MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)

Average Rating: 4.0 (82 Ratings)

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 MYASTHENIA GRAVIS

 Type: Rx Drug

  

MESTINON  (PYRIDOSTIGMINE BROMIDE):  Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on MESTINON: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR MESTINONCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  occular mysenith gravis 2 Breathing problems and since halfing it tonge problems F 4 years
150
7/29/2015
 4  MG Loose bowel movements, heavy sweating, vomiting I had read a comment about otc meds to help side effects, I bought Acidophilus at Rite Aid and I take one caplet with my morning med and I am good all day. This is really the two miracle pills in my life. My muscles are improving daily. F 66 3 months
60mg 3X day
4/18/2015
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 4  Myasthenia Gravis Stomach problems at first. None now as long as I eat something. It does help with weakness. Still have problems if I overdo it. F 51 2 years
90mg 3X day
1/30/2015
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 5  Ocular Myasthenia Gravis (my son) My son has twitching in his arms, legs and stomach every now and then. He gets stomach cramping sometimes and loose bowel movements. My son was diagnosed with Ocular Myasthenia Gravis a little over 2 years ago, right before his 6th birthday. My husband and I noticed that my sons left eyelid was extremely droopy. After blood test and eye examinations he was diagnosed with Ocular MG. He started off taking 10mL of Mestinon 4x's a day, then about 6 months later it was reduced to 8mL 4x's a day. Towards the end of 2013 the neurologist took a dose away and he was taking it 3 times a day. Three months ago the neurologist took away another dose so he was taking it 2 times a day. We had an appointment yesterday and she still wants my son to take it twice a day, but she dropped it from 8mL to 6mL. This medicine is truly amazing. My son's eyelid has not drooped since he's started taking mestinon, and all of his muscles throughout his body are very strong. I am very thankful to God for this medicine and for his neurologist and ophthalmologist. Though he does have the cramping, twitches, and loose bowel movements from time to time, I think this is a great medication. M 8 2 years
60mg 3X day
8/21/2014
 2  OMG Absolutely hate this medication. I am begging my neurologist to take me off and put me on prednisone! Horrible muscle twitches that cause cramps in my feet and calf muscles especially. Constant eye twitching and tearing that just drives me crazy. Sometimes get stomach cramps or nausea that I relieved when I eat enough prior to taking, but that has resulted in weight gain. And, the gas is This is the second time I have gone back to this medication. When I was initially dx 9 yrs ago, I tried it, and I had very few side effects, but I also had no symptom relief. I switched to prednisone and cell cept, and I had amazing symptom relief. After 4 yrs, I was able to go off all medications, and I was medication free until 7 mo ago. Now, I am at 60mg, 4x per day, plus 180mg time release at bed. No more OMG symptoms, but the side effects are almost worse. F 32 7 months
60 4X day
8/5/2014
 3  MG Existing uninary incontence much worse, no longer able to hold any amount of urine. Otherwise no other side effects. Blut the increased incontinence is so severe I am no sure it is worth contining using mestinon. Will check with neurologist about reducing dosage. Notice a definite increase in strength. Able to do water aerobics for 30 minutes without undue exhaustion, which is a definite improvement. Seems to give mild relief to blurred vision when I am tired and facilitates reading for longer time period. F 70 6 weeks
60mg 3X day
6/15/2014
 5  Ocular MG No side effects whatsoever. None. zero. Eye symptoms improved significantly, almost 100% again. If I haven't had any side effects so far does that mean I likely never will or have I just been lucky so far? F 49 7 days
30 3X day
2/19/2014
 5  mg Frequent urination heavy sweating, sometimes headaches but on the whole has made life much more enjoyable, dosage just increased as previpius dose was not lasting 4 hrs only 3 then one eye would shut,and I would get tired, without mestion I would be a mess ,but now have never felt stronger side effects I can live with mestion amazing!! Mg is a horrible disease but with mestion you can look and feel somewhat normal!!!! M 46 4 weeks
360mg a da
2/18/2014
 4  mg Stomach cramps if not takin with food. Muscle twitch once on a while F 22 6 years
3x d
5/4/2013
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 5  MG Increased salivation periodically. Abdominal discomfort if taken on empty stomach (2 Ritz crackers with first dose preventive). Very rare diarrhea. Not a cure but much improved. Diplopia now problematic only when I don't get enough sleep. Can walk on level without difficulty. Hills a problem (walking hills brings on diplopia despite sleep). Slow walk no symptoms. M 63 3 years
60 4X day
3/7/2013
