COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Multiple Sclerosis I set my auto injector on 6 1/2 and it doesn't bruise or leave indent's anymore. After I attended a conference the Rep for Copaxone said all it has to do is get in the fat under the skin and if you're bruising your needle is to deep so I went from 6 to 6 1/2 and it's been GREAT. I only experience a bee sting experience it gets worse before it gets better and I definitely don't mess with the sight because my Nurse said don't touch it for 24 hours after the injection. I was scared to death at first but it's been an easy adjustment I worried to much about. I've only been on it for 5 months I was diagnosed with RRMS in April 2007 and I'm 41. I hope this medicine works. I don't want to have flu like symptom's that the other drugs give you. F 41 5 months
8/9/2007
 4  Multiple Sclerosis When I do the injection I get a stinging like a bee sting that lasts for about fifteen minutes. I have welt marks esp on the thighs. I have had this happen two times where I got really dizzy and felt like I was going to pass out. M 51 40 days
8/8/2007
 3  MS Painful injection sites lasting days..flare up at other times, as well. Wonder if it causes fatigue and pain in legs and hand? F 54 4 days
7/26/2007
 3  MS Injection site related side effect like bumps, redness etc. But for the last couple of months I have realized that I had indents on my legs where I generally do my shots. When I made a research I learned thata those indents were permanently destroyed fat tissue. Sad... Besides that permanent indent on my legs, I am happy with copaxone. I almost feel like I don't have MS at all. F 28 2 years
7/24/2007
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 2  MS After 4 yrs began experiencing bad side effects seconds afer injecting; nausea, weakness & sweating lasting about half hour.Events increaed from every 3 mos to every month neuro told me to discontinue copaxone immediately - will see what's next when I see him next month F 66 5 years
7/9/2007
 5  MS Sometimes a bump at injection site. No others except for tonite when I hit a muscle on my arm. Owie! But there are no side effects to this drug for me. I believe this combined with Pilates has made me clear minded and physicially strong and coordinated. About six months ago I noticed an drastic change - I had not felt this good for years. F 23 months
7/6/2007
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 5  MS Insect like stinging and lump for abour 15mins. Lump lasts about 4 days. Now experiencing dipping in areas where I inject. Feeling of being choked, difficulty in breathing after 1-2 mins of injecting. Itchy skin, tiredness. I was very lucky to trial the drug back in 1998 and have taken the drug ever since. The drug had great benefits to me and reduced the severity of my relapses and also went alot longer between relapses. Recently all my injection site areas have started to dip, making injecting very painful. Would love to hear from anyone with similar symptoms. F 44 9 years
7/4/2007
 4  RRMS injection site swelling and redness both of which have become much less noticeable to me over time. Diagnosis was 8 years ago, started copaxone 6 1/2 years ago - almost no new lesions and no clinical progression.Have been doing Pilates for almost 5 years - it has helped me a great deal in multiple ways. I now want everyone to know of a problem I've had - SOME LOTS HAVE DEFECTIVE SYRINGES WHICH DO NOT DISPENSE THE ENTIRE AMOUNT OF MEDICATION. I DEALT WITH TEVA'S SHARED SOLUTIONS AND THEY WANTED TO REPLACE THE SYRINGES LITTLE BY LITTLE AND DID NOT VOLUNTEER THAT THEY HAD RECEIVED OTHER COMPLAINTS. IT ONLY CAME OUT WHEN I DIRECTLY QUESTIONED THEM. THEY HAVE NOT NOTIFIED PATIENTS OR PRESCRIBING PHYSICIANS!!! CHECK YOUR SYRINGE AFTER INJECTION TO MAKE SURE ALL OF THE MEDICATION HAS BEEN DISPENSED.THE MANUFACTURER IS REPLACING ALL OF MY UNUSED SYRINGES. F 55 6 years
6/29/2007
 4  RRMS I get huge lumps if I try to disturb the injection site by trying to disperse the liquid under my skin with rubbing (wait 24 hours before trying to massage the lump away, body massagers are great for this). If you press the autoinjector too hard against skin, you get bigger bruises/lumps.Slight breathlessness the first couple of times but nothing major. I always inject before going to bed so I sleep through symptoms.I always lightly tap the syringe housing of the autoinjector before injecting (after the cap is removed) to get rid of any excess fluid, I have been told to remove the copaxone fluid immediately if a drop leaks onto the top of my skin after injection - this was a good tip from my MS nurse. I use a short needle depth (4) for my thighs as I'm skinny and have legs on on sofa when injecting there, I don't do my arms too skinny. Mind over matter is important even though its hard at times, pilates is great as is meditation. F 29 4 months
6/14/2007
 5  MS occasional injection site reaction. I took Rebif for 7 months, and the side effects were intolerable. Copaxone seems so far to have good efficacy with no side effects.......I am very pleased. M 38 2 months
6/11/2007
 5  MS Swelling and stinging at the injection sight but it subsides after an hour or so. I am now having some problems with my taste buds - I can't taste my food like I use to but that is it. F 40 11 days
