Drug Ratings for TEGRETOLAverage Rating: 3.3 (276 Ratings)
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Results are sorted by Date Rating Was Added Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 |
Charts & graphs: Reviews Summary for TEGRETOL | Top 10 Adverse Effects (reported to FDA)
| RATING | REASON | SIDE EFFECTS FOR TEGRETOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 2 | Tonic clonic seizures | Severe constant tiredness,my concentration & memory have decreased dramtically,aching body,severe night sweats,rage,lazyness, neuro suggests keppra, but don’t like the look of that either | M | 55 | 2 years 900 mg | 5/30/2017 | 2 | Switched from keppra | Forgetfulness stumbling vision | Keppra was making me so tired. So I switched. Not as tired but hate both but of them | F | 74 | 0 times 200 | 5/21/2017 | 2 | Fits | Dry mouth forgetting things jumpie | Don't like taken them | F | 42 | 9 years 1200 6 day | 4/11/2017 | 1 | It produces suicidal thoughts | Suicidal thoughts | Suicidal thoughts | M | 10 days 200 | 2/23/2017 | 4 | epilepsy | Drowsiness, forgetfulness and body jerks. | Drowsiness I understand... Due to it relaxing my brain,but my forgetfulness and body jerks have gotten worst.medication has not given me any seizures since I'm taking it,better than epilum.just worried about my side effects. | F | 34 | 10 months 200mg | 11/22/2016 | 4 | Atypical Trigemanil neuralgia | I have not had any side effects thus far hopefully I won't | I was hospitalized before I could get correct diagnosis.It has worked well so far pain is almost gone,I can open my mouth more than an inch now. | F | 64 | 2 weeks 100mg 2X D | 11/21/2016 | 5 | Epilepsy | Have taken Tegretol for a very long time. Now that I am older I am wondering whether it is responsible for my brain fog and confusion. | F | 61 | 10 years | 11/4/2016 | 1 | Seizures | 8 mths coming off slow its sodium in brain decreases this shit is poison was taking 5 200 mg a day on it 38 years next week only half 200 pill | Best neurologist in usa taking me off very slow | F | 57 | 1 days 200 | 9/20/2016 | 3 | trigeminal neuralgia | constipation, confusion, balance | Looking back, I wish my MD had been more attentive to the side effects When I presented in 2012 with severe TN (levels 7-10 pain, couldn't talk, no solid food), Tegretol provided immediate relief, without any obvious side effects. Shortly thereafter, I met a fantastic woman and became engaged. To merge our families with three kids meant I had to take certain steps in a short period of time, sell my house and buy a new house for us. All while also holding a demanding job and going to school part time. With any complex task, things got foggy. Contact a realtor, get a loan, fix my credit, create a list of things to fix in order to sell the house. I couldn’t do these things. Tegretol made me into slug. And my fiancé saw this and began to wonder about me. My MD knew the basics of our situation, had met my fiancé. A neurologist, "one of the best", lots of experience with this drug. If he had been more compassionate he might have seen what was happening. Ultimately my finance saw what I was doing, interpreted my actions as meaning that I really didn't want her and the marriage, and cancelled the wedding five weeks out. I was angry and confused, she has moved on, convinced that there is something wrong with me. My current MD is getting me off Tegretol and will now phase in other drugs and consider interventional radiology/ electro and/or MVD. Be very, very careful with this drug. | M | 55 | 4 years 1200mg 3X D | 8/3/2016 | 3 | Trigeminal neuralgia | Pain is controlled. But terrible headache was never there before. Only for last 1 month pounding headache with nausea. I am having long period of remission presently pain came back after 2 years. I do not take med when in remission | Only tablet to control TN pain. | M | 72 | 10 years 600mg | 6/19/2016 | 2 | prevent seizures post Head Injury | Seizures were under control but always felt low and slow. Performing daily activities was difficult and had learning difficulties. Brain felt heavy, blocked and retarded. Had many negative thoughts and was low on confidence. | My interest in doing anything was very low. All the time I felt I could not do what I wanted to do. I would forget things easily. Confidence levels were very low but better than when I was taking Phenytoin. Performing any activity took extra effort and would commit many mistakes. Had