Drug Ratings for LUPRON DEPOT

Average Rating: 3.0 (737 Ratings)

Compare LUPRON DEPOT with similar:
ANTERIOR PITUITARY HYPOTHALMIC FUNCTION    ANTINEOPLASTICS   

  

Results are sorted by Date Rating Was Added    

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)   

Page: 1 2 3 4 5 6 7 8 9 10 11 12 13
Filter Results


    Charts & graphs: Reviews Summary for LUPRON DEPOT  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR LUPRON DEPOTCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
sort down sort up F  M  
 4  uterine fibroids I've been on lupron for two and a half months now. It seems to have helped to put an end to my constant bleeding and allowed my body to "catch up" on blood so I'm no longer anemic. Yay! I have noticed some pretty crazy mood swings, night sweats, hot flashes and worst of all joint aches. I over all feel better and am anxious to see if the fibroids have shrunk enough for my Dr. To remove them without another envasive surgery. I would hope anyone who may be put on lupron can have an honest and open discussion with their Dr about the drug and it's side effects. I have read that being on lupron for long amounts of time can cause bone loss and other side effects down the line. If you have worries talk to your Dr openly and if you still have reserves get a second opinion. I'm happy it has seemingly helped me with my fibroids and hope others can benefit from it also. F 31 3 months
11/11/2014

 1  ENDOMETRIOSIS Depression,Joint Pain, Memory Loss,BiPolar Disorder and Osteoarthritis. F 50 6 months
10/27/2014
Email
 5  fibroids Night sweats. I had a fibroids measuring 5cm. After 2 days of my first shot. Too mach bleeding then my hgb drop to 7.no problem at all before that I'm taking ferrous n continue it. Then I go for ultra sound it measures 4.4cm. On my second shot the fibroids becomes 2.2cm. Done my 3 shots n the fibroids still degenarating. No heavy menstral period at all. During the medication I indulge my self in gym. Do my work out 3 times a week.watch my diet high in fruits n vegetables my soul source of protein was dairy products.no red meat at all.1 liter of water/day. Lupron depot affects our hormones..so a great suggestion is have a physical work out n healthy diet will help the patient to prevent the drastic side effect of the medication. Healthy lifestyle together with medication n prayer..positive results. F 38 3 months
10/16/2014

 3  Prostate Cancer Many side effects: mild headache, breathing difficulty, testicle/prostate swelling, urinating problems, hot flashes,lousy day to day feeling, loss of body strength and libido,blurry vision at times, not as steady in balance, throat-thyroid feels different when swallowing or moving head forward. Slows and affects memory. Drug is working to bring PSA and testosterone down but at a great physical cost. If there was another way out of this, I would take it for the Lupron drug seems to severely affect many body functions taking them from a normal to abnormal state. Many side effects: mild headache, breathing difficulty, testicle/prostate swelling, urinating problems, hot flashes,lousy day to day feeling, loss of strength,blurry vision at times, not as steady in balance, throat-thyroid feels different when swallowing or moving head forward. Slows and affects memory. Drug is working to bring PSA and testosterone down but at a great physical cost. If there was another way out of this, I would take it for the Lupron drug seems to severely affect many body functions taking them from a normal to abnormal state. M 67 2 months
1X M
9/7/2014

 1  endometriosis Lupron ruined my life!! At first I was all for feeling better but I'm regretting ever letting that needle touch my skin. I started lupron after the birth of my second child. I had tried 17 different birth controls that could possibly help or hinder the pain from the endometriosis the one that did help got recalled. I figured wth might as well give it a try. Worst mistake ever! The doctor did not give me a pamphlet just told me of the hot flashes. The first week the hot flashes came and went all day every day. I then started feeling dizzy and faint. My energy was gone. By week 6 I started having signs of a uti so got azo and prescribed meds little did I know it wasn't a uti it was a side effect. My kidneys began to hurt. It hurt to breath it felt as though I had an elephant sitting on my lungs.Then my whole body started to weaken to the point I couldn't open a jar that had previously been opened. My muscles and bones ached it hurt with every little movement. My body then began to swell(this side effect is still with me it's been several months since I've had my last dse) my ankles swell the second I put them on the floor each mornings the rest of the body parts soon follow. I had lost all interest in sexual activity.I soon got depressed I felt worthless couldn't even play with my kids. My marriage got rocky bc of how I felt. I started getting bumps under my skin on my neck, shoulder and back and it was very painful. My primary care physician said shingles but i don't think F 26 3 months
1 shot
7/14/2014
Email
 3  ovary pain I'm finishing up my first month of this shot. I had gotten this shot due to A LOT of pain. I have had a tubal plus an ablation. I haven't had a period in 3yrs. My dr recommend it to me. Since my shot my pain has STOPPED but I've cried more than ever, hot flashes and the one I hate the most is I've been having dizzy spells BAD F 28 3 months
1shot 1X M
7/7/2014

