TOPAMAX Reviews

Average Rating: 3.0 (1805 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug
  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Weight loss While on topiramate- suicidal thoughts, easily angered, drowsiness, confusion, felt stupid, irritability, carbonated drinks taste flat, no appetite, frequent urination. Once off Topiramate- body aches, chills, cold feet, tingling in hands, feet, random parts of my body. Neck and back tension, eye pain, heart palpitations, anxiety, shaking, slight headache, & itching! This medicine drove me to want to kill myself and be snappy with my babies so I quit cold turkey. I've been off for 4 days and I'm still having drowsiness(not as extreme) and all the above it's scary! I thought something was happening to me I was going to go to the er until I looked up withdrawal symptoms! F 24 7 days
50 mg 1X D
11/19/2021
 5  Migraines-very heavy ones None. Topamax has literally saved me. I was close to suicide because of attacks of unbearable pain and unconsciousness lasting for 3-4 days. Weekly. For years... It started helping already in a dosage of 50 mg. With going up to 450 mg I had a hope to remove an epilepsy as well. Unfortunately, there was no luck with seizures ((( But it's a GREAT medicine after all. Just start from 5 mg! I mean it. Take it slowly and give yourself a time to raise up the dosage. F 48 5 years
450 mg 1X D
11/7/2021
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 1  Migraines Personality Disorders, Compulsive Decluttering as in throwing everything not nailed down out. Anorexia, suicidal thoughts, self hatered, PTSD triggering, inability to function emotionally healthy. Very bad with motor skills, thoughts & speech impediment. How is this stuff legal? Hair loss. Massive night sweats, brain fog, loss of intellectual ability. Loss of any beautiful thing in my life & personality. Should have a black box warning! Extremely dangerous. F 50 10 months
75 2X D
10/31/2021
 5  Borderline, Anxiety Honestly it didn't make me stop drinking soda nor alcohol ,I still love them both . I was excited when I read online that it would make me lose my appetite because I've been taking topamax for a month now and I still eat like a pig day and night and I'm still as fat as ever. I am experiencing a lot of hair loss but I'm also 4 months post partrum. I'm not feeling particularly dumb but I have noticed the constant need to pass this really distinct smelling gas throughout the day ;/ I keep blaming my baby for the smell but I'm afraid the people can tell because it smells extremely bad and exactly the same no matter what I eat. It finally made my social anxiety subside.:) F 21 1 months
25mg 2X D
8/27/2021
 3  Migraines Severe stomach cramps,back pain bloody diarrhea tingling in hands stumbling upon words Had to wean down from 125 mg daily to 75 daily bc of the severe side effects. Cannot come off of this medication completely bc I'll get migraines back ten fold and could possibly suffer from a seizure very scary F 31 0 months
75 1X W
7/29/2021
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 3  Migraines Brain fog,difficulty finding words,basically just feel dumb,and somewhat like i dont trust myself to do things because the brain fog is so bad. As a whole it dulls the migraines and maybe cuts them in half but not sure if its worth feeling really mentally foggy all the time.... F 28 60 days
50 1X D
7/5/2021
 1  Migraines numbness, burning, or tingling in the hands or feet slowed reactions nervousness headache drowsiness weakness uncontrollable shaking of a part of the body uncontrollable eye movements weight loss constipation brain not signaling your body to do something change in ability to taste food dry mouth teary or dry eyes back, muscle, leg, or bone pain missed menstrual period blurred vision loss of vision double vision feeling cold, chills, or low body temperature difficulty concentrating speech problems, especially difficulty thinking of specific words word recall confusion memory problems loss of coordination pounding or irregular heartbeat chest pain shortness of breath trouble breathing fast, shallow breathing inability to respond to things around you excessive tiredness diarrhea nausea vomiting stomach pain loss of appetite intense back or side pain cloudy, or foul-smelling urine sexual dysfunction major Cognitive issues organizing thoughts what order to do things in I've told numerous doctors that my current symptoms are caused from 25 years of taking Topamax 200mg a day as a preventive for migraines . Not one Doctor listened to me that Topamax caused all this to my body. I was diagnosed with Chronic Fatigue Syndrome at age 19 and chronic migraines , Today Neuropathy, Fibromyalgia, Rheumatoid Arthritis, ADHD, Depression and Anxiety , Sinusitis , Chronic IBS, and many others issues I'm grateful it could be a lot worse . sensitivity to environmental noise, smells ,light Ringing in ears ,changes in vision depth perception F 50 25 years
