Drug Ratings for HUMIRAAverage Rating: 3.3 (420 Ratings)
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Results are sorted by Date Rating Was Added from most recent to oldest Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR HUMIRA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 3 | crohns disease & ulcerative colitis | This is the second time on Humira, first was in 2008 but ended up going to resection, now on it again cause nothing else works, also on methotrexate, prednisone, B12, folic acid and flagyl! Pain in entire body (to many areas to name) headaches, dry cough, eye problems, hair loss, fatigue, nausea, numbness in left side knee and toes! I have told my dr about all symptoms but he says I'm fine, had a scope and crohns seem to be in remission but UC is active! I am not sure how much more I can take! Seems I feel worse on the humira than when I just deal with my crohns and UC!! Good luck everyone! Glad everyone here knows what eachother is going through! | F | 39 | 3 months 40mg | 6/14/2013 | 4 | RA | Fatigue, daily nausea that comes and goes, very chapped lips,mood swings,alcohol sensitivity | Humira has improved my RA symptoms. Much less swelling in my hands and feet and increased range of motion. I used to be stiff and sore for almost 2hrs after getting out of bed and this has greatly improved. I had terrible mouth sores from 2 doses of methotrexate and extreme hair loss from Arava. I am worried about long term use . | F | 49 | 2 months 40mg 2X M | 6/7/2013 | 2 | Ankylosing Spondylitis | 1 days | 5/29/2013 | 3 | Psoriatic Arthritis | Humira has changed my life in that I can walk and exercise without pain. Before Humira, there were times when I literally could not get out of bed. My husband would have to carry me to the bathroom during flare ups. However, I now get sick at the drop of a hat. I've had to take 3 rounds of antibiotics for sinus infections over the past 7 months. Also, I've had three other bad respiratory infections over the past year. I used to kick a cold in a few days but now they linger for weeks. I've missed more work this year being sick than I did back when I had flare ups. For now, I'm staying on Humira. However, if I keep getting sick, I'll have no other choice but to try another drug. | F | 38 | 2 years 40 mg 2X M | 5/21/2013 | 1 | CD | Severe dry skin, hair thinning, tingling and numbness of hands and feet, severe headaches, muslce spasms, memory loss/brain fog. | Very scared right I will not be able to work any more. | F | 57 | 18 months 40MG 2X M | 5/3/2013 | 1 | RA | Nausea, significant hair loss, swan neck deformity in four fingers, constant headaches, stiff neck, pain in both feet, cough, dry hair and skin, depression | I started on Humira 1 1/2 months ago for RA. It was added to Placquenil, Methotrexate, Prednisone and Folic Acid. My symptoms (RA) are NOT better. I'm sick to my stomach nearly every day since starting on Humira. It is worse the day of and following injections. I had one finger with swan neck deformity before Humira. Now I have four fingers with swan neck deformity. I feel like I've been hit by a truck, the fatigue is so severe. I'm dizzy most of the time and I have a constant cough. I need a new treatment plan - this is ruining my life. | F | 55 | 45 days 30 mg 2X M | 5/3/2013 | 1 | ra | after my second dose , next daY took me 20 minutes to get out of bed cause i could not breathe. went to hospital, was put in icu and put into a coma, was in hospital for 2 1/2 months, now in rehab. learning to walk again at the the age of 56, not to say i had to learn to lift my arms and feed myself too. no memory of alot that went on because of being put on a vent..its not worth what i have been through. dont take this med. | F | 56 | 14 days 2X M | 4/22/2013 | 4 | Crohn's | I was diagnosed in 1993. Have been in every medicine possible. Had a 12 in removed also temp ostomy, many infections. I inject 40mg a week. Since 2008 after all if the surgeries and Humira it seemed as though I was in remission. I felt so blessed. But in the past 2 months my side effects have worsened. Memory loss, joint pain, achey, knee and ankle pain. Numbness in feet hands fingers arms. Headaches, feeling as if you have the flu. Very worried about the longtime effects this drug will have on my quality of life. Checking with GI Surgeon soon | F | 38 | 5 years 40mg a wk | 4/6/2013 | 4 | chrones | Itchy rash from head to toe ! I get sinus infections very easy and lil to nothing else so far | M | 34 | 5 years 30mg | 4/3/2013 | 