 5  Uterine fibroids None. F 37 2 months
3.75
3/17/2014

 1  Endometriosis I ended up with a severe depression and got suicidal two weeks after starting treatment because my gynecologist forgot to mention that depression is a known side effect especially in patients with a history of depression. In my case it meant that the nightmares I endured during my PTSD came back. After about four weeks the pain in my entire body got so severe that I had difficulties urinating. At that time I also felt exhausted and gained so much weight that my clothes did not fit anymore. Because I was mentally unstable it took me six months before I was able to drag myself to my GP ( I didn't want to go to my gynecologist anymore because of the mistake she made) who immediately checked my blood and it was then that I was diagnosed with hypothyroid. At that time my GP thought that the pain in my body was a side effect of untreated hypothyroid. Therefore it was necessary to first start medication before further tests could be done. After four months on thyroid medication my GP referred F 38 1 months
3,75 mg 1X M
3/6/2014
Email
 1  Prostate My dads urologist administered Lupron Depot . My dad had prostate cancer 20 years ago and his PSA level was slightly elevated in October. His urologist never warned us of the side effects an elderly person might encounter on Lupron Depot so we were in complete shock when dad suffered a major stroke. We are very upset ... Dad was very healthy for an 83 year old, going to aerobics class 3 times a week..now he can't walk or use his left side at all and he is confined to bed. If we would of known that this drug caused strokes, we would of never agreed to use it! M 83
1X D
3/2/2014
Email
 1  endometriosis Never ever will I agree to this again its been living hell on my 5 treatment and bout lost everything the pain is god awful so weak its a nightmare F 26 6 months
37.5
2/11/2014
Email
 4  shrink large fybroids I was prescribed 6 injections/1 per month. I am on number 3. My irregular bleeding did not stop right away after the first 2. It wasnt really period blood it was old blood. That has finally stopped..THANK GOODNESS! I was due for a period on the 18 and it has not came yet so i feel this is really working. Im on a lower dose than most but its working.I have always had a temper but contribute it to the stress of having re-occuring fybroids and bleeding throughout my adult life. Bledding so much has caused me to be moody and mean...I feel better knowing that Im finally on the road to being done with these issues so besides the night sweats, and my vision is kind of bad now I feel wonderful and im glad im taking the shots. I can actually lay on my stomach now! Im also fitting into shirts that iused to look pregnant in. The shots are definately shrinking the fybroids and that is such a blessing. My whole goal is to shrink the fybroids so when i have surgery i dont have to have a hysterectomy and i can have a child. My fybroids made me look 8 months pregnant. I have noticed that i have lost weight and im getting some acne patches on my buttock where the injection is put but if i have to go through this to not bleed for 2 months straight and eventualy save my uterus and have a child..ill take it! Im o.k...i do have a quicker temper now but i just keep telling myself "the medicine is working so stop cussing people out and smile"...lol Im on shot number 3...i have 3 more to go F 37 6 months
3.75 1X M
1/25/2014
Email
 3  Endo Lost of weight of 8lbs, hot flashes every half n hour, night sweats, lost of memory, ensonmia, lost of vision, mild case of joint pain. Depression, crying all the time. Mood swings. I have been done with the Lupron shot for two months. Still no period. I feel sick to my stomach all the time, and I can't get enough sleep ever. I am wondering when it will go away and I can be normal. During the Lupron shot, the cycle stopped right after one week of being on it. The sym slowly starting taking over my body each month. The Doc did not tell me about loosing weight or lost of vision or memory loss. Was very scared that happened to me. I lost my job because of sym was taking over my body that I couldn't control. Luckily I found another job. I don't think I would do this again. F 30 3 months
3.75 1X M
11/7/2013
Email
 1  endo neck swelling burning,feels like my throat is hot and water does not quench, headaches, hotflashes,cyst blewup, moody, blurred vision, chest pains, fatigue...all from 1 shot..I think I had a reaction to the shot F 46 1 times
1X D
8/11/2013

 1  Endometriosis, Fibroid tumors Suicidal thoughts Heart Murmur Hot flashes Urinary Incontinence Insomnia Headaches I was never told that this is chemotherapy, nor was I advised of any side effects except for hot flashes. I would not recommend to anyone! F 42 3 months
3.75 1X M
7/31/2013
Email
 3  Shrink lrg fibroid/prep for surgery mild hot flashes (not that often) noticed them more after my 4th shot, night sweats and weight gain. Emotions weren't too bad, what I noticed most was that I started getting a short temper, which is not like me. My doctor recommended Lurpon in hopes that it would stop my heavy bleeding (which it did) and shrink my very larger fibroid that was crushing my right fallopian tube, my bladder and growing into the endometrial cavity and other ways. I was told I pretty much had 3 diff types of fibroid in 1 and that it was a little bigger than grapefruit size. I had 4 shots 1x month for 4 months. After reading a lot of comments on here...I thank god that I didn't have that bad of side effects (and am sorry for those that did and had to go through that crap). The side effect that I had the worst was the night sweats and now being that my last shot of Lupron was 2-18-13 I'm not having any side effects except for sometimes light night sweats and I now have an acne break out on my bottom/upper thighs. Not sure if the break out is from the Lurpon or sweat, but the sweating is from the Lupron so I guess technically it is. Anyways, as I said I did not suffer from the side effects too bad, but I don't know about recommending this medicine? I chose to trust my doctor and if it did shrink the fibroid that would make the myomectomy easier and less risk of possible hyst or loss of tube. Overall...my fibroid did NOT shrink at all, but oh well. Fortunately my doctor was able to remove fibroid and keep everything else in tact and after healing should be able to have children! F 26 4 months
1X M
4/6/2013
Email
 4  Endometriosis Severe migraines usually associated with stress after 1st shot. Loss of period but I'm also taking pill form birth control continuously (no sugar pills). Moderate fatigue after 2nd shot. Acne on my back, chest, and arms after 5th shot. Mood swings (going from crying to absolute euphoria) after first shot. Joint pain on and off starting from the 3rd shot usually localized in knees and wrists. I have had no weight gain or loss but I am also very active (running and lifting weights everyday) and eat very healthy which is suppose to help. Before Lupron I could hardly excesise at all some days because of sever pain associated with endometriosis and when I was on my period I couldn't get out of bed most days. Now I have absolutely no pain. All my symptoms seem minuscule compared to the benifits. It may be frustrating at times but compared to how I use to be I'll be ok with dealing. F 19 1 years
3/13/2013
Email
 4  Endometriosis & Fibroids - Head Ache (severe) - Unstable Emotions (accelerates any minor mental illness into a major illness) - Insomnia (Extremely severe multiple days without sleep) - Heavy Period - Dr communicated it would last three months to shed uterine lining. - Loss of appetite - Hot Flashes - Chills -Random Sweats (All hours of the day) -Lower body temperature (random) Doctors often do not disclose all of the symptoms, because they believe in the medicine. My doctor told me I would have hot flashes at night and heavy periods for the first three injections. He never told me about chills, insomnia and etc. The insomnia is the worst part of the injections, because you don't just have trouble falling asleep you have trouble sleeping. If you fall asleep for more than two or three hours on this medicine you are very lucky! F 34 6 weeks
3.75 MG 1X M
2/11/2013
Email
 3  Shrink fibroids before surgery Severe muscle and joint ache. Loss of concentration, moodiness,jittery,and mild depression, headache. Feels like a severe case of the flu. Period never stopped but did slow down. Was scheduled for 3 shots but I can only take 2. Too painful. It hurts to open my car door. I hope this wears off soon.Although it feels like the fibroids are smaller. F 45 2 months
1X M
2/11/2013

