REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date from oldest to newest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | UC | dry, flaking skin around eyes (esp. eyelids), and on scalp. Some "honeycrusting" in nostrils. | taking remicade and 6-mp, I was able to stay in remission for a year. When the flare-up came back, it seemed more manageable--less urgency, less blood--although I still needed prednisone to get it under control. | M | 42 | 12 months | 3/4/2007 | 4 | Granuloma Annulare | Headache but it is also starting to be allergy season so hard to tell since I've only had one dose so far. | I've has granulona for about 20 years and within the last six month it my GA has gotten considerable worse and it is effecting the quality of my life. I have no alternative but to try this drug. The cost is too high but I have no alternatives treatments left to try. | F | 59 | 3 days | 3/14/2007 | 5 | Crohn's | One 5 yrs ago itchy burning feet. | I am 32 and have been on Remicade for 7 yrs. Before normal meds with no luck. I say taking my Remicade is like winning the lottery! I could not live without it. The only downfall is it is expensive but worth it. | F | 32 | 7 years | 3/16/2007 | 5 | crohn's disease | The only oddity I noticed was some joint pain in my knees about 4 days after my 1st infusion. It lasted for about 2 hours and occurred for 2 consecutive days, but nothing ever since. | 1 1/2 weeks after my 2nd infusion and I feel so great. I think my inflammation was bad enough that it has taken a couple of infusions to get back to feeling almost normal. No blood, no cramping, solid bowels 2-3x a day-- as opposed to full flare a month ago in the hospital. It's also allowing me to taper off my oral prednisone now. | F | 27 | 24 days | 3/17/2007 | 5 | ulcerative colitis | tired for a couple days after. Maybe because of my anxiety from the week before stressing about the first infusion. Had to take xanax to calm down | I have been living with uc for 16 years, progressively gotten worse. in the last 2 years pretty much constant flare. couldnt leave the house, pred wasnt really working for me anymore. after 1st infusion, felt INCREDIBLE! cant even ever remember feeling this good. feel like a normal person. still on 15mg pred, colazal, azasan. will see how the taper goes. | F | 36 | | 3/31/2007 | 2 | Crohns-UC | Joint and muscle pains. | It worked perfectly for the first few months and after 6 months it stopped working. | F | 39 | 8 months | 3/31/2007 | 5 | Neurosarcoidosis | Chills after each infusion. (Never said anything because I did not realize that it was a reaction to watch for.) They are not bad, just a day or so. | This drug has been great for me so far. It appears to have stopped further nerve damage. I go every 9 weeks now, we tried longer times between infusions, but I began having symptoms and eye problems (usually my first symptom of a problem). Reading through some of the rest of your problems is mind opening. Since my last infusion, 3/16/07, I have been having muscle, joint and bone aches & pains. I also have 2 ear infections and a bronchular infection. This is the first time I have had an infection since I began Remicade in 2/04. I will let you all know how it goes from here. | F | 49 | 3 years | 4/11/2007 | 5 | Crohns | I feel drowsy during the infusion. I feel hot flashes shortly after the infusion. But feel fine the next day. | Remicade stopped my fistula but returns when the drug wears out. | M | 22 | 2 years | 4/28/2007 | 4 | Crohn's | Twitching, bad headaches usually a day or two after infusion, mild joint and muscle pains which usually go away in a day or two, strange piercing shooting pains anywhere from lower back to neck and arm, and most recently hives which may or may not be attributed to the Remicade | 7 years diagnosed with Crohn's. Remicade has dramatically improved the quality of my life and helped to maintain (not fully close) a perianal fistula. Also taking Pentasa and occasional rounds of Prednisone. Most recently 4-5 days after my 7th infusion I began getting chronic severly itchy hives on my face. They have persisted for 8 weeks now. Still determining whether this is from the Remicade (having Serum/HACA, ANA, and anti-dnsDNA blood tests to detect anti-body to the drug or possible DIL syndrome before having next treatment). Otherwise I feel the best I have felt in 7 years since being diagnosed. | F | 30 | 1 years | 5/5/2007 | 5 | Crohns | Nothing intolerable. Feel tired and sluggish for about 2 days after the infusion. Feel hot and my face feels flushed. The day of the infusion my appetite increases. | Miracle drug. I pray that it will always help me if I need it. | M | 27 | 2 years | 5/9/2007 | 4 | Crohn's/Colitis | Does anyone get itchy when out in the sun? I have sun sensitvity and it makes my lips get red and itchy and my body gets itchy too, but not red. I'm sure this is from the Remicade since I have never been allergic to anything in my life before. Other than that, I sleep the day of the infusion. | F | 36 | 1 years | 6/7/2007 | 4 | Ulcerative Colitis | Diagnosed Dec 2001. Taking Remicade for a little over a year. Some reactions have been getting warm/sweating, sharp pain in lower abdomen, nausea, vomiting, throat closing and not being able to breath. These severe reactions were controlled by having a steroid injection through the IV 30 minutes before the Remicade infusion. Lower back pain, joint pain in knees, usually disappears by the next day. Recently I have gotten Itchy skin, itchy bumps on face. Sensitivity to sun