200 MG 1X D
6/12/2021
 1   Severe Rash . Large Hives, Trouble Breathing requiring ER treatment with IV solumedrol . Would not recommend to anyone. M 68 7 days
1X D
6/3/2021
 4  Bipolar Best mood stabilizer i have ever tried! I was happy, upbeat, optimistic. I felt like my old self. Unfortunately it caused vision problems in both of my eyes. So I quit after two months of taking it. Lost my sense of taste, everything taste gross. Appetite reduced, Blurred vision. 34 55 days
50 mg 1X D
5/9/2021
 4  Migraine I get the tingles, brain fog my tounge goes numb and numb toes. I get diarrhea sometimes. I've lost weight which is good for me. Soda tastes nasty which is again good, for me. Less appetite. My migraines are all but gone from daily migraines. My biggest complaint is the extreme fatigue. I have found I can fight it with vitamin B12 shots. As long as I get the vitamin shots I can feel like a normal human. Better to take the topamax with the b12 shots than be exhausted from daily migraines. The other effects I have gotten used to and aren't that bad F 39 90 days
200 mg 2X D
4/26/2021
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 5  Weight loss Very dry mouth which is making me drink lots of water, sodas taste very flat with a melted butter taste and burn my mouth, burgers taste very bad, anything with sugar taste horrible not enjoyable. Overall horrible taste to stuff once enjoyed but for a good reason to loose the weight! One week in 11 pounds gone F 32 0 weeks
2X D
4/17/2021
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 1  Migraine auora DO. NOT. UNDER. ANY. CIRCUMSTANCE. EVER. TAKE. THIS. DRUG. Look at the science behind it, first. Awful side effects. I experience panic attacks for the first time and I can never go back from them even though I am not on the medication anymore. Severe anxiety, depression to the point that I was almost suicidal, I thought I was going crazy, confusion and more confusion, losing words midsentence, couldn't think of anything to do for work when previously I could write down a whole long list of tasks to get done, brain fog. I must have the worst neurologist on the planet because I specifically told her that I would not take a medication with ANY cognitive side effects. And she said the ONLY Side effect from this rug would be tingling fingers. She downplayed the side effects so much that I didn't even look them up before taking the medication only to think I was going absolutely insane a month later. After a month I looked up the side effects and realized just how extreme they are. I am considering a lawsuit. She gave me these so that I would be able to start running again without having a migraine. But the problem is that this medication takes away my ability to find enjoyment in anything. I haven't even had the desire to go running or even step foot outside because I've been so depressed, my personality is completely gone. I hate pharmaceuticals and I hate neurologists that prescribe them Please contact me if you have any concerns about this medication I am happy to talk to anyone about them F 30 44 days
25 mg 1X D
2/26/2021
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 5  Intracranial hypertension/ seizures Tingling in hands and feet, loose bowels, itchy skin. I have many issues with medications however this one I was fine with. I think with medications in general it's about trial and error. What works for one person may not work for another and vice versa. Just listen to your doctor's advice. F 34 5 months
100mg 1X D
2/17/2021
 5  Migraines Fatigue, brain fog, lack of motivation, word finding issues - all diminished with time and I was able to go down in dosage when needed if I had a large project that involved numbers and return to higher dose as needed. I want to offer a word of encouragement for those who are trying to decide if they should take a pharmaceutical product, try natural approaches, or just give up. I was diagnosed over 40 years ago with migraines and I've been on everything out there - Inderal, Midrin, different diets, adding salt, Caffergot, BCP, Maxalt, Imitrex, the list goes on... In 2009 my doctor suggested I try Topamax and though it doesn't have the perfect side effect profile, it changed my life. Before Topamax I always had to have a plan b for what I would do if I got a migraine. Since Topamax I can just live life. The more I learn about the migraine brain and the nerves that cause the pain, the more I believe I do need the treatment of Topamax. Start low and go slow. I take 50 at night and I sleep solidly and wake up usually without my alarm. Initially had a little weight loss, but that went away. Diet Pepsi tastes weird, but that's a small price to pay for a migraine-free life! F 48 11 years