 2  uterine fibroids I'm not on the drug lupron as yet but scared up to my neck about the side effect and what happen to ppl after stop lupron years down the line. My Dr want to start Mr on lupron to shrink and remove my fibroids so me and my husband can conceived, I'm worried about all those dreaded side effects during and after lupron I'm so depressed I don't know what to do. Someone plz help me. F 35 6 months
7.75mg
12/5/2012
Email
 3  Endometriosis At first I was taking one shot a month and I experienced the worse! Extreme fatigue (still have) severe migraines, crazy night sweats, hot flashes sweat was literally pouring down! I also take hormone pills to calm down the side effects. I lost 7lbs on the month to month. Now I am on the higher dosage taken once every three months. Good thing I no longer get the horrible periods and heavy bleeding that just completely stopped. Now it's more so dry mouth vision problems, I'm extremely extremely tired I'm constantly calling out of work because I have no energy. I've gained my 7lbs back appetite is extremely large I eat so much! Honestly I feel preggo and I don't even know what that feels like! Just can't wait til this therapy is complete don't wanna lose my job! F 27 6 months
1 every 3
11/28/2012

 1  shrink fibroids before surgery Hot flashes, mood swings, depression, joint pain, back pain,insomnia, anxiety, high blood pressure, thyroid problems,&short term memory loss F 38 1 days
11/20/2012
Email
 3  Endometriosis and PCOS Weight loss (about 6 lbs in a week), no appetite, mood swings, cramps, constipation, nausea It hasn't been as bad as I thought it could be. Two days of horrible cramping and a week of bleeding. It stopped and now I am dealing with nausea (like I ate something bad and want to throw up, but I don't) and no appetite. I am on anti-nausea pills three times a day, and they help me enough to be able to eat when I remember to. The weight loss is because I just felt unable to eat because of the nausea and going off birth control I'm pretty sure. I weighed 119 and I'm 5'4, and now I'm 113. So kinda scary to lose all that weight in a week, I thought for sure I would gain weight, not lose. The first two weeks I was insane and cried over everything. Now I'm just mostly having headaches and nausea. I have noticed a decrease in my level of pain however. I just started the addback, hopefully when I start having hot flashes they won't be as bad. I upped my water intake tremendously and it has helped A LOT. I drink juice whenever I can't eat, and it ups my calorie content and helps the constipation. I would exercise, but I'm afraid to because I'm so calorie deficient right now. It's not all that bad so far. F 20 3 weeks
3.75 1X M
10/2/2012
Email
 3  endometriosis fatigue, 20lb weight gain, tiredness, memory loss, bloated,vision changes, leg pain, abdominal pain, depression, very angry at times, hot flashes, sweats, On my 6 th shot and just want to cry thinking about it. My doctor wants me to try another month but I will give my self an injection once daily because the side effects were so bad he decided that one doce at a time was to strong for me. I don't even want another shot but I just don't want to go back to having so much pain!! I have gained 4 lbs in one week, is this crazy even the doctor witnessed this because I was there for one shot and my anual appt and then I became sick with other symptoms now and he weighed me and said wow you did gain 4lbs in one week. I now have been experiencing stomach pain, very bloated, in 2 weeks I went up 2 sizes. Awful feeling I just want to cry. I will be going for more tests tomorrow and something tells me that I am gonna tell him to schedule me for a hystorectom because I just can't deal anymore. I am 45, thank god I have twins. F 45 5 days
3 1X M
9/27/2012
Email
 2  Endometriosis Lupron depot shot Im on my third month. Side effects are very severe thus far and are getting worse. Im 25, Im experiencing severe hot flashes, mood swings, sleepless nights, cold sweats at night, rashes on my belly, acne, loss of appetite, head aches...very very severe head aches and now the loss of all moisture in my entire body! vaginal dryness is like nothing Ive ever experienced :( along with yeast infections on and off. Pain in the knees, blurred vision, tired all the time... Will not be doing my next 3 month shot. Id rather be dead! Research this and seek alternative care! do not do this unless it is life or death... F 25 3 months
3X M
9/11/2012
Email
 1  Adenemyosis Migraine Headaches, hot flashes, cold flashes, night sweats, an increase of pain for the first three months, forgetfulness, severe mood swings (yelling to crying to blissful), depression, right leg twitchiness, decreased sex drive and vaginal dryness. After the following shots: 1st- severe increase of pelvic pain, heavier bleeding, migraines, joint pain. 2nd- still had pain, forgetful, bleeding stopped, migraines got worse and my skin and eyes became extremely sensitive to sun. Hot flashes galore and IBS has become a way of life at this point. 3rd- pain started to get better. Hot flashes were like nothing I had ever experienced. Then I started to become an emotional roller coaster. Joint pain went away. Got a lot of acne on face and back, skin started peeling when I'd use acne mess so I stopped. 4th- pain was gone! :) medical menopause is horrible. Depressed all the time, and hated my life. 5th- gained 4 pounds, my feet are swollen (I have kankles) gross. Hot flashes and major night sweats. There are times I have to get up to change the sheets. I get cold flashes also where it feels like I'm freezing even when it's 90 degrees outside. I sweat all the time and my deodorant just isn't cutting it. Acne is worse than ever! My hair falls out by the bunch and I can't wait to be done. 6th- just scheduled for a hysterectomy. Tubes, cervix, and uterus will be gone in five days. Still abnormally sweating and I'm so embarrassed. My hair is getting thinner although I don't understand why. Acne is extremely noticeable and has been for some time. I take sometimes two showers a day and I hate lupron. Headaches and bouts of IBS flares (constipation and diaherra) are everyday now. My husband hates the mood swings. Almost feels like F 25 6 months
3.75 1X M
9/9/2012
Email
 1  Fibroids Muscles and joints ache nonstop all the time.. hot flashes. Hurts to get out of bed, from seated position.. not as flexible as I used to be.. hurts to walk.. I'm in constant pain F 37 3 times
8/1/2012

