GILENYA Reviews

Average Rating: 3.4 (27 Ratings)

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 Type: Rx Drug
  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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  Charts & graphs: Drug Safety Information

RATING  REASONSIDE EFFECTS FOR GILENYACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Multiple Sclerosis I have gained about 30+ pounds since first being on Gilenya with no difference in eating habits or change in exercise. I was on Rebif 4 years prior to this and never had weight issues. Not I am extremely overweight! F 44 8 months
1X D
8/7/2012
 4  MS approx 20 lb weight gain F 41 15 months
.5 1X D
7/20/2012
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 4  rrms weight gain about 20 lbs some head ache F 50 4 months
1X D
6/14/2012
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 4  MS Breathing problems (2 weeks) Weight gain (10 months) Receding MS related symptoms Initial side effects were trouble breathing, similar to chest pains or a slight asthma attack for about 2 weeks. This receded and hasn't come back. I feel great overall, however; I can really tell a difference if I forget to take my pill til later in the day. Also I gained 15 pounds the first month with no change to diet or exercise. Two months later I lost almost 10 of it, again, no change in diet or exercise. Since then I keep gaining. I have gained a tolal of 20 pounds, mostly in my waist, butt, hip area. F 28 10 months
1X D
1/18/2012
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 1  MS i left recomendation below, after 4 months started getting skin rashes and developed ringworm on my lower back...back to Avonex Just find a cure M 45 4 months
1X D
9/15/2011
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 5  MS headaches for first two days, since then nothing waited 11 years for this pill..been on Avonex for 7 years, Rebif for 4... In past, I seemed to feel like crap for 5 of 7 days a week..never knew if it was the MS or the interferons...Now I Know ! Its only been three weeks but I dont feel like I am walking around with that lead jacket any longer...Still have my MS related spasms and "electrical shocks" but none of those "flu like" sysmptoms or red blotches any longer...Hopefully wont grow a third eye in a few years !! LOL but seriously, I would recommend to anyone with MS M 45 3 weeks
1X D
3/6/2011
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 4  RRMS GOT FAT It seems to be working. Beforehand, I had experienced 3 exacerbations within 5 months while taking Copaxone. I haven't had any attacks in the 5 months since starting Gilenya. No side effects at all. HOWEVER, alot of weight seemed to appear out of nowhere...and quickly attach to my hips :( And when I say alot, I mean +/-30 pounds, which is significant. I can't say FOR SURE that it's from this medicine, but I can't find any other cause. I suppose it's still better than the alternative--I choose fatness over numbness. If you are considering this drug, take heart; I seem to be the exception rather than the rule. Weight gain is not considered to be a side effect, so please don't let my experience stop you from trying Gilenya--it could change your life! F 42 5 months
12.5mg 1X D
2/28/2011
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