Drug Ratings for TOPAMAX

Average Rating: 3.1 (1584 Ratings)

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5=HIGH (this medicine cured me or helped me a great deal.)   

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    Charts & graphs: Reviews Summary for TOPAMAX  | Top 10 Adverse Effects (reported to FDA)

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 4  Migraines Tension headaches Cluster The first night I took this I had tingling in my lips and since then the tingling, which has been mild, is diffuse and likes to roam. Last night it was all over but originated from my hips and butt! It was weird but not painful or particularly distracting. I have fibromyalgia & CFS, so I have headaches daily and my migraine triggers have increased, so I started this med because I really needed relief from the constant pain in my head, it was a quality of life thing. I have had word recall issues but I already get that with the fibro fog so it's not unfamiliar and I've learned how to deal. Ive lost about 5lbs and food does not appeal to me. I already had a lot of fatigue and haven't noticed an increase. I am sleeping better, which is really awesome. I am feeling more level emotionally but when I get overwhelmed (which I attribute to the fibro, it's a CNS thing) I'm quicker to snap. I haven't noticed any lack of sexual desire, thank god, so many of the meds I've tried made me dead inside and that's a deal breaker. A little tingling and numbness is no biggie considering the chronic pain I'm already in, I did get a moment of pins and needles, but I was sitting funny and I repositioned and it eventually went away. The weight loss is an added perk since I gained 25lbs back in 2011 on lyrica and haven't been able to lose it, like it totally killed my metabolism. I haven't had any weird thoughts like I did with the lyrica or cymbalta, which both caused psychotic breaks and suicidial ideation. I've had one migraine on the day I got my menses and it wasn't as bad as it could've been and I've had one tension headache since beginning this med & I took the fioricet to calm it down. I am considering trirating up to 50mg daily to see if I can't get rid of the hormonal migraines altogether, but I don't want to mess up a good thing. So many people seem to have such bad reactions on this med and for once, I'm not one of them! I will update in a few months, but right now I am very happy with this med and how it's helping me function a little better F 39 10 days
 2  Occasional Complex Migraine Until I started taking Topamax I had been a relatively "normal" person except that I got several complex migraines per year (aura, scotoma, etc but no pain). Neurologist put me on Topamax with promises it was a wonder drug. Since then I've been "foggy", twitchy, anxious, sort of dulled personality. Some forgetfulness. Feelings of hopelessness but no thoughts of suicide or anything like that. No joy in anything. Somewhat forgetful now, but sometimes my head floods with memories that I didn't actively attempt to recall. Noticed muscle aches which may be from tension - wife noted that I was sitting very rigidly in chair. GP did blood tests the other day, creatinine levels elevated since I started taking this stuff. Hope Topamax hasn't trashed my kidneys. Shame because I was managing my migraines well with simple aspirin and magnesium supplements. M 58 2 months
50mg 2X D
 1  Migraine 1st week: 25 mg /day: tingling in fingers and lips. 2nd week: 50 mg/day: additional major concentration issues and fogginess in the mind After realizing that my loss of concentration (which was greatly affecting my job) was likely due to Topamax, I asked my doctor the best way to get off this medicine (as I read a cold stop could cause seizures). His instructions were to up my dosage and the side effects would eventually subside. I didn't relent and have now been off the medicine for 3 days. My mind has returned to normal and the other side effects have subsided. This trade -- side effects for headaches was not worth it. The dramatic shift in my life I could see coming from the side effects did not seem to warrant the benefit of less migraines. Side effects this severe are serious considerations to take into account before starting this medicine and I know my doctor did not have any discussion with me about the possibilities I experienced. I didn't even achieve the desired dose of 100mg I was yet to work up to. M 40 2 weeks
50 mg 1X D