 1  Endometriosis Mood swing, fatigue, headache, panic attacks, eventually develop seizures and epilepsy. TERRIBLE DRUG and HORRIBLE side-effects. Took Lupron in 2008-2009 for 12 months. Since then, have had bad episodes of panic attacks and seizures. I am suffering from epilepsy now because LUPRON messed up my hormone so badly during the year I was treated. I WISH my OB never put me on it. It didn't even control the endometriosis as I still had to go through a 6 hours surgery to take care of the problem anyway. F 37 12 months
1 Shot 1X M
7/31/2012
Email
 1  Endometriosis. Headaches. Fatigues. Difficulties w breathing. Mood swing. Multiple seizures and ended up with epilepsy. :( F 33 10 months
7/29/2012
Email
 1  deep tissue endometriosis Tremendous weight gain, hot flashes, bone burning, joint and muscle pain, loss of eye lashes, some hair fell out, couldn't stay asleep, memory loss, thyroid issues, throat issues. I did 9 shots of lupron every four weeks. I am now about 2 years from my last shot and still have horrible side effects. Bone and joint pain is still horrible, I still can't sleep, and my eye lashes still won't grow back. Despite several RX weight loss pills, I have not lost any weight. Once active, I now just lay around all day because my entire body just hurts too much. F 23 9 months
1X M
7/5/2012
Email
 1  PMDD Blurred vision, major hip pain, left leg pain. I feel like an 80 yr old woman. Major fatigue, It's very difficult to get out of bed in the morning. Stiffness and achy hands and fingers. Tingling sensation in hands. Short term memory loss. Loss of Vocabulary. It alleviated my PMDD symptoms, but now I have major physical issues. Don't take this poison! F 42 18 months
1X D
7/1/2012
Email
 4   Pain in the leg, night sweats, head aches and forget a lot but urge wise the mensuration its better.I can live without it I user to be in do much pain til I cry and goes to the E R for pain releave I think the shot is a must and it helping shrink the fibroids .I've had no serious side effect and taking my second does yesterday it was different from the first one only differs its my left leg us very sore. 6 months
6/27/2012
Email
 5  Endometriosis NIght sweats, hot flashes, vaginal dryness, forgetfulness OK ladies this is my second time taking Lupron within 3 years. After my surgery to remove a ovarian tumor in October 2009 when I went to my post-op appointment is when I was told that I have Endometriosis. I started Lupron right away. The pain was instantly gone and so were my periods. Life was great! Then in September 2011 I went for my annual pap and was discussing with my new GYN that I wanted to get pregnant. I had been preiviosly married for 14 years and never once did I get pregnant. Now I know for sure that the problem was me (my ex cheated and got her pregnant). Now I'm engaged to my childhood friend who is my soulmate and now I want to have a baby with him. So after I had an ultrasound done it was confirmed that I did have another cyst and that he wanted to see how bad my endo was now.(I had pics from my previous surgery). Once my new GYN saw the pics he said he could only imagine how bad it would be since the pics were over 2 years old. Long story short I had surgery in December 2011. all went well. My Endometriosis was like a spider web covering all my reproductive organs. My doctor was sucessful in removing it. Unfortunately I lost my left tube because it is completely blocked and my uterus was attached to my abdominal wall. He detached my uterus and left it in. I am going for my final shot in this round tomorrow. this will be number 12 that I've taken since 2009.Next friday 6/29/12 I will be discussing what my next step will be to try to become pregnant. I know F 35 6 months
3.75 1X M
6/21/2012
Email
 3  Catamenial Pneumothorax-Endo Headaches, hot flashes, severe mood swings, crying spells, breast tenderness, dry skin, thinning hair, abdominal pain, weight fluctuation, irritability and suicidal thoughts. I have endometriosis and by some pathway in the body, the cells travels and attaches to my lung. There it stays. During my cycle, those cells will menstruate, and at times, tear the lung wall and cause a hole, therefore a collapse will occur. Now, I have no cycles, and no more lung collapses. Although, it is working, the seriousness of this drug scares me. You have horrible physical and MENTAL side effecrs. It has affected my job, my relationship with my boyfriend, my family and my friends. My doctor wants me to go another year! I don't know if I can do that, not sure my body can handle. I wish there was another alternative to treating this disease. This drug should not be available, this way we can push for more aggresive research, to help solve the enigma. F 34 1 years
3.25 MG 1X M
6/21/2012
Email
 4  Heavy mentral lasting 8-12days Hot flashes, night sweats, mild cramping, headaches. In the 1st 2 shots I felt like I had pregnancy symptoms. Nausea at the smell of most foods, tender breasts, &vertigo. However, the shots have been so worth it. I had one period on the first shot, but none since. I stll feel cramping as if im ovulating and it can be extreme pain. Slight weight gain... 4lbs. I would highly recommend this treatment so far. I was misserable on my periods. F 32 4 months
5/26/2012

