Drug Ratings for HUMIRA

Average Rating: 3.3 (447 Ratings)

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    New! Reviews Summary for HUMIRA  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR HUMIRACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
sort down sort up F  M  
 5  Psoriasis, pso. Arthritis, intesti. Very few. First injection was miraculous..I had been on everything..up to 24 advil per day. Bleeding was frequent before..now I combine beach salt water sun exercise..will try apple cider vinegar. At times chronic pain here and there...joints much better. Sun worship helps the skin. Very few side effects...rare red spot at injection site...stress is a killer. Losing weight helps..truly. M 49 6 years
80mg 2X M
4/19/2014

 5  CROHNS Sinus issues, other than that great! Lead a healthy lifestyle with diet and exercise. Also take 6 MP along with it, has got me close to remission as possible in 21 years. M 37 2 years
4/8/2014
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 4  psoriasis cleared 90% of psoriasis in first 4 month dose this is the second time on month 4 looking to clear rest arthritis in kness much better M 48 4 months
40 x 2 2X M
4/2/2014

 5  PSORIATIC ARTHRITIS/PSORIASIS Seems like I have chronic sinus infection, not to bad but at times can get bothersome M 52 7 years
1X W
3/29/2014

 5  psoriasis sinusitis (degree varies, usually not too bad) Had ps 40 years, tried everything topical, UVA (works for a few years), UVB (worsened), spent a month hospitalized for ps at age 30. Injections have minimal discomfort (small red/bruise if on thigh, no mark if on abdomen; I remove from fridge about 30 min before injection). Symptoms improved within first month, and since, great relief. A good side-effect (sounds weird) is that breathing became much more relaxed, maybe due to lack of itching/peeling/confidence. I wish I'd had this 40 years ago, hope it keeps working… Finally can enjoy life. F 60 3 years
1 pen 2X M
3/12/2014

 1  psoriasis •Nervous system problems. Signs and symptoms include numbness or tingling, problems with your vision, weakness in your arms or legs, and dizziness. Stumble when walking, don't do stairs well, when getting out of a chair stumble and sometimes fall. can't sign my own name, can't write. Head spins! SHOULD BE BANNED FROM THE MARKET M 64 4.5 years
40 2X W
3/10/2014
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 1  Crohn's Decreased sensation/strength in left arm/hand, TERRIBLE sinus issues, fatigue, headaches, etc, etc. Humira has caused new autoimmune issues to arise. Awful burning/pain with injection (even after icing the area) F 36 3 years
40mg 2X M
2/10/2014
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 3  Ulcerative Colitis First couple injections nausea and vomiting but not anymore, cloudy thinking, mood swings, extremely dry skin, fatigue, always getting sick/infections F 18 5 months
x2 M
1/28/2014

 3  Crohns Fatigue! numb hands and arms, bruising, loss of vision, can't lose weight F 50 1.5 years
40mg 1X W
1/21/2014
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 1  RA Developed rash on face. Dr. said I had drug induced Lupus from the Humira. Within a few weeks developed terrible stomach/esophageal pain. I had a bunch of tests which they said did not really show the reason for the stomach pain. Within a short time after eating my meals I got very uncomfortable. Lost a few pounds probably from lack of being able to eat very much. Pain in all different joints and some tingling/numbness. At first also had some labored breathing when I went for a walk. Really dry cough and scratchy throat for months. Now I am having chest pain and not sure if it is my heart or panic type attacks. Still trying to figure out what is causing the uncomfortableness. My RA Dr. wants me to try Orencia next and hoping this will not cause me any problems. Please do not take this medication F 59 2.5 months
40 1X W
1/11/2014
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 5  RA 10 years and no side effects! Was home bound before Humira. Now able to drive, swim and even work part time - miraculous F 68 10 years
40mg 1X W
1/9/2014
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 1  Ra After years of being on this drug my mother was diagnosed with stage 4 giloblastoma brain cancer.. This drug is death waiting to happen F 50 5 years
1/1/2014
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 1  Chron's Disease Death of my mother due to suspected drug induced HLH My mother started experiencing fevers of unknown origin after taking Humira for a couple of months. Fevers were initially low grade and controlled with Ibuprophen. After a few weeks, they started to spike daily to 104'F. She was admitted to hospital for about 5-weeks and was tested and scanned for everything imaginable. Tests kept coming back negative for any type of infections or cancers and doctors began to suspect HLH. Autopsy confirmed HLH as cause of death. Doctors feel, due to her circumstances, that Humira most likely triggered the activation of HLH. F 58
1X O
12/26/2013

