REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  
2/28/2006
 1   Remicade Linked to Stevens Johnson Syndrome
6/30/2006
 5  ulcerative colitis Headaches after 1st use, nothing else really. It works for me! I was on and off prednisone for the past three years, I could not stay in remission. Doctor was recommending surgery but decided to give this a try first. Two days after 1st treatment I stopped bleeding and was actually constipated for a day or so, then went back to normal. This week I ate a handful of popcorn, nuts on a carrot cake, and had 1/2 cup of milk I was okay. F 43 3 months
2/27/2007
 5  Crohn's None other than the norm except I've been taking Remicade for four (4) years but for this past year I've had twitching in my fingers and other parts of my body. My cousin also has been taking Remicade for Crohn's for a few years and has also experiencing twiching in her fingers. We both thought we were getting Parkinson's disease. We're sure seeing that we both take Remicade the twitching has something to do with that. F 45 4 years
2/11/2007
 5  Crohn's None, I think. I have noticed my scalp has gotten dry and my skin has had some dryness/flakiness problems, but it may not be related I call it my scheduled every-ten-week spa treatment. With all the things I've had shoved down me, shoved up me or in me, this is a piece of cake (though not cheap - oy!) Infusion is easy and restful. It has done the best job by far of keeping me painfree and off prednisone completely AND out of the hospital. Love it. F 43 1.5 years
4/26/2006
 5  Crohn's Disease None! I was hospitalized, put on steroids, Pentasa and Imuran. None of those helped me. Then I was put on Remicade and it was a miracle drug. The IV is easy and I usually just sleep through it. I feel fine afterwards to go to work or usual day activities. I get an infusion every 6 weeks, but I have noticed it starts to wear off around 5 weeks. I would be so sick without this drug. F 25 1 years
5/26/2006
 5  Crohn's Disease None! I was hospitalized, put on steroids, Pentasa and Imuran. None of those helped me. Then I was put on Remicade and it was a miracle drug. The IV is easy and I usually just sleep through it. I feel fine afterwards to go to work or usual day activities. I get an infusion every 6 weeks, but I have noticed it starts to wear off around 5 weeks. I would be so sick without this drug. F 25 1 years
5/26/2006
 5  Chron's None really, other than sometimes my teeth and gums get really sensative like the two weeks before my next infusion. Usually the two weeks before my next infusion, my symptoms start coming back, not as bad, but I have to start using that wonderful place called the bathroom like 3-4 times day. They are going to either change the frequency or the dose. But is really has been the miricale drug for me. F 33 7 months
6/1/2006
 5  Ulcerative Colitis No side effects I wrote here last in November, I've been on the drug for 7 months. I feel normal again w/infusions every 8 weeks. I wonder if I'll have to do this forever-I hope they come up with something less expensive! I thank the scientists that came up with this drug for giving me my life back. I hope it lasts. F 18 7 months
2/22/2007
 5  UC After the first infusion, I had the night sweats and felt very tired the following day. After the second infusion, this did not occur. I will be getting my third infusion in a few weeks. I am 34 yrs old and was diagnosed at age 13. I have pancolitis that is difficult to treat. When I flare, I only respond to prednisone but have difficulty tapering. Was on imuran for 2.5 yrs but it unfortunately stopped working and I went on Remicade. So far, it has given me my life back after battling a flare for 9 months. I am extremely happy so far. I hope I continue to respond for many many years ahead. F 34 1 months
12/12/2006
 5  Rheumatoid arthritis usually just tired after an infusion. Worked great for me for about 2 years. Over the last four months haven't been responding to the methotrexate/remicade combination and am taking the highest dosage for each drug. Suddenly started having flare-ups and didn't go away. Just had an infusion last week and can barely walk and have had swelling, starting from my right foot, all the way up my body to the left side of my body. I am very frustrated and am currently researching other alternatives. If someone knows of any, please post them here. F 42 2 years
9/2/2007
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 5  crohns/ankylosing spondylitis No side affects from infusion. I have had a couple of outbreaks of hives in between infusions... they've occured about 5 weeks out from an infusion. There is no pattern of food or other unusual exposure to pin them on. They subside, (some not completely) and appear a couple months later in the same spots. Can't say they're related to the remicade, but other than one time 6 or more years ago, the hives are a new thing for me. Also I think it takes longer to recover from little bouts with whatever bug is going around. I love REMICADE. After the second 2-week treatment I was vitually pain free. So amazing. Unfortunately the level of relief has not been regained even with the 6-week infusion schedule I have currently. Even so, there is improvement, which I measure by the fact I need to change position only three or four times (instead of a dozen or more) while sitting through an hour lecture/movie/etc. My last treatment provided no pain relief whatsoever, so I don't know what's next. F 54 10 months