and tanning beds. I wouldn't get any color but the itching was horrible. Please let me know if you have found anyway to stop the bleeding/bloat entirely. I feel I am so close to remission. Not sure if Remicade is still working 100%. | I was not able to reach remission. Every time I went of Prednisone I flared. Asacol didn't seem to work anymore. Was hospitalized a few times and 2nd time I had no choice but to take Remicade or lose my colon. When I first started infusions I had horrible reactions. The first 3 or 4 went fine but then out of no where I started having severe reactions that almost forced me to stop treatments, but we figured out what caused it. Examples include....getting warm/sweating, sharp pain in lower abdomen, nausea, vomiting, throat closing and not being able to breath. They would stop the infusion and the side effects would be gone within 30 minutes. They gave it to me slower and I was able to make it through. Later we realized that I had been on steroids before and that is why I had not bad reactions. These severe reactions were controlled by having a steroid injection through the IV 30 minutes before the Remicade infusion. I have had no other problems with the infusion process since then. After | F | 25 | 1.5 years | 6/8/2007 | 5 | RA | no side effects | Miracle drug. Was taking 8mg/kg and have decreased to 6mg/kg. Have tried alot of other medications for RA and this is one of the few that works for me. | F | 55 | 6 years | 6/19/2007 | 5 | crohn's disease | Tiredness(unless from Mercaptopurine I am on) Joint pains, headaches, thinning hair(but was on Methotrexate for 2 yrs so could be that) itching - either remicade or mercaptopurine????? Does anyone else itch??????? | This drug is excellent for severe Crohns. I had 5 major and 1 minor op over the last 5 yrs with major complications and two ops to save my life. This drug has kept me out of hospital since. I just worry it will become less effective over time. | F | 30 | 18 months | 6/27/2007 | 4 | Crohn's Disease | During my first infusion, I had chills and nausea. Afterward, nausea, fatigue and flu-like symptoms (having to go D a lot) for about 2 days. About 72 hours after the infusion, the side affects went away. | Been a Crohn's sufferer for about 10 years, and been on every medication you can think of: Prednisone, Asacol, Reglan, Immuran, 6mp, Methotrexate, and everything in between. Remicade is pretty much the end of the line before Humira. I've only had 2 infusions so far. It's best to have the infusion over a longer period of time if you experience any side affects DURING the actual infusion. Also, I find it helps to bring someone with me during the infusion to keep me company and drive me home afterwards because I am always so tired after the infusion. It is hard to sleep during the infusion because the nurse is always taking your blood pressure! I am hopeful I will see positive effects from this medication soon, as others have, as it does take a few infusions to feel the full effects of the medicine. | F | 27 | 3 weeks | 6/29/2007 | 4 | Crohn's Disease | Tiredness? (on Other meds too which may cause this) Gut ache for around a week after infusion. | This is the only drug that has had reasonable control over my Crohns disease...I have had Crohns for 11 years and had 5 major ops in the last five years, two of which were emergencies and one op saved my life. I don't believe my Crohn's is in remission, but this drug has managed to keep me out of Hospital & I have been able to go out to places I would not have felt well enough to go before. | F | 31 | 16 months | 7/8/2007 | 4 | Crohn's | I have not had many side effects - brief bout with hive/rash on neck the day after the first two infusions; some tiredness | I have been on remicade since Dec 06 and it has been wonderful - no more pain when eating. I was wondering if anyone else felt like they retained fluid/became very bloated and had breakouts on the body (not on the face-almost like bites)around the time of the next infusion? I will be getting my next infusion in a few days and in the past week or so I have experienced these symptoms. | F | 41 | 7 months | 7/17/2007 | 4 | Crohn's Disease | Joint pain, redness of the face with swelling, back pain so sever that tyhe infusion had to be stopped (these when I have a reaction). Otherwise, a little joint pain for 2 days | Beats the heck out of a flare up though. I have had Crohn's for 10 years adn 2 small bowel resections. The 1st time I did the 3 remicades, it did nothing. This cycle (about a year or so) is the best it has worked and it is working. My infusion nurse now starts me at 25ml/hr and slowly gets me up to 125. The slow start seems to keep symptoms down DURING infusion, but I still had some for 2 days after. I would like to try Humira but wonder why I'd switch to reduce some symptoms and risk a flare-up. What do you think? | M | 46 | 1.5 years | 7/26/2007 | 4 | crohn's | redness, like a sunburn. no itching, just the redness in face,neck and chest area. | I've taken almost every drug for crohn's and it was getting to a point where nothing was working. I take Pentasa daily and the remicade every 8-12 weeks. It does work. I've had crohn's for alomost 35 years. | F | 59 | 3 years | 7/31/2007 | 4 | UC | Taking my first dose today | I was diagnosed with UC in 2004. I have taken steroids, 6mp 12 asacol a day, enemas, and a slew of other drugs since 04. I am worried about the long term effects of taking remicade. I have little anxiety about this first infusion. | F | 25 | 1 days | 8/9/2007 |