 4  Endometriosis; uterine fibroids Mild hot flashes; bad menstrual cramps when it gets close to time for next shot; no bleeding; sex drive still there; no weight gain or hair loss so far, but still have 6 more months to go. My fibroids did shrink. F 36 6 months
11.25mg
5/17/2012

 4  severe endometriosis I just took my 3rd month shot yesterday. Honestly, I only experienced severe pain during my menstrual cycles. I mean it was debilatating pain. It wasnt until I started taking this shot that the pain stopped immediately. No periods, no cramping, mild hot flashes, mild night sweats. Nothing too bad. Sometimes i feel like I am losing my mind, i forget a lot of stuff. Oh and my sex drive is all there, but I am very dry, like shredded wheat. But nothing a little lube wont solve. I am halfway done with the treatment so my prayer is that things will be a whole lot better for me when trying to conceive. I will be getting married in 2 months so a pregnancy after this treatment would be the perfect gift for me and my soon to be husband. i have not experienced any weight gain, maybe some water weight. Overall I am happy with it thus far. The only reason i rated it a 4 was because i am not finished with the treatment so i dont know if it helped me a great deal yet. but i am very satisfied so far n I've noticed in reading a lot of different forums, that the shot seems to have a different effect on women older than 30. I notice in the blogs that they experience a lot of pain and the side effects are far worse. I wonder if this can be a factor in considering taking this medication. One should also take into consideration that there are more negative reviews than positive reviews, so that may be a factor as well. Also I was advised that it is recommended that this treatment be only done once and that this is only a temporary cure, 3 - 5 years. I am a recent survivor of pulmonary embolisms in both lungs as a result of birth control and had fears of taking this medication. I was advised that the hormone that causes the embolisms (like that in BC) is not in this shot, HOWEVER, the pills they give you to ward off the side effects DOES include this hormone and one should not take it if you have had previous issues with blood clots. Even still while on this medication, i am very cautious and pay a lot of attention to cramps and breathing for safety's sake. At the end of the day, there is no harm in trying this medication. I would have went to the end of the world and back to find a cure for the pain i was having. Its always worth a try, but it is never worth your life. Pay attention to the side effects and and your body. GOD BLESS F 27 6 months
3.75 MG 1X M
5/9/2012
Email
 5  Endometriosis Severe hot flashes, mood swings, no decrease in sex drive but very dry. I'm now 22 and getting ready to have surgery and do another round of this. Honestly it was the best 6 months of my life to have such a relief from pain. F 18 6 months
1x/month
4/27/2012
Email
 4  Large fibroid Mild cramping. Got regular period after shot. Fibroid is starting to shrink. Thus far very happy. Breast enlargement and tender ess. Excited to permanently be rid of fibroid. Hysterectomy will also be a blessing. I was nervous for shot, but thus far worth trying. F 41 3 months
11.25
4/5/2012

 5  Fibroid tumors Hot flahes, weight gain, Not sure about headaches I've always had them, but now I have them in my sleep. Saved my job..changed my schedule at work and I now have to be there. I would have lost my job if I had not received that shot. This is March,12 I had my last period March,11 and I could not move. Bleed for 36 hours straight!! OMG what a nightmare. I had just come off of lupron for the second time. I didn't know I could not stop getting the shot since it says 6 months. Figure it didn't work the 1st time, so i got it again. Behind that nightmare 1 year ago. I have not been w/out the shot until now. Couldn't get it this month and I am having all those horrible symptoms again. I pray missing this month doesn't make me have a cycle again. I love Lupron, whatever the side effects, doesn't compare to the pain, headaches and horrible flow. I also read reviews of Lupron and started not to get it. Even after the 2nd round, I read the reviews again and hesitated.-musta been crazy! I got the shot in 4 6month doses. It helped me soooooo much. Because of all the bad reviews I chose the lower 3.75 dosages, maybe the high dosage makes side effects worse. I wanted to ease into the medicine, to try to feel out side effects and stop if I needed to. F 51 2 years
3.75 1X M
3/30/2012
Email
 2  endometriosis While on it: hot flashes (nearly froze my family by opening window in winter); headaches (once requiring trip to emergency room); complete and total exhaustion Those are the symptoms that stick out most It's been over 2 years since having the treatment and, while I've had migraines since puberty hit, they've graduated to causing lesions on my brain (I'm going to have my neurologist make sure it's not cerebellar endometriosis, however, to be sure) and I've become forgetful, lost my previously great ability to multi-task and have recently experienced numbness and walking into corners, etc. To be fair, I'm not sure how much of the neurological symptoms have to do with the Lupron specifically but those symptoms have either shown up and/or gotten progressively worse since the treatment. Also, the exhaustion has not gone away really at all. I was told it goes away after about 6 months after the final dose. Over 2 years later, I still fight it and cannot maintain enough energy to get myself back in shape to keep up with my 3-yr old. It has improved a bit but only after having a Reiki attunement and doing self-healings. That said, it's still a significant struggle and my dizziness has increased as I try to get the most of the little energy increase I had. Would I recommend it? Considering that myself and my adopted sister have had these complications with Lupron, I'd advise against it. If a patient feels the benefits to her/his condition outweigh the potential risks, however, I'd advise putting her/his doctor "under the light" and asking every question possible about the risks and side effects. If she/he has any reservations, she/he should go with her/his F 31 6 months
3.75 1X M
3/25/2012
Email
 4  Stage 5 Endometriosis I actually had cold flashes and hot flashes. My temp would change often. Had trouble sleeping, would wake up often. No weight gain, however I stayed on my normal exersize routing. I did seem to have an increased apetite which wasnt that great, but tried to control it. I've never really gotten pimples and my face did break out a little bit when I was taking the medication. No loss in sexual desire but i was unusually dry in that area. I had an amazing change in my usual pains. None of the pains that I have always had with Endometriosis. It was pretty amazing to wake up and feel good. My nails and hair also grew very fast on this medication. Im a little upset because when I was deciding if I was going to take Depot Lupron like my doctor suggested I looked on here for reviews and was completly scared out of it. I waited a year and went through another awful surgery until I decided to try it for myself. I have had very positive results so far. Listen, if you feel what I felt over the past 10 years from the Endometriosis getting worse and worse, and the surgeries and the cysts and every awful little side effect that comes with this disease then you'll know that a couple small side effects arent that bad. Maybe it was just me, but I would happily trade my cramps and stabbing pains every time I peed or had sex or exersized for some hot flashes and sleepless nights. Good deal. I have two weeks and my treatment will be over and then I guess I'll see whats next and if it helped in the long run. For the time being I have def. been pain free for 8 months. F 26 8 months
90 MG 1X O
2/25/2012
Email
 1  endometriosis, adnomyosis Terrible hot flashes, fatigue, knees aching. Now my vision keep blacking out every 3 minutes. I still have the same pain I had from the begining, only difference I have the pain daily. I'm weighing my options about having a hysterectomy. I wish some one would have told me about these side effects. Very in happy F 26 9 months
11.25mg
2/25/2012
Email
 1  endometriosis This medication SHOULD be removed from the market, I got my first shot one week ago, and I have had sever body aches, migrains, chest pains, numbness in both arms, problems sleeping, swelling of the throat, problems breathing, unable to have energy, weak all the time,its like having the flue but never getting over it. Even my bones hurt, my breast feel like they are brused, full of pain to wear a bra, I sleep far more than 14-18hrs a day and still feel tiered. I went to a ER for chest pain, they couldnt do anything for me. Do not take this drug,, FDA take this OFF THE MARKET! F 34 7 days
13.25
2/23/2012

