HYDREA Reviews (HYDROXYUREA)Average Rating: 3.6 (121 Ratings)Filter ResultsCompare HYDREA with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on HYDREA: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR HYDREA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Thrombocytosis | Mouth sores occasionally, hair loss, face rash with scaly patches | F | 76 | 30 years 1000mg | 12/3/2019 | 4 | pv | i think i've had every thing on the side effects list except hair thinning.I was diagnosed with thrombocythemia vera in 1991 when i was 23.they changed it to Pv a few years ago.I've had to leave jobs because i couldn't cope with side effects.Dizziness,fatigue etc. Twenty odd years later and i get swelling feet and ankles.Im suffering nausea at the moment Because i'm on 3 tablets 1 day then 2 the next.I eat very healthy,hardly drink and train at the gym,when i'm not feeling tired.People dont understand you feel horrible a lot,and you dont want to sound like a hypochondriac so you keep it to yourself most of the time. | It sucks! but has also kept me alive,so how do you rate that. | F | 48 | 24 years 1500mg 1X day | 11/12/2015 | 5 | Essential Thrombothycemia | Light headed at times, occasional mouth sores | I have taken this drug since age 23, it saved my life. I presented with clots in Hepatic veins in liver and platelet count of 1.3 million. Now at 600,000 have had doses of 500 daily, 500 alternating with 1000 and now trying 1000 daily with 1500 Sat. and Sun. Side effects definitely tolerable considering alternative. Also taking warfarin since diagnosis. | F | 42 | 20 years 1000 1X day | 2/2/2013 | 4 | Essential thrombocytosis | Extreme fatigue, bone and joint pain, foggy brain, lightheadedness. | None. | M | 39 | 20 years 3 x 500 mg 1X day | 5/11/2017 | 5 | ET | very tired, feeling of not being well-sometimes you feel like you have a virus, not alert, constipation, sometimes food you really love doesn't taste good or it tastes like fish ,nauseous if you get too tired-then you HAVE to go nap or go right to bed very early | I have taken as much as 6 pills a day and as little as 2 pills a week. | F | 65 | 16 years 500 mg. 1X day | 1/10/2014 | 4 | Essential Thrombocythemia | Chronic headaches, full of energy for a period, extreme fatigue the next, very fuzzy head, concentration difficulties, visual disturbances | I worry about the risk of acute leukemia | F | 49 | 16 years 90 3X day | 2/26/2010 | 4 | ET | Tired,loss of energy in afternoon. Lower leg pain. Had to stop for 3 months got ulcers on my ankle bones, very painfull. Loss of hair , dizzy spells. Short term memory affected and foggy brain. | Tried Anagrelide got huge headaches. Was offered Interferon but my brother was extremely sick from it so I refused. | M | 66 | 12 years 500/1000 | 10/14/2019 | 4 | Sickle cell anemia (HbSS) | fatigue, deterioration of hip joints, extreme cycles of constipation and diarrhea, extreme weight gain (roughly 30kg or 66lbs), skin darkening, mouth ulcers, joint pain, increased risk of infection | this drug is supposed to substantially improve my longevity and overall quality of life. however, after having been on this medication for 11 years, i'm not sure how well I will be able to manage this for the rest of my life. I'm only 22. | M | 22 | 11 years 2000 MG 1X day | 6/10/2012 | 3 | ET | Huge headaches, dizzy spells , pain under rib cage, sore legs , extreme fatigue | M | 61 | 11 years 500mg 3X day | 5/20/2015 | 1 | Essential thrombocytemia | Been having day and night sweats severe Now developing headaches Dr. told me to take low dose aspirin and that made me bleed more when I cut my self by mistake. Been to 2 oncologists Will probably stop taking it. Cant take sweats and fatigue anymore. Afraid of leukemia and life expectancy on drug. Going to dr next week. There has to be another way. Hope this helps someone else. Was taking 2 500 mg a day. Cut to one ever other day still not gettong relief Platelets are 620 last bloid test. Do these drs know what they are doing. | F | 72 | 11 years 500 mg 1X day | 9/30/2020 | 5 | Platelets | Diarrhea, constipation, headaces,back, ribs legs hurt all the time.itchy skin, dry skin, hair falling out, tired all the time. Can't hardly walk. Skin is thin n bruse easy n have dark spots. But I'm thankful to still be