COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  RRMS since age 14 The first time i got injected i got the burning,itching,tightness of chest symptom ): I REALLY HATE this medication. Im starting to believe i might be allergic? I get this really bad reaction when my husband finishes injecting the liquid like if i got bit by a bug etc. It also gave me numbness that started at my feet and is working it's way upward.Also messing with my menstrual cycle because there is nothing else that can justify it but the copaxone. F 20 3 weeks
5/13/2009
 4  rrms I have been on Copaxone for over 1 year and Last Night was the most scariest times of our Life.I take my shot at night before I go to bed. I got myself settled and I gave my shot in my upper Left arm and when I injected I felt this extreme burning and numbness go down my arm, up to my neck and face up to my top lips I thought I was having a heart attack. I called to my husband but nothing came out so I try to walk out of our bedroom to get my husband to call 911..I couldn't breathe nor talk...I felt like everything was swelling and my heart was coming out of my chest. I ended up collapsing on the floor.I have never had any problems with Copaxone in fact this medication has actually helped me a lot. I ended up going 911 and they thought I had a allergic reaction or I possibly hit a vein.They told me if this ever happens to take 25mg of Benadryl. After 4 hrs in the ER/hospital I was told this is a normal reaction for some people who take Copaxone. The Hospital called a Poison Center to s I have RRMS with Idiopathic transverse myelitis. This medicine and Steroid fusions have saved my life. Dr's told me I wouldn't be walking in 6 months and that was a year ago.I still have a lot of small issues with walking,weakness and fatigue. But I still work full time and I try to stay as active as I can without it I would probably be in a wheelchair. F 46 15 months
5/3/2009
 4  RRMS Bee-sting sensation at injection site, lumps and/or bruises at injection site, indentation of skin at injection site, weight gain. I was diagnosed with relapsing-remitting MS in the summer of 2003 after having optic neuritis. Started Copaxone in the fall of 2003. Been on it ever since! I have gained weight over the years which I do attribute somewhat to the Copaxone, and I do have lumpy, indented skin in my thighs and hips from the injections, but I do believe the Copaxone has kept any serious flare-ups from occurring. I will continue to use it! F 43 6 years
5/2/2009
 2  MS After taking it a 14 months, I began to be allergic to foods I was never allergic to. After missing 2 shots within a week, I developed severe hives requiring Emergency room visits. I regret having to go off of this drug because it was the least destructive choice of the CRABS, but if you are allergic, beware. F 59 14 months
5/2/2009
 3  RRMS Mild injections site reactions but you get used to them and for me they are no big deal. I never had any major reactions and am careful to rotate the sites and not inject a vein. It's hard for me to determine the effectiveness of Copaxone. I guess it's working since no relapse in last 2 years. I don't think it alleviates other symptoms of MS like spasticity, fatigue, etc., but maybe it prevents them from getting worse. M 56 2 years
4/30/2009
 3  RRMS Slight stinging post injection which is ok. Red itchy lumps not so easy to deal with. Also bruising on stomach sites. deveoped dull back pain since i started injecting in my buttocks. has anyone developed back pain since commencing copaxone? My MS nurse has advised a week break beause of constant discomfort from injection sites even with rotation. M 37 2 months
4/3/2009
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 3  RRMS I have had them all - redness at injection site, bumps, bruises, itching, indentation in skin, skin necrosis and several reactions of tightness in chest with flushing followed by chills and shivers. I have been taking Copaxone since 2000 (diagnosed in 1989). I had not had any severe exacerbations, but felt I should start a therapy. I cannot say whether the Copaxone has helped or not. F 42 8.5 years
4/2/2009
 4  MS One episode of rapid heart palpitations, perhaps injected into a vein. Pain at injection site for 20 minutes at bedtime, thigh sites are the most painful. Taking it with Avonex in Mayo Clinical Study, side effects are OK compared with the Avonex injection, which are flu like and make Mondays a challenge after a Sunday nite injection. Trial is very encouraging for combining the two drugs, though. M 60 21 months
3/30/2009
 1  RRMS pain,itching,hives,lumps and dents had enough!!!!!! F 49 5 years
3/22/2009
 3  MS newly diagnosed a month ago and am just starting my 3rd week on copaxone. Up until now my symptoms have been mild and subtle. Last week I started with tingling on the bottoms of my feet which increased in intensity and spread upward. Now I am having pain just about everywhere, either pins and needles and/or muscle stiffness and achiness, then I got a headache 2 days ago that won't go away. I thought it was very coincidental that these symptoms appeared so soon after starting copaxone. I have started steroid infusions to treat and MD says symptoms are MS exacerbation, but can't help wondering...Am considering holding the copaxone for a few days. F 48 17 days
3/11/2009
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 4  RRMS The usual site reactions. I've been on Copaxone since my diagnosis (2003). Over the past year I developed a slouch and my c-spine seems "gnarly". Occasionally my neck hurts. I mentioned this to my primary care doc and he said it's a side effect of Copaxone. Anyone experiencing this? F 47 6 years
