GILENYA Reviews (FINGOLIMOD)

Average Rating: 3.4 (28 Ratings)

Filter Results

Compare GILENYA with similar:
 IMMUNOMODULATORS

 Type: Rx Drug

  

GILENYA  (FINGOLIMOD):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is not a cure for MS but it is thought to help by preventing immune system cells (lymphocytes) from attacking the nerves in your brain and spinal cord. It helps decrease the number of episodes of worsening and may prevent or delay disability.   FDA Approval Date: 2010-09-21 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Date added.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2


  Charts & graphs: Drug Safety Information

RATING  REASONSIDE EFFECTS FOR GILENYACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  MS Initially my heart rate was 48 but came up. Then sore throat x1 month. Fatigue and mild anxiety x1 month. Now no side effects. I took avonex for 7 months, then copaxone for 13yrs (developed bad skin necrosis) I am very greatful to not have to inject myself everyday. I have not had my yearly MRI to see if there are any changes but so far so good! F 45 8 months
30mg 1X day
9/6/2012
Email
 4  Multiple Sclerosis I have gained about 30+ pounds since first being on Gilenya with no difference in eating habits or change in exercise. I was on Rebif 4 years prior to this and never had weight issues. Not I am extremely overweight! F 44 8 months
1X day
8/7/2012
 4  MS approx 20 lb weight gain F 41 15 months
.5 1X day
7/20/2012
Email
 4  rrms weight gain about 20 lbs some head ache F 50 4 months
1X day
6/14/2012
Email
 4  MS Breathing problems (2 weeks) Weight gain (10 months) Receding MS related symptoms Initial side effects were trouble breathing, similar to chest pains or a slight asthma attack for about 2 weeks. This receded and hasn't come back. I feel great overall, however; I can really tell a difference if I forget to take my pill til later in the day. Also I gained 15 pounds the first month with no change to diet or exercise. Two months later I lost almost 10 of it, again, no change in diet or exercise. Since then I keep gaining. I have gained a tolal of 20 pounds, mostly in my waist, butt, hip area. F 28 10 months
1X day
1/18/2012
Email
 1  MS i left recomendation below, after 4 months started getting skin rashes and developed ringworm on my lower back...back to Avonex Just find a cure M 45 4 months
1X day
9/15/2011
Email
 5  MS headaches for first two days, since then nothing waited 11 years for this pill..been on Avonex for 7 years, Rebif for 4... In past, I seemed to feel like crap for 5 of 7 days a week..never knew if it was the MS or the interferons...Now I Know ! Its only been three weeks but I dont feel like I am walking around with that lead jacket any longer...Still have my MS related spasms and "electrical shocks" but none of those "flu like" sysmptoms or red blotches any longer...Hopefully wont grow a third eye in a few years !! LOL but seriously, I would recommend to anyone with MS M 45 3 weeks
1X day
3/6/2011
Email
 4  RRMS GOT FAT It seems to be working. Beforehand, I had experienced 3 exacerbations within 5 months while taking Copaxone. I haven't had any attacks in the 5 months since starting Gilenya. No side effects at all. HOWEVER, alot of weight seemed to appear out of nowhere...and quickly attach to my hips :( And when I say alot, I mean +/-30 pounds, which is significant. I can't say FOR SURE that it's from this medicine, but I can't find any other cause. I suppose it's still better than the alternative--I choose fatness over numbness. If you are considering this drug, take heart; I seem to be the exception rather than the rule. Weight gain is not considered to be a side effect, so please don't let my experience stop you from trying Gilenya--it could change your life! F 42 5 months
12.5mg 1X day
2/28/2011
Email

Previous Page      

BACK TO TOP