to struggle to keep myself going. Coupled with a handicap and head injury, the drug made my life worse.Everyone was saying I was lazy and very slow. Had difficulty in speaking. Could not study well and remembering anything I studied was difficult. Had many negative thoughts about myself.. Had to push myself moment to moment to stay alive and going. had many uncontrolled thoughts, and used to remember my past everyday. Difficulty in concentrating on the work in hand. Some used to say I lacked presence of mind. Low sex drive and difficulty in movement, laziness. | M | 26 | 7 years 200mg 2X D | 5/21/2016 | 4 | epilepsy | Shaky, nausea only has been going on for a couple of months now, I've had blood tests done to rule out diabetes because it seems like my blood is going really low, good and bad days | Tegretol is a really good medicine as it stopped me having seizures at the age of 2, I was having up to 20 a day. Fully controlled now bit usually return once a year and then my medicine is put a by two mls a day. | M | 14 | 10 years 32mls | 4/29/2016 | 5 | epilepsy | Pretty good med,but can get blurry vision sometimes and after 6 years on it can sometimes feel like I'm wasted/stoned/drunk, but without the other effects of drunk. Like, when I'm walking sometimes it's like I'm disconnected from my legs or body but they are operating normally. I think my brain sometimes isn't fully in the moment and its a bit wierd. | It works, and mostly its good. | M | 39 | 6 years 700mg/day | 3/25/2016 | 4 | Bipolar II anxiety temporal lobe ep | Poor word recollection, zomification, forgetfulness, sudden random tiredness, slurred speech. | Seizures have stopped which is great. Anxiety better too. Too early to tell if bp has improved. Forgetfulness quite a problem but tegretol fortunately makes me chilled out about that. As someone who had a very good memory, the forgetfulness is taking some getting used to. At random points in the day I get sudden 'drunken/stoned' effects and have to sleep. My speech and word recollection are often poor and the onset of these are unpredictable. Even so, as someone who has tried many psych meds, this is in comparison a dream. | F | 39 | 3 months 200-300mg | 3/20/2016 | 5 | Blurry vision confusion skin problem | M | 20 | 1 days 1000 | 2/19/2016 | 4 | epilepsy | Blurry vision, tiredness sometimes, spaced out feeling sometimes. Doesn't help with myoclonic seizure | Worked straight away with t/c seizures. Generally is fine, feel like I'm on drugs half the time even after 6yrs. Taurine really helps with side effects, and good at calming myoclonic too, 500mg-1500mg a day good for me | M | 39 | 6 years 700mg/day | 1/13/2016 | 2 | seizures | Over the first 20+ years it always caused SIADH at therapeutic levels (800 mg/day-1200 mg/day). Currently on just 200 mg/day and free from SIADH. | F | 50 | 30 years Varies 2X D | 12/7/2015 | 3 | Past epilepsy | I thought I just suffered from memory loss but I realise it might be the meds. Iv never been able to study. I have mood swings and sleep a lot. Low sex drive. | I know a girl who had same operation and stopped taking it. I want to be normal and get what I can out of life. But being blahh and lazy on these meds got me no where | F | 29 | 10 years 400mg | 11/25/2015 | 4 | To prevent epilepsy at sleep | Make me feel tired and sleep | M | 1 days 400 | 11/11/2015 | 3 | Epilepsy | confusion, difficulty with word retrieval, lack of motivation, depression, lack of concentration, decreased sex drive, bleeding gums, shaking hands, very yellow urine, fatigue, increased anger and frustration, hopelessness/feeling empty | Be warned. This drug can have some seriously dangerous side effects that will ruin you. I'm a university student who was doing well and motivated to study. after being put on this drug, I have no interest in working and on the odd occasion I manage to bring myself to do some work...I get distracted at the drop of a coin. I wish this Drug didn't have such extreme side effects as its becoming too much for me. Everyone thinks that I've just become some idiot and I'm not working/socialising/happy for no reason and thats not the case. I was never like this before I went on this drug. So to those using it...be careful. If you feel these side effects are happening, talk to the doctor about potentially trying a different medication. Sorry to vent guys...I just have no one to talk to. I hope whoever else takes this drug gets no side effects and it works for