 5  AS I have experienced no side effects so far Within 12 hours of my first injection I have had no pain, no muscle spasms, have slept through the night for the first time in ages. I can jump out of chairs and bed and feel 20 years younger. I promise you I am not in the pay of any pharma company!! Additional benefits seem to be better complexion (according to my wife) more energy, my sinuses are better and bowel movements are more regular and better. I was truly amazed that after one injection I could feel like this again. I have looked at the other posts and my heart really goes out to them and I just hope that in time to come I don't experience any of these truly nasty side effects that some folk seem to have. However I did think it important to try and put some balance to this forum. M 50 7 days
40 2X M
12/13/2013
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 1  RA Nausea, vomitting, pain under ribs ( liver) elevated liver enzymes, itching, ongoing headache, light sensitivity, brain fog, extreme fatigue, major depression, anxiety. After being perfectly healthy, six months ago weak and unable to get out of bed, I was dIagnosed with RA. Went through methotrexate, plaquenil, folic acid nothing helped. At 6 months took first dose of Humira. I was able to stay up past 5 pm, able to walk perimeter of grocery store and then came all of the above not to mention I lost my job of 21 yrs and my health insurance. No more Humira for me, besides who knows with all the side effects what harm this drug could potentially do short/long term. F 48 1 months
40 2X M
11/20/2013
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 4  A-S Some more neck pain than before takeing it. But has improved movement greatly. M 40 4 years
40
11/15/2013

 2  Crohn's Disease the injection is easy. no pain/burn. I take Zyrtec/Antihistamine everyday to alleviate sinusitis. Fatigue, one fungal spot on my toe. Migraine usually 2 days after injection. Neurologists prescribed Imitrex. I get numbness left side of face, shoulder and arm, which I take Flexeral. I have thinning hair. After 2 years 9 months, my recent colonoscopy came back with the disease starting again at the anastomosis with a 4 cm ulcer. GI wants to increase dose to 40 mg a week. Not too excited. I just had the ANITBODY TEST for HUMIRA which is now available from Prometheus Labs via your doctor. After 2.9 years, I developed resistance through my body building up antibodies/immunity to HUMIRA. I stopped HUMIRA immediately. My Doctor recommends the last biologic available, CIMZIA. I am so happy and relieved not living with side effects, I will wait as long as I can before taking a new drug. Please talk with your doctor about getting the ANTIBODY test done. It may have reached a point of not w M 51
40mg 1X D
10/1/2013
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History
 1  psorias and psoratic arthritus Since May this year I have had chest pain and breathlessness which has steadly got worst , I have lost 2 and half stone in weight were iv been unable to eat solid foods . After loads of test including cat scan , endoscopys and hospital visits they have now decided it all down to the humeria injection . My body so low now and haven't been able to work for a couple of months and my body going to take a long time to recover . F 39 2 years
40 mg
9/19/2013

