COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  RRMS Flu like symptoms, itching and redness at site injection. Increased nystagmus. According to Copaxone side effects listed on the web, 19% of patients have flu like symptoms. I do not like feeling this way almost every day. This is similar to my experience with Avonex. I can live with the redness, itching, stinging, etc. I accidentally injected into my leg and arm muscle which was quite painful. My arm was badly bruised and my leg is till sore after a month. Very disappointed since I poorly tolerate the interferon. F 54 1 days
2/5/2008
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 4  MS The sting after the injections in the thighs are awful, warm packs did help some. I must take a pain pill before I inject. I have only been using this med for 20 dyas, I just hope it help. I was just Dx'd on 12/26/07, and started the injections 1/2/08 F 50 20 days
1/25/2008
 4  RRMS SITE REACTION, WELTS, BRUISING I ALSO AGREE THAT THE PAIN IS NOTHING LIKE A BEE STING - WORSE. IT SEEMS TO HELP IF I BUSY MYSELF AFTER THE INJECTION. I WALK AROUND THE HOUSE OR GO OUTSIDE AND GET FRESH AIR. THERE HAVE BEEN A FEW TIMES THAT I HAVE CRIED FROM THE PAIN. I AM DEATHLY AFRAID OF NEEDLES AND THE AUTO-INJECT IN MY BOOK IS A GOD SEND. EVEN THOUGH I DON'T LIKE GIVING MY SELF AN INJECTION DAILY, I WANT TO BE ABLE TO CONTINUE MY LIFE AS IT IS. F 1 months
1/25/2008
 3  multipls sclerosis Lumps, Injection site reactions & ocassionally flushing & HEAVY ANXIETY M 40 7 years
1/25/2008
 5  RRMS Slight sting when needle goes in. After the injection sometimes it hurts slightly and other times it doesn't. I am very happy to be on this treatment! I was experiencing severe exacerbations and now the symptoms are so mild I hardly notice. I am curious about my next MRI to see if my leasions have stayed the same. I almost feel like my old self. F 51 8 months
1/14/2008
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 4  MS Always a welt at the injection site, especially the in the arms. The medicine feels like a bee sting but goes away. The site is tender for a long time. No other symptoms than that. I took Copaxone during the last trimester of my pregnancy and while breastfeeding for the duration of a year. At times more dilligently than others. I still had MS "issues" during and after my pregnacy. Also, I have been getting small cysts and just read that it could possibly be a side effect of the medicine. That is yet to be determined. F 27 3 years
1/14/2008
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 5  MS disabled Have lumps from injections. twice I have had severe reation with extreme pain, vomiting, sweating, loss of continence. Symptoms subsided after several hours. I think I injected into a vein. Has helped me tremendously. Initial diagnosis during 4 days in hospital, unable to walk or stand. Steroids gave me energy to go home. I had difficulty speaking, doing math and walking. Copaxone has enabled me to work full time and enjoy a normal existance. The NORD program has provided grants so I can continue to have this effective treatment M 57 2 years
1/3/2008
 4  ms severe pain, standard site reactions, discoloration on thighs I am suprised that no one has commented on the severe pain. Not bee sting like at all. Hit muscle couple times serious pain. I try very hard to avoid my muscles. Shared Solutions has worked with me to help me reduce the level of pain, but it is still very bad. Staying with it don't want the flu symptoms the other have. F 45 3 months
1/3/2008
 3  RRMS injection site reactions (except in abdominal areas) - hard, itchy, red, bruises about 1/3 of time, sometimes lasts 1 week or longer; very painful when I hit a muscle/blood vessel; areas of discolored dead tissue; hurts less to self-administer instead of auto-inject MUCH BETTER, however, than Rebif -- no flu, no suicidal ideations 38 2 years
12/30/2007
 3  MS welts at injections site, bruising and tenderness, dizziness Started taking after bad experience with Avonex. Itching has subsided greatly, but the past week the welts started getting bigger and staying longer.Last sunday I had a severe reaction and had welts that spread from my armpit to my elbow with purple spots and blisters. I photographed it and sent it to my DR. He consulted a derm. dr. and decided i need to hold off on the meds for now. i am discouraged because i know i can't do the interferons. F 33 1 times
12/2/2007
 5  RRMS I have had the common things like Bumps and Swelling and Site Pain and Redness, but it's all fine. My most unusual one is of Hyper Emotional Sensitivity. I would 'Cry' after something like standing on an ant. Incredible. This subsided very quickly after I started taking my Zoloft with my Copaxone at night before sleep. I was diagnosed with RRMS after a near complete shutdown of my body. When I did not die of the Stroke or Tumor that I was “suffering” from, an MRI and other tests found the MS. Seems that I have had it for over 20 years, just undiagnosed. I have the normal symptoms like fatigue, weakness, shaking and loss of muscle control, They wax and wane. BUT - My main symptoms have been not so much to do with the physical as the mental side of life. From the bad Depression to the bad Memory, from the change in Personality to the Mood Swings and Impatience, the list can go on and on. I can only say that MS can be very insidious. Since I started treatment with the Copaxone, many if not most, of my symptoms have diminished to a very noticeable and acceptable stage. I actually look forward to what the future holds, and I really do put it down to the Copaxone, Because I have done nothing else different. And hey, the walking stick makes me look distinguished. M 46 10.5 days
11/27/2007