 2  myoclonic jerks Medicine stopped clonic jerks but is continuing almost 50 lb. weight loss despite trying to stop it. SEVERE MUSCLE WEAKNESSS, LOSS and FATIGUE that is continuing to get worse almost daily!!!!! Very very scary!!!! Initial hair loss and personality change, brain fog. Those lifted but do feel more "flat." Very concerned about buzzing feeling throughout my body and the shortness of breath and fatigue. Pins and needles in arms and legs. Hate being on the drug. F 52 1 years
125 mgs
 2  Daily headaches/ migraines First, Topiramate works like gangbusters to get rid of my daily headaches. Like 95%. But.... THIS DRUG IS TOXIC! Everything you've read: severe cognitive impairment, say goodbye to your memory, extreme sedation, I also have daily nausea so need additional sedating meds for that plus sea bands. Topiramate is also used as a mood stabilizer so for me, anyway, there is a severe dulling of emotions - I guess it makes me not care as much that I can barely hold a conversation, or remember what I did yesterday. Thank god I haven't been fired yet as I've explained the situation to my supervisor. But it's dumb and dumber all day then drag myself home, plop on the couch, exhausted from the drug. Life not too much improved! I've also taken generic Pamelor which didn't do much for my headaches but I had some minor psych issues such as suicidal ideation, anxiety, and depression. I'm ready for headache drug #3 F 48 3 months

 3  Chronic Migraines Slight weight loss, hair loss, loss of vision in one eye, memory loss Absolutely worked with prevention of my daily migraines, as I am now off it and getting them everyday again. But I would routinely lose vision in my left eye (scary!), and lost about 1/3 of my hair. I also ended up with kidney stones for the first time in my life. Side effects were too much for me, so I deal with my headaches by taking Imitrex. Gained 10 lbs back. F 38 8 months

 3  Seizures, migraines, Epilepsy Nausea, stomach cramping, weight loss, memory loss, agitation, emotional, tired, chills, sinus problems, always cold. Food is repulsive to me and sweets are overwhelmingly all I seem to want. But my head aches have seemed to be diminishing as my anxiety is rising. I get tremors like my handshake more now then they ever have which is just a side effect of my neurological disorder and I've been through many meds so I really don't know what the answer is. 6 years ago I had a VNS implanted for seizures and tried to do homeopathic remedies to get off the poisons of anti epileptic poisons but that is no longer working and my seizures and head aches are back and here I sit back on meds in this twisted guinie pig game with my neurologist at my expense feeling crummier with no answers. You have to out way the good and bad they say. No seizures and headaches they say. But lots of other side effects they don't say. They just hand you a 50 page book and a bottle of pills and say hope you feel better. F 39 10 days
200 mg er
 4  Borderline Personality Disorder Loss of all destructive impulsive desires (good), loss of suicidal thoughts (good), severe loss of appetite and weight (depends on how you look at it), pop tastes flat and poisonous (bad), worsens depression and weeping (bad), (maybe) heightens anxiety, makes finding talking, writing and remembering the right words difficult (and I'm a professional writer), drains away all sense of joy (very very bad). This works great as an off-label impulse control medication for personality disorders. It helps me stave off alcohol cravings and keeps me from acting out by cutting, over-spending, or engaging in any other kinds of reckless behavior when I'm trying to soothe anxiety. However, it also completely knocks out all feelings of joy altogether, which worsens depression. I'm looking for something to couple this with, or else I might have to ditch it altogether. F 28 2 weeks
100mg 1X D
 5  Bulimia Temporary loss of critical thinking skills, temporary loss of extended vocabulary, tingling in extremities, loss of appetite. The cognitive side effects were temporary and affected my work but I bluffed and fortunately went out of town and had a sinus infection within the first 10 days on the drug so I played it off nicely. I feel like I am back to about 85% of my pre-Topamax intelligence. I am more than effective at that level. The positives outweigh the negatives. I have not binged and purged one time since I have been on this medication. I suspect it must act on the addiction response center in the brain because my pesky other bad habits have lessened in my time on this med (nail biting, over shopping, over dating, etc.) The weight loss leveled off as well and I stabilized at a healthy weight. Overall I am satisfied. F 34 1 years

 5  Migraine Works beautifully. Was having 12 blinding migraines months. Some leading to ER visits. I had been to all kinds of specialists and no help. I also lost 40 lbs. which was nice. I really didn't care about that. This drug have me my life back. I have an occasional break through headache once a year, but they are very full and I'm sure it is due to the Topamax! Thank you! F 54 5 years
200mg 2day