50 mg 1X D
11/22/2020
 1  Migraine This drug TOPIRAMATE is horrible I only took it for 3 weeks 25 MG once a day to prevent migraine, The side effects are horrible I thought I was going crazy. once I lost the coordination of my legs. He had no strength at all. short breath, blurred vision, blank mind speech problems I still have problems and muddle the words this this is horrible. now I switch to propranolol 20Mg once a day and I'm better, although these pills make my eyesight blurry. I plan to take only half. PLEASE STAY AWAY FROM TOPIRAMATE Worst medication ever M 36 21 days
25 MG 1X D
11/22/2020
 1  Mood stabilizer Was hypo maniac for a year. Then went into major depression. Very dangerous drug! F 60 0 days
1X D
11/6/2020
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 1  seizure disorder Brain fog, limb dysphoria (feeling like my limbs were floating away,) tingling, numbness, breast pain, cognitive recall impairment, it seriously felt like a bad acid trip from the 70s! I will not touch this stuff ever again. If you don't experience the side effects, this may be a great medication, but the side effects were bizarre and disturbing for me. I cannot take it and have it listed as a drug I am allergic to, just so it is never given to me by accident. F 57 10 days
2X D
11/4/2020
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 3  Migraines & Anxiety PROS- This medication has helped significantly with my debilitating aura migraines that I get, anywhere from up to 3x a month. It def controls weight, not necessarily cravings per say. I think my metabolism is higher now. Ive actually been told from blood work, by a doctor that I have an over active thyroid now. CONS- Its taken me a long time to determine this. This medication has been causing me severe ANXIETY. I had what I would call, a slight case of it before. Mainly, because I suffer from PTSD. Currently, I can admit I have a severe case of anxiety. Ive had to go off this medication a few times, and every time the anxiety gets better. F 36 5 years
100mg 2X D
11/2/2020
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 1  weight loss my doctor put me on this drug to lose weight. the side effects did not start getting bad until around month 9. but before month 9 i experienced pins and needs, brain fog, forgetfulness. i did lose 92 pounds while on the drug. i had to stop it because my legs would burn and go numb. i quit taking it cold turkey, which you are not supposed to do. i stopped it because of the intenseness of the burning and numbing. it also made my anxiety sky rocket. i have been off of it for about a week and half. and now my feet get extremely cold. i am not sure if this is a withdrawal symptom or if i have something else going on. if anyone has experience this can you please email me. M 22 10 months
100 2X D
10/29/2020
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 1  Borderline Personality disorder Loss of cognitive function Migraines Insomnia Tingling/numbness in hands Double/blurred Vision Extreme suicidal ideation I started the first week at 50 mg and the second week went up to 100mg, the third week I was supposed to go up to 300mg but on the first day of that week with the first dose I had a complete break. The weeks leading up I had increased anxiety, dramatically increased depression, my mood swings became more irrational and erratic than ever. Around the second week I started to hear voices in my head telling me to kill myself. I did not want this. By the end of week 2 the voices were screaming at me to kill myself. The last day, (first day of week 3) I was admitted to the hospital, taken off the drug and after my first hours of drug induced sleep, so roughly 12 hours later, my symptoms dissipated by 75% then without taking the medicine for 24 hours disappeared completely. I am in total disbelief that this drug is prescribed for people with mental health issues... it seems very dangerous. F 39 2 weeks
100 mg 2X D
10/23/2020
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TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   (Sources: U.S. Centers for Medicare Services, FDA)

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