TEGRETOL-XR Reviews (CARBAMAZEPINE)Average Rating: 3.4 (51 Ratings)Filter ResultsCompare TEGRETOL-XR with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on TEGRETOL-XR: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TEGRETOL-XR | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Seizures | Cognitive fatigue, pulsatile tinnitus, insomnia, agitation, low sodium and chloride levels, rapid eye movement, spacy. | 57 | 6 years 800 | 8/23/2019 | 4 | Epilepsy | Standing balance problems at the beggining, drowsiness, fear. | M | 34 | 5 years | 6/26/2006 | 4 | PARTIAL-COMPLEX SEIZURES | DROWZINESS | F | 22 | 4 years | 11/4/2002 | 4 | seizures | General fatigue, ability to fall asleep anywhere, anytime. Loss of sex drive. Weight gain. Serious brain fog. | It controls my complex partial seizures, which is good. I haven't had a seizure in more than three years, and I'm now starting to taper the dose downwards VERY slowly (going down by about 100 mg/day this year, maybe another 100 mg/day next year.) On the not-so-good side, Tegretol completely erased my sex drive. It also kind of blunts my emotional responses to events, so that I retain a kind of detachment (which makes sense when you remember that it's also prescribed as a mood stabiliser). I would go off it if I could. | F | 51 | 4 years 250 mg 2X day | 7/8/2010 | 3 | trigeminal neuralgia | Mostly effective in controlling severe and disabling TN, especially when switching to XR. But over time, the side effect for confused thinking and balance took hold. It had a severe and insidious impact on my life. | Looking back, I wish my MD had been more attentive to the side effects and considered alternatives to Tegretol. When I presented in 2012 with severe TN (levels 7-10 pain, couldn't talk, no solid food), I got immediate relief. My current MD says that my 1200 MG dosage is like constantly having two beers and knocks 5 pts off your IQ. It has a subtle influence on your judgment. While this was all happening I met a fantastic woman and became engaged. To merge our families with three kids meant I had to be sensitive to her needs, sell my house and buy a new house for us, while also holding a demanding job and going to school part time. I was very good with the fun tasks. But if it was complex, things got foggy. Contact a realtor, get a loan, fix my credit, create a list of things to fix in order to sell the house, create a list to invite to the wedding. I would step back and look at myself, "You're not doing this. How odd." I see now Tegretol made me into slug. And my fiancé saw this, didn't see the connection to Tegretol, and began to wonder about me. My MD knew the basics of our situation, had met my fiancé. If he had been more compassionate he might have seen what was happening and counseled me on what to expect. Ultimately my finance saw what I was doing, became angry and defensive, interpreted my actions as meaning that I really didn't want her and the marriage, and cancelled the wedding five weeks out. I was angry and confused, | M | 55 | 4 years 800-1200MG 3X day | 8/3/2016 | 1 | seizure disorder | Have experienced ringing in ears, excessive water weight gain/swelling (20 lbs), pain and feeling of cold in areas where water is most prevelant, memory loss, aggression, to name a few. | Would not reccommend it to others. | F | 29 | 4 years | 6/16/2005 | 1 | Mood Disorder | When I was a teen my anxiety was misdiagnosed as Bipolar Disorder and the doctor gave me tegretol, not sure what the dosage. I went from weighing 115 to weighing 163. I stopped being able to remember everyday words as simple as license plate or macaroni. Sometimes I couldn't remember my own name, age or phone number. Thinking became so hard for me that I had to drop out of school. My mood did not get any better, the doctor just thought it did because I was no longer able to express any emotion. My hair stopped growing, my nails got thin and they were always breaking, my skin broke out in the most horrific acne I've ever seen. I slept about 16 hours every night and still never felt rested. After about 3 years I had enough of living in that zombified state and stopped cold turkey, the withdrawals were horrible, shaking and irritability like you would not believe but it was worth it to get that devil drug out of my system. It took at least a year for my memory to come back and for me to f | Hated it | F | 20 | 3 years 2X day | 2/3/2014 | 2 | myoclonic seizures | feeling tired, swelling ankles, increased seizures!!!, blurred vision | It sucks, I had less seizures before I started taking this medicine | F | 22 | 2 years | 9/15/2007 | 2 | mania | standing balance problems, wrists became so stiff and painful I could not do pushups any more. | blood tests are bothersome, getting off can cause siezures, after I got off my wrist pain went away. Do not overtake this medication, I know two people who did and their judgement of distances made it