3 | RA | very bad runny nose,going bald,sight problems,knee pain ,terrible leg cramps,stomach pain,pain in feet,loss of memory long and short term,runny eyes,prostrate problems | Before I started Humira I was ready to put a gun in my mouth,the RA is better ,but the side effectsthat go with it I don`t know which is worst, not to menshion the cost of the drug.It`s feel bad with ,it`s feel bad with out it ,go bankrupt paying for it! | M | 65 | 3.5 years 40MG 2X M | 3/29/2013 | 5 | Psoriatic Arthritis | Mild nausea and sleepiness right after injection, if done at night it is gone by morning. I had some hair loss but started taking folic acid daily which fixed that. Humira has really changed my life. Before taking Humira I was often unable to open doors or hold silverwear or even button my own pants, and now my hands work perfectly. I would put up with nearly any side effect for the amount of good it has done me! | F | 27 | 4 years 2x month | 3/27/2013 | 5 | R.A. | None that I can put down to Humira - I am 51 and a bit of hair loss or a few aches comes with age doesn't it | M | 51 | 2 years 40mg | 3/17/2013 | 4 | Psoriasis -Plaque psoriasis | patches of baldness on arms and legs, bald spot on scalp size of quarter, runny nose | Reduced psoriasis on chest, back, scalp, and legs. Only small scale spots on lower legs, one of two spots on back, butt cheeks remain. | M | 56 | 2 years 2X M | 3/13/2013 | 4 | crohns | i am newly on humira. ive had just about every other medicine out there for crohns but kept getting abcesses so my doctor finally decided to put me on humira. i found out i had crohns in 2009 and in 2010 i was in the hospital over 5 times and the last time i almost died. i had 18 inches of terminal intestines and a fistula growing into my bladder. doctors removed the 18 inches and i healed (miraculously so due to docs didnt think i would so easily). i have a scar on my abdomen that looks like they just gutted an animal but i was better for @ 2yrs. thats when the abcesses started coming back so here i am! this humira medicine stings so bad but i was told to sit it out @ 30 minutes prior to injection and then to place a bag of frozen peas/corn on the site before injection to help numb the area. i havent tried that yet but will on my nxt time! nausea, mood swings, fatigue, & on occasion loss of appetite. someone told me to try marijuana for these side affects but i was worri | please if anyone does relate or has an opinion on my case please contact me! | F | 37 | 7 days 1X D | 3/5/2013 | 1 | Rheumatoid Arthritis | Took Humira for 2 years. Just Got diagnosed with Stage 4 lymphoma. I have been given 6 months left to live without treatment. Humira helped the RA but it was not worth my life. | M | 73 | 2 years | 2/10/2013 | 2 | RA | Noticed blood test showed high EOS liver count and other indications of liver abnormalities. Stopped Humira and after 6 weeks liver test are normal. Avoid the drug not worth the chance as it can wreak havoc on your body. | M | 53 | 3 months 10 2X M | 2/3/2013 | 5 | Ulcerative colitis | Fatigue. Cannot do much before resting. | It took 5 months before my ulcerative colitis went into remission. I am extremely happy to feel "normal" as my uc was severe and made my life miserable. | F | 56 | 8 months 40 mg 2X M | 1/8/2013 | 3 | Crohn's | NONE | M | 4 years 40 MG 1X W | 1/8/2013 | 4 | Ps | F | 24 | 10 months 30 2X M | 1/3/2013 History | 1 | RA | nausea, headaches, fatigue | All drugs are poisoness, RA it turns out is easily cured with apple cidar vinegar which you won't hear from a doctor, the cover up is massive since the 1950's and the drug companies own the news with their advertising budgets and the politicians with their contributions, the internet has saved me. But space is short so you can e-mail any queries. | M | 57 | 1 weeks 30 1X W | 11/29/2012 | 2 | Crohn's | First 2 months just tired and headaches for 2 days. Then muscle pain started after each injection. Last injection put me in bed for 3 days in extreme all body muscle pain, foggy thinking, sweating and got dehydrated. Almost 3 weeks later and still have muscle pain in left upper arm and right calf. I took Remicaid for 10 yrs. before that. I am NOT taking Humira again. Waiting for GI to get back from his vacation to find out what next. | Not for me. | F | 52 | 9 months 40 2X M | 11/20/2012 | 3 | crohn's | I have the worst joint pain you can think of. It changes locations in my body everyday. My joint pain seems to get worse at night once I have stopped moving. The muscles