 4  Endometriosis Mild hot flashes but nothing debilitating, mild mood swings, increase in pain during the first 3 weeks but I had been warned about that by my M.D., lots of new gray hair. The one major thing I noticed was that I became extremely sensitive to any caffeine intake- I became very shaky, sweaty, and tachycardic (fast pulse) even if I just drank a diet coke, which is something I used to do every day. I must admit, I thought this treatment was going to be a LOT worse. Other than these gray hairs that I have now, I've been fine. I just had my 6th shot last week, so I cannot speak yet about how long it will take to get my cycle back to normal or how long the pain relief will last. I experienced mild vaginal dryness but not too bad; loss of sex drive did not occur for me. I would say I was probably more emotional/moody during the first 2 months of treatment, but leveled out after that. My skin cleared up. It has been a good experience overall. F 28 6 months
3.75 mg 1X M
2/4/2012
Email
 1  endometriosis hot flashes, 60 lbs weight gain, acne, fatigue, leg aches, intolerance to temperature, excessive sleepiness (I can sleep for 14 hours straight), inability to lose weight. side effects don't go away...even after 3 years. I took a dose of lupron only once. It did nothing for my pain relief, but it messed me up really well. In addition to suffering from daily pain, I gained 60 lbs and am constantly uncomfortable in my environment because of hot flashes and just not finding the perfect temperature. My legs developed an ache that seems to go down to my bones. It's been 3 1/2 years since I got this stupid shot and I still haven't lost a pound no matter what I try, and I still have hot flashes, leg aches and my sleeping problems. This drug really ruined my life. I was 27 when I took it. Now I have less energy than my 87 year old grandmother. I know I will never have children. I've lost all hope. DO NOT take this drug. F 30 1 times
30 mg 1X M
1/27/2012
Email
 2  To prevent menstrual cycle Not working I still have menstrual cycle F 47 3 months
1/25/2012

 2  Endometriosis, PCOS, Ovarian Cyst NO side effects other than some mild mood changes. I took lupron about 10 years ago when I had only endometriosis. Back then I took it for 6 months and it helped so much with my pain, and my side effects were minimal, I didn't take any hormone replacement therapy, either. Presently, I started lupron again for not only endometriosis, but PCOS and small ovarian cysts (under 2 cm). I started my 3 month shot a month ago and I'm having NO PAIN RELIEF whatsoever. I'm bleeding now, heavily, yet never bled when I took it years ago. If anyone has any experience with lupron and PCOS with OVarian cysts I would appreciate responses if it helped you or not with bleeding and pain. I'm very desperate for pain relief, but don't want a hysterectomy because I'm 33 and may want to have a child. Thanks! F 33 1 months
11.5 mg 1X O
1/17/2012
Email
 1  endo Felt great while on meds, but the years following are HORRIBLE! I hv been diagnosed with scolliosis recently, dense bones, painful joints, headaches,no sexual desire at all! Depression, anxiaty, phobias all new things for me since the first year been off the shot...save yourself & ban this poison now! F 34 1 years
1/6/2012