them perfectly. | M | 21 | 8 months 200mg 2X D | 10/29/2015 | 5 | Neural Net Mess | Costs $$ | This tegertal is dope yo ! | M | 17 | 1 times 400 | 9/4/2015 | 4 | Trigeminal Neuralgia | slightly slurred speach, hearing does not sound natural, unable to walk in straight line | Excellent pain relief. I have been on tegretol for over 10 years. I started with 1 pill (200 mg) per day and have varied it depending on the outbreaks. I increase it to 1000 mg per day when the pain is severe. I currently take 800 mg per day and have started to slowly reduce it to 700 mg per day. Target is to take 400 mg per day (2 pills). I also take 1600 mg of neurontin. | M | 55 | 200mg X 4 2X D | 8/11/2015 | 3 | Trigeminal Neuralgia | Low concentration, rashes, tiredness, "spaced out", hallucinations, dry mouth, stuttering, loss of motivation for everything | I've been taking the drug at different dosages for a year now. It seems that the higher my dose is, the less time it actually lasts in helping my pain. Side effects are too intense for me to take them my whole life. I currently being treated by a NUCCA doctor and will be aiming to try medicinal marijuana (Charlottes Web or the strain similar to it) | F | 23 | 5 months 200 MG 2X D | 7/26/2015 | 1 | Trigeminal neuralgia | Mild seizures, weak limbs especialy the arms. Pain in the lower right side of the body, shortness of breath. | The side effects of this drug is scary. Wish I did not have to take it. Want to get off it. Helps with the pain though. | F | 32 | 2 months 200mg | 7/26/2015 | 1 | Sleeping/depression | Very sick from it. Won't stop bleeding, teeth and gums constant hurting, hallucinations, gain weight | I do not recommend this to any one | F | 40 | 10 days 400 mg | 7/4/2015 | 5 | Chronic neck pain | I am having sexual side effects & having strange dreams. Imsomnia. | Excellent to relieving my neck pain I have had for 18 years. Wonderful for pain. | F | 42 | 1 days 400mg | 6/19/2015 | 4 | seIzures | Dizzy,sleepy. | Disturbs my routine daily. | F | 47 | 1 days 100mg | 6/9/2015 | 5 | trigeminal neuralgia | Poor word recall, muscle jerks, periodic weird hearing, complete loss of appetite leading to large loss of weight. | I am finding the loss of appetite quite troubling ATM but it is a relief to be mostly pain free. | F | 36 | 10 months 400mg x3 | 5/27/2015 | 3 | nerve pain exacetbation | Acne all over my face. | I started weaning down. Now taking 100 mg to stop soon. I've never had acne this bad in my life. Apparently people my age are more prone to this. 30-39 yrs. | F | 32 | 3 weeks 200 mg | 5/26/2015 | 3 | epilepsy/sezuires | I been on tegretol for two weeks and I have been recently vomiting and the whole of the right side of my face has a rash even my ear what do I do | F | 22 | 2 weeks 200 | 5/16/2015 | 3 | trigeminal neuralgia | acid, difficulty breathing, sore throat and nausea | Have only been on this for two days, I can't say if it is working or not by the side effects are scary. | F | 29 | 2 days 100mg | 5/6/2015 | 3 | To stop "complex partial seizures" | As soon as I started on the 100mg, I noticed my hearing was a bit off. I could listen to a song I know very well and tell that the pitch didn't sound right. The pitch has gotten deeper as I've increased my dosage. | At least I haven't had any "episodes" | M | 14 | 8 months 500MG per | 5/4/2015 | 2 | MS | Somnolence Nausea | I take this with Lyrica and I don't know what this drug is doing except making me sleepy. | F | 42 | 1 months 400 mg 2X D | 2/26/2015 | 3 | bipolar | I take tegretol twice a day. (200mg/per dose) When I take my second dose at night my cheeks get really warm/almost burning. This only happens at night and I have no idea why. This medicine woks pretty good minus the hot cheeks. | F | 37 | 2 months 400 | 1/16/2015 | 5 | mood stabilizer | A really bad breakout just on my face it wasnt zits but it was like acne and I tried everything to cure it I never thought it was my medicine until my refill ran out and I had to go like 2 or 3 weeks without it while I waited on my appointment . my face cleared up completely. Now im back on my medicine and its back.. I also have really bad muscle jerks on thos medicine. Other than that it is the best medication for me I. Have tried literally everything else .. | F | 26 | 1 years 1200 | 12/15/2014 | 5 | to control my epilepsy | I've had epilepsy since I was 14yrs old. It helps to control my seizures but I still have them! Sometimes up to 3Times a day! | I've