in my head also hurt and sometimes swell. My throat muscles hurt mostly at night. My blood work came back postive for lupus but I believe this is all caused from the drug. Does anyone have anything like this? I have stoped the medication four weeks ago and have seen no improvment yet. | F | 30 | 18 months 40 mg 1X W | 11/19/2012 | 4 | RA | no side effects yet and I hope I never do. | F | 56 | 10 months 3X M | 10/16/2012 | 3 | ulcerative colitis | Fatigue, hair loss, breathlessness, joint pain, general achiness, head aches, naseau, short term memory loss, extremley tired. The higher dose helped me with my colitis but can't continue medicine as the side effects are affecting my everyday life, its like having the flu everyday. | F | 40 | 6 months 80 mg 2x | 10/2/2012 | 5 | PsA | Brief stinging as it is being injected. No worse than a flu shot. I am back to 95% of mobility with this drug. It has been a miricle drug for me. I am very careful with hand washing. I actually get sick less often. However if you get to feeling run down and start having symptoms of cold or such DO NOT wait to see if it will get better. It wont and by the time you feel sick you will be much sicker than you feel. Don't chance it and just go in. | F | 36 | 10 months 40 | 9/14/2012 | 2 | pustular psorasis | excema constant all over body itching. Vaginal and rectal soreness. Not able to deal with day to day stresses. Off work for extended periods of time. original spots are multiple sizes bigger. | can't seem to get any answers from the Drs. | F | 57 | 11 months 1X W | 9/11/2012 | 5 | RA | None yet, I worry about about long term. | Humira has stopped the progression of my RA. | F | 45 | 8 years 40mg 2X M | 9/3/2012 | 5 | Crohn's | Itchy Scalp and some Muscle Cramping. I must be honest, I will take these side effects for now compared to the terrible pain I was in for so many years. Oh, and a bit of weight gain. | M | 38 | 2 years 50 MG 2X M | 8/30/2012 | 3 | psoriatic arthritis | My first week I felt fine after injection #2 I have dry mouth and headache psoriasis seem the same feel tired try one more month see if it gets better pain is better | F | 44 | 1 months x2 m | 8/30/2012 | 1 | Chrons disease | EXTREMELY TIRED all the time, fungal infections, psorisis in random patches, depression, memory fog, various infections. | M | 20 | 10 months 2X M | 8/28/2012 | 1 | Psoriatic arthritis and psoriasis | After 2nd injection pain was reduced and psoriasis went but after 3 rd injection had small red bump like rash which turned into psoriasis which really flared up and in places I had never had it before so I am worse than what I was before i started Humira .was given steroid creams to Calm it down but still have it very bad after a month of stopping Humira . Would not recommend to anyone . | F | 36 | 2 months 40mg | 8/25/2012 | 5 | Crohn's | slight weight gain, bruising at injection site, some tiredness | Great drug! costly but I've experienced very few symptoms while on this and it has pushed me into remission. Grateful. No swelling in joints, no sudden bathroom urges, eyes cleared up, etc | F | 49 | 10 months 30 1X O | 8/23/2012 | 4 | crohns | Weight gain fatigue joint pain extreme reaction to allergies | F | 30 | 1 years 40mg 4Xm | 8/21/2012 | 1 | Chrons Disease | Extream fatigue, flu sympotoms after injecting, extream muscle/body aches, respitory problems, depression, random soar throat, memory issues.Overall quality of life was worse and I still flaired once a month on Humira. Discontinued usage. Currently on Entocourot (which I have taken before). Diagnosed in 2006 w CD. No meds have helped yet going to dietian to see if a strict food plan with vita supplements will work. Going to my job everyday for 10 hrs a day has been a struggle with and now after Humera. | F | 29 | 10 months | 8/20/2012 | 2 | Ulcerative Colitis. | Increased fatigue and aching all over. No real changes in my UC. | M | 32 | 4 months 1 shot. 2X M | 8/11/2012 | 1 | Psoriatic Auth | . Fever, Chills, EXTREM headache that affected my eyes and hearing, server body ache, vomiting and diarrhea, abdomen pain, sinus infection, unable to focus, chest pains to the right side, ok what’s left?? | I was doing fine with the medication until after the 3 does; I became so sick that I thought I was going to end up in the hospital. My Rh Doctors was unavailable to see me so I went to my primary doctor; he gave me 3 different medications to offset the side effects to this drug. Now I am just waiting for the crap to get out of my system. I