 5  Stage 4 Endometriosis, infertility Mild heartburn for 3 days following my first injection. Mild hot flashes started after my 2nd injection which continued to increase in frequency and intensity. The hot flashes increased following my 3rd injection with night sweats, some insomnia, and some slight changes in irritability. My weight has remained stable and I haven't had problems with acne. I started Lupron Depot 1x/month inj immediately following lap surgery to remove stage 4 endo. My doc's goal was to put me on this med for 3 months to stop estrogen production to allow my body the chance to heal. I had my 3rd injection 3 weeks ago and will be seeing my doctor again next week to discuss the next step towards pursuing IVF. I'm fortunate because I never suffered w/ pain from my endo even though it had bound my organs together resulting in infertility and causing a kink in my bowel. Since starting Lupron, I've had some mild discomfort but nothing intolerable. The hot flashes feel like standing in front of a 400 degree oven when you first open the oven door, but they go away eventually. The night sweats are a nuisance, but I've been able to fall back asleep. I feel irritable at times, but honestly, I made the personal choice to accept that these symptoms are only temporary & this has allowed me to continue living my life without ruminating on how much it sucks to be infertile, to have endo, to have hot flashes as a 34-year old, etc. Remember that the majority of people who write blog entries are going to report their negative symptoms, while the people who don't have the side effects aren't even looking on the internet in the first place. I wanted to put my honest opinion out there to counteract the negative feedback. My heart goes out to anyone who has suffered from this medication. I wish you all the best of luck with your health and fertility:-) F 34 3 months
1X M
12/16/2011
Email
 4  severe endometriosis and pain Hot flashes, night sweats, occasional migraine, 5-10 pound weight gain, severe joint pain (some mornings I dread getting out of bed it hurts so much), forgetfulness, complete loss of sex drive, breast size increase, fluid retention, sleeplessness, increased anxiety It took a few months for the Lupron to even begin to work. Symptoms stayed the same for several months the started to gradually improve. Pain substantially decreased after a couple months. Now there is only a 2 cm cyst left. While the side effects are horrible, it did save me from having another surgery right away (I've had 3 so far). I am looking forward to feeling like myself again and hoping the side effects fade away very quickly!!! F 37 16 months
1X M
12/16/2011
Email
 1  Pre-surgery for Lap and hyst High blood pressure, increased heart rate, deppression, anxiety, major leg pain, insomnia, muscle spasms, shivers and sweats, forgetfulness, irritabilty, cry for no reason, back pain, skin on face is dry and scaling, extreme fatigue and feeling of hopelessness, lack of appetite , nausea, vomitting, diarhea I started a week ago with add back estrogen, now just crying a few times a day. I wish I would have never taken this drug and really hope these side affects wear off. Went into the hospital for a racing heart in the middle of the night, they are referring me to a cardiologist. I did stop bleeding and have less cramps. Feel free to eamil me if you are going through something similar. F 43 3 weeks
3.75 1X M
12/15/2011
Email
 2  Uterine Fibroid Hot flashes, mood swings, acne, weight gain, (more) pain, nausea, migraines, regular menstrual cycle (which i was told was supposed to stop) After trying 6 different birth controls to attempt to stop my menstrual pain and bleeding associated with the fibroid my doctor "highly reccomended" I try the lupron shot. She told me it was supposed to be a miracle drug and it had a 98% success rate...i however have found myself quite unfortunatly in the unsatisfied 2%. My first 1 month was not awful, I found the hot flashes to be rather entertaining but after jumping on the scale and seeing that I had gained 17 pounds in the first month...it wasn't funny anymore. The last 5 months things only proceeded to get worse. I was using vicodin to try and manage the pain (which I found at times to be even worse than when I started) which was great until the my doctor refused to fill my perscription because "if its not working there must be something else going on" but after reading other testimonies I see I am not alone in the dissapointment. I never had spectacular skin but found my face and back broke out more after using the lupron, my friends have been less than impressed with my mood the past 6 months and I have had a regular cycle the last 4 months, regular as in lasting 7-10 days and very heavy bleeding with lots of pain. I dont say the lupron was a booming success for ME however, with a 98% success rate, your odds of being in less pain are high. F 20 6 months
3.75 1X M
12/6/2011
Email
 2  endometriosis, fibroids, cysts I received my first lupron dosage about two days ago and it has been quite miserable. As soon as I got home I was that nauseas I was vomiting. As of now the vomiting has subsided but it will randomly come back as well as the hot flashes which do not help! I woke up in the middle of the night with the worst migraine I have ever had in my life and nothing has helped it/made it go away. impossible to sleep. and the cherry on top of the cake was the fact that I woke up with acne on my face. (mind you I've had next to perfect skin my whole life) and not just a few little pimples like deep deep large painful ones. I am absolutely miserable. F 22 2 days
11/29/2011
Email
 5  Endometriosis, pain Headaches, fatigue, hot flashes, night sweats, weight gain I just finished my 6 month treatment (1 shot/mo) of Lupron with the last shot being one month ago. I read a LOT of horror stories online prior to taking the drug, but decided that personally, I needed to try it because the benefits could have out weighed the side effects. For me, that was a smart decision. I was in such severe pain. I was on continuous birth control, I had surgery, I took narcotic pain meds, I had cystoscopies and was on the IC diet for months. To say the least, I had investigated other options. I will not down-play the side effects. They are not pleasant. But compared to what I was living with, they are a walk in the park. If you are having mild discomfort and pain from endo, or other issues, think twice before taking this drug. The side effects will probably seem horrific if that is the case. But for me, I will take all those side effects and an extra 30 lbs over the pain and disruption endo was causing in my life. It may be short lived now that the shots are over, but I would do it again if needed and if it will mean keeping all of my organs necessary to conceive. My doctor was thorough in explaining my choices, and I made an informed one. I suggest you do the same for your own situation. F 28 6 months
3.5 1X M
11/22/2011
Email
 4  Endometriosis Hot Flashes, Weight gain, mood swings I took two shots that lasted six months and the side affects have been pretty minimal. I have had mild hot flashes and tend to get hotter easier. My husband seems to think I have mood swings, my doctor prescribed lexapro when I got my first shot to help with the mood swings. The side affect I dislike the most is the weight gain. I have put on anywhere between 10-15 pounds but most seems to have come on after the second shot in September. I would suggest keeping a workout schedule to try to keep weight gain to a minimum from the beginning. I have been trying to lose weight while on the shot and nothing seems to give. Overall I would say the Lupron shot has worked very well, I can live with a little extra weight. F 27 6 months
2X O
11/14/2011

