TROKENDI XR Reviews

Average Rating: 3.5 (12 Ratings)

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on TROKENDI XR: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR TROKENDI XRCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Complex and partial seizures Diarrhea, mental fog, ADD, speech problems I know words I want to say but they come out completely different. It stops my seizures F 46 5 years
100mg 2x d 2X D
6/12/2021
 4  Chiari Malformation Weight loss, memory issues, blurred vision, hair loss This med has been the only med to consistently keep my headaches away with my Chiari Malformation. I had surgery, was taking it before then, but was unable to come off the meds. The medicine before surgery was successful as well but I had headaches. This makes it where I rarely (if ever) have a headache. If I go down to a smaller dosage, I do. I hate the memory loss though. It's just enough to be annoying. F 44 4 years
200 mg 1X D
5/23/2021
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 5  Chronic migraine At first l noticed a loss of taste and appetite. This went away after 2-3 weeks. My neurologist had warned me of any possible side effects and he kept in touch with me. I was not to drive until l knew if would affect my ability to safely do so. I had no problem there. Many doctors had tried too help me over the course of 40 years. Finally one referred me to a wonderful neurologist. Again, beforehand he put me on trokendi xr he made sure l understood any possible risks or side effects. These were very mild and went away quickly Taking trokendi xr has given me back a quality of life l thought l would never experience again. Overnight l went from a minimum of 15 migraines to maybe 1 a month. Trokendi xr may not be the answer for everyone but l would encourage everyone with chronic migraine not to give up. There IS help out there. F 64 5 years
25mg 1X D
2/10/2021
 1  Migraine Vision changes, HORRIBLE pain in chest and feet. Made migraines worse. Could not eat anything , lost 20 pounds in a month ( usually that would be nice) ... but I lost muscle and brain function. Couldn't think. Couldn't sleep. Confused over everything. Tried reading my calendar and forgot how to figure out what day it was!!!!!!!!!! Scary scary drug. Be careful, some people get side effects from this drug and they don't recover I've read! I tried it for a month, very scary! F 27 1 months
100 1X D
8/20/2020
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 5  Migraines None F 66 0 days
200
3/11/2020
 1  Weight loss Iíve had 20 / 20 vision my entire life until this medication. I only took it for a week! Now my vision is like looking thru a blur! Every light is a burst and I canít read small writing any more. Iíve been off of it for a few months and I STILL am having vision issues :( DO NOT TAKE THIS MEDICINE!! Your eyesite will thank you. F 43 5 days
25 MG
9/15/2019
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 4  Migraine Metalic taste in mouth, tingling, tired, foggy brain, weight loss, loss of appetite Helps with migraines F 30 2 months
100mg
3/18/2019
 4  Migraine Very mild side effects compared to topamax! So happy with the difference in this compared to the topamax. The side effects of wackiness, forgetfulness, etc. have all calmed down since switching to the Trokendi. On the topomax I had anxiety, emotional ups and downs, fatigue, sleepiness, never did have the tingles though. All of these things went away with the Trokendi. Also, surprisinglly, my constant neck pain from stenosis is so much better! I never thought to attribute it to the Trokendi until I read a few posts that some were actually prescribed it for that reason, and a few others commented that their neck pain was improved. That alone is worth it to me, but it has also greatly improved my migraine issue, which is ophthalmic nerve. Botox shots take care of the supraorbital and occipital ,migraine pain, but have never touched the severe ophthalmic trigeminal nerve pain in my left orbit. The Trokendi has reduced those flare-ups to 3-4 a month instead of 3-4 a week. My enthusiasm however is diminished however every time I have to deal with that DADBERN adult=proof packaging!!! It is the most frustrating packaging I have EVER had to open - even the newer ones. You would think they do NOT want you to ever get into it. I have to use scissers and have cut many capsules, which ruins them basically. Why the heck can't they just put them in a bottle???!!! There is no way if my arthritis progresses I will ever be able to get into this packaging. I will rate this down a point simply because of the most frustrating packaging F 63 8 months
100 mg 1X D
11/28/2017
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 4  migraines Nothing I ate tastes the same, I felt like I was a walking zombie. I couldn't hold my hands up to do my hair, hold them up in the shower it was tiring to do anything. I couldn't climb stairs, forgot simple things, loss of hair in shower, tingling in my hands feet, I do like that it does help with my migraines but the side effects are terrible. Esp feeling like I'm unfunctionable all day. It's not that I'm tired it's a zombie like feeling it's like a tiresome feeling like holding your arms up for long period of time but your actually not and climbing stairs takes all energy out of you. And all food not tasting the same ESP soda F 42 14 days
50
7/29/2017
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 2  migraine Pain to the bottom of my heels> I do not have foot issues. F 51 3 months
50 1X D
7/7/2016
 5  migraine no side effects I took topiramate and Topamax for over 3 years only trokendi helped me with my migraines with no side effects . ( maybe there was no side effect because my body was so use to this drug in form of Topamax ot topiramate ) but only trokendi gave me headache free. M 37 9 months
200 1X D
11/4/2015
 3  Seizures Clenching teeth/grinding teeth overnight. Fatigue/spaced out sensation. I'd preference brand name topomax or topirimate. Less side effects in my case. I've been taking the non XR version since 2006. F 37
200 2X D
11/24/2014
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TROKENDI XR  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). It is also used to prevent migraine headaches. Topiramate belongs to a class of drugs known as anticonvulsants.   (Sources: U.S. Centers for Medicare Services, FDA)

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