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 4  MS On the 6th day of injections, about 2 hours after, I had extreme chills, shaking, nausea, excruciating muscle pain (especially in my arms), and I was hyperventilating. I did think, due to being newly diagnosed, that it was reaction to getting cold, as the extreme reaction to the heat. I took injection the next nite, being sure I stayed warm, and had same reaction. I went to my neurologist the next day and he took me off for one week, then did injection 1 a week then every 5 days, every 4 days, etc. I am now doing injections everyday and it has been 10 days, I am only having site reaction. My belief is that the 2-15 minute 'bee sting' is NOTHING compared to my attack. After extensive research we are convinced that copaxone is the best drug available for MS. I will give copaxone a 2nd chance. F 50 3 months
11/27/2007
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 2  RRMS No immediate side effects besides the occasional redness at the injection site. Hi my name is Sheryl. My husband, Gerard, has had MS for probably 12 years or more. In 1995, he tested positive for LP, EP and MRI lesions. Nothing was done, he'd never had an attack persay...only symptoms worsening. (bladder urgency, erectile dysfuntion, headaches, fatigue) His balance got worse and in 2000 had another MRI with lesions...and he got a DX finally and yet no MS drugs introduced. Just meds for the each symptom. By 2003 he was using a cane and was on disability. Still no "major" attacks. Just worsening. So he was considered PPMS. In 2005, he couldn't walk for 2 weeks but recovered. In March 2006, another attack. So, the Neuro changed his Dx to RRMS and then said he could now start taking Copaxone. We started it July 2006. This following year has been hell. At least 4 exacerbations and never really recovering completely. Always losing ground. June 2007 we told the Neuro that the past year was a disappointment, we thought Copaxone would lesson the M 44 15 months
11/20/2007
 3  multiple sclerosis immediate stinging at injection site, a big welt appears and has a burning sensation that i just want 2 scratch like crazy. However I need HELP--i now have painless swollen lymphnodes in my female groin area--one dr said not 2 worry it is the copaxone yet today a surgeaon wants 2 biopsy them and is talking about lymphoma--has this happened 2 anyones lymphnodes? F 32 8 days
11/19/2007
 5  RRMS Daily warm, red, welt at injection site. Occasional itching. Slight stinging sensation for 15 min or so after injection. Mind over matter works for me. I do some mentally and physically challenging work every day immediately after the injection. I immediately forget about the sensations and that's it until the next day. Site rotation is crucial to injection success. I've never given an injection in the same spot more than once a year. All seven of my areas are as clear and healthy as they were 4 1/2 years ago when I started Copaxone. Good grief, if you're suffering from site problems, call Shared Solutions and have them send one of their nurses to your house to figure out what's going on! God bless us all. F 53 4.5 years
10/22/2007
 4  MS be very careful about rotating sites. I was only able to inject at one area on my leg on there is now a large lump that the dr said was dead tissue and will always be there. i also experienced severe migraines just a a couple of weeks after i started. i stopped for a couple of days until the migraine passed. Started again with no problem. Overall, satisfied - wouldn't wish for the side effects of the other MS drugs. F 51 5 years
10/21/2007
 2  ms This is the second time I've taken it, the first time I didn't have any side effects at all. This time, however, I felt just like I did when I took Avonex, like I had the flu. My doctor instructed me to only do 1/2 doses for awhile, I'll see what happens with that. When I contacted the company they said the side effects could not be coming from the drug, that I must have come down with a bug. That seemed too coincidental and my doctor said the it probably was the drug. After missing 2 days of work and a doctor visit because I thought I had the flu, i was dissappointed to hear that. I cannot feel llike this every day so I don't know if I'll continue. Does anyone else think this drug could be a scam? It's price is ridiculous, they don't know how it works and who knows if it's even doing anything? I would like to hear other's comments. F 46 2 times
10/14/2007
 4  MS burning at the injection site, like a bee sting that radiated out slowly I am more afraid of needles than anyone can imagine. I had myself set up that it was going to hurt. It didn't. Just like any other shot, the fear of it always seems to be worse than the shot itself. I used the auto-injector, asked the nurse which of the 7 place of injection choices hurt the worst and told her I wanted to get that one over with first. She said the arm would probably hurt more just because the skin is so thin. I did my left arm and as scared as I was, crying like a two year old, it didn't really hurt. It was over pretty quickly and I didn't have any immediate side effects. Today the spot is sore but not bruised. I can do this!!!! F 37 1 days
9/27/2007
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 3  Multiple Sclerosis At one time, I was very satisfied with Copaxone. However recently, I began taking allergy shots and discovered the two don't mix. I always injected in the morning however, I began experiencing nausea and weakness so I began injecting at night. Then, I started having sudden, violent episodes minutes after injecting the Copaxone. First I tasted metal, then within seconds, I became flushed and sweaty, I couldn't breathe, I was vomiting, had bowl urgency and severe stomach cramps. (I read 2 other entries with the same symptoms). I thought I was dying. The neurologist's office didn't believe Copaxone could do this. The allergist told me to stop the allergy shots for 2 weeks and he would modify the solution. The neurologist told me not to stop the Copaxone. But I did. I'll resume when I feel it's safe. F 50 10 months
9/12/2007
 4  Recently diagnosed with MS I've only experience a lumps in my arms a couple times when doing the injection, I really have experienced any of the other side effects. I just hope the medicene is doing its job. F 40 3 months
8/23/2007
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