DILANTIN Reviews (PHENYTOIN SODIUM)

Average Rating: 3.5 (185 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

DILANTIN  (PHENYTOIN SODIUM):  Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on DILANTIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR DILANTINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  grand mal seizures M 41
500 1X day
4/11/2010
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Patient History
 5  seizure disorder Always have problems with gums. I've been taking it for 48 years. Upset about how much the price has risen over the years especially since I have no prescription insurance. F 69
300MG 1X day
11/6/2015
 4  Epilepsy Well, my gums and teeth have suffered. My liver has also taken a bit of damage. A bit of memory loss as well. I have been taking Dilantin for 35 years. At least it helped control the seizures. F 49
100mg 3X day
12/10/2015
 4  Temporal lobe epilepsy head injury Fatigue in the afternoons and concentration loss. Twitchiness as I am about to fall asleep. Drink coffee to counteract this. I sleep like a baby at night. I have been taking 300mg every night for the last 15 years and have not had a single seizure during this time. I am competative skydiver and have done long distance swimming too. I battle with conversations at times and as I often forget what I wanted to say. I have very vivid dreams. I wondering if it is time reduce the dosage or experiment with other anti-epileptic drugs? Been using dilantin for 15 years. M 31
9/14/2008
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 1   Dilantin Linked to Stevens Johnson Syndrome
6/30/2006
 1  Seizure I have been taking Dilantin for five years, first seizure, only have had two. ( liver enzymes got high). Somedays my gait was off. The doctor cut dosage to 200 mg and started me on lamotrigine. With in a week I felt so much better. It took several months to get me completely off of Dilantin. When the dose was cut another 100 mg my liver enzymes were normal. With all the seizure medications to chose from, I do not understand why a doctor would put anyone on Dilantin. I will give an updated on how the lamotrigine is working for me. Good thought to all! F 75
300 mg 3X day
4/16/2017
 5  I am taking 100 mg for seziure I feel tingling I in my head and down my neck and down into my back. I take 100 mg of dilantin 3 times a day. I have grandma seizures and I just feel sometimes I am still going to have a seziure and my ears ring and my stomach hurts then I feel like throwing up. F 25 3 times
100
12/25/2015
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 5  Seizures It gives me energy and helps me lose weight I've never had a problem with this medicine as long as I've been taking it I've been taking it since I was 3 years old 42 1 days
300mg
9/28/2016
 3  Seizures Still had seizures, nervous system, damage to nerves in feet, confusion . Had been on this drug for 40 yrs. still had seizures, nurogilists would not treat me if I didn't come off this drug, said it was a bad drug. F 61 1 days
100mg x2
1/23/2015
 3  Epilepsy I had the tingling of fingers and feet. I also take 3000 mg of Keppra. I had a severe Grand Mal Seizure. My blood level was therapeudic. I guess my system has become immune to these 2 anti epilepsy meds. I believe the proper diagnosis if they been on this med for a long time is their bodies have become immune to this med. F 52 1 days
300 mg
8/9/2014
 3  Seazure none except seazure I hope the seazure go away and the only time i am having the seazure is at night while i am onthe bed M 23 1 days
11/14/2004
 1  seizures mouth decay and seirus mouth pain can't eat regurly we should be compasated for pain and suffering M 22 1 days
8/18/2007
 1  Had one seizure went to shands Gave me dilantin on first seizure at hospital shands live oak Fla been six days still haven't slept feel weak feel cold while I'm sweating M 33 1 days
2/24/2017
 3  unexplained seizures I've been a poor sleeper and had delicate digestion all my life and the dilantin treatment (almost two years now) seems to have increased the efects of both those things. C'est la vie -- I'd rather endure moderate irritations than have seizures. I bitched at first but learned to eat a high(VERY HIGH)fibre diet, and not much else. Look for the silver lining -- I now have a flat stomach! I've not seen mentioned in any other information site a strange symptom of mine, which is extreme itchiness in the middle of the night -- not a rash, just an overpowering need to scratch M 47 2 days
1/15/2005
 3  undiagnosed seizure Though I am new to this medication and adjusting to the baseline feeling on this medication, there have been several noted side effects Troublesome memory loss. 'train of thought' issues, loss of concentration, hand tremors, bleeding gums and a worsening body tremor as I initially stretch in the morning. One side effect I have enjoyed is hair growth. My daughter noted that I am no longer bald. As it increases growth of facial hair I could see this side effect being troublesome for women My blood levels have failed to maintain within clinical levels which is worrisome. Working with neurologist to establish correct levels M 50 2 days
300 mg BID
6/4/2012
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 5  I had two seizures within 3 months Occasional slight dizziness, but rare. This drug has put my mind at ease about seizures. However, it has really rated high with my wife ! She observed both seizures I had while I was asleep. Scared her near to death, but had the presence of mind to call the EMT's. During the 2nd seizure I dislocated my left shoulder. Since taking 300 mg of Dilantin per day, I feel relaxed and at ease about not having to worry about future seizures. The V.A. has taken great care of me to insure no further seizures by continuing to prescribe Dilantin. M 65 3 days
1/26/2007
 3  seizures from mild tbi The dilantin has the least side effects but I sleep at least 8 hours at night and then a 2-3 hour nap half way into the day. I am finding this drug sedative. The dilantin only covers my partial and tonic-clonic seizures. This medication is not covering my absence, myoclonic and atonic seizures. Of all the seizure medications I have tried I do like dilantin the best for not haveing any effect on a personality change. F 48 3 days
5/20/2005
 1  seizures I've been on it for a while,my new doctor told me that its short term use,i had a seizer in april have to check my level,if its not ok my doctor will refer me to another seizure doctor. M 33 5 days
100mg
5/15/2013
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 2  1 Seizure - Cavernous Malformation I had a rash that started on my legs and eventually moved all of the way up to my face. It was all over my body. My doctor said the rash was not normal and switched me to Keppra. I was very tired, had a terrible rash, terrible headaches. Very depressed - but that could also be because finding out about Cavernoma 2 weeks earlier. F 29 6 days
10/20/2006
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 1  Seizure due to heatstroke dizziness, memory issues, chest pain, rash on legs and stomach, sudden anger issues, crying all the time, easy bruising, vivid dreams, loss of coordination, forget words/names/places I had a seizure in my sleep because of a heatstroke and went to the hospital. The doctor put me on IV and sent me home with dilantin to take before bed. I didn't feel like the drug was helping at all so I went back to the hospital and stayed overnight for monitoring. Have been off it for 2 days and still feel dizzy/ light headed/ anxious. This drug should NOT be used for seizure brought on from heat stroke. Big mistake. F 20 7 days
300 1X day
5/18/2013
  

DILANTIN  (PHENYTOIN SODIUM):  Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain.    (Sources: U.S. Centers for Medicare Services, FDA)

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