RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Dry eye Worsening dry eye, black bags under my eyes, watery eyes, rash around eyelids and swollen eyelids, itchy. Painful burning very blurry vision, swollen throat, constant cough, and lung pain. F 45 2 months
1-2 x /day 2X day
11/15/2023
 1  Severe dry eyes Swollen cheeks inside, jaw pain , neasua, muscle and joint pain, white spot in mouth, sore throat, tingling in mouth. Don't ever take this drug. I started using it and suddenly developed swollen cheeks inside my mouth. Jaw in extreme pain, was getting colds and got white spots in my throat, muscle and joint, No doctor knew why and all test were coming back normal. And then I realized all this started once I started using restasis. After three months I stopped this drug and won't use another immunosuppressent drug for my eyes. Will look into dry eye treatments performed at the office F 33 3 months
1 drop 2X day
6/9/2023
 1  Dry eye The only side effect I had was severe insomnia. I have been off Restasis for almost two weeks and still have insomnia. My primary dr prescribed Ambien and that hasn't helped. I will not take it again! F 75 3 weeks
2X day
5/22/2023
 1  Dry eye Fine with morning dose. Second nighttime dose 12 hours later I have horrible burning. Comes on about 45 min after taking. Lasts for 60 to 90 minutes. I must use ice back on eyes because the pain is so bad with the second dose. Also my nose clogs up on my right side then it starts running. My right eye is worse than the left. So when I get up in the morning I have such i inflammation for about two hours. I go back next week. I just don't think I can tolerate this pain. It's really bad at night with drops Not working well for me F 50 0 weeks
.05 1X day
1/6/2023
Email
 3  Dry eye Burning eyes that begins 6 minutes after I put in the drops followed by a wave of mild/moderate anxiety. Pretty uncomfortable. Burning lasts about 15 mins. Same with anxiety. It makes my eyes water a lot but I’m not sure how much that is helping the dry eye strangely enough. F 64 9 months
.05% 2X day
12/18/2022
 1  Dry Eyes Pain & burning left eye ringing & fullness feeling left ear, dry sinus left side, teeth hurt, left shoulder and jar pain. No a very pleasant experience after only 4 days of use. I stopped using wish I had done it sooner M 73 4 days
0.05% Eye 2X day
12/18/2022
Email
 1  Dry eyes Dizzy, tired, dry mouth and throat, rapid heartbeat, nauseated. I do not recommend this very expensive product which did not work at all for me. No good. F 73 2 days
one drop 2X day
8/17/2022
 1  For recurring corneal abrasions On day 7 or 8 I started to notice side effects. At first it was very mild; headache (which I rarely get), dizziness, heart palpitations, dry mouth, and stiff neck. By day 12, I knew I was in serious trouble but I still did not know what was causing my problems. I started to get tremors, then insomnia and anxiety, and easily exhausted. I started to trace it back and tried eliminating some foods from my diet. It only became worse by the day. By day 14 it dawned on me that the problem was these drops. I found this website and that put me into full panic mode! I dont understand why there arent warnings on this eye drop. This should be black boxed!!! Im currently on day 5 of stopping them and it seems like there is little to no improvement. I took my blood pressure and its through the ceiling. The heart palpitations are unbelievable. This is a nightmare! I would love to hear from anyone else as to how long it took for their symptoms to return to normal after stopping it. Please contact me. I can see a class action lawsuit on the near horizon for this eye drop. M 51 14 days
2X day
8/17/2022
Email
 1  Dry eyes Black bags under eyes, blurry and double vision, sores in mouth, general malaise, fever. F 60 3 days
2X day
7/17/2022
Email
 5  Dry eyes Although Restasis helped my dry eyes, I developed insomnia and headaches. I will try to take Restasis only once in the morning and see if that helps my side effects. If not then it will be a no go for me. F 59 6 days
0.05 2X day
7/12/2022
Email
 1  Dry eyes Dry hair, hair loss, rapid heart rate, fatigue, sinuses clogged I kept wondering why my normally very soft, healthy, virgin hair suddenly became dry and brittle. I almost chopped it all off until I found this site. I'm going to stop taking it after tonight and hope my hair goes back to normal! Also I can barely talk, swallow or breathe due to how much it clogs my sinuses up. Not worth it. I had better luck cleaning my eyes thoroughly every morning and spraying antimicrobial spray on my eyes. I've felt so tired I can't even stay awake during the day. Luckily these are free because my insurance covers them but no way is this worth ruining my hair over, not being able to sleep at night and feeling anxious. F 22 20 days
