TEMODAR Reviews (TEMOZOLOMIDE)

Average Rating: 4.1 (6 Ratings)

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TEMODARCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  NET (pancreas) metastasis to bones Nausea and vomiting unless I take Zofran and Compazine within the hour of ingesting. Muscle Cramps. M 48 30 months
750 MG 1X day
1/31/2018
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 4  brain mets due to breast ca some dizzyness - seems to affect balance - read that pt shouldn't drive while on temodar. nausea controlled by kytril and adivan, works very well. mouth sores, use nysatin, works very well. I am post brain surgery and cyberknife radiation. I am on my 3rd round of temodar. From what I understand, temodar has not been proven to work for brain mets from breast cancer. My oncoclogist seems to feel that there have been some good results in the past. I have an MRI follow up every two months and just had my 3rd follow up with no new tumor growth nor residual tumor growth at the surgical site. I am also on CMF Cyclophosphamide, Methotrexate, and Fluorouracil one week on two weeks off and Zometa once a month. Temodar round is 300 mg 5 days on 23 days off. It's too early to tell if the Temodar is helping. F 52 3 months
12/6/2009
 4  Anaplastic Astrocytoma Brain Tumor Nausea controlled well by anti nausea meds F 40 3 months
11/17/2009
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 4  Brain Tumor Many small side effects. The big one was Constipation. Extreme constipation. Easy to take, careful with the Zofran to avoid nausea. M 56 36 months
6/20/2008
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 4  Brain Tumor nauseau, easily controlled with Kytril 30 minutes before taking. Fatigue. Delayed level 4 toxicity - platelets and WBC crashed around week 7/8. Intermittent decreased appetite. Constipation. Change in hair texture. It was easy to take orally at home. Tumor showed above average regression after 2 rounds but then began growing through the Temodar in 3rd month. Toxicity was the same on standard dose as well as daily. M 11 3 months
8/15/2006
 4  Brain Cancer (GBM 1V) Tiredness, nausea Large brain tumor right temporal removed surgically, then 6000gys of radiation then Took Temodar 470mg per day 5 continous days per month x 3years and half then temodar was reduced to 400mg per day 5 continous days per month due to tiredness, no sign of recurrence so we are not stopping treatment as long as I can take it. This is acting as a preventative treatment since there is no cure to Glioblastoma Multiforme, but the beast has not recurred so it might be working. I have no deficit and doing well M 27 4 years
8/15/2006

     

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