 1  RA Anxiety,Headaches, Back pains, Sensitivity to light, Shakes, Extreme Fatigue, Sensitive Joints, Joint flares, Sever hayfever, Dizziness, Fever, Disturbed sleep, Heart palpatations, Weakness, Diarreha frequently, Dry mouth, Itchy eyes and skin, Severe mood swings!! I could go on forever!! Started Humira after a particulary bad flare and felt fine at first. After 3 months I began to have panic attacks and various other side effects and my scores for effectiveness of the drug were getting progressively worse. I now feel like my quality of life is so much worse than before. Seeing my Rheummy in 4 days and discussing stopping TNF treatment all together for a higher dose of Methotraxate to give me my life back. I have also had many kidney blood tests back as abnormal but my nurses have always dismissed this. F 22 10 months
40MG 2X M
9/12/2013
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 4  Crohn's disease Possibly hair loss (might be from anesthesia instead). Slight pain at injection site (ice helps). Bruising (experience injecting will help). Possibly knee joint pain. Have had Crohn's since 1986 with surgery in '86, prednisone for years, horrible reaction to Imuran, prednisone for more years but overall good health (and diarrhea). Bowel obstruction in May with surgery - had adhesions, stricture and megacolon discovered in surgery without having had many symptoms and rare pain. I feel so much better now though with Humira. Food tastes wonderful; I still have to avoid a few things and I can tell I'll have to watch my weight! Hope I can continue doing well. F 62 1.5 months
40 mg 2X M
9/5/2013

 4  Ankylosing Spondylitis Abdomina pain and cramping, anxiety, frequent diarreaha, memory slowness. The injection at first didn't hurt at all and over time it now hurts like a buggar. I couldn't stand upright in the mornings but now I can and the pain has virtually gone. I do however suffer from the side effects and that really has restricted my quality of life and the doctors don't really seem to care about it. I am thinking that I will go off of the drug for a year and see what happens. M 42 3 years
40mg 2X M
8/29/2013
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 3  Severe Crohns I am extremely tired, very low energy, headaches. The first 2 days after the injection are deadly im vomiting I wonder what the long term side effects will be, anything like prednizone ? F 1 years
40 2X M
8/27/2013
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 1  Severe disease Severe migraines, severe nausea, vomiting, hips/knees/ankles/wrists pain, numbness, tired all the time, no energy, eye infections, I caught every cold/flu on the planet! And depression from it all! I was taking humira for severe crohns, it worked well for my crohns but the side effects were too much! From the beginning i told my doctors i had headaches and I felt i would be in a wheelchair within 10yrs. He told me there was no way humira could give me headaches and i was the only one complaining! I continued to take it up u til last december! I've had more than enough with the side effects of not being able to move because of a migraine or my hips or anything else that hurt! i barely eat because im so nautious. Everytime i went to dr office or grocery store i was sick a few hours later. Caught cold and flu everywhere i went. Even after being off humira for 9mths the side effects still linger! It is an AWFUL way to live, id rather do without the humira! Its just not worth risking whatever quality of life i have left! F 37 4 years
40mg 1X O
8/26/2013
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 3  rheumatoid arthritis I have suffered aggressive migraine headaches, really loose bowel movements so much so I do not know when I am doing it I have complete numbness down my left handside from my waist to the bottom of my toes if I sit too long. . I have been diagnosed last year with a non malignant brain tumour which I did not have before I started humira. when I started my injections at first I felt was on top of the world,I had no pain at all. Now my pain is starting to get really bad again. Only thing is my joints are not so swollen. I cannot take any of the strong RA drugs such as Methotrexate as my hair fell out with them .Sulphasalazine made me so ill I could not get out of bed. So what do I do? I have to have some pain relief F 52 4 years
40mg 2X M
8/25/2013
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 5  Psoratic Arhritis & Psoriasis Can be painful to inject sometimes. Sinusitus. Fatigue. Some colds. Before Humira I was struggling to manage with daily tasks. I am now able to work full time as a teacher, swim at least 3 times per week and cycle and hike frequently. F 43 3 years
40 MG 2X M
8/12/2013
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 4  Rheumatoid Arthritis My side effects have been hair thinning, broke in hives 1x, usually 2-3 days prior to next injection my joints become painful again & swollen where I'm giving myself the next injection a day ahead of time. Stinging @ injection site. Humira is kept in the refrigerator, was told to leave @ room temperature for 20-30 minutes prior to next injection to avoid excessive stinging. Check with your doc 1st on that though. This drug has helped tremendously as far as reducing debilitating pain & swollen joints throughout my body. I can now perform activities of daily living, whereas before I was so limited in ROM & in so much pain, I wanted to die. Improves complexion as well. F 62 1 years
40mg. 2X M
8/7/2013
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 5  Psoriatic arthritis Sometimes Small swelling or bruising around the injection site. This medication has given me my life back! I am so grateful :) F 35 1 years
6/30/2013
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 3  crohns disease & ulcerative colitis This is the second time on Humira, first was in 2008 but ended up going to resection, now on it again cause nothing else works, also on methotrexate, prednisone, B12, folic acid and flagyl! Pain in entire body (to many areas to name) headaches, dry cough, eye problems, hair loss, fatigue, nausea, numbness in left side knee and toes! I have told my dr about all symptoms but he says I'm fine, had a scope and crohns seem to be in remission but UC is active! I am not sure how much more I can take! Seems I feel worse on the humira than when I just deal with my crohns and UC!! Good luck everyone! Glad everyone here knows what eachother is going through! F 39 3 months
40mg
6/14/2013
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 4  RA Fatigue, daily nausea that comes and goes, very chapped lips,mood swings,alcohol sensitivity Humira has improved my RA symptoms. Much less swelling in my hands and feet and increased range of motion. I used to be stiff and sore for almost 2hrs after getting out of bed and this has greatly improved. I had terrible mouth sores from 2 doses of methotrexate and extreme hair loss from Arava. I am worried about long term use . F 49 2 months
40mg 2X M
6/7/2013

