PLAQUENIL Reviews (HYDROXYCHLOROQUINE SULFATE)Average Rating: 3.2 (667 Ratings)Filter ResultsCompare PLAQUENIL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 |
More on PLAQUENIL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PLAQUENIL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | RA / Sjogrens | Nausea, gas and bloating...but it completely went away when I stopped taking vitamins and minerals at the same time. I now take vitamins with lunch instead of breakfast. | I have been off and on Plaquenil for 15 years. I am back on it after a 2 yr break, but just discoverd now the vitamin/plaquenil link to nausea. It has always helped with the "flares" and I am already near pain free with reduced swelling. I feel it is the one drug that will keep me off anything more potent for a long time. I hope the vitamin/mineral discovery will help other people who may have a nausea problem. | F | 57 | 1 weeks | 8/7/2009 | 5 | Lupus-SLE | Yes a little gas but no other side effects as of yet. | I have had joint pain, muscle pain,very low energy I am always tired & with kids I need my energy. This has been going on for the past 4 yrs. I was told I have to deal with it because of the Arthuritis in all my major joints. Well 4 yrs later I was finally diag. with Lupus-SLE. Started taking this July 15,2009 & today is Aug 6, 2009 & it seems to have helped me some so far. I still have my muscle & joint pains,low energy(but I think that is getting a little better.) I hope this will help me !! At least I now have a diag. :o)) | F | 42 | 3 weeks | 8/6/2009 | 3 | Sjogren's | 200mg twice a day caused low blood pressure, poor circulation in extremities, extreme heat radiating from my body that woke me up in the middle of the night, frequent urination, and heart palpitations. Most side effects began at week 10 of the dose. Stopped meds for 30 days, most side effects halted quickly, palpitations slowly decreased but never went entirely away. Went back on at 200mg once a day, palpitations increased in frequency during week two. Not sure if I'll stay on it. | Overall the drug did reduce my aches & pains, dry mouth, and increased my energy. I'll have to weight the pros and cons of staying on it. | F | 32 | 12 weeks | 7/28/2009 | 4 | Sjogren's Syndrome | Initial explosive diarhea and flatulence which cleared after 2 weeks. Increase in yeast infections. I have developed a rash and severe itching and burning in perineal area which may be linked to lichen planus? I have decided to stop taking Plaquenil to see if there is an improvement or not. | Overall Plaquenil worked great for me. My fatigue was GREATLY improved after only 2 months and the ache in my fingers disappeared. After a year the extreme dryness in my eyes was much improved. I am also taking salagen for dry mouth and eyes. I don't feel good about stopping but I need to find out if the yeast infections and severe itching and burning are related to this drug. If not I will go back on it. | F | 57 | 2 years | 7/26/2009 | 5 | RA | Horrible nightmares at first, gone after about 3 months. Have had some skin rashes, but not sure it's the Plaquenil, and have some hair loss/scalp problems. Again, not sure if it's the drug. Ditto on all the gastro problems everyone mentions: gas, bloating, diarrhea from time to time. Some fatigue, but it's much better than when I was in the middle of a flare. | Very satisfied with this drug so far, but have been worried about my hair loss and scalp irritation. I've been basically pain free since it started working (it took about 4 months to really notice). I would be scared to go off of Plaquenil because I feel like I did before the RA. | F | 56 | 3 years | 7/20/2009 | 4 | UCTD with Lupus like symptoms | Nausea, dry heaves, dizzy, stomach pain, diarrhea, noises in my ears - lasted for about a week to a week and a half. Strange dreams but I have insomnia (pre-plaquenil)so the fact that I am sleeping is a good thing. | This is my second time attempting to get on Plaquenil.The 1st time my mobility improved within the first week but I developed sores in my mouth and nose after being on it for two weeks. By the fourth week my sores were still active. My Rheumy told me to come off of Plaquenil so that we could find out if the sores were part of a "flare" or response to the Plaquenil. The sores cleared. After three months being off of Plaquenil my sores returned when I was "flaring". Hence it was determined that the sores are part of my autoimmune disease not a side effect of Plaquenil. I agree. I am now back on Plaquenil. My muscle and bone stiffness has greatly improved. I've had one flare which was brought on by a fall (I sprained both ankles and my right leg). Even with that trauma- my flare only lasted three days. I have taken Plaquenil for one month taking one 200 mg per day. Now I am entering my second month. I have started taking one 200 mg twice per day. The side effects listed have come back and I am hoping that they subside over the next week like they have in the past month. | F | 44 | 33 days | 7/19/2009 | 5 | UCTD | None at first. Now after 6 months, some hair thinning, slight weight loss. | Huge improvement in symptoms within 3 weeks on 400 mg/day. Energy returned, far less fevers. Muscle stiffness and tendon pain virtually gone. I have rhuematoid nodules which have reduced about 80%. I also have Raynaud's which didn't change, but improved greatly with Synthroid I take for Hoshimoto's Thyroiditis. I am grateful this drug is working for me with minimal side effects. I worry about disease progression to the point of needing immunosuppresent drugs like prednisone and other RA drugs. Hopefully, this is all I will need to stay healthy. | F | 53 | 6 months | 7/12/2009 | 5 | Antiphospholipid Syndrome and Lupus | Absolutely none | Took three months to start working, but reduction of swelling and therefore pain, and the reduction of Clotting events (Strokes and Transient Ischemic