 4  Migraine If for any reason I forgot to take its like a major hangover. A day of hell until I take and it gets back into system. Levels out. It has been controlling migraines so happy. What its doing to my inners with immune issues well different story. F 46 6 years
 3  Migraines Weight loss, hair loss!! This medicine worked great for me as a preventative for my migraines. I lost a little weight which was nice also. However, my hair started falling out and breaking off rapidly after about 6 months of taking it. It didnt occur to me that it was because of topamax until I googled side effects. I lost about 1/3 of my hair and it continued to fall out after I stopped taking it. It wasnt worth it! F 25 1 years

 3  Migraines Before the medication I was getting migraines daily. I would be in my room with the blinds drawn, lights off, laying down in front of the fan, puking with ice on my head with no relief even with my primary care doctors medication. Once I started the medication and the dose got up to 100mg I noticed relief. However the side affects I noticed as well such as the carbonated drinks-- which was fine, I don't care to give that up but the other side affects I did not even know were possible. I would overheat in shorts in a tee-shirt with ice on my neck in 68 degrees inside a house. I have had eye damage since I started this medication and I am a type 1 Diabetic-- that is a huge problem for me and this is a very common (1 out of every 500) issue with this medication. The weight loss didn't bother me at first. In the first 8 weeks I lost pounds and I thought I had stopped losing weight but I weighed myself again today, and I have lost another 5 pounds-- I find this really alarming, I can't cont Be careful. I realized after taking it and not sleeping for over a month (my doctor told me to take it at night, the idiot) take it in the morning if you want to sleep at night! F 23 3 months
100MG 1X D

 5  Migraines Severe tingling in the feet and hands. Memory loss and speech slip ups all the time. Also severe stomach aches. Used to get migraines 7x a week after bad car accident and now I can easily go a day without it. If i do, I just double up with relpax and I'm good to go. Though the weight loss is fast so make sure you get food in when you can. F 22 5 months
100 MG 1X D
 5  Migraines/Arteriovenous malformatio This is my second time being prescribed topamax. It has helped me tremendously with my migraines. I went from 5+ migraines a week to an average on 2 or less a month. It is amazing! Most bothersome side effect the first go round was I lost 50+ pounds in about 6 months which really killed my energy. I just wasn't eating enough. The appetite was a problem. After about 3 months of being off the meds my migraines were back up to 5+ a week so I began taking it again about 2 months ago. I have not been losing weight this time. But I am having this tingling in my lips and chin area and twitching in my fingers. The good definitely out weighs the bad! It helps me!! F 30 3 years
 2  migraines I haven't been on it long but I feel like a different person. My memory is so poor I have been passing my street on my way home from work. I am very clumsy and super fatigued. At this point, I am still taking otc meds to control my headaches. I am hopeful it will get better. F 28 10 days
25mg 2x
 2  tbi Still had severe migrains and had neck stiffness bones in my back and shoulders crack. Lower back pain F 49 2 years

 1  Migraines Excruciating neck pain and stiffness. My shoulder is also killing me. My upper spine is literally freezing up. I've never had a drug have this severe kind of effect on me. I have a metallic taste in my mouth. I can't turn my head without yelping in pain. I stopped taking it. I think it is a very dangerous drug for off-label use. F 49 10 days
25 MG

 1  Intracranial hypertension Doubling of headache pain, extreme eye pain back of eyes, some tingling in feet, visual disturbance - pulse shynchrinous image of veins in visual field, turned in to a freaking zombie, words refused to come out would just stand there unable to respond to questions, excessive urination, BONE COLD clammy forehead has lasted over 6 months since stopping meds still wearing wear hat 24/7/365. I know it works for some people but this is an evil drug and should be controlled more. I just got a shunt after 26 years of begging kicking and screaming, it is set a tad low, hopefully a setting change will sort it and it will stop the high pressure headaches (sorry migraines if you believe my old doctors) for as long as it functions, hard op, but so worth it. F 31 6 days
25mg 1X D
 1  migraines people have covered this pretty well. The most bothersome this was the memory and just feeling a little dumber overall. Be extremely careful with this drug. I had been on it for several years. One day I was driving and lost consciousness. I don't know if it was some kind of seizure or what but I have no memory of what happened. I was on no other drugs and had no history of anything like this. Anyways long story short, I woke up in the hospital. I was was pretty beat up with broken bones and such, but turns out I had caused an accident that caused someone to become severely hurt. They took me to court and I'm basically financially ruined. This drug is serious stuff and I blame it completely for my accident. PLEASE BE CAREFUL IF YOU DRIVE ON THIS POISON M 30 3 years
150 2X D