impossible to walk until the tegretol cleared. Drugs that slow liver cytochromes, like some antibiotics, can cause an overdose without any change to you normal dosage. | M | 46 | 2 years | 9/12/2005 | 5 | Seizure Disorder (grand mal) | None. Maybe some drowsiness. | take 400 mg 2x per day. Just started this large a dose after taking 200 twice a day for 10 years. Working great, no seizures since upping dosage. | M | 27 | 1 years | 4/29/2005 | 5 | Trigeminal Neurolgia | Tired, sometimes I struggle to find words, weight gain. I can tell it's burning through the other meds I am taking, so some adjustment is still needed. | It has been a miracle drug for my head pain. I still have daily pain, but not as bad. I have to take 2 in the morning and 1 at night because I was having problems waking up in the morning. | F | 34 | 8 months 20 mg 3X day | 4/17/2012 | 4 | seizure disorder | drowsiness, clumsiness, flat affect | superior to Dilantin | F | 54 | 8 months | 6/26/2002 | 3 | seizures | drowsiness/tiredness, slight confusion, some memory recall problems esp short term (though can remember later usually). | mostly its the drowsiness... i take 150mg in the morning and 200mg at night, and it can be tough waking up sometimes, like in a fog. I was on 200mg during the day but went back down to 150mg as i couldnt function properly. Thinking of going back to 150mg at night (as my original dose) however am concerned about it not having quite enough effect and i can get some very slight seizurelike activity (without unconciousness or anything, just like a cut off semi seiz..) wierd. But this tiredness, lethargy, bad recovery, im not sure if its just the teg or some remnants of a more serious issue i had with tiredness even before taking it... like chronic fatigue/system worn out... All in all though the tegretol has stopped my seizures (one every 6weeks or so) for 8months now which is great. | M | 34 | 8 months 150 2X day | 6/1/2011 | 4 | bi-polar disorder II hypomania | 11/02/07 - some daytime sleepiness but none overall | 11/02/07 - I have taken a lot of different mood stabilizer meds and this is the best one so far. It is very hard for me to wake up in the morning but that has been a lifelong struggle. Also, I feel like I crave sweets and have some stomach issues (indigestion, IBS symtoms, etc.) but that may not be a result of the Tegretol. I am also taking 50mg of setraline (Zoloft) and was on Rozerem. I started with the non XR version of carbamazapine and it made me feel drunk and very dizzy in the morning. | F | 35 | 7 months | 11/2/2007 | 3 | Epilepsy simple partial seizures | Tiredness after each increase in dose.Also slower in thinking. I find most days having to sleep during the day.Some days feel absolutely exhausted. | Currently taking 1000mg per day.Not had another seizure since last increase beginning of July.Considering changing to Keppra because of fatigue | F | 46 | 7 months | 7/25/2008 | 4 | Trigeminal neuralgia | Weight gain, memory loss (technical words, names), depression | While Tegretol has been right for my pain, I would like to pursue a different treatment to avoid the side effects. Acupuncture has been mentioned as a possibility. | M | 52 | 6 months 400 2X day | 1/12/2013 | 3 | Seizures, Bi-Polar | Sour Stomach,Restlessness,lack of clarity in thought | The drug took forever to find the proper dosage. I now take 1000 mg's a day but I occasionally have interaction problems with the vicodin I take for my knees and back and the clonazepam for sleep. The back of my head would start feeling overpressurized and my eyes would turn yellow, a sign of over dose from one or all drugs, but I never take moire tha usual. A day of of them will usually do the trick. | M | 31 | 4 months | 11/28/2005 | 2 | Grand Mal Seizures | Headaches, Loss of Memory, Sleepy all the time. Slurred speech. of balance. cold, Hair shedding. | bad drug | F | 42 | 3 months | 12/12/2008 | 1 | temporal lope epilepsy | Pain headache confusion can't wake up forget things but remember bits and spices later | F | 28 | 2 months 800 mg | 1/20/2012 | 1 | seizures | Side effects were very minimal. Mouth dryness. Mood was exceptional. Very happy all the time. Also slept really well and didn't even wake up tired. I had been on Keppra for 2 1/2 years and never slept and was tired all the time. I thought this was going well. Then I developed flu-like symptoms after about two weeks at full dose. I started out at 100mg. I had horrible head pain, neck pain, chills and body aches like I had been thrown down the stairs. I had a blood test and told to stop the tegretol immediately. | After I stopped the medication, I thought the symptoms would stop, but they did not. They got worse. I had toxic liver something. This has been going for a week and the doctors say it might be another week. I never would have taken this medication if I had known this might happen. | F | 45 | 1 months 200mg 2X day | 12/3/2010 |