10/8/2007
 5  UC None, maybe some breathlessness but big deal, after prednisone for 3 years Remicade is like a dream come true Ummm, yeah, so if you experience severe allergic reaction within the first infusion, YOU ARE ALLERGIC TO IT! This is not the drugs fault, your doctor should not have kept you on it, thats just stupidity, people can be allergic to some medications. When I brok out in hives from infused iron we stopped and I never used it again, doesn't mean it's not a good drug. My UC is so severe that remicade only helps to keep it bearable, but thats amazing for me because I rather have something keep my under control than to go through all the pain and steriods or even surgery. I have been having the treament for 5 years(I was the first in my area to have it in the US for UC) and I am doing fine. Honestly for me and my doctor, the possible side effects(even lymphoma) are outweighed by my need for this drug. Steriods are more destructive anyways. There are possible side effects that should be considered but there is a risk in taking any medication F 21 5 years
7/19/2006
 5  Crohn's disease No side effects & no allergic reaction I have been on this treatment for 5 years and after the first two infusions it's like I never experienced the disease. Luckily I only need an infusion every eight weeks. I'm 52 and have had Crohn's since I was in my twenties. Going through steroid treatment and multiple resection surgeries Remicade was my last hope. I weighed 110 and looked anorexic I'm 5'6". Now for the first time in years I'm a healthy 140. Pinching an inch is the least of my worries. I am literally a new person and feel like I've been given a second chance. Hoo-ray for Remicade. F 52 5 years
7/27/2006
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 5  Ulcerative Colitis My doctor never told me what to expect, but I have some numbness around my knees and have been having night sweats. But those are the only side effects I can list right now. I started out having monthly treatments for the first 6 months, now I go every 2 months and that works. The dose had to be increased twice during the 15 months. Remicade truly has been the wonder drug for me and although I don't know how long I have to be on it, it's worth it just to have a normal life again. F 44 15 months
10/22/2008
 5  Ulcerative Colitis Had a headache for a couple of days with the first infusion but no problems after the 2nd and 3rd. After 1 year on prednisone and anti-inflammatory suppositories, I could never get off the prenisone w/o a flare up. I lost control of my bowels, incredible pain/pressure and bloody D. I felt much better within two days of the first infusion. But now two weeks after the 3rd infusion I am having symptoms again. I have a colonoscopy tomorrow-(3rd in a year and 2 sigmos) I hope we can get it back under control. Has anyone else had this reoccurrence during treatment? F 17 2 months
10/11/2006
 5  Crohn's One 5 yrs ago itchy burning feet. I am 32 and have been on Remicade for 7 yrs. Before normal meds with no luck. I say taking my Remicade is like winning the lottery! I could not live without it. The only downfall is it is expensive but worth it. F 32 7 years
3/16/2007
 5  ulcerative colitis tired for a couple days after. Maybe because of my anxiety from the week before stressing about the first infusion. Had to take xanax to calm down I have been living with uc for 16 years, progressively gotten worse. in the last 2 years pretty much constant flare. couldnt leave the house, pred wasnt really working for me anymore. after 1st infusion, felt INCREDIBLE! cant even ever remember feeling this good. feel like a normal person. still on 15mg pred, colazal, azasan. will see how the taper goes. F 36
3/31/2007
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 5  crohn's disease The only oddity I noticed was some joint pain in my knees about 4 days after my 1st infusion. It lasted for about 2 hours and occurred for 2 consecutive days, but nothing ever since. 1 1/2 weeks after my 2nd infusion and I feel so great. I think my inflammation was bad enough that it has taken a couple of infusions to get back to feeling almost normal. No blood, no cramping, solid bowels 2-3x a day-- as opposed to full flare a month ago in the hospital. It's also allowing me to taper off my oral prednisone now. F 27 24 days
3/17/2007
 5  crohns I had shingles briefly once F 33
10/18/2007
  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

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