REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Chrons | After about 3 years I got blister with yellow secret every where; hair skin feet. Before that I had minor problems after treatment. I slept for 2-3 days, had chest pains, and night sweats | The feet are getting worse. I stopped remicade 5 month ago. It start with swelling of the feet the get red whereafter I get lots of blisters, my skin dry out and the skin breaks leaving me with big open wounds it sucks and I can't walk. | F | 54 | 3 years | 9/23/2015 | 3 | Ankylosing spondylitis | Extreme fatigue about 5 hours after till next morning. 3 days later extreme stiffness and soreness for 2 days. Then I'm fine till the next treatment. | Good drug. Unfortunately could have very deadly side effects. I guess live life the best you can until your number has been called. | M | 40 | 4 years Max | 8/17/2015 | 3 | Crohns | over the last 16 weeks I have developed severe muscle and joint pain. To the point where I could not walk or raise my arms. After my infusion it got better but it is now coming back after 5 weeks | M | 44 | 1 years | 7/8/2015 | 3 | UC | joint pains now developing in knees, hips, shoulders, ankles | helped me back into remission but worried about this joint pain thing right now, Dr seemed to pooh-pooh it and wants me to give it time but i feel it will only get worse if i stay on remicade | M | 60 | 2 months 5mg/kg 1X O | 5/30/2015 | 3 | Crohns | Doing good until 5th maintenance round. Red dry itchy scalp, torso, arms and feet really bad. Bad allergy reaction. Hair loss about 1/2 gone. Worse feeling ever. Will adjust diet and treat myself. Never never again. | Doctors only give you possible feedback, not all the negatives. | F | 52 | 1 days 16 | 1/8/2015 | 3 | Ulcerative Colitis | Infusion once every 2 months after initial loading dose. Joint pain, itching, accute liver function problems (as worded by my GP) | Loading dose's went with no problems. After 2 dose itching and joint pain. With the 3rd dose itching and skin problems (started loosing patches of skin on my scalp) became much worse, nausea so bad I lost 31lb in 2 months and liver function test showed damage (at one point my ast was 394 and alt 531 and climbing, pre remicade it was 16 and 14) GI had ignored my side effect complaints up to the point where I declined to get the next treatment then sent me to a liver specialist. As I withdraw from the medication I am having severe joint pain that moves to a new joint every few days. The medication worked, the colitis symptoms were completely gone, but the side effects were worse in this case. Have liver function tested before starting and regular liver function tests done during treatment. | M | 52 | 6 months 500 mg 1X O | 2/27/2014 | 3 | fistulising crohns | Migrating joint pain which is excruciating usually 6 weeks post infusion. . Its happened twice now been on Remi for 1.5 yrs.. I'm on 8 weekly infusions. . Remicade has caused the joint pain as I've never ever had joint pain prior to Remicade. . The pain is really really bad.. soon as I have infusion the pain goes away 100% even before I leave the hospital. .. I'm very worried. . Am I now dependant on Remicade. . Whats going to happen to my joints that were normal before remicade? ????? | F | 51 | 2 years | 2/15/2014 | 3 | Crohns Disease | Nausea, joint pain, brain fog, extreme hair loss, extreme dizziness, exhaustion, headaches, hives/rash, random red patches on skin, very dry/painful eyes, bloating, mild depression, constantly feeling like I had to pee, always freezing. | I was on Remicade exclusively for 8 months with my infusions occuring every 8 weeks. I had my last & final infusion in Oct 2013. I have mixed feelings about this drug. Not being keen on the idea of getting infusions, I had nixed Remicade whenever my doc suggested it. Fast forward a few years and mid-flare, I was no longer responding to Pentasa and doc said it's either Remicade or surgery. I've stubbornly refused surgery in the 13 years with this disease (which is the best decision I've ever made) and I wasn't about to give in, so I signed up for Remicade. There's no doubt it made me feel better in the first few months but the negative side effects and the tedious process of administering the drug were outweighing the postives for me. That and the cost... even with insurance & Remistart, this drug is expensive!! So with the blessing of my doc, I quit taking it...or any drugs. Ultimately the best thing Remicade did for me was push me to take responsibility for my own health and change my diet to Paleo, which has helped me feel truly healthy for the first time since being diagnosed with CD. After 13 years of one crappy drug after another, I am 100% pharmacutical free & loving it. | F | 38 | 8 months Not sure 1X day | 1/17/2014 | 3 | crohns | I only had one yesterday, today i have stomach pains in upper stomach feel really bloated. I am also running a low grade feaver was wondering if this is normal, Thanks | F | 42 | 1 days infusion | 12/11/2013 | 3 | chrones | Unpredictable nights with no sleep. | Remicade is the only thing that has helped. I am feeling a little better more and more. It has been a slow recovery but ill take it. I have a sleepless night about once a week that could be do to anything. When my chrones was at it's worst my sleep was too. | F | 29 | 3 months 4X O | 9/5/2013 | 3 | Colitis | chills, joint pain, abdominal cramping, tired | M | 48 | 5 years 1X M | 8/26/2013 | 3 | Ulcerative colitis | Severe headache /dizziness muscles aching | I get my treatment every 6 weeks and it used to help until I got pregnant the whole time I was