CELLCEPT Reviews

Average Rating: 3.5 (78 Ratings)

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 IMMUNOSUPPRESIVE AGENT (TRANSPLANTS)

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on CELLCEPT: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR CELLCEPTCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Birdshot uveitis Loose stools, stomach pain, anxiety, extreme fatigue, moody and hair seems very dry now. Will be on it for at least 3 years before doctor will consider weaning me off. Had a flare and increased dosage to 3000 mg from 2000mg. My biggest complaint is the constant fatigue and moodiness. F 57 6 months
1500mg 2X D
10/10/2021
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 1  Autoimmune hepatitis High Anxiety, chest tightness, feeling like fainting, hot and cold sweats, panic attack, nausea, gag reflex. No appetite, food becomes very hard to eat. trouble sleeping due to the anxiety. I'm not sure if many people experience mental health concerns while on this medication but it made my anxiety amplify times 100 when my dosage was increased from 250 to 500 a day. F 33 60 days
250 2X D
8/23/2021
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 4  Polymiositis Nausea, Diarrhea, Increased Back pain. It has increased my back pain fivefold. Nauseated but tolerable. It has help a lot with muscle pain and joint pain. M 49 4 months
1000 mg 2X D
5/5/2021
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 4  Myasthenia Gravis Diarrhea, shortness of breath, Slow to start working M 60 4 months
500 mg 2X D
3/8/2021
 5  Sjogren/ ILD with bronchiectasis In the past, blisters in the mouth, skin rashes, tiredness, myalgia, Now all resolved It has been a life saver. I do not know what I would have done without it. My myalgia is controlled although I still have "tired eye syndrome " and eye infections and persistent Raynaud's F 53 5 years
1000g 2X D
2/14/2021
 3  Sjoegrens Numbness body aches headaches tiredness. Random times of mad sweating Trying to use this to control autoimmune. Not sure if it's working really. Am tapering down prednisolone F 47 0 months
1000 2X D
1/26/2021
 1  Lupus Heart pounding, breathless, face tingling beneath surface of skin, nicety, fatique, feeling like having a seltzer tablet fizzing in stomach! Began treatment 20mg prednisone which relieved me of chronic fibromyalgia symptoms that I have had for 15 years(newly diagnosed with lupus).such as joint stiffness and pain, numbness of extremities, and restored the energy I have missed for these many years. I understand that one cannot continue on prednisone fir a long period. This week I was prescribed 500mg 2 x a day and reduced prednisone to 15mg a day. Well, 1000mg created adverse effects! Called doctor and reduced to 500mg. Very unhappy with side effects as listed above. Since it takes. 6-12 weeks to benefit from Cellcept, I must decide if it is worth the side effects? F 77 6 days
500mg 1X D
1/26/2021
 4  SLE No side effects Has worked great for my SLE. Stopped the progression of neuropathy up my leg! Also taking Plaquenil and IVIG. M 67 3 years
500 2X D
12/1/2020
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 2  Lupus Insomnia, stomach problems, gas, itching, mood changes I was on azathioprine for 4 years but had skin problems this year & switched to cellcept. It's affecting my moods, I've got no energy, no motivation, I feel subdued. I really don't like it F 42 3 months
1000mg 2X D
11/29/2020
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 3  SLE Lately extreme hair loss, tiredness I also have cervical distonia and have had piercing feelings in legs dont know if this is a side effect of the cellcept or the distonia spreading to other parts of the body. My legs jumped in bed this morning. Don't know if this could be the cellcept making my distonia worse. Has anyone else have trouble with uncontrollable movements of muscles? I don't trust this drug at all! F 64 1 years
500mg
10/21/2020
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 3  transplant Cellcept has caused bad digestive issues and fatigue. Its a powerful immunosuppression also to help taper steroid but if my fatigue and stomach issues do not disappear i must stop it M 36 100 days
500 mg 2X D
10/8/2020
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 5  Lupus Tolerance stomach upset, but limited to first 6 weeks. F 46 11 years
1000mg
8/24/2020
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 2  Mixed Connective Tissue Disease/Myo Tried Imuran, Azathioprine, Methotrexate. Of these, side effects not as bad as Cellcept. Also tried monthly IVIG infusions which had the least side effects, however also the least beneficial. On Prednisone for approx 8 years ; cannot find a good alternative to corticosteroids. Also bad side effects there. But seems I cannot do without now. Best wishes everyone. M 56 14 days
500mg 2X D
8/24/2020
 2  Lupus Stomach issues Depression Anxiety Eyes dark and glossy Fatigue Shaky 39 9 months
1000mg
5/26/2020
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 4  Lupus nephritis Stomach pains, cramps, diarrhea In the beginning, I started out taking 3000mg a day due to bad lupus flares. I am now down to 500mg a day for maintenance. F 36 3 years
1000mg
4/29/2020
 5  Rheumatoid Arthritis Initially stomach pain but after three weeks no side effects. Taking generic noticed symptoms of stomach pain return when the manufacturer was change to Accord Healthcare from Roxane/west-war. I noted the symptoms to my doctor and pharmacy and have received Roxane/west-war NOT to be changed without notifying my doctor and me. F 75 2 years
500 mgm
12/1/2019
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 4  severe COPD headaches, dizzy spells, constipation, stomach issues (like trapped gas) and a little nausea, high anxiety, achy body. started cellcept in July as an alternative to prednisone. It was a gradual cellcept increase and prednisone decrease. Today I am prednisone free, but I am experiencing several side effects that i HOPE are temporary. I am tolerating it for now because I HAVE seen an improvement in my lung function tests. July i was at 34% and now at 41%. I have also lost weight but unfortunately its not a healthy weight loss. Stomach issue and constipation make it hard to enjoy your meals. F 53 4 months
2400 MG 1X D
11/25/2019
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 3  Kidney disease Hair loss, loss of appetite, weight loss, fatigue, joint pain, anemia. Upset stomach during first month but that has subsided. Eat before you take the med. I used to take Prograf and loved it for 20yrs but it stopped working as well. Then tried Acthar but it was too expensive so now Iím on Cellcept. F 40 3 months
500mg
9/14/2019
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 3  V.k.h Fatigue, lightheaded , dizzy spells, always feeling sick, insomnia, tired during the day, moody, chills, anxiety , shortness of breath , Iíve only been on it for about 4 weeks but seems these are the start of the side effects I take 500 mg twice a day F 31 4 weeks
500
8/28/2019
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 2  Glomerular nephritis Serious hair loss it made all my hair matte and fell out . My gums grew over my teeth and bleed a lot I got lots of gum infections , Uti Ďs , nails grew into my skin and hurt , I felt like I had the flu 95 %of the time and could not eat because of my gums paining me and lack of appetite. Lost a lot of weight Iím 27 and weight 80 pounds my visions is bad now and my hearing is declining horrible drug it only helps u from ur body killing ur organs but it kills evething else for u like chemo this drug is like hell!!! Hate it ! F 27 3 months
2000
4/19/2019
  

CELLCEPT  (MYCOPHENOLATE MOFETIL):  Mycophenolate is used in combination with other medications to keep your body from attacking and rejecting your transplanted organ (such as kidney, liver, heart). It belongs to a class of medications called immunosuppressants. It works by weakening your body's defense system (immune system) to help your body accept the new organ as if it were your own.   (Sources: U.S. Centers for Medicare Services, FDA)

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