 1  Migraines Started at 25mg at night. First night ringing in the ears started with a horrible migraine. Second night couldn't sleep and I already suffer from chronic insomnia. Driving home from work I almost hit a car because I was zoned out. My hands are freezing, I feel feverish, and my head is pounding....after only 2 doses. Tried to drink a Coke tonight, dumped it out. Worst thing I ever drank. I've lost 3 pounds in 2 days. Food is just "blah." Scared to take tonights dose. Don't know what to do. F 43 2 days

 5  Migraines/Mood Swings Some hair loss - comes and goes. Some weight loss without appetite loss, I still eat as much as I ever have. If anything, the only thing I ever want to eat is gobs of sugar and sugary foods! Meat is less appealing. My mood swings have leveled out and my depression has lifted - I feel like my eyes have been opened! Its been wonderful! I was scared of the side effects. But I very slowly worked my way from 16 mg to 25 to 37.5mg to 50. I don't have any issues with memory or brain fog, or feeling dopey - and trust me: I run a business with over 700 clients, so I need to be clear minded at all times. I take this in conjunction with 300 mg of Wellbutrin every day and its been the missing link. My social anxiety is gone, and I feel on top of the world. F 32 2 months
50 Mg 1X D
 5  Bipolar, rap.cycl. Pins needles, some weight loss while already underweight, but this stabelized. Some hair loss, stabelized as well. Much more focused. Finally able to do what I want, feel like I can be myself and enjoy life. I do no longer feel locked up. Am a bit annoyed by all those people who speak so negatively about this drug. Yes, I mix up words too, but that is nothing compared to all the crap that has been keeping me from living a life for years and years. Topamax is the first drug that really makes a difference. I feel like all my creativity inside is no longer locked up. I can do something with it now, and that makes me so happy. My eating disorder and all the other things I needed to control my mood is now slowly leaving me. I do not need it anymore. After 1 pill I never purged Again. I felt stable, and no longer scared for switches. This is indeed a drug with many side effects, but it helps me so much, I feel like I can finally live and be the person I always wanted to be. F 33 20 months
150 1X D

 1  migraines -extreme loss of appetite and weight loss (I was literally never hungry and the thought of food was nauseating- I lost a total of about 40 pounds in two years and at my lowest I was 99lbs and 5'6) -Irritated mood and generally very quick to anger -cognitive functions became very difficult, it was hard to focus and simple things like adding negative numbers became very complicated for me -withdrawal from being weaned off of this drug was the absolute worst thing I have ever experienced This drug ruined my life. Please, please consider any other option first. F 19 2 years
 4  pseudotumor cerebri I would like to start by saying this medication definitely helped the migraines associated with my condistion. However, I've had a lot of side effects. Most of my side effects are when increasing my dose. I have a lot of numbness in my hands and feet. Mostly my fingertips, sometimes to the point that I can't even feel them. I get very nauseous and sometimes can't even look at or smell food. The only thing that helps is orange juice. I have horrible insomnia and sometimes don't sleep for days. I also feel very foggy and have mood swings but that's mostly just around dose changes. My dreams have become very intense and I sometimes have hallucinations at night to the point where I'm unsure if I'm awake or asleep. I know this sounds like a lot but for me it has been worth it because of the excruciating pain I was in. Be sure to consider side effects before you start and weigh out the benefits. F 19 5 months

 4  migranes Very new medication and Ive only noticed an insane thirst in the middle of the night and takes awhile for me to wake up. F 34 2 days