pregnant I was on it and it didn't do a thing and now that I've had my baby I've had to treatments and it still isn't doing a thing | F | 19 | 9 years 400 mg 1X M | 1/7/2013 | 3 | Lupus/Vasculitis (ANCA negative) | n/a | Symptoms beginning to flare before infusions; increasing frequency and symptoms continue to show through. I suspect I'm developing an immunity to the drug. Been on Remicade for about 18mos. This is a shame because it has allowed me to cut back on extreme doses of and swings of Prednisone. I am ANCA negative and do not have a specific diagnosis though my systemic inflammation is quite serious, landing me back in the hospital in a rapid downward spiral within days; eventual organ failure unless I take Prednisone. The onset of my illness came suddenly 7 years ago, and severely; I was on full life support in the ICU for 3 weeks. | F | 43 | 18 months 1X O | 10/10/2012 | 3 | Crohns disease | I have been taking remicade since my freshman year of high school and I cant even tell it works anymore | F | 18 | 4 years | 3/21/2012 | 3 | uc | I have had uc for 3 years now and I have been on remicade for a year. My last scope was clear but I have no energy at all, I can sleep all day and not get up. I also have aches and pains all through my body with migraines and severe stomach cramps. I've gained 45 pounds since I started my treatments I still work full time but I feel like a zombie almost everyday. I'm also depressed. I function the best in the middle of my treatments which I get every 8 weeks but the first few and last few are the worst. I also developed restless leg syndrome which makes it very hard to sleep even though I'm extremely tired I still take sleep meds at night , and I have no appetite and find myself barely eating. | If anyone has any suggestions please help I feel lost and since my scope was clear it's like no one believes me when I tell them that I feel so sick and run down all the time. | M | 30 | 1 years 10 mg 1X O | 10/26/2011 | 3 | currently have a fungus infection that has been off and on for a year. dry skin, sinusitus,allergies, hair loss,cellulitus, moody, rash and itchy skin. | first of all remicade is amazing. it helps prevent pain, fistulas, diareaha and colon problems. but i do have new symptoms that i never had before. i see a ear nose throat dr continously since starting this drug. he is a God send. he keeps me on track. i have sinus and allergy problems. first symptoms were itchy chest and throat, congestion in head. i have allergies that i get shots for now. i have had shingles but years before remi once. i had cellulitis on arms and legs and vessels broke on my ankle and foot swelled for 4 months..no dr could get rid of it. a iv steroid infusion finally made it go away. now the current thing is a deep tissue fungal infection with rash and terrible itching. several dr appts and medicines later...still battling it. i am afraid of getting pneumonia and some of the other symptoms described since my immune system is compromised on this drug...some are angiodemas, leukoctoclastic, mucormycosis, histoplasmosis and lung infections. yes remicade has allowed me to have control over my colon problems but it has also made me suseptible to some pretty nasty illness. My early years on it I had few side effects but the vulnerability has grown. I will always be under constant care of doctors. | F | 40 | 4 years every 8 wk 1X O | 10/25/2011 | 3 | RA | Following my infusion I get extremely tired and nausated and extreme headaches Followed with tenderness throughout my body only lasts for three days I get infused every eight weeks remicade doesn't last in me I start to feel pain within a weeks but not a severe for the most part it has made a big difference | F | 27 | 300mg 1X day | 10/8/2011 | 3 | SARCOIDOSIS | I've not had any side effects so far. I've only taken one infusion | I will check back periodically to indicate how my treatment is going but so far so good. I have been on Methotrexate for 6 mos with only mild improvement but am still heavily dependent on the prednisone. Hopefully the Remicade will allow me to get off the prednisone and decrease my MtX and plaquenil dosages. | F | 39 | 1 days 500 MG 1X O | 9/21/2011 | 3 | crohns | high blood pressure pneumonia, | remicade worked great at first but getting lung infection is scary because remicade lowers your immunity serious thinking of stopping side effects out weight the crohns symptoms | M | 19 | 8 months 1X O | 8/14/2011 | 3 | Rheumatoid Arthritis | Hair loss, rash on face and forehead, dry skin | At the end of 2010 and beginning of 2011 I had 4 infusions of Remicade all together. My Rheumy gave me benadryl and steroid in the infusion first to prevent side effects. I would take a nap during the infusions and it was very comfortable and relaxing. First infusion, then 1 week later, - 2nd infusion, then 8 weeks the following. It totally helped the RA pain and I felt pretty good except for my hair falling out and the "lupus-like" rashes on my face and body. This medicine is made from mice cells in case you don't know. My favorite biological drug was Humira self injections - made from human cells. Very little side effects. It was my miracle drug. Because of the copays on Medicare (over $600 a month), I cannot afford Humira. My copays for Remicade went from zero in 2010 to $569 in 2011 per infusion. But it is not every month like Humira. I have been approved for a grant to help pay the copays but not sure if I will go back on Remicade because of the side effects. My doc may put me on a study biological since he is a research doctor. | F | 64 | 1X day | 8/2/2011 |