TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Satisfaction lowest to highest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Bipolar I get heart palpations and a persistent clearing of the throat that's so annoying I've stopped taking.it I also can't drink soda bc itales.ot.taste flat. This is the 3rd medication tried for my bipolar disorder and will be switching again F 43 20 days
50 mg 2X day
2/13/2024
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 1  Migraine Pervention Tingling of hands and feet, vision problems, extreme anxiety, agitation, intrusive thoughts of harm, chest pain, sweaty hands. Even after two years of being off medication is still experiencing all symptoms except tingling of hands and feet and vision problems. This should not be prescribed to someone that has underlying anxiety and OCD. My son's life has been ruined. Horrible for a mother to witness her son with these life altering symptoms that no one can fix. M 25 3 weeks
25 1X day
8/30/2023
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 1  migraine prevention by week 3 having lot of sadness and irritability. Felt uncomfortable emotionally. F 37 3 weeks
25 1X day
8/21/2023
 1  Depression 50%+ loss of hair! Did NOTHING for my depression. This drug in my opinion should be taken OFF THE MARKET! Pure poison! F 48 48 days
40 mg 1X day
5/14/2023
 1  Doctor prescribed Tingling in toes and fingers, finding it hard to come up with everyday words and spell them, racey heart, feeling like someone was behind me, not sure of my steps on stairs - overall creapy! My new doctor put me on this because he took me off a beta blocker that kept my migraines away until I got cancer. It was given to me as a preventative. F 59 5 days
50 mg 1X day
3/15/2023
 1  Migraines Developed severe stomach pain that took a negative MRI, colonoscopy, gallbladder scan to figure out it was the topamax. Be careful with long term use F 61 3 years
50 2X day
1/12/2023
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 1  seizure disorder Horrible gastric problems: nausea, diarrhea all the time. Total loss of motivation. I was supposed to be ramping up to 250 mg, but never got past 100. It felt like the drug was reorganizing my intestines, and not in a good way. The diarrhea went away about 2 weeks after I took my last dose. I barely ate anything the whole time i was on it, to control the diarrhea. Also, the loss of motivation: I've never experienced anything like that. I sat on the bed for 3 weeks staring at the ceiling, and that was all I could do. I am a self-employed artist and normally I don't sit down much during the day. The motivation has come back, thank heavens, and my mood improves the longer I am off it. I was trying to replace Keppra with topomax, but nope. This was a really frightening drug for me. F 62 25 days
100 mg 1X day
5/23/2022
 1  Weight loss THIS DRUG IS POISON! I have been on it twice and the first time it worked great. I lost 90 pounds (in combination with phentermine), then the weight loss leveled off so I quit. Several years later (2022) I tried it again and it didn't do anything so I decided to quit again. While I was on the drug I didn't really notice many side effects except for maybe slight depression, but let me tell you, coming off it is a NIGHTMARE, even if you do it slowly, like I did. Both times I suffered days of tachycardia, irregular heartbeat, emotional lability, night sweats, and more. I even went to the hospital on one occasion for palpitations and suspected dehydration, and I was so dry they couldn't even get any blood out of me after 7 sticks and couldn't get an IV going. Fortunately, the withdrawals seem to be short-lived and diminished greatly by the 3rd day off the medicine. I am writing this here to remind myself never to take this evil pill again!! F 58 10 days
25 mg 1X day
4/7/2022
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 1  Trigeminal Neuralgia I lost three of my longtime friends because I said something that I don't even remember. Became paranoid and thought I was becoming assertive when in actuality I was being aggressive. Horrible and changed my life forever. I got off the med and am better except I miss my friends so much and can never get that back. F 72 1 months
50mg 1X day
4/4/2022
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 1  Weight loss While on topiramate- suicidal thoughts, easily angered, drowsiness, confusion, felt stupid, irritability, carbonated drinks taste flat, no appetite, frequent urination. Once off Topiramate- body aches, chills, cold feet, tingling in hands, feet, random parts of my body. Neck and back tension, eye pain, heart palpitations, anxiety, shaking, slight headache, & itching! This medicine drove me to want to kill myself and be snappy with my babies so I quit cold turkey. I've been off for 4 days and I'm still having drowsiness(not as extreme) and all the above it's scary! I thought something was happening to me I was going to go to the er until I looked up withdrawal symptoms! F 24 7 days
50 mg 1X day
11/19/2021
 1  Migraines Personality Disorders, Compulsive Decluttering as in throwing everything not nailed down out. Anorexia, suicidal thoughts, self hatered, PTSD triggering, inability to function emotionally healthy. Very bad with motor skills, thoughts & speech impediment. How is this stuff legal? Hair loss. Massive night sweats, brain fog, loss of intellectual ability. Loss of any beautiful thing in my life & personality. Should have a black box warning! Extremely dangerous. F 50 10 months
75 2X day
10/31/2021
 1  Migraines numbness, burning, or tingling in the hands or feet slowed reactions nervousness headache drowsiness weakness uncontrollable shaking of a part of the body uncontrollable eye movements weight loss constipation brain not signaling your body to do something change in ability to taste food dry mouth teary or dry eyes back, muscle, leg, or bone pain missed menstrual period blurred vision loss of vision double vision feeling cold, chills, or low body temperature difficulty concentrating speech problems, especially difficulty thinking of specific words word recall confusion memory problems loss of coordination pounding or irregular heartbeat chest pain shortness of breath trouble breathing fast, shallow breathing inability to respond to things around you excessive tiredness diarrhea nausea vomiting stomach pain loss of appetite intense back or side pain cloudy, or foul-smelling urine sexual dysfunction major Cognitive issues organizing thoughts what order to do things in I've told numerous doctors that my current symptoms are caused from 25 years of taking Topamax 200mg a day as a preventive for migraines . Not one Doctor listened to me that Topamax caused all this to my body. I was diagnosed with Chronic Fatigue Syndrome at age 19 and chronic migraines , Today Neuropathy, Fibromyalgia, Rheumatoid Arthritis, ADHD, Depression and Anxiety , Sinusitis , Chronic IBS, and many others issues I'm grateful it could be a lot worse . sensitivity to environmental noise, smells ,light Ringing in ears ,changes in vision depth perception F 50 25 years