 3  Severe migraines Didn't notice any side effects at 25mg twice a day and I actually felt better on the low dose it was making my migraine frequency better but it did nothing for the severity of my migraines so after one month the doctor had me titrate up to 50 twice a day, noticed some tingling, sleepiness which I welcomed because I have insomnia and I didn't need my ambien for a while, side effects generally wore off except tingliness- in the beginning of June she titrated me up to 100 mg and that caused insane lethargy- granted I have other issues that could cause lethargy so this could just be making it worse, mood swings, caused worse tingling, dizziness, anxiety which I already have bad issues with no need for the drug making things worse, I told my new neuro the of side effects and she felt the need to titrate to 150 x2 anyways she told me if my migraines didn't get better at 150 we would go down, and it made all the symptoms even worse, I called my dr office to tell them I couldn't handle this anymore and I'm awaiting a call from my dr office this week to see what I should do because my appointment is weeks away and I can't wait that long. F 24 5 months
 5  Migraines Tingling Sensation Hands and Feet - Worse in Feet Foggy mental Clarity in the first few weeks Carbonated Drinks taste terrible Loss of sex drive Absoultely no migraines Reading the internet will give Topamax a bad rep but the drug has absolutely changed my life. I was getting 30-40 dizzy spells a day and migraines leaving me bed bound for 3-4 days every couple of weeks. The side effects are uncomfortable at best but have made an incredible difference to my life. F 31 3 months
25MG 4X D
 3  sezuires Take 125mg night find it makes my breathing a bit laboured its day 11 for me so up my dowe tonite to 125 started from 25mg to be honest apart from the breathing thing I mentioned I also feel stoned out of my head and it makes me forget to breathe F 41 1 days
 2  Migraine Blurry vision, horrible metallic taste in mouth, slight rash on forearms after swimming in sunny area, upset stomach- constipation for 6 days then diarrea, feel lousy,did relieve migraine but not worth it F 67 1 months
 1  Migraines I was on this medication to help with my chronic migraines. I had only been on it for 4 days. For the first few days I experienced no side effects, yet I still had a migraine. Then on the 4th day, 10 minutes after taking topamax my tongue began to swell, as well as my throat and jaw. I was having in a hard time breathing and I had to call 911. I could barely talk to call 911 because my tongue was numb. I had to get an injection of Benadryl in order to stop the reaction. I have now been on Benadryl for 4 days and I still feel awful. I can not wait until this drug is no longer in my system!! I am sure this drug works wonders for some people, but please be aware of the possible side effects! F 27 4 days
25MG 1X D

 1  migraines Wish I read more into this dirty drug before taking. Side effects are not fun....blurry vision, foggy mind, tingling in lower legs and feet, constant cold feet, neck aches, decrease in appetite (only good thing), urinating often, agitation, irritability,....there's gotta be something else out there for migraines...I would seriously only consider this med for epilepsy only!!!! F 30 2 weeks
50 mg

 5  Migraines Weight loss 20lbs in first 6 months then stabilized, tingly hands/feet for first 3 months, memory problems. Good: 15 year hx migraines tapered from daily to weekly to once a month then stopped completely. I stopped topamax and they have not reoccurred in 3 months. Regained 5-10lbs F 30 2 years

 5  I'm taking topamax for seizures This medicine works great for me, my only problem is the side effects. It interferes with my speech, my memory and my nerves. Therefore it intereferes with my job. It's to the point where I feel like I can't work anymore. When I'm at work or in public I feel like everyone is watching me I'm always nervous. F 29 4 years
 4  Epilepsy Dry mouth, Short term memory failure, loss of concentration/words through mid sentence, feeling Dumb, insomnia, lower back pain, cold feet, loss of appetite, serious nasal congestion,and acne issues. After being on this medication for many years now, it has controlled my seizures for all those years, but it came with a price and that is the side effects. But after all the seizures I had to deal with before, it was worth it. M 48 4 years
300mg 2X D