alive. | F | 73 | 10 years 2X day | 10/23/2022 | 5 | Myelofibrosis | I do not have any side effects that stand out, it works pretty good for me. | F | 51 | 10 years 500 mg | 3/23/2016 | 5 | ET | Hair thinning, mouth ulcers, toe nails brittle, sores that open on heel. Most things tolerable | Platelet count under control for over 6 years now. | F | 64 | 10 years 31 mg a we | 5/27/2015 | 5 | ET - Jak2 | It's hard to say if the fatigue and bouts of dizziness are from the drug or ET, but they are there. I have been noticing stomach concerns now. There was some slight stomach concerns all along, generally with a fever. I could never tell if it was from a lowered immune system. Did not need time off from work, but is frustrating at times. Now stomach concerns needing to be treated for ulcer - perhaps unrelated to meds? There is hair loss,since the beginning, but not too noticeable. Of course I am thankful for the ability to keep my count at around 350. Days I feel really off I stop taking meds for a few days. I find this very helpful and my count appears to stay in check. | F | 40 | 10 years 1g | 8/18/2015 | 4 | Essential thromoocythemia | I started getting body pain a year into taking this medication. Now it is all over and horrible. Ruining my life, really don't feel like I have a life. Went to see my dr couple of weeks ago and she stated to me that I am at risk for leukemia since I have been on it so long. (14 years) but I can't stop taking it. I hate this medicine and don't understand why they can't figure something else out and why we all suffer with this. Frustrated | F | 62 | 10 years 500 mg | 6/23/2015 | 4 | Thrombocytosis | I was freaked out when I found out I had thrombocytosis, but taking this drug so long concerns me now too. Maybe I should just freak out and get it over with! Not sure if it's my age, lol, but my mind is sure fuzzy! I teach fitness and yoga and have for 25 years, but some days my energy level is low. I'm still working and sometimes I just want to sit down and rest instead of pushing myself to keep going. I try not to worry but probably do more than I should. I meditate and do yoga and try to be grateful for everything wonderful in my life because there sure is a lot! | I wish someone would come up with something more natural and without such scary side effects. | F | 62 | 10 years 1000 1X day | 6/7/2013 | 4 | Essential Thrombocythemia | Fatigue was my original complaint but I've take it for so long that I am always tired. My most recent problem is my hands becoming very irritated and red plus my mind is becoming fuzzy. I hate taking this drug but it has saved my life. I take 4 a day and if I cut back to 3 my platelets shoot up almost spontaneously | F | 58 | 10 years 2000 mg | 12/9/2013 | 4 | Myeloproliferative disorder | None. Numbers stay under control now. Platelets were over a million without drug. I also worry about long-term effects of the drug | F | 56 | 10 years 500 mg | 11/28/2012 | 4 | ET | Diagnosed in 2006 ,ended in hospital with acute spleen pain. Diagnosed sigh ET put on Hydrea and baby Aspirin. Side effects are headaches excessive sweating, mouth ulcers,tired ,in December 2015 developed huge ulcer on ankle bone, which is still here as of April 2016. Decided to stop Hydrea until this clears up. These ulcers are very very painful. It is starting to go away. This is the by product of long term use of Hydrea. This disease ruined my retirement. But how can you look on the bright side when house feel like shit everyday. | M | 62 | 10 years 1500 MG | 4/18/2016 | 3 | Myleofibrosis | CIPN Chemo Induced Periferel Nueropathy ...general feeling of being unwell ... Felling toxic... Headache/ Fatigue/ Hair loss/ Visual disturbance ..... | It did the job it was meant to do .. But I find I can no longer take it due to the way it makes me feel & the side effects became to much after 14yrs @ 1500mg daily ... | M | 55 | 10 years 1500 | 3/23/2016 |
HYDREA (HYDROXYUREA): This medication is used by people with sickle cell anemia to reduce the number of painful crises caused by the disease and to reduce the need for blood transfusions. Some brands are also used to treat certain types of cancer (such as chronic myelogenous leukemia, squamous cell carcinomas). (Sources: U.S. Centers for Medicare Services, FDA)