200 MG 1X day
6/12/2021
 1   Severe Rash . Large Hives, Trouble Breathing requiring ER treatment with IV solumedrol . Would not recommend to anyone. M 68 7 days
1X day
6/3/2021
 1  Migraine auora DO. NOT. UNDER. ANY. CIRCUMSTANCE. EVER. TAKE. THIS. DRUG. Look at the science behind it, first. Awful side effects. I experience panic attacks for the first time and I can never go back from them even though I am not on the medication anymore. Severe anxiety, depression to the point that I was almost suicidal, I thought I was going crazy, confusion and more confusion, losing words midsentence, couldn't think of anything to do for work when previously I could write down a whole long list of tasks to get done, brain fog. I must have the worst neurologist on the planet because I specifically told her that I would not take a medication with ANY cognitive side effects. And she said the ONLY Side effect from this rug would be tingling fingers. She downplayed the side effects so much that I didn't even look them up before taking the medication only to think I was going absolutely insane a month later. After a month I looked up the side effects and realized just how extreme they are. I am considering a lawsuit. She gave me these so that I would be able to start running again without having a migraine. But the problem is that this medication takes away my ability to find enjoyment in anything. I haven't even had the desire to go running or even step foot outside because I've been so depressed, my personality is completely gone. I hate pharmaceuticals and I hate neurologists that prescribe them Please contact me if you have any concerns about this medication I am happy to talk to anyone about them F 30 44 days
25 mg 1X day
2/26/2021
 1  Migraine This drug TOPIRAMATE is horrible I only took it for 3 weeks 25 MG once a day to prevent migraine, The side effects are horrible I thought I was going crazy. once I lost the coordination of my legs. He had no strength at all. short breath, blurred vision, blank mind speech problems I still have problems and muddle the words this this is horrible. now I switch to propranolol 20Mg once a day and I'm better, although these pills make my eyesight blurry. I plan to take only half. PLEASE STAY AWAY FROM TOPIRAMATE Worst medication ever M 36 21 days
25 MG 1X day
11/22/2020
 1  Mood stabilizer Was hypo maniac for a year. Then went into major depression. Very dangerous drug! F 60 0 days
1X day
11/6/2020
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 1  seizure disorder Brain fog, limb dysphoria (feeling like my limbs were floating away,) tingling, numbness, breast pain, cognitive recall impairment, it seriously felt like a bad acid trip from the 70s! I will not touch this stuff ever again. If you don't experience the side effects, this may be a great medication, but the side effects were bizarre and disturbing for me. I cannot take it and have it listed as a drug I am allergic to, just so it is never given to me by accident. F 57 10 days
2X day
11/4/2020
Email
 1  weight loss my doctor put me on this drug to lose weight. the side effects did not start getting bad until around month 9. but before month 9 i experienced pins and needs, brain fog, forgetfulness. i did lose 92 pounds while on the drug. i had to stop it because my legs would burn and go numb. i quit taking it cold turkey, which you are not supposed to do. i stopped it because of the intenseness of the burning and numbing. it also made my anxiety sky rocket. i have been off of it for about a week and half. and now my feet get extremely cold. i am not sure if this is a withdrawal symptom or if i have something else going on. if anyone has experience this can you please email me. M 22 10 months
100 2X day
10/29/2020
Email
 1  Borderline Personality disorder Loss of cognitive function Migraines Insomnia Tingling/numbness in hands Double/blurred Vision Extreme suicidal ideation I started the first week at 50 mg and the second week went up to 100mg, the third week I was supposed to go up to 300mg but on the first day of that week with the first dose I had a complete break. The weeks leading up I had increased anxiety, dramatically increased depression, my mood swings became more irrational and erratic than ever. Around the second week I started to hear voices in my head telling me to kill myself. I did not want this. By the end of week 2 the voices were screaming at me to kill myself. The last day, (first day of week 3) I was admitted to the hospital, taken off the drug and after my first hours of drug induced sleep, so roughly 12 hours later, my symptoms dissipated by 75% then without taking the medicine for 24 hours disappeared completely. I am in total disbelief that this drug is prescribed for people with mental health issues... it seems very dangerous. F 39 2 weeks
100 mg 2X day
10/23/2020
Email
 1  Migraine Confusion, Brain fog, decreased appetite, lethargy, anxious, word retrieval. Prescribed for migraine with aura.First week was 25mg.then second week was 100mg. I have existing cognitive impairments from a stroke such as aphasia,confusion,word retrieval and brain fog but it is manageable and I have adjusted to it's limitations over the past two years...Taking Topamax for 14 days turned me into a cognitive Zombie with the side effects I listed above to the degree that I literally existed with the memory of a goldfish for 14 days in a state of confusion. On top of that my appetite disappeared completely, I had to force myself to eat one small sandwich a day and I'm a 6ft. 220lb.man. Needless to say,I have weaned myself off this drug and will caution others to be very self aware of it's effects on their body when taking it. M 53 14 days
10/9/2020
  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

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