 2  Epilepsy Squeezing head, migraine, foggy, back spasms F 32 1 days
25 mg 1X D

 4  Mood Stabilizee PARETHESIA (tingling of fingers and toes-I'm a hair dresser, very BOTHERSOME!) ZERO APPETITE (I would rather not have food in my home. I am obsessed with WATER, it is ALL I want. Not even close to kidding. If I eat it's because A. I MAY vomit B. Someone makes me. WEIGHTLOSS(RARE cases would you Gain weight anyway; however lack of appetite, my huge water intake, no soda ect... THINGS I'VE NOTICED: 1. No serious side effects if you slowly up your dose. I STARTED at 25, now at 200. 2. It is WORKING as a MOOD STABILIZER 200mg, combined with 300mg bupropion sr. 3. (I went nearly a year without my period and since starting Topamax four months ago, I've had a period every month?? I don't know Why the Fuck that is. I've been irregular my WHOLE life. I should probably report this to someone important lol... 4.You will prooobably cry a lot when your dose changes but give it 1-2 weeks. It DOES work. I have been on EVERY. THING. F 24 4 months
 1   Makes me dumb and dense. It takes a while to get this side effect but eventually it makes me dull. I just get where I can't understand simple things. It effects my work. right now I am cutting back to 100 mg. I am taking it for headaches but my shrink says it helps my Bipolar 2 also. I don't care. It makes me dumb and that effects work and I can't have that. F 53 6 months
200 mg 1X D
 1  Bipolar Disorder/Weight Loss I was extremely agitated and couldn't sleep after one week, so I took it in the mornings. That was also a mistake, because I felt every side effect more profoundly, and most of them were psychiatric. I was so irritated that I was almost homicidal. I was screaming and thought about committing myself. Seriously, too. I only added this med because I thought I'd lose some Weight induced by another med , and believed another mood stabilizer at a low dose couldn't hurt. Wrong. I won't say stay away, because it's beneficial for some, but if irritation starts to come on, it may become 100 times worse rapidly, so be careful! F 46 1 months
 3  Severe migraines I had to discontinue use of this medication even though it was helping my migraines significantly, because I experienced severe vaginal yeast infections. I also experienced weird taste from carbonated beverages, a sensitivity to both alcohol and caffeine, weight loss, nausea, memory loss, dizziness, muscle fatigue, and insomnia. F 31 3 weeks
50 mg

 1  Petit mals, migraine, pseudotumor I began taking Topamax at a low dosage and titrated up to 800mg/day over the course of 2 months. Initially I felt it had some good side effects . . . like evening out my moods, but as I went up in doses, I went through ranges of side effects. At 200mg I felt really REALLY dumb. As I went up and out of 400mg and into the stratosphere with 800mg, started to feel fairly normal, as though my wits had returned. Then the fog rolled in, heavier and darker than ever before. It was forgetting what I was saying in mid-sentence, being unable to basic arithmetic, exacerbated ADD/ADHD, generally disoriented and unable to follow most conversations. . . For several months I was in this state, barely keeping my head above water, and then things began to get really really dark and it scared the crap out of me. My judgement and sense of rationale had become fragmented, I split off from who I normally was with weekly wailing spells, spiritual crises, wondering if I was having what used to be called F 53 9 months
200 4X D

 3  Migraines This did initially help my migraines, but even on high dose they slowly returned. Topamax gave me extreme fatigue, cloudy thinking- especially word retrieval, hair loss, weight loss - which was a +, my main concern was it flattened out my mood to a dull blah nothing. I couldn't seem to get off couch for much- not depressed just no feeling. I took it for a long time and the fatigue and flattening took time- I just quit it after reading more about the drug. Extremely serious side effects from this are possible / no dr not neurologist or internist told me to watch for vision changes- it can cause blindness. I was on high dose, too. Migraines are miserable! I will find another med w/ less serious side effects. I have taken many meds - have chronic illness- but this one scares me a bit. it made me crave sugar like crazy!, too. I am not sure why? Maybe the crushing fatigue? Almost as soon as I stopped I started eating normally again. I got rebound headaches, but they are tapering off. I tapered off this med too over about 2. 5 wks to quit and my legs went numb from the knee down a few times coming off it and I felt cruddy, but it wasn't hard to get off compared to other meds. F 49 3 years
200 mg