Attacks (TIA's or mini-strokes)) has been tremendous | M | 59 | 7 years | 7/5/2009 | 3 | Lupus | gas, gas and more gas, other stomach problems (from diarrhea to constipation), HUGE weight loss, dry mouth, CRAZY DREAMS! | I have been taking 400 mg per day and while the stomach pain has settled and is less severe, it still is there. I also eat very normally but I have lost almost 30 pounds without trying at all, and now I am underweight. My dreams have become really vivid but I actually kind of like it. The medicine has made me feel less fatigued but my joints still hurt alot. | F | 21 | 6 months | 6/26/2009 | 2 | JRA | I started out with horrible stomach pain, I don't get hungry anymore, I get strange high pitched noises in my ear kind of like the weather alerts on TV, and strange dreams, I never remembered my dreams before starting it, and if woken up I'll still be dreaming and talking to people in it sometimes I'll walk around. Now my hands and feet are starting to peel, I am on a lot of other medications for my Intercrainal Hypertension and my doctor just keeps telling me its from taking four other meds. All of the side effects are getting worse. | F | 16 | 2 months | 6/17/2009 | 3 | Stystemic Lupus Erathematosis | Flashing lights when I went outside. Eye dr first diagnosed as floaters. With field vision test later there was found permanent damage. It seems to be a progressive loss for me. | Plaquenil helped me tremendously in taking care of SLE. After a period 9yrs it had built up in my retina. I think it is a good drug, but must be diligently followed by opthamologist who does field vision tests regularly. | F | 54 | 9 years | 6/13/2009 | 2 | Systemic Lupus | This is the second time I've taken Plaquenil but only the first time I experienced terrible side effects. Vivid nightmares, diarrhea, nausea, vomiting (several times each day), loss of appetite, weight loss, hair loss | F | 21 | 2 months | 6/11/2009 | 5 | Eosinophilic fasciitis | little gas and feeling tired a bit (body feeling heavy!) | only just started not done a week yet but swelling has gone done so much have more flexibility in ankles joints (where problems are)its amazing - so pleased so far after being on steriods for over 10 yrs (still are due to reduce if this drug works! i do hope so!) | F | 35 | 6 days | 6/10/2009 | 4 | Sjogren's Syndrome/Fibromyalgia | Quite a bit of nausea & diarrhea for first 2 months which went away. Also, hair lightening/gray hair not accepting color, yellow spots on lower cheeks. Laser therapy erased them. | It has reduced some of joint pain, peripheral neuropathy pain, and extreme fatigue. Have opthalmology exam later this month, do not have any eye problems (other than SJS dryness)that I know of. | F | 55 | 10 months | 6/5/2009 | 3 | osteo arthritis | about to start taking it for a 2nd time. found it very effective but it made me photosensitive, which was impossible to manage in the australian summer. And it gave me terrible body odour. | Its now winter so I will start taking Plaquenil again and will try to stay out of the sun. Got a rash and itching if I was exposed to any sunlight. Will have to ask my doctor about taking some Vit D as a top up. Also last time it gave me terroble body odour, I needed 3 showers per day. | F | 47 | 2 times | 6/2/2009 | 5 | UCTD (lupus like symptoms) | 200mg/d for 2 months; now 200mn/2xd for 1 month: at first stomach pain, but if eat cottage cheese or yogurt before taking Plaquenil, no pain. | I have had less pain, less hair loss (hair loss before starting med), less fevers, less mask, less flares, but still have all of the symptoms except the hair loss. | F | 55 | 3 months | 5/31/2009 | 4 | SLE and CIDP | Loss of appetite completly, and my stomach hurst when I do eat. Weirdly enough I have been uncontrollably happy since I started taking it. Oh and my boyfriend has to force me to eat. | It really does help with the tendom and joint pain. If it will help control the SLE then I will suffer the side effects. I would recommend it to anyone who wants some relief in pain and is will to exchange on bad thing for another. | F | 20 | 4 weeks | 5/30/2009 | 5 | Lupus | Have had decrease in appetite and some stomach upset but that seems to be subsiding, otherwise, this medication has done wonders for me, almost ALL of my joint and tendon pain is gone, my energy is returning and I feel like I did long before this disease took over my body. | F | 37 | 1 months | 5/27/2009 | 1 | UDCTD | Took first 200 mg pill with food. No side effects for first 20 hours, then nasty diarrhea,stomach nausea, stomach cramps, dizzy,gas, burping, feeling spacey, black out when standing, felt totally out of it - basically non functioning. Terrible brain fog. Forget about driving, going to work, or doing anything other than praying for the drug to get out of your system. Effects lasted for three days, diminishing with each day. Never took a 2nd pill. Also developed sore/scratchy throat which continues at day 3 but doc says not from Plaquenil. Coincidence is too strong. Not on any other medication I can blame. | Could not tolerate 1 pill let alone taking it long term. I think doctors should stop calling this a safe drug. It has terrible side effects even for those on this site that give it a 5. Exchanging one set of intolerable symptoms for another is a poor choice. Sad that a drug that was used in the 1960's for autoimmune is still the gold standard. But hey, we can now cure erectile dysfunction. Medical progress... | F | 50 | 1 days | 5/26/2009 | 4 | palindromic RA/SS | Sleepiness, major bloating, cramping, nausea, diarrhea, rumbling, bumps on back and arms with itching, hypoglycema, inability to concentrate. | It seems to have helped some already with my joint and tendon pain. Too soon to tell. Hoping for the side effects to diminish. The GI symptoms have been bad enough to prevent me from leaving the house. | F | 52 | 9 days | 5/23/2009 |