GILENYA Reviews (FINGOLIMOD)Average Rating: 3.4 (28 Ratings)Filter ResultsCompare GILENYA with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 |
RATING | REASON | SIDE EFFECTS FOR GILENYA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
5 | MS | Initially my heart rate was 48 but came up. Then sore throat x1 month. Fatigue and mild anxiety x1 month. Now no side effects. I took avonex for 7 months, then copaxone for 13yrs (developed bad skin necrosis) | I am very greatful to not have to inject myself everyday. I have not had my yearly MRI to see if there are any changes but so far so good! | F | 45 | 8 months 30mg 1X day | 9/6/2012 | 4 | Multiple Sclerosis | I have gained about 30+ pounds since first being on Gilenya with no difference in eating habits or change in exercise. I was on Rebif 4 years prior to this and never had weight issues. Not I am extremely overweight! | F | 44 | 8 months 1X day | 8/7/2012 | 4 | MS | approx 20 lb weight gain | F | 41 | 15 months .5 1X day | 7/20/2012 | 4 | rrms | weight gain about 20 lbs some head ache | F | 50 | 4 months 1X day | 6/14/2012 | 4 | MS | Breathing problems (2 weeks) Weight gain (10 months) Receding MS related symptoms | Initial side effects were trouble breathing, similar to chest pains or a slight asthma attack for about 2 weeks. This receded and hasn't come back. I feel great overall, however; I can really tell a difference if I forget to take my pill til later in the day. Also I gained 15 pounds the first month with no change to diet or exercise. Two months later I lost almost 10 of it, again, no change in diet or exercise. Since then I keep gaining. I have gained a tolal of 20 pounds, mostly in my waist, butt, hip area. | F | 28 | 10 months 1X day | 1/18/2012 | 1 | MS | i left recomendation below, after 4 months started getting skin rashes and developed ringworm on my lower back...back to Avonex | Just find a cure | M | 45 | 4 months 1X day | 9/15/2011 | 5 | MS | headaches for first two days, since then nothing | waited 11 years for this pill..been on Avonex for 7 years, Rebif for 4... In past, I seemed to feel like crap for 5 of 7 days a week..never knew if it was the MS or the interferons...Now I Know ! Its only been three weeks but I dont feel like I am walking around with that lead jacket any longer...Still have my MS related spasms and "electrical shocks" but none of those "flu like" sysmptoms or red blotches any longer...Hopefully wont grow a third eye in a few years !! LOL but seriously, I would recommend to anyone with MS | M | 45 | 3 weeks 1X day | 3/6/2011 | 4 | RRMS | GOT FAT | It seems to be working. Beforehand, I had experienced 3 exacerbations within 5 months while taking Copaxone. I haven't had any attacks in the 5 months since starting Gilenya. No side effects at all. HOWEVER, alot of weight seemed to appear out of nowhere...and quickly attach to my hips :( And when I say alot, I mean +/-30 pounds, which is significant. I can't say FOR SURE that it's from this medicine, but I can't find any other cause. I suppose it's still better than the alternative--I choose fatness over numbness. If you are considering this drug, take heart; I seem to be the exception rather than the rule. Weight gain is not considered to be a side effect, so please don't let my experience stop you from trying Gilenya--it could change your life! | F | 42 | 5 months 12.5mg 1X day | 2/28/2011 |