had Acne since I was 13 and was wondering weather it was this giving me it?! I'm seeing a specialist who specialises in dermatology end of this month so my Doctor wouldnt of let me if it was my meds making my skin like it was don't u think? | F | 28 | 10 years 600mg | 12/5/2014 | 4 | Trigeminal neuralgia | short term memory loss, trouble with concentrating and word retrieval, headaches, nausea | tegretol is controlling the pain to a degree. After being on it for 2mths. I had breakthrough pain. Since I was at the highest dose I could tolerate (900mg per day), lyrica was added to my daily meds. The combination has helped a lot. | F | 56 | 6 months 300 3x | 12/3/2014 | 2 | Trigmental neurogia | I woke up on Saturday and I could not walk in a straight line and could not function. I called the on call doctor and he told me to stop taking it and take 1/2 pill twice a day on Sunday. Monday I took 1/2 pill in the morning and I was cold and then discovered I was weak. I called the doctor. He told me to stop taking it and call my doctor tomorrow. My doctor was not in. | I do not have as much pain but the side effects of this medicine are not good. I need to not take this medicine or adjust the dosage. | F | 62 | 4 days 200 2X D | 11/24/2014 | 3 | occipital seizures after stroke | Initially I felt tired and very foggy mentally but that passed after about a week. Now I have a loss of libido, but most troubling is that I am having sharp pains in my head, I have cut back my dosage to 100mg at night and that seems to help a bit. | My occipital seizures have diminished but are not completely cured. | M | 57 | 30 days 200mg 2X D | 11/16/2014 | 2 | neuropathy of mouth | Wired up, couldn't relax, but sleepy for brief periods. Bad indigestion, stomach stayed bloated & hard. Am hypoglycemic, adversely affected blood sugar levels. Nausea with eating, headaches, food not tasting right. Did help with burning & pain. Decided side effects not worth it. | F | 58 | 8 days 200 mg x2 | 10/21/2014 | 5 | trigmetol neuralgia | No prob started on 100 twice a day n moved up to 600 now in 200 Mg tablets bits sick n bit of headache to start but it's stopped pain so far n that's all that matters at moment; | F | 42 | 3 weeks | 10/2/2014 | 1 | bi polar | Severe dry mouth | F | 46 | 2 years | 10/2/2014 | 5 | Epilepsy | No major side effects had trouble concentrating as I do now. Became a little depressed. | I feel the medication has definitely changed my life for the good. | F | 26 | 10 years 1X D | 9/16/2014 | 3 | polyneuropathy | Dizziness, sleepiness, problems focusing mentally, problems concentrating, forgetfulness, and constant double vision. I feel like someone who is drunk. | Even though this medication does help my neuropathy to a certain extent, the side effects have changed my life negatively. I cannot do any tasks, and I sleep most of the day. | M | 49 | 6 months 900 3X D | 8/19/2014 | 5 | Epilepsy | constant tiredness since childhood, low concentration,anxiety, mood swings, memory poor | Controlled my epilepsy when other drugs didn't.Having taken it for a long time, i have noticed various side efects over the years. The ones that effected me most were tiredness and anxiety. Anxiety and irritability are problems on thse meds especially if you don't keep routine, drink lots of water etc. I have been cutting down my dose to withraw after longterm use, i'd like to know what normal is, I have worked and studied all my life and achieved a great deal, though it has been a struggle at times. I look forward to being free of meds. | F | 36 | 25 years 400mg 2X D | 8/16/2014 | 3 | bipolar and seizures | complete loss of taste | What is worse, mania or no enjoyment in eating? | F | 55 | 8 weeks 300 2X D | 7/27/2014 | 3 | seizures | Migraines ,nausea, sleepy , head feeling very heavy . Tongue tied , | F | 46 | 8 years 650mgs | 7/18/2014 | 1 | mood stabliser | been taking it for 4 years, casuing awful memory probs and worsened dyslexia. . gradually reduced over this year evry 3 months- memory is amazing and dyslexia isn't that bad any more. moods- normal . down to 100mg now. | pts should be warned that taking this medication it will casue memory problems and forgetfulness, once off the meds the memory will come back !! | F | 30 | 400 2X D | 7/16/2014 | 4 | Seizure disorder | After a few years of taking tregretol I now feel as if I'm getting a seizure but it doesn't actually take place also, I feel depressed more often than normal | F | 19 | 