 2  Ankylosing Spondylitis 1 days
5/29/2013

 3  Psoriatic Arthritis Humira has changed my life in that I can walk and exercise without pain. Before Humira, there were times when I literally could not get out of bed. My husband would have to carry me to the bathroom during flare ups. However, I now get sick at the drop of a hat. I've had to take 3 rounds of antibiotics for sinus infections over the past 7 months. Also, I've had three other bad respiratory infections over the past year. I used to kick a cold in a few days but now they linger for weeks. I've missed more work this year being sick than I did back when I had flare ups. For now, I'm staying on Humira. However, if I keep getting sick, I'll have no other choice but to try another drug. F 38 2 years
40 mg 2X M
5/21/2013
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 1  CD Severe dry skin, hair thinning, tingling and numbness of hands and feet, severe headaches, muslce spasms, memory loss/brain fog. Very scared right I will not be able to work any more. F 57 18 months
40MG 2X M
5/3/2013

 1  RA Nausea, significant hair loss, swan neck deformity in four fingers, constant headaches, stiff neck, pain in both feet, cough, dry hair and skin, depression I started on Humira 1 1/2 months ago for RA. It was added to Placquenil, Methotrexate, Prednisone and Folic Acid. My symptoms (RA) are NOT better. I'm sick to my stomach nearly every day since starting on Humira. It is worse the day of and following injections. I had one finger with swan neck deformity before Humira. Now I have four fingers with swan neck deformity. I feel like I've been hit by a truck, the fatigue is so severe. I'm dizzy most of the time and I have a constant cough. I need a new treatment plan - this is ruining my life. F 55 45 days
30 mg 2X M
5/3/2013
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 1  ra after my second dose , next daY took me 20 minutes to get out of bed cause i could not breathe. went to hospital, was put in icu and put into a coma, was in hospital for 2 1/2 months, now in rehab. learning to walk again at the the age of 56, not to say i had to learn to lift my arms and feed myself too. no memory of alot that went on because of being put on a vent..its not worth what i have been through. dont take this med. F 56 14 days
2X M
4/22/2013