 4  MG mild sweating, stomach cramps, loose bowels, and twitching in legs... I find the liquid dose is alot more tolerable on the GI then the pills. I take Nexium and that helps with the stomach cramps and diarrhea. Dont drink milk or eat dairy products with an hr of taking this med, if your lactose intolerant. WIll cause more gas and other issues.--> I know from experience and other MG patients. This med has allowed me to keep wkng and be mobile...although I like to push it, my legs will give out after to much walking. Because of more frequent bowel movements, I do not absorb the vitamins and nutrients we need to be healthy, have started a supplement of VIT D and VIT B's...helps with energy. Living in a tranquil lifestyle helps the immune system to stay calm and not over react...which is where our issues are...God Bless and keep positive don't let this control you, YOU control the illness. F 48 8 years
45mg 3X day
8/29/2012
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 5  ocular myasthenia gravis some gas, esophagal spasms if gulping food down without thinking, shortness of breath, right branch of heart has a bundle block and Mestinon may be assisting this from getting worse... I have had reiki treatments by a lady who could re balance my energy shakras (s?)e and it worked for about 6-8 weeks at a time..but she is no longer available where I live...Felt like I was on top of the world afterwards.I am going to try it again (no side effects!) www.reiki-for-holistic-health.com/chakra-balancing-healing.html M 74 10 years
180 mg 2X day
8/20/2012
 5  M G iam taking mestinon about 6 years now along with imuran i have just been told i have a skin cancer a side effect of imuran any advice welcome M 70 6 years
60 1X day
7/10/2012
 5  MG Sweating is the only consistent side effect. I experience stomach cramps and twitching/tics if med is taken too soon between doses. This is my miracle drug. After over 20 years of undiagnosed belching, esophageal spasms, and choking, I began to lose control of my constantly twitching tongue, which caused slurred speech. A neurologist suggested we try mestinon to rule out mg. Blood work was negative for mg, but mestinon has saved the day. F 45 1 years
60 mg 3X day
6/24/2012
Email
 2  for mg I have been taken mestion for 3 years along with azathioprine my left just closing I have no reason why the dotors don't know why so I am trying figure out do I really have mg or what. Know my back is getting weaker by the day I cannot drive or nothing almost fell again in the bedroom. Any sugguest just tried of this. F 58 3 years
60 twice
5/14/2012
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 3  Myasthenia Gravis Sweating like crazy, stomach cramps,diarrhea (every day) and nausea(sometimes) feeling more hungry!!! Salivation and sometimes difficulty swallowing. I am on a 3 x 60 per day for ony a month. It doesnt help me completely, far from that, but it is deffinately better since Im taking it. There are days when I feel really good and it reminds me of those lovely days without MG. But the feeling of my own body as it was before- is never the same. First I experience pain , weird pain, then weakness and then I just cant do what I was doning anymore. exmpl. Things fall out of my arms or I suddenly just lose balance in my legs. And I cannot sing like before (used to study singing) Double vision and eye muscles- they react the best to mestinon, legs worse. F 25 3 months
60mg 3X day
2/12/2012
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 3  MG Lots of muscle twitches and frequent urination. Have been taking it to help with OMG. Taking it more to prevent flair up of other symptoms. Prednizone has helped with the double vision - highly suggest anyone with double vision as their doctor about it, it worked for me. M 19 4 months
60 4X day
1/30/2012
Email
 4  Mg Diarrhea, blurry vision, sweating, twitching muscles It works well but a double edge sword. If I take it and my timespan, the side effects are awful but if I don't take it can't walk. Since I like to be active, I deal with the side effects F 48 1 years
60mg 3X day
1/20/2012
 3  MG frequent urination, occassional incontinence, upset stomach I had a sudden onset of symptoms about six weeks ago - drooping eyelids and shortness of breath - although looking back there were some symptoms that I wrote off to other things. The drooping eyelids was what finally sent me to the doctor/ The Mestinon has pretty much taken care of the droopy eyes, but my other symptoms (neck hurts when holding my head at an angle - get very short of breath - have to head to the bathroom A LOT) seem to be getting a little worse. Have only been to see the neurologist once. I do not have insurance, so this is going to be a hard thing to manage and I know some treatment options will not be available to me. F 56 3 weeks
60 MG 3X day
12/26/2011
Email
 5  Myasthenia Gravis Wild twitching in legs, and sometimes arms and face. It's actually amusing to watch my legs and toes, reminding me of the scarab beetles in THE MUMMY undulating beneath the skin, and my toes moving independently in ways I could never do intentionally. As my MG goes into remission, and I have reduced my dosage, the twitching is abating. Currently I am taking 3/4 tablet at 6 am, 10 am, 2 pm, and 6 pm, and then 1/2 time-span tablet at 10 pm. This is a wonderful drug -- a miracle, in fact. After a sudden onset of MG, I had a lateral robotic thymectomy. Prior to the surgery I was experiencing respiratory crises several times per week, had double vision, had become a clinical wimp. and was taking 90 mg of generic Mestinon every 3 hours around the clock. The surgery seems to be having its effect, and I am confident that I am headed for a significant remission. M 62 5 months
45 mg. 4X day
10/6/2011

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