3/7/2009
 3  ms injection pain, red lumps I just recently got diagnosed with ms. I started copaxone this week and have taken 3 shots now. I am sooo scared. Not just because of the injections but because of the ms. I know I am not alone but I am afraid. I am trying to be consistent with injections. F 48 3 days
3/6/2009
 2  MS After every injection I had the usual immediate bee sting pain lasting approx. 1 hr. afterwards but also injection site pain for a few days afterwards; also sometimes redness, or lump after injection. BUT the clincher was after 1st few injections I got my period (10 day cycle), had headaches, after a month gained 5 lbs, had inner torso tremors, chills and depression (couldn't get happy!),yeast infection. All side effects stopped after I stopped injections. Neuro said give it another go after 3 months off. I'll let you guys know! I want to believe that this will work for me, but am prepared that it may not. F 44 1.5 months
3/3/2009
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 3  MS I had my first severe Copaxone reaction yesterday a minute or two after my 8:30am injection. Up to now it's been occasional mild injection site pain and/or itching that I can ignore. This was NOT a half hour or so episode. First hour or so - dizzy, extreme stiff to the point of being unable to stand or crawl or change position much, nausea, flushing, breathing took effort for a short time only, my spine did a bucking bronco. Next couple of hours or so I made it to my walker and at some point made ginger tea, still had nausea and stiffness/weakness and the bucking bronco spine, plus severe chills and all body tremors. For the rest of the day all that was milder and I was pretty stiff and sore. I was able to eat a banana, an english muffin and a few bites of pot roast by eating a tiny bit at a time. Today I'm sore from all the jerking, a little stiff and low appetite. No injection this morning and not sure if it's safe to start again, not knowing the exact cause, not knowing if it Copaxone is the only MS drug I am willing to take - a personal decision. If anyone has had a reaction this severe PLEASE let me know what you did about it and why. And just to complicate it all - if I stop copaxone now I'll remain in the donut hole for the rest of the year, which pretty much means I won't be able to afford a large portion of necessary meds for 10 months. F 61 19 months
3/2/2009
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 3  MS dx May 2008 Medium-sized egg shapped lumps under skin which go away after a few weeks, redness, swelling, itchiness, pain at site for a couple hours, if it goes in too deeply, I'll hit a muscle & have a severe muscle spasm for over an hour. Hopefully it's working, not sure yet, I've never missed a daily dose yet. F 28 3 months
2/25/2009
 1   Severe and constant eye pain with photophobia and very bad migraines, all of these at a debilitating level. The eye pain is like something is squeezing my eyeballs and also as if they have been injected with chlorine, I couldn’t handle any light getting into my eyes, sunlight, lampshade, TV, computer etc. The migraine pain was a level of headache pain I never thought was possible. I didn’t open the curtains or leave my bedroom in over 10 months, I’ve had no quality of life in almost a year. I stopped my injection 2 months ago I still get these symptoms today although they have improved a very small amount. I have spoken to other Copaxone patients who have had similar experiences. I by no means think that Copaxone is the wonder drug that I was told it would be. M 32 10 months
2/25/2009
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 2  RRMS dx 01/2004 Flu-like symptoms including severe back pain, joint pain, achiness, pounding headache, severe chills I had taken Betaseron for 4 years and could no longer stand the scar tissue building up and beginning to become homicidal/suicidal. And everyone tells me I am ALWAYS positive and cheerful! 4 days into Copaxone, I had a severe reaction about 3 hours after the injection. I woke up with the most horrible flu-like symptoms I could describe and was actually running a fever of 102.1. Stayed home from work; thought I was coming down with the flu. 12 hours later, I was almost normal, except fatigued from no sleep and the fever. Took my shot again, woke up in the middle of the night with the same symptoms. The fever wasn't as bad, so I went in to work (getting up at 4:15am!). Stayed away from the shot that night and felt much better the next day. Took my shot and again woke up approx. 3 hours later feeling like I was in labor and having the worst back spasms and chills I have EVER experienced. Malaria could not be this bad! The SS nurses only know how to read from the packaging (or th F 44 9 days
2/18/2009
 4  MS I have been on copaxone for 2 months with little or no site injection problems. The only thing I notice is that my hands and feet and sometimes thights feels stiff. I was diagnosed with MS but had very little if any symptons, I guess you could call me asymptomatic, the only symtom was a weak leg when I walked fast for more than half an hour. My neurologist suggested I start copaxone so I will hopefully stay asymtomatic. But since starting I have this stiffness in my hands, ankles and thighs and sometimes a burning sensations that moves around my body. Does anyone else have these symptoms? F 53 2 months
2/8/2009
 5  MS Just a little soreness at injection site which goes away fairly rapidly. Don't know if it's working. F 55 3 months
2/7/2009
 1  MS Severe asthma attack, dizziness, ears were pounding, blood pressure spiked ! Almost killed me. F 38 4 months
1/30/2009

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