2X D 2X day
5/9/2022
 1  Dry Eye Disease I first tried Restasis at once a day due to wanting to keep doses minimal in general and also cost. Did that for a couple months. Irritated my eyes a little and did not seem to help, so I stopped it. Continuing to be frustrated with my eyes I finally decided to give it a "real" try with twice a day administration. Now at about 2 weeks my eyes are constantly feeling much "drier" with an odd slight burning sensation all the time, and worse yet, my vision is on and off blurry. Quite distinct and certainly not normal. It has finally reached the point that it is hard to sleep because of the discomfort in the eyes. DONE with Restasis! Perhaps this drug is more dangerous than they would have you believe; I cannot think that if you are walking around burning itching and blurry all day that it is doing anything other than possibly harming your eyes. M 69 3 months
2X day
3/3/2022
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 1  Extreme dry eyes I had no idea symptoms were from restasis. My eyes get prism lights after using it. Also severe dyspnea. I have had migraines and very sore joints and chronic insomnia. Definitely will stop using them but I'm have 3 months worth that cost $2000!! Who can I give them to? F 68 100 days
.05 2X day
3/2/2022
 5  Dry eye Blurry vision for approximately 1-2 minutes after use. Very mild itching for 10-15 minutes after use I had itchy eyes that watered almost constantly but I had gritty discharge that kept my eyes irritated. It affected my reading I had a hard time seeing in bright sunlight and was just miserable. This started when I was approximately 40 and lived with it worsening for over 10 years up to the point where I would have to take a warm wash rag to soak my eyelids open on the mornings due to the buildup of dry crusty , I will call it gunk , from my eyes every morning. Restasis has saved my life!!!! My eyes no longer burn I still have a little itching but nothing like before. I no longer have to soak my eyelids open. The gritty discharge is 90% improved. I absolutely would recommend Restasis to my family and friends if they are having symptoms of dry eye syndrome. F 54 4 months
.05% 2X day
2/9/2022
Email
 1  Dry eye, recommended by my opthalmo Developed viteligo, skin lesions, intense itching. Was tested for subcutaneous t-cell lymphoma (inconclusive). Spent 2 years with full body light box treatments. Stopped Restasis and symptoms went away within a few weeks. Dermatologist was astounded at what had happened. Because cyclosporine is used in immune suppression for organ transplant, opthalmic cyclosporine was doing damage to my immune system. Stay far away from this dangerous drug. F 67 2 years
2X day
2/3/2022
Email
 1  Severe dry eye Dizziness, vertigo, nausea... within days I f starting it Do not take this! Am so unimpressed with my ophthalmologist for putting me on this toxic stuff. It should be banned 48 6 days
2X day
11/22/2021
 1  Dry eye Awful stuff! Made my eye burn, feels like grit in it, also feels puffy. Blurred vision, constantly feel the need to blink! Also gastrointestinal issues, dizziness, and some ear pain. This is some bad stuff! I'm stopping it and going to take some preservative free otc and see if that helps. Dr's write too many scripts! If you complain about side effects you are labeled a difficult patient and written off. It should be illegal for Dr's to receive kickbacks from big pharma! Buyer beware is all I can say now!! F 60 6 weeks
2xdaily 1X day
11/2/2021
 1  Dry eye syndrome I started Restasis eye drops in August,2021.. Stop the eye drops on September 17,2021, with severe reactions... All the symptoms are gone, but I'm still having swollen throat... Saw an ENT, all she said is my throat is swollen and red.. She stated, that there nothing she can do--.. I was wondering how long, the swollen throat lasted?! I want this nightmare to go away!! F 45 1 days
1X day
10/29/2021
Email
 1  Dry eyes Red,painful eyes and lids. Stopped using it. F 80 10 days
30mg 2X day
10/6/2021
 1  Dry eye Restasis needs to be off market!! Needs to be a lawsuit!!!! Im having terrible side effects!!! Swollen throat and tongue, tremors,anxiety, difficulty breathing, headaches, bad acid reflux, and dizziness!!! It has been a living hell... Wish I never been given these eye drops!!! Will let every family member and friends know!! Don't ever let a family or friends to go through what I been through with these awful eye drops!!! F 46 0 months
1X day
10/5/2021
  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

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