 4  Crohn's I was diagnosed in 1993. Have been in every medicine possible. Had a 12 in removed also temp ostomy, many infections. I inject 40mg a week. Since 2008 after all if the surgeries and Humira it seemed as though I was in remission. I felt so blessed. But in the past 2 months my side effects have worsened. Memory loss, joint pain, achey, knee and ankle pain. Numbness in feet hands fingers arms. Headaches, feeling as if you have the flu. Very worried about the longtime effects this drug will have on my quality of life. Checking with GI Surgeon soon F 38 5 years
40mg a wk
4/6/2013

 4  chrones Itchy rash from head to toe ! I get sinus infections very easy and lil to nothing else so far M 34 5 years
30mg
4/3/2013
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 3  RA very bad runny nose,going bald,sight problems,knee pain ,terrible leg cramps,stomach pain,pain in feet,loss of memory long and short term,runny eyes,prostrate problems Before I started Humira I was ready to put a gun in my mouth,the RA is better ,but the side effectsthat go with it I don`t know which is worst, not to menshion the cost of the drug.It`s feel bad with ,it`s feel bad with out it ,go bankrupt paying for it! M 65 3.5 years
40MG 2X M
3/29/2013

 5  Psoriatic Arthritis Mild nausea and sleepiness right after injection, if done at night it is gone by morning. I had some hair loss but started taking folic acid daily which fixed that. Humira has really changed my life. Before taking Humira I was often unable to open doors or hold silverwear or even button my own pants, and now my hands work perfectly. I would put up with nearly any side effect for the amount of good it has done me! F 27 4 years
2x month
3/27/2013

 5  R.A. None that I can put down to Humira - I am 51 and a bit of hair loss or a few aches comes with age doesn't it M 51 2 years
40mg
3/17/2013
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 4  Psoriasis -Plaque psoriasis patches of baldness on arms and legs, bald spot on scalp size of quarter, runny nose Reduced psoriasis on chest, back, scalp, and legs. Only small scale spots on lower legs, one of two spots on back, butt cheeks remain. M 56 2 years
2X M
3/13/2013
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 4  crohns i am newly on humira. ive had just about every other medicine out there for crohns but kept getting abcesses so my doctor finally decided to put me on humira. i found out i had crohns in 2009 and in 2010 i was in the hospital over 5 times and the last time i almost died. i had 18 inches of terminal intestines and a fistula growing into my bladder. doctors removed the 18 inches and i healed (miraculously so due to docs didnt think i would so easily). i have a scar on my abdomen that looks like they just gutted an animal but i was better for @ 2yrs. thats when the abcesses started coming back so here i am! this humira medicine stings so bad but i was told to sit it out @ 30 minutes prior to injection and then to place a bag of frozen peas/corn on the site before injection to help numb the area. i havent tried that yet but will on my nxt time! nausea, mood swings, fatigue, & on occasion loss of appetite. someone told me to try marijuana for these side affects but i was worri please if anyone does relate or has an opinion on my case please contact me! F 37 7 days
1X D
3/5/2013
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 1  Rheumatoid Arthritis Took Humira for 2 years. Just Got diagnosed with Stage 4 lymphoma. I have been given 6 months left to live without treatment. Humira helped the RA but it was not worth my life. M 73 2 years
2/10/2013
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 2  RA Noticed blood test showed high EOS liver count and other indications of liver abnormalities. Stopped Humira and after 6 weeks liver test are normal. Avoid the drug not worth the chance as it can wreak havoc on your body. M 53 3 months
10 2X M
2/3/2013
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 5  Ulcerative colitis Fatigue. Cannot do much before resting. It took 5 months before my ulcerative colitis went into remission. I am extremely happy to feel "normal" as my uc was severe and made my life miserable. F 56 8 months
40 mg 2X M
1/8/2013