 1  Severe Endometriosis Extreme hot flashes & night sweats, Mood swings, Major weight loss, Nausea, Additional pains, Severe migranes, Loss of sleep, & energy. I am a 21 year old female who has been battling a severe case of endometriosis for the past 2 years, I have had 2 surgeries....the first one my OB/GYN doc. removed a dermoid cyst off my L ovary. The 2nd surgery 3 months later they removed the whole L ovary due to the dermoid cyst growing back so quickly. I was then given nothing but PAIN KILLERS! So I asked my doctor if there was any other form of medication that he could give me to subside these excruciating pains, he told me not at the moment. A few days later I was rushed into the ER & demanded a hysterectomy because these pains were now interrupting and taking over my day to day life. The OB doctor in the ER told me briefly about the lupron shot and told me that it would be my best solution until I wanted to conceive which I do not plan on for aprox. 4 years from now. Thats 1 shot EVERY 3 MONTHS!! I took the shot, it was injected in my lower R back. About 2 weeks later my life turned 5x more miserable than it was before the shot was given. Hot flashes were extreme! Mood swings were rediculous! Appetite changes led to major weight loss! And to top it off I lost my job because I had to call in sick multiple days due to the nausea & extra pains the shot brought upon me! I chose to NOT take the shot anymore since it did not help my situation one bit, in fact just made things worse, & here I am 5 1/2 months after my 1st shot and still have not had a period, still have mood swings & worst of all...HOT FLASHES F 21 90 days
30MG 1X AN
11/13/2011
Email
 2  Severe endometriosis Mood swings, great depression,nausea,hot flashes, back pain,short term memory lost, excessive bleeding,abdomen pain,feel like passing out,upset stomach. After I had my first and surgery which was a diagnostic lap, I was put on lupron depot 3.75 mg a month! I thought I was dying, I was angry for no reason and irritable for every little thing. I was going through so many pre-menopause like symptoms. It made me want a hysterectomy ,and your talking to a person who was and dreams of having children. I'm on my fourth one now and can say I finally stopped bleeding of 1.5 months and I stool have discharge of light bleeding. I get so depressed I think life is so horrible why am I here? I even asked my doctor for a hysterectomy, and I'm 24 no kids no husband. I just keep thinking when does the pain ever end. I can barely have sex cause of the endo being in my nerves. Iupron works for some and not for others.. F 24 4 months
3.75 1X M
11/10/2011
Email
 2  Large fibroid Tired all day, insomnia, terrible mood swings and road rage, hot flashes that feel like you are being microwaved and hungry all the time. Weight gain. I just took my second shot last week and had to get anti anxiety pills as well to help curb the crazy side effects. After to first shot I could hardly stay awake during the day. About 2:00 every day I had to take a nap. After Bout 3 weeks the insomnia and complete crazyness kicks in. I'm afraid I might say or do something at work that can get me in trouble and I snap at just about everything. I went ahead and told my doctor there is no way I can do a third shot and scheduled the surgery for a little over a month from now. Hopefully the softball size tumor has shrunk and this crazy drug did what it is supposed to do. I would only recommend this drug as a last resort. I see people taking this drug to get pregnant and I think you are insane. Go adopt a kid there are plenty out there that need good homes. I did. F 32 2 months
1X M
11/7/2011
Email
 1  Uterine Fibroids I experience severe hot flashes every 40 min and night sweats just as frequent with bouts of weakness and fatique. Sever pain and limited movement in my right arm and shoulder. Mood swings, periods of anger and confusion. This is not a drug I would recommend. The side effects are too horrific. I could only tolerate it for three months and I had my hysterectomy so that I could get off of the shot. Nasty experience. I was almost driven insane. I refused to take a shot in October, instead I had the surgery, but I still suffer from pain and stiffness in my right arm and shoulder with limited movement. I am barely able to dress myself, comb my hair, use the bathroom, etc. I am hoping things will get back to normal soon, F 50 3 months
1X M
10/26/2011
Email
 1  suspected endometriosis hip joint pain, worsening of pelvic pain I have had severe, constant lower left quadrant pelvic pain for the last 3 months and prior to this, the pain was sporadic for 3.5 yrs. I can no longer stand or walk for any distance and am taking hyrdromorphone for the pain (6 times stronger than morhpine). My gyno is guessing at endometriosis, but doesn't think this is what I have because the pain is constant and doesn't just come and go with my period. I have had nausea, bloating and tiredness since this started and am now completely sedentary due to the constant pain. I used to be a marathon runner before this started and have gained 40 lbs. over 3 years because I am not moving at all. Has anyone else had this type of severe, constant pain that turned out to be endo? I have had lots of CT's and ultrasounds, but am still waiting for an MRI and surgery. I got a shot of lupron 3 days ago (1 month dose) and I'm waiting to see if the pain dissipates in 2 weeks once the initial flare is done. I would love to hear from anyone else who has had the same type of pain or symptom history that turned out to be endo. My doctor has ruled out gastro and urinary problems, but I also have interstitial cystitis (painful bladder syndrome) which may or may not be related to my chronic pelvic pain. F 42 3 days
1X D
9/22/2011
Email
BACK TO TOP
Page: 1 2 3 4 5 6 7 8 9 10 11 12 13




Douglas