss | I started out taking 25 mg of Topamax increasing to 50 mg. Upon reaching the 50 mg my migraines were under control with Relpax. Then it happened I thought I was having a stroke, my speech was slurred my husband couldn't understand a word I was saying, I had some an episode in the Dr's office. I was out of work for a month, when I was able to return I was stuttering. The neurologist and Family Practice doctor and several other specialist all concluded it may have been the topamax, but I had not reached the optimal dosage. I was taken off the Topamax and have had migraines, rebound migraines, headaches consistently. My life is out of control, I can not even complete activities of daily living. Needless to say, I am now reconsidering taking topamax but under closer supervision, it has been the only medication to control my migraines. My neurologist also recommended botox injection for my migraines as well. | F | 38 | 1 months | 4/20/2006 | 5 | Abscence Seizure & Memory Loss | So far none other then very mild tingling of fingers. Some loss of appetite. The first day was a little strange, e.g. when riding in a car, I felt passing cars were going 150 miles per hour. This is the only distortion I experienced and it was for the first day only. | I was very apprehensive about taking this drug after reading about the side effects. I had not taken any drug for seizure before. For two weeks I've noticed I have more energy during the day, have no trouble sleeping (tho I woke about every 2 hours the first 2 nights). This drug is really helping me. All the possible side effects: brain fog, memory loss, etc..were problems I had unmedicated. I think it is possible Topamax has added something to my psyche that was lacking. I do not feel as depressed and my tendency toward chronic worrying has abated. I am currently on a low dose and may not need more, according to my neurologist. | F | 57 | 14 days | 10/26/2006 | 5 | Severe Migraines | Tingling in fingers and toes, feel really stupid, can't remember the most simple of words. | I had migraines so bad I was in the hospital about three times a month. Then I started taking 100 mg of Topamax a day and I have not been to the hospital since. Although the forgetting everything and inability to remember words is a little annoying it beats getting pumped full of narcotics three times a month. The side effects are a pain but after a couple weeks you just get used to them. | F | 19 | 1 years | 11/24/2006 | 5 | migraine prevention | bad taste with carbonated drinks; inability to recall things such as names of close friends, even when I am talking to them; tingling in hands; weight loss; low libido | I have either gotten use to the taste of carbonated drinks or the bad taste has gone away! The recall factor has gotten better, or I am just finding ways to get around it. I will say I have tried to wean myself off of Topamax a few times, with some not so great results! I gained lots of weight in a short amount of time, and suffered constipation. I even stayed off for 3-4 months and the problems did not go away. I am having some headaches, but not sure if they are related to spinal problems or my migraines. I feel this drug has been well worth the side effects, even though all are not that pleasant. I also still have hormonal headaches, but once a month is better than every day! | F | 41 | 4 years | 11/19/2005 | 5 | Epilepsy & Migraines | Weight loss, decreased appetite, soda tastes odd, slightly euphoric happiness, extremely increased vocablary, return of emotions, inspiration, and creativity. | I've been on Depakote for 3 years previous to this & did not realize how sorrowfully apathetic it had made me until coming off of it. I have had a serious health condition brewing that I was not receiving care for because I simply didn't care! Further, while on Depakote, I had gained an ungodly amount of weight that I couldn't lose for anything. I had lost most of my extensive vocabulary, most of my memory, and most ambition to do anything. In just over 3 weeks on Topamax, I've lost 8 lbs, begun experiencing happiness, anger, lust, sorrow, creativity, inspiration, etc. I've taken up art again. My wit is rapier sharp & my memory had also improved amazingly. I am pretty much the person who I was before I began taking drugs for my condition - just without my condition. | F | 31 | 4 weeks | 11/19/2005 | 5 | Severe Migraines | Initial Drowsiness, Tingling in Fingers, Sodas Taste Flat, Restless Legs, Various Memory Problems. | Before starting Topamax I was experiencing as many as 3 migraines daily. Imitrex was not always working. I was not coping well at all. I have been on Topamax 200 Mgs. going on 5 months now and I experience approximately 1 or 2 at the most migraines at the in a month. I can deal with the side effects just to have my life back. | F | 5 days | 12/11/2005 | 5 | severe & chronic migraines | tingling in feet & hands, loss of some vocabulary, incredible increase in clarity and focus (though sometimes difficulty in finding expressing the clear ideas), voracious increase in sexual desire, occasional fluttering and tingling in eyelids, sometimes fatigue -- though nothing compared to fatigue caused by the migraines, weigh loss. The side effects have been so wonderful. I'm a violinist so the tingling has been the only really negative side effect, and even that isn't so bad. | I am writing here because I want to put down the comments about the sexual desire, because I have read almost nothing about it, and it has been crazy for me. Since starting Topamax, I now have multiple orgasms like crazy, and my sensations during sex seem to be similar to having sex after taking LSD -- my good friend used to take LSD and said my experiences sound similar to his (though of course, to a much lesser extent). I could find almost nothing noted about this, and I think it's important for anybody else who is experiencing this to know they are not perverted, and they are not alone. (I felt a little bit the pervert when this first happened. As a lady, well, I had never experienced anything like this!) It has completely opened my mind, too. I am a voracious reader, and I thinking in such an unclouded way, as if some door in my mind has opened. I used to write, as a teenager. I'm 27 now, and have only had migraines daily for a year and a half. It's been 8 years since I've written, | F | 27 | 2 months | 1/12/2006 | 5 | Severe migraines | Minor tingling in fingers and toes, diet Coke tastes bad now, some fatigue | This is starting to be a wonder drug for me - I've only had 6 migraine attacks in the 2 months I've been taking Topamax (that's a huge improvement for me!), and only 2 migraines since my dose was increased to 100 mg per day. I take Imitrex 100 mg tabs for the big headaches, which didn't used to really work before I started taking Topamax, but now it does work! It's so nice to finally get some relief from these massive headaches that I don't mind the minor side effects from Topamax (diet Coke tastes gross now, and my fingers and toes are a bit tingly, but that's OK!!!). I lost about 5 pounds after starting Topamax (I weigh 120 pounds) and my doctor cautioned me that I have to keep eating (that's another thing - I'm never really hungry any more) so I have to remind myself sometimes to eat 3 times a day... | F | 40 | 2 months | 1/27/2007 | 5 | migraines | for the first 6-8 months - inability to formulate sentences at times, word loss, confusion (big time) and major studdering! tingling fingers and weight loss which was great - about a total of 40 pounds in 2 years. | I had had migraines for years with no relief until Topamax. Which is the only reason I stuck through the side effects as long as I did, and I am so glad I did. I had to take Relpax for breakthrough migraines for almost a year. I now take 100 mgs at night before bed and no longer have any breakthoughs. This med has been great! | F | 29 | 2 years | 10/12/2005 | 5 | Migraines | Pop tastes horrible, almost spicy! Tingling in hands and feet, heartburn, irritability, sleepiness, unable to find words, basically what everyone else is saying! | I would rather take Topamax and feel these minor things, and lose weight, than get migraines 3-4 times a week. It totally took away my headaches! I'm very happy with this medication! | F | 20 | 2 weeks | 10/7/2005 |