DILANTIN-125 Reviews (PHENYTOIN)

Average Rating: 3.1 (59 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

DILANTIN-125  (PHENYTOIN):  Phenytoin is used to prevent and control seizures (also called an anticonvulsant or antiepileptic drug). It works by reducing the spread of seizure activity in the brain.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on DILANTIN-125: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR DILANTIN-125COMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  To control seizures Gum recession; some reduction in energy Have been on this for 16 years at 400 mg. daily. Wonder what it would be like to not be on it. M 60 16 years
11/2/2007
 5  Epilepsy Speech problems, Insomnia yet when i did go to sleep didnt wake up in the night, turning a bit yellow (not that bad though), always tired I LOVE Dilantin! Although i am not yet completely seizure free, i have had 100% improvement. went 20 days until my med. level dropped and had to raise the dose. I went from having 6-7 extreme seizures a day to having maybe one or two staring spells or simple partial seizures a day. On 600mg a day. F 16 6 weeks
4/30/2007
 4  Grand Mal Seizures This drug has been a life-saver for me. 34 years ago I was in an accident that caused seizures to begin. The only time I have seizures is if I go off Dilantin. I take 100 mg in the am and 200 mg in the PM. Until recently, I have always been able to maintain strong focus and memory. I have been noticing some short term memory problems lately-(may be related to perimenopause) and some problems maintaining focus. Again, not sure totally of the cause. I DEFINITELY advise ALL of you to have your Vitamin D levels checked as well as regular Bone Mass Density testing. Dilantin interferes with Vitamin D absorption and unless you are outside a tremendous amount, you may need a supplement in addition to your calcium supplements. Please consult your doctor before you start any supplements. Also, it is important to NOT take your mineral supplements at the same time you take your dilantin. Separate them by at least a couple of hours. My Vitamin D level was 12-- normal is 35-100? Do some F 47 34 years
4/9/2007
 4  3 Grand Mall Seizures Fatigue / loss of energy, blurred vision, memory concentration I was taking 5-100mg pills a night (made me too tired to take during the day). I am now trying to wean myself off of the medication---be seizure free for over 2yrs. Please let me know if you have also attempted this and what side effects you have had. F 39 3 years
2/21/2007
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 5  seizure disorder acne, low sex drive, short term memory loss, I am very satisfied with dilantin because it had cured me. HAven't had a seizure in 8 years, only have them when I am off dilantin. Have had twins and nursed both and they are fine. No problems, they are 3.5 yrs old. Been taking Dilantin for 8 years last 4 years have had mild acne, poor memory and non-existent sex dirve. Considering changing meds, don't know to what but the memory loss, acne and low sex drive is not good. Didn't know these were possible side-effects of dilantin until I went on site for acne treatment and they mentioned dilantin may cause acne. Started investigating more and asking more questions. No dr. I have had has mentioned these side-effects which is really annoying because I thought I have been losing my mind. I can't remember things quickly. It is like my brain is in slow motion. If I am reminded of things I can usually remember some details. Very frustrating! F 34 8 years
10/20/2006
 1  grand-mal seizures lymph nodes were very swollen and sore, sweats, shakes, mental confusion, stuttering, rapid eye twitching, muscle spasms in hands, diminished sex drive, swollen gums, vertigo, paranoia, depression, fever, and massive headaches. i was taking the basic 100mg-3x daily, after having 2 seizures in a 5 hour period. by the end of the second week i was so confused that i didn't even know who i was, so the doc asked me to stop taking it after they tested my blood levels: they were 33mcg/mL and then 3 days later they were 21mcg/mL. i would never take this medication again, even if it was the only thing i could take for seizures. F 28 2 weeks
8/3/2006
 2  seizure disorder? confusion, tired and a horrible stutter. The more excited I get the more I stutter. It seems my mind sticks and I can't finish a thought. I think I would rather deal with the little seizure I had than deal with the side effects. Anyone with suggestions on how to get rid of the stutter. I think I am about to lose my job because of it. I am in Marketing and sometimes I can't get my thought out. F 37 24 days