 3  Crohn's NONE M 4 years
40 MG 1X W
1/8/2013

 4  Ps F 24 10 months
30 2X M
1/3/2013
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History
 1  RA nausea, headaches, fatigue All drugs are poisoness, RA it turns out is easily cured with apple cidar vinegar which you won't hear from a doctor, the cover up is massive since the 1950's and the drug companies own the news with their advertising budgets and the politicians with their contributions, the internet has saved me. But space is short so you can e-mail any queries. M 57 1 weeks
30 1X W
11/29/2012
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 2  Crohn's First 2 months just tired and headaches for 2 days. Then muscle pain started after each injection. Last injection put me in bed for 3 days in extreme all body muscle pain, foggy thinking, sweating and got dehydrated. Almost 3 weeks later and still have muscle pain in left upper arm and right calf. I took Remicaid for 10 yrs. before that. I am NOT taking Humira again. Waiting for GI to get back from his vacation to find out what next. Not for me. F 52 9 months
40 2X M
11/20/2012
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 3  crohn's I have the worst joint pain you can think of. It changes locations in my body everyday. My joint pain seems to get worse at night once I have stopped moving. The muscles in my head also hurt and sometimes swell. My throat muscles hurt mostly at night. My blood work came back postive for lupus but I believe this is all caused from the drug. Does anyone have anything like this? I have stoped the medication four weeks ago and have seen no improvment yet. F 30 18 months
40 mg 1X W
11/19/2012

 4  RA no side effects yet and I hope I never do. F 56 10 months
3X M
10/16/2012
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 3  ulcerative colitis Fatigue, hair loss, breathlessness, joint pain, general achiness, head aches, naseau, short term memory loss, extremley tired. The higher dose helped me with my colitis but can't continue medicine as the side effects are affecting my everyday life, its like having the flu everyday. F 40 6 months
80 mg 2x
10/2/2012
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 5  PsA Brief stinging as it is being injected. No worse than a flu shot. I am back to 95% of mobility with this drug. It has been a miricle drug for me. I am very careful with hand washing. I actually get sick less often. However if you get to feeling run down and start having symptoms of cold or such DO NOT wait to see if it will get better. It wont and by the time you feel sick you will be much sicker than you feel. Don't chance it and just go in. F 36 10 months
40
9/14/2012
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 2  pustular psorasis excema constant all over body itching. Vaginal and rectal soreness. Not able to deal with day to day stresses. Off work for extended periods of time. original spots are multiple sizes bigger. can't seem to get any answers from the Drs. F 57 11 months
1X W
9/11/2012
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 5  RA None yet, I worry about about long term. Humira has stopped the progression of my RA. F 45 8 years
40mg 2X M
9/3/2012

 5  Crohn's Itchy Scalp and some Muscle Cramping. I must be honest, I will take these side effects for now compared to the terrible pain I was in for so many years. Oh, and a bit of weight gain. M 38 2 years
50 MG 2X M
8/30/2012
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 3  psoriatic arthritis My first week I felt fine after injection #2 I have dry mouth and headache psoriasis seem the same feel tired try one more month see if it gets better pain is better F 44 1 months
x2 m
8/30/2012
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 1  Chrons disease EXTREMELY TIRED all the time, fungal infections, psorisis in random patches, depression, memory fog, various infections. M 20 10 months
2X M
8/28/2012

 1  Psoriatic arthritis and psoriasis After 2nd injection pain was reduced and psoriasis went but after 3 rd injection had small red bump like rash which turned into psoriasis which really flared up and in places I had never had it before so I am worse than what I was before i started Humira .was given steroid creams to Calm it down but still have it very bad after a month of stopping Humira . Would not recommend to anyone . F 36 2 months
40mg
8/25/2012
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 5  Crohn's slight weight gain, bruising at injection site, some tiredness Great drug! costly but I've experienced very few symptoms while on this and it has pushed me into remission. Grateful. No swelling in joints, no sudden bathroom urges, eyes cleared up, etc F 49 10 months
30 1X O
8/23/2012
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 4  crohns Weight gain fatigue joint pain extreme reaction to allergies F 30 1 years
40mg 4Xm
8/21/2012
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