would not recommend this drug. I will just keep the psoriases before I will go through this again. | F | 43 | 2 months 40MG 2X M | 8/10/2012 | 3 | psoriasis | site area little sore when fist to no big deal ...I do all though see something different like rash ,it started 2 in half years ago i had blisters on feet and hands started with creams doctors gave me then methotrexate and know humira never have i ever had any thing like this before so it kinda freaked me out i also used soriatane ... | It has only been 3 shots total so little puckish sometimes ????? more to be reviled ....Never have i had psoriasis until 2 and half years ago today date is 8/7/2012 | F | 44 | 2 weeks 40 mg 1X O | 8/7/2012 | 3 | Crohn's Disease | Very sleepy first two days after injection, some nausea. Scalp Psorisis. Red bump rash that is thought to be from Humira. (No doc is sure x4, they just keep putting me on antibiotics when it opens up) Injection site pain, itching after injections. Headaches. Repeated infections | Humira has given me some of my life back with severe crohn's. I can plan about 3 good days a week with it, rather than none without. I am intolerant or other ibd meds have shown no improvement ( I have taken them ALL aside from Cimzia and Tysarbi) Is it perfect? NOT AT ALL but so far the best option for me. | F | 38 | 2 years 40 Mg 1X W | 8/6/2012 | 4 | RA | Injection site pain. But other then that the drug has really been a blessing. I do worry about long term side effects, or if I can no longer afford it. | Its allowed me to lead a normal life, once again. | F | 48 | 6 years 40 MG 2X M | 7/28/2012 | 4 | Crohn's disease | Complete baldness. I lost all my hair within 6 months time. Using Humira now for three years and my hair did not yet return. Other side effects are, dry skin and always a runny nose. | For the Crohn's disease it works perfect for me, did not have an inflammation since using Humira. But the side effects of the complete baldness does put pressure on my quality of life. | F | 37 | 3 years 2X M | 7/27/2012 | 3 | RA | headache for two days after injection. odd skin lumps that my dr. says are not nodules. lump on eyelid, inside ear and on back. knees hurt which they never have before. | took 3 months to notice any relief from, but still minimal. | F | 44 | 5 months 40mg 2X M | 7/23/2012 | 5 | Crohns | Slight hair loss - I've grown my hair longer in case I need a combover down the track! Fatigue for two days after the shot - so I take it on a Friday night and have a quiet weekend. | It has taken quite some time to work - but it has put me in remission with very limited side effects. I was very worried about taking it - but I am delighted with the results so far. | F | 43 | 3 months 2X M | 7/7/2012 | 5 | ps | Very very bad headaches two days after shot. | 34 | 4 months 1 shot wkl | 6/16/2012 | 3 | Arthritis | About 8 hrs after injecting, I feel 10 years younger. That's not a cliché, it's as close to describing how I actually feel as I can. However, the next day I feel the same. Doctor says I have to be on the drug for awhile before effects can be certain. But at more than $1,000 an injection, I don't know if that will happen. Is it worth the price. So far, I'd say no. | M | 48 | 1 months | 6/13/2012 | 5 | RA | No noticeable side effects. | Before taking Humira I had extreme difficulty using my hands. Within a few weeks I had practically full mobility back in my hands and feet. I don't need any pain killers or anti-flammatories. I appreciate some people may not have had such a positive experience, but I certainly wouldn't like to have to go back. | M | 47 | 2 years 30MG 2X M | 6/12/2012 | 3 | Crohn's Disease | Humira has worked wonders for my Crohn's sypmptoms after trying nearly every Crohn's drug on the market. Side effects include: severe joint pain, tingling in fingers and toes, severe weight gain without a change in eating habits, headaches, swelling in injection site, night sweats, rashs, hair loss, ezcema, nausea, severe shortness of breath and swelling in legs, feet, face and stomach have occurred recently | This medicine has worked great for the Crohn's but I just keep getting more and more side effects. Mine are getting so bad and severe it is dangerous, looking to find a new drug and see my GI doc asap. | F | 22 | 3 years 40 MG 2X M | 6/12/2012 | 1 | crohn's | Worked decent for the first few months although it was compounded with 60mg prednisone. Settled my crohns a bit but with each taper of pred I had terrible pain. I am now having an alergic