GILENYA Reviews

Average Rating: 3.4 (27 Ratings)

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 Type: Rx Drug
  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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  Charts & graphs: Drug Safety Information

RATING  REASONSIDE EFFECTS FOR GILENYACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  MS Serious weight gain I was from a size 10 to a size 18!! I've lost all confidence in myself and completely lost my sex drive. Also depression F 28 2 years
0.5mg 1X D
7/15/2021
Email
 1  Ppms Weigth gain ,hair loss F 53 1 days
1xd 1X M
4/19/2021
 4   I've gained 27lbs I started taking thus medication in November 2019 and already almost 30lbs heavier..Not too many side effects.. F 29 5 days
4/20/2020
Email
 2  MS Abdominal pain, bloating and weight gain of 15 pounds in first month!! No change in eating habits or exercise. Fatigue and back pain also along for the ride:(. I need to get off of this...depression over fatigue and fat is too much for someone who is already struggling to regain my life!!!!! F 53 3 months
1 x daily
2/17/2020
Email
 3  RRMS Weight gain, skin sensitivity and bumps, cysts, acne, hair loss, icepick headaches, vision disturbance, chest pain, pelvic inflammation, cervical cysts and polyps, abdominal pain, gastrointestinal issues, decreased lung function... Iíve been free from relapses since 9/2017. Whether itís worth the side effects is tbd. F 34 3 years
.5 MG
1/28/2020
 4  Multiple sclerosis My only complaint is the weight gain. Iíve gained 40+ pounds. Iím very active and eat somewhat healthy. I cannot get rid of these extra pounds. My stomach, butt and thighs are huge. F 48 5 years
.5mg
1/3/2020
 4  Rrm MS Hangover type migraine every morning. weight gain, increased fatigue F 42 4 years
1
10/26/2019
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 2  MS Hair loss, fatigue, terrible headache, rash, vertigo, anxiety.... Every MS patient is different, so for me this medication isnít working, for someone else will be perfect! You need to try, maybe you will be lucky and your body will accept this medication! F 40 6 months
1 x D
10/19/2019
 4  Multiple Sclerosis Possible weight gain. Gone up a bra size! Tinnitus- not sure if this is MS or drug related. Fatigue. No new symptoms since Iíve been on this treatment. I also take Vaclovir to prevent the cold sores that this treatment was setting off. F 34 4 months
1xD
9/29/2019
 5  MS Weight gain Gilenya has worked well for me. Yearly MRI showed no new lesions. Fatigue still a issue but Iíll keep moving forward. M 45 2 years
.5
6/1/2019
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 3  MS Gradual weight gain which is stubborn - have been exercising at least 3 times a week (am very lucky to be able to do this) and cannot shift the 14 pounds I have put on since starting Gilenya F 40 1.5 years
0.5 1X D
11/6/2015
Email
 1  Multiple Sclerosis weight gain dispite such bad gi problems that I am almost anorexic!! We are all just guinea pigs. I do t know if I will ever lose this weight. I will stay on this until an attack. Unless I explode from fatness!! F 51 8 months
0.5mg
7/23/2015
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 2  MS I have dropped a bra size (cup) which is baffling because I have gained a considerable amount of weight. And to top it off my sex drive has plummeted. So far it has not been as effective as I had hoped. F 44 6 months
7/16/2015
 5  ms extreme weight gain,migraine,nausea stubborn weight gain with fatigue. Not sure if the migraine & nausea are ms related or from gilenya. A small price to pay for saving me from extreme relapses. F 42 3 years
5mg
4/21/2015
 5  MS My heart rate dropped at initial dose. My lung function has changed.. I know this because I participated in the drug study. I gained weight!!! My diet didn't change and my activity level increased but I've still gained about 30 lbs :( But overall I'm grateful.. My walker and wheelchair are in storage collecting dust!! F 43 5 years
0.5
8/27/2013
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 3  ms Weight gain F 38 1 months
.5
5/2/2013
 4  MS Low heart rate, 20lb wt.gain, increased bp F 36 1 years
0.5 mg
2/11/2013
 3  MS Extreme fatigue, throat aches, swollen neck, vision changes, throwing up (yellow) F 53 12 days
.5 1X D
11/30/2012
 5  Multiple sclerosis Lost 10 lbs. extreme fatigue. Caught the flu. Breast tenderness. F 42 6 months
.5 mg
10/18/2012
 5  MS Initially my heart rate was 48 but came up. Then sore throat x1 month. Fatigue and mild anxiety x1 month. Now no side effects. I took avonex for 7 months, then copaxone for 13yrs (developed bad skin necrosis) I am very greatful to not have to inject myself everyday. I have not had my yearly MRI to see if there are any changes but so far so good! F 45 8 months
30mg 1X D
9/6/2012
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GILENYA  (FINGOLIMOD):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is not a cure for MS but it is thought to help by preventing immune system cells (lymphocytes) from attacking the nerves in your brain and spinal cord. It helps decrease the number of episodes of worsening and may prevent or delay disability.   (Sources: U.S. Centers for Medicare Services, FDA)

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