 4  Migraines/bipolar/weight loss/pain A little hair loss but that seems to be subsiding. My face breaks out occasionally but even that subsides after a day or two. I feel rather dumb when trying to choose words but other than that I know it's beginning to work for the weight loss and my migraines are almost non existent now. It's great cause I've been fighting migraines all of my adult life. This has helped so much! F 42 2 months
50 mg.
 5  headaches prevention I started on 25 mg then after 2 week went up to 50mg I was feeling confused tired shortbrethe moody n tingles hands feet it stops all my headackes I then went to 25mg ather tgen beong bit sleepy n short brethe nothing else o decided to stop for a week still get short brethe which doc looking on to I no it aint the tabs even on small dose no head ackes n o feel much betsr plus lost bit weight I dont mind F 39 6 months
25 mg
 3  Depression I started with 50MG 2x per day and at first I loved it. It balanced or perhaps numbed my moods, I was losing weight and the other side effects were tolerable at first. I had very thick long hair but noticed I was shedding a bit more. Then over time, my body had gotten used to the drug and my dosage had been increased. I became ridiculously paranoid, irritable and then my hair was falling out in clumps. My weight was rapidly dropping. 8 months later, I had to go off of it. My hair was so thin, you could see my scalp which resulted me to chop it all off. I quickly gained all the weight back when I went off the meds. Not worth it. F 36 8 months
50MG 2X D

 2  Migraines/Weight Loss Extreme tingling of feet - constant, like they've "fallen asleep" - also feel as if something is squeezing the top of my head; imsomnia - will sleep for 1-2 hrs then wide awake for hrs to the point that benedryl doesn't even help me sleep F 38 2 months
50 mg 1X D
 2  fibromyalgia High intense sugar cravings, lost 30 pads but I was already thin due to anorexia. Then I was on another med that made me binge 6 to 8 hrs per day which this was making thing worse cause it stopped working. So I stopped this drug cold turkey. F 36 3 months
 3  BiPolar Disorder tingling in hands and feet. Almost constant headache and heartburn, Also feeling quite tired yet not sleeping well. I've just started on this med and I'm adding it to my Lamictal and Lorazapam. I feel a slight decrease in appetite and mental clarity. I'm hoping to lose the weight but not my job. I already have very thin hair due to menopause so I'm hoping my strong multivitamin will help prevent that. F 53 10 days
25 2X D
 2  Migraine Metabolic acidosis leading to massive kidney stones that were frequent (more than 3 per year); continued migraines; weight loss; drop in blood pressure; unable to walk for over a month due to dizziness F 44 8 years
200mg BID

 1  Lose weight Depression, extreme fatigue, phantom smells, loss of appetite. F 59 6 months
100 mg

 2  Migraines/Bipolar differrent than Zyprexa. My sweet tooth has come back 3 fold and I have lost 120 pounds off LI2CO3. Getting off of of it immediately. Not good with my chemistry. Rather have the thirst and dehydration versus the intense sweet hunger with and cognititive dysfunction witith topamax. Jeez. Try it out for yourself. You have to decide. 2 days was more than enough for me to know how bad it was gonna be for me. M
100 2X D

 4  Migraine Prevention Dizziness/Faint, Nausea, Extreme Joint Pain, Muscle Spasms, Headache, Complete Loss of Appetite, Dry Mouth, Loss of Concentration, Word Loss, Memory Failure, Spaced Out My dosage was upped too much too quickly and my body couldnt handle it. I'm now only on 30mg per day and even on this low dose I am affected by a multitude of side effects. Topamax has however been amazing for decreasing the frequency of my migraines so I will stick with it F 20 10 months
15mg 2X D

 3  Migraines All of the usual: altered taste, tingling when I was on 100 mg, but that stopped when I dropped to 50 mg., forgetfulness, cloudy thinking, HAIR LOSS!!!, extreme anger, feeling DUMB, weight loss. This was a miracle for ending my migraines. It initially changed my life. However, after being on it for 2 years, I was sick of being so stupid all of the time. I also lost quite a large amount of hair...used to be super thick, but it really thinned out. I have been off of it now for 6 months. Unfortunately, the migraines are back in full force...getting several each week just like before. However, my mental acuity has returned; my hair is getting back to normal, and WOW does stuff taste good again. I have put on a few pounds, but not bad. I wish SOOOO much that topamax would work without the DUMB feeling and the hair loss. I have an MS in Math, and I would just sit and STARE at numbers, not being able to THINK about what I was supposed to do with them. I don't know if I should go back on it for the migraines or not. It is a REALLY tough trade off. :( F 44 2 years
100 1X D