reaction of some sort with an itchy scaly rash all over my legs arms belly and back. It is just unbearable, I cannot continue with this drug. | M | 29 | 8 months 40mx 1x wk | 6/11/2012 | 2 | Chrons | Extremely tired on Humira. I now have pain in my knees and other joints. Hands feel swollen also. | Over all I felt much better before taking Humira and could deal with the diarrhea as I have had crohns for so long. Being tired all the time has actually reduced my quality of life. If things do not change I will tell my GI I am stopping the treatment. I will wait a full 6 months to see if there are any changes. | M | 52 | 90 days 2X M | 6/5/2012 | 5 | crohns | None | Getting use to self injecting was difficult - I hate needles. Anyway, the drug has given me my life back and I have been able to work a full time job. Minor dull headache, but if you inject before bedtime, its not even noticed. | F | 45 | 14 months 40 2X M | 5/27/2012 | 3 | Crohn's disease | Severe pain at injection site, swelling & red rash also at injection site. Been told it's common BUT could go either way improve as I continue treatment or I could have a worse reaction (hives, throat swelling) the more usage. Dread each dosage due to reaction, take antihistamine & cream to help non has as yet! | F | 30 | 10 weeks | 5/26/2012 | 3 | AS | Headache, nausea, exhaustion | My pain has lessened, but I am very afraid of future side effects. I've had terrible headaches, extreme fatigue, and my gastric problems have came back since I've been off prednisone. | F | 28 | 1 weeks 2X M | 5/24/2012 | 5 | Psoriasis | Mild sinus infections | Very happy with drug so far. Psoriasis has been 100% clear since 5 weeks after start of treatment. Administration is easy and not painful. I have had severe psoriasis for 30 years, nothing else gave same remission as humira. Methotrexate stopped working after six months and side effects were more severe. | M | 47 | 16 months 40mg 2X M | 5/22/2012 | 4 | Rheumatoid Arthritis | Slight Fatigue the next day. Minor rash / itching in injection area | This drug has been extremely effective. The minimal side effects are definitely worth the non-existing swelling of my joints. | F | 23 | 3 years 40mg 2X M | 5/22/2012 | 1 | psoriasis | I am almost 66yrs. old and have acne (I think?). Never had a blemish on my face for over 40 yrs. My foot is swollen and aches.I get under 6 hrs. of sleep. I just can't sleep. never had a ploblem before. | I have been off humira for 2 months. BAD DRUG | F | 65 | 3 weeks 40 mg 1X W | 5/20/2012 | 1 | Pustular Psoriasis/RA | Had severe Pustular Psoriasis on my feet. First I was on Embrel and I had a severe allergic reaction to it, I went to the hospital with Psoriasis all over my body, so my doctor put me on Humira. In fact my hands were not as stiff, but I still had a mild reaction to the drug, but I remained on this drug for 6 months with advise from my doctor until my insurance company fowled up the prescription and I was unable to get the meds. After I was off this drug for 2 weeks, I have developed severe knee pain, fatigue and shortness of breath. I have been off this drug now for 2 months and still my knees are very painful. | This is a dangerous drug. | F | 54 | 6 months 1X O | 5/14/2012 | 5 | RA | I have none..... | I appreciate their helping with the co-pay! | M | 63 | 3 years 40 mg 2X M | 5/11/2012 | 4 | Crohns | Headaches, Dry Skin, Painful Joints, Poor Memory and Shortness of Breath | Seems to be working fine for the Crohns. Swings and roundabouts. | M | 55 | 18 months 40MG 1X O | 5/8/2012 | 3 | Crohns | Mild rash, bad joint pain, insomnia, fatigue, | Put my crohns disease in remission. | F | 45 | 90 days 40mg 1X O | 5/7/2012 | 2 | crohns, severe in duodenum | Feet and ankles hurt so bad, no matter laying or standing. Tired all the time. Chest feels like pressure. Depressed. Hands, wrists and fingers ache, foggy. Was on remicaid and had a bad reaction. Could not move for a month. Crohns is getting better. but is the tradeoff.even worth it. | F | 32 | 2 months 40 | 5/4/2012 | 4 | Crohn's Colitia | After getting off prednisone, I started having side effects from the Humira. Hair loss, swollen legs, shortness of breath. Had few side effects at first. | Had very little pain at injection site. I used my legs, brought the med to room temperature for 30 minutes. I'm a nurse, so had no qualms about the injections. Humira brought my Crohn's under control. Wish there was more info about its use in the elderly. | F | 70 | 9 months 40mg 2X M | 4/29/2012 |