4 years 200mg | 7/11/2014 | 3 | Epilepsy | Drowsiness Unsteadiness Vomiting | F | 15 | 10 months 1600mg | 5/12/2014 | 4 | Seizure disorder | nausea, fatigue (after 4 hours of taking dosage I pass out for a few minutes), metallic taste in mouth | F | 25 | 2 years 1000mg | 4/27/2014 | 5 | Bipolar II | Initially and with dose increase: anxiety, headache, pressure in temples, very mild nausea, constipation. When trying to go above 600mg: persistent headache, metallic taste in mouth. Constant side-effect: jaw clenching. | This seemed to take a while to kick in. Started on 400mg and went to 600mg after about 4 weeks. It lifted my depression quite quickly, but during both dose increases I got anxiety. The moodswings aren't gone, but they seem "shallower" and less frequent. Everything's much milder than it was and more manageable. It helps with sleep; even when "up" I manage 5hrs a night. After 6 months I can barely tell I'm taking any medication, the side-effects are so slight. Really pleased as I had a nightmare on lamotrigine. | F | 35 | 6 months 600 2X D | 3/26/2014 | 3 | Trigeminal neuralgia | Extreme fatigue and complete loss of taste which led to loss of appetite and loss of weight. Continuous salty taste in mouth. Drinking water is like drinking sea water. Am going to discontinue next week hopefully my taste will come back . Apparently diagnoses was wrong , but it did help me get rid of the continuous sharp pain on my head. | F | 34 | 1 months 400 | 3/9/2014 | 1 | Bipolar | I was just not getting back to myself with a manic to a depressed state. Doc switched from lamictal to this drug. Was tired,dizzy, thought process was bad. 7 day in I went totally 360, went into being dis-associated. It was bad, never been in that state before. Went off of it. | I was hopeful that it was going to work. Even two days in, I didn't feel right. | F | 43 | 8 days 200 2X D | 2/5/2014 | 4 | non-cardiac chest pain | short-term memory problem (feel profoundly stupid, forget what i am saying and lose words), loss of libido, tingling in tongue | doctor prescribed it off label for non-cardiac chest pain. went from having severe pain for hours several times a day to having 0 to 2 short attacks a day | F | 41 | 1 months 100 2X D | 12/14/2013 | 3 | Dyskinesia | Fatigue, sore neck, heard sounds differently (they sounded flat), had a bit of trouble with short-term memory. These were persistent for the first month and then went away. Now there are no side effects. | F | 37 | 3 years 200 MG 2X D | 11/19/2013 | 3 | bipolar | I just started 2 months ago i feel calm but im getting werid sounds in my ear can anyone tellme if this will go away | F | 30 | 2 months 200 | 11/3/2013 | 3 | BLACKOUTS AND MOODSWINGS | I sometimes get the giggles, but i cannot giggle as much as I would like. Seemed as if my dyslexia has worsened. I tried to study on this drug..hahahaha man..I got so confused when I wrote the test..... I feel very calm though....which is very good. I don't get anger burst outs like I did before. Just I am wondering, how can I improve the memory loss problem on this drug, and I wonder why it is giving one such a problem? I have to study like 3x harder than I did. | F | 25 | 4 days 200 MG 1X D | 10/3/2013 | 5 | Trigeminal Neuralgia | Exhaustion, confusion, word recall difficulties | This drug has been a life saver! Very much worth the side effects as it has given me back some of my life. | F | 46 | 4 months 200 mg 2X D | 9/9/2013 | 5 | epilepcy/grand mal seizures | The first time I took tegretol I acted drunk. It made me feel loopy, but as time went on my body adjusted. Over the years side effects have been fatigue, low libido, and now more memory loss...looking for the right words, remembering where I put things, etc. Now it is low sodium, anemia and lower white blood cell count (not an issue right now but could be later). No bone loss from last bone density test. Be careful with antibiotics they raise tegretol levels, especially erythromycin. | I started taking Tegretol when I was 23 years old and basically was given my life back. I was having seizures every 7-10 days. With tegretol I have had only 1 seizure in 20 years . I was monitored for aplastic anemia in the early days which they have now stopped testing for. I have had two beautiful, healthy daughters even though there were low risks involved. At one time I was up to 1200 mg/day. Now I am on 800 mg/day. It has helped with side effects. | F | 32 years 200 mg 4X D | 8/9/2013 |