 3  Concussion Headaches First night taking it was bad. Very, very, bad. Became randomly very suicidal all night until I fell asleep. Split personality the first night. Was out of it. Not good. The next night, and following nights have been fine. No more split person or bad thinking. Numbness and tingling often. Dry mouth, loss of appetite. This has not made me sleepy after the first night, which makes me sad because I have difficulty falling asleep now since taking it. But, I can think!!!! Before taking this I could not even think and now I can actually look up the medication I am taking!!!!! The only reason I am not satisfied is because of the first night and constant forgetfulness, difficulty with speech and most of the other side effects. Overall I am very glad for this drug and to write this review that no one cares about, lol. I just want to say to anyone looking up this drug or reading this, I fully encourage you to take it by all means- but make sure you have a person with you the first night. Not a F 17 2 weeks
40mg 1X D
 4  Migraines w/Aura, Tremors Tingling in feet and finger tips, forgetfulness, drowsiness Has helped tremendously with my migraines. Not so much with my tremors. The tingling comes and goes so it is not too bad. My appetite has decreased and I have lost abt 5lbs. Hopefully I will lose more as I can stand to shed abt 20 lbs. I sleep better at night and recommend taking this at bedtime as it knocks me out cold. F 36 15 days
25 mg 2X D

 4  migraines tingling in hands and feet if arms or legs crossed for just a few minutes. Cannot drink carbonated beverages because the fizz is increased almost like there is too much fizz in the drink. Migraines haven't reduced yet, still at least 2 per week, but now are coming back to back days rather than two to three days apart. Has helped with depression and anxiety, have not noticed weight loss yet, but appetite is decreasing. F 34 2 weeks
25mg 2X D
 1  Migraine prevention Severe nervous system overstimulation after one dose. Generalized tingling, severe agitation, shaking, feeling of pressure and muscle tension, symptoms that were extremely anxiety provoking. I am unusually sensitive to pharmaceuticals, but have rarely experienced such a dramatic adverse effect from the first small dose of a new med. Reactions are of course highly individual. F 61 1 times
25 mg 1X D

 3  Migraines The tingling in my hands and feet was annoying, but tolerable. I didn't mind the loss of appetite and slight weight loss. But all of a sudden my personality totally changed. It was like I became a completely different person. I'm having crazy crying spells for no reason, screaming at my fiance over the stupidest things (and we're supposed to be getting married in less than a year). I'm even considering moving out because I feel so lost, like I don't even know myself anymore. Here's what REALLY bothers me: Up front, my neurologist warned me about the "very, very small" chance of developing kidney stones. He said to drink plenty of water to avoid getting them. At my 6-week follow-up I told him I was getting tingling in my extremities; here was his solution: Eat a banana, take 500 mg of Vitamin C and chew 1-2 Tums every day. When I began researching Topamax because of my severe mood changes, I discovered several warnings about kidney stones that said: AVOID ANTACIDS. AVOID EXCESS VITAMIN C. THESE WILL AID IN THE DEVELOPMENT OF KIDNEY STONES. I have left several messages at doc's office and - surprise, surprise - I have yet to receive a call back. I'm tapering off this crap drug ASAP! I wish I had found this website before starting the medication in the first place. F 27 8 weeks
50 2X D
 5  for migrainea few Get cold easier, tingling, weight loss and the dreaded hair loss and damage F 47 4 years
 3  Migraines due to menopause At first, had typical side effects--don't remember them all due to this being ages ago when I went on Topamax. I do remember almost having a head-on collision with an oncoming car due to these side effects, so be careful at first when you drive! I may have lost weight at first but like I said, it was yrs. ago when I first took this drug. I think people need to hang in there--the side effects do go away eventually. And then this will work. Topamax was eventually the only thing that ever took my migraines away, and for a long time it worked well. Over time, I began to see why people call it "dope-a-max!" I thought I was going prematurely senile since I just couldn't think straight any more. I couldn't make words come out of my mouth when I knew in my head what I wanted to say. A lot of physical stuff began happening, such as kidney stones, which was worse that childbirth in my case. I couldn't do a thing, I was in so much pain from them. It totally ruined an entire spring/summer for me. No one in my family had ever had them, either. Long term users, I'd recommend getting off this drug. I've felt so much better since being off it, I had no idea I'd feel this great, and I've been taking Excedrin Migraine now to quell any first-feelings of a migraine coming on, and that has worked fine. So far so good, knock on wood. F 62 10 years
100mg 3X D
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