6/8/2007
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 4  MS I have mass bruising at injection site; I believe this is due to the auto injector. I am a very thin man with a massive needle phobia. The bruising is subcutaneous thus it is not absorbed through the muscle. The blood of the bruise pushes through the skin leaving me with a US quarter size open wound that takes 2 months to heal in the form of a scare. Does anyone else use the Auto Injector? Does anyone else have bruising? I know some folks find scares sexy but this is looking more like I am a Dalmatian. Any suggestion would be greatly appreciated. M 40 7 years
6/8/2007
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 2  MS Always have the site reaction of the swollen red lump. Also have swollen groin lymph nodes, of which once was taken and tested last year. Came back negative for cancer, but the remaiming nodes are still very 'angry'. Have had the severe reactions as well, flushed feeling, difficult to breath, chest pains, horrible stomach pains, vomiting and chills. Have been told not to worry about these. Thinking about stopping all together. DX 8 yrs ago..been on them all, Avonex, Rebif, Tysabri and Copaxone. All with bad side effects. This is my last hope and not looking well. MRI last year showed new lesions. If one can toloerate it, great. For those of us who can't, not sure if the side effects are worth the troubles. F 42 3 years
6/4/2007
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 4  ms like everyone else the shot leaves lumps and all that goes with it. i find using warmth before injecting and cold on the area after does help.i have had 4 post injection reactions.two i could handle.they consisted of chest tightning,breathing difficulty,some leg cramps and anxiety. the other two post injection reactions with the most recent last tuesday was brutal.2 hours.srong,strong metal taste.within seconds dizziness,sweating anxiety,sick stomach,vomiting,the craps,back pain,stomach cramps,itching all over with burning,after 2 hours of that torture iam done.so it wont kill me,just torture me.im strong spirited,but not into that ride. copaxone has worked for me.doing alot better after 27 years of many ms symptoms.was undiagnosed for 26yrs.after 1 fullyear on copaxone my brain mri shows no new lesions with 2 possably diminished in size.to bad im one of the few with severe pir.think i will look to alternitive choices.dont want to deal with reactions from treatment,ms is enough. look up, this may be the day. maranatha. F 47 12.5 days
5/10/2007
 4  ms on may 10ths response, time tking copaxone is 12.5 months best to all. i give it a 4 for working.i give it up because never wont to deal with that again. F 47 12.5 months
5/10/2007
 3  RRMS Terrible itching, swelling, redness for about 3 days after injection. That means that I have this reaction at 3 of the injection sites at one time. I sleep with ice packs. I've had times where I've scratched so much that I've broken the skin. Lots of bruising. Copaxone assured me it will get better, but after reading these comments, I'm afraid that itching, swelling, etc. will never stop. I experience none of the other side effects. F 56 2 months
4/21/2007
 5  MS The usual redness, bruising, itching, a few IPIRs. Has been so much better than anything else for me even with the side effects from the med. Stopped the quarterly exacerbations I was having before Copaxone. F 41 10 years
4/19/2007
 5   The usual redness, bruising, itching, a few IPIRs. Has been so much better than anything else for me even with the side effects from the med. Stopped the quarterly exacerbations I was having before Copaxone. F 4 10 years
4/19/2007
 4  MS I get bee sting like injection sites that swell and itch two days after injection. I have had one flushing incidence. It did not scare me too much because I was educated on the chance of that happening. Worst side effect I recieve is weakness and my leg muscles felt like cement. I received PT for 3 monthes and the muscle stiffness has subsided alot. Once I got used to the psychological issue of taking an injection, I have been pretty good. Pt really helped me. And Pilates is really a great way to exercise without getting overheated. It is definately something you can get used to if you be strong and use mind over matter. F 37 4 months
4/4/2007
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 4  MS I've been taking Copaxone now for over 3 years. I still get (sometimes fairly large), bumps that take a while to go away. I experience quite a bit of pain at the injection site from time to time too. Twice I've hit the muscle in my arm, its excruciating. I find it frustrating to find places to do the injection. I also have experienced chest pain and the feeling that my throat is closing a couple times after injection. Despite the annoying side effects I have had no new symptoms in the past 3 years. My MRI's show no new lesions (I had 13 to when I was diagnosed). I had been taking Betaseron right after I was diagnosed, but I couldn't tolerate the side effects. I will continue on the Copaxone b/c it seems to be doing its job. I do have some anxiety about the long term effects as no one seems to know very much about this med. F 25 3 years
3/22/2007

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