6/30/2006
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 1   Dilantin Linked to Stevens Johnson Syndrome
6/30/2006
 4  Grand Mall Sort of a dumbing down effect. More sleep required. Sexual arousal when sleeping on my back? Depression and lack of drive without adequate sleep. Initally on 300 ml then 400 now 350 taking medication for 6 months Don't anticipate change in meds First grand mall July 0'03 second Jan '06. Unprovoked 3 months driving suspension then 6 months. Started dilantin after second seizure. Would appreciate comments. M 59 6 months
6/15/2006
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 4  unprovoked siezures dental, stopped menstruation, shakey I will keep taking it....otherwise can not drive. F 43 2 years
4/4/2006
 1  grand maul seizures dizziness,drowsiness,along with insomnia,mental confusion,get lost in my apt,unable to concentrate,depression,acts of violence towards my husband,suicidal thoughts I have not had a grand maul seizure since starting the med but have had several petit mauls chaing med this fri.I would not take this medication ever again would rather have seizures F 27 12 months
1/24/2006
 1  Epilepsy Memory & balance problems. Neuropathy causing loss of feeling that started in bottom of feet, now up past my waist. Severely impaired genital feelings/sensations. Slurred speech, fatigue Swollen and receded gums, loss of memory. shaky. Muscle aches & pains. trouble concentrating. Always tired and fatigued. It can be an effective drug but a heavy price in side effect is paid for that effectivness. M 52 37 years
8/6/2005
 2  Seizure Red rash all over my body, switched to Depakote Was 12 when this happened M 12 4 days
7/25/2005
 1  seizures and brain hemorrage Horrible nausea for hours after each pill. I can't eat and I am irritable. Sore and swollen joints. I have had no other seizures but they were directly related to the hemmorage F 46 45 days
6/15/2005
 4   Drowsiness, lethargy, somewhat depressed, somewhat reduced sex drive, overgrowth of gums. Not sure if my headaches are related to this medication or my epilepsy in general. Also, the dosage changed greatly during my use from 300mg to 700mg within several years. Thus, at times I thought I had a large enough dose but had seizures I suggest you make sure you get regular blood levels because the dose you require can change because your body learns to filter it out. Also, I've noticed that when my blood levels were high, the drowsiness and lethargy were pretty immense. M 27 9 years
6/2/2005
 3  EPILEPSY DIZZY,BLURED VISION,SHAKES,FATGUE,HEADACHE,LOSS OF BALANCE AND LOW SEX DRVE IT SUCKS BUT I NEED IT M 31 12 years
3/10/2005
 3  Epilepsy (from brain tumour) Initially worked well, no grand-mals but I quickly started tolerating it & focal seizures returned. Increased doses led to memory loss, speech difficulties, and hallucinations. Physical exertion exacerbated these effects, plus giving a cannibis-like lethargic euphoria (less fun than it sounds). Eventually increased doses led to collapse & change of medication. After change to Clobazam & Tegretol, the side-effects stopped. The initial use of Dilantin literally saved my life, but the side effects of the high doses I personally needed were too severe long-term. M 29 7 months
2/25/2005
 3  Siezure - Scar tissue brain injury Slurred speech, dizziness, blurred vision, balance problems, tired, weak, muscle atrophy, sexual side effects (drive lowered, delayed orgasm), weight gain, swollen gums...severe teeth problems - dental. I have taken Dilantin 23 + years, and was shot in the head, which caused the seizures. They are grand mal seizures. Dilantin stops them completely, except every other week I have one. I am also on Tegretol 1000mg and the dilantin I take 3 a day. I still get the jerks in the morning. I am tired and sleep all day long still, I just fall over and sleep in the middle of stuff. The doctor just put me on Keppra. I am beginning it tomorrow. He is from UC Davis. I am considering the possibility of scar tissue removal. Any suggestions regarding Keppra and Tegretol together and about scar tissue removal? M 43 23 years
2/15/2005
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 5  Brain Injury Early on some dizziness and confusion. Transient nervousness early on also. Side effects subsided after a few weeks. Only mood stabilizer that gives me some energy while helping me function. So far, so good.... M 29 11 months
12/23/2004
 2  eplipsy frequent headache, major dental problems- genguvits. sezure free for the most part though M 41 20 years
12/23/2004

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