IMURAN Reviews (AZATHIOPRINE)Average Rating: 2.9 (526 Ratings)Filter ResultsCompare IMURAN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 |
More on IMURAN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR IMURAN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | UC (Misdiagnosed) | Neoplasm (and a large surgical scar to remove it), acne, hair loss, nausea, vomiting, worsening of UC symptoms, yellow skin, extreme fatigue | My doctors at the University of Iowa told me this was safe. Not only do I not recommend taking this drug, I don't recommend getting medical information from the University of Iowa--doesn't seem to have very high standards, quite low ones actually. I don't think you'll find doctors at Harvard, Yale, or Stanford telling me the nonsense my doctors told me. BTW, I never even had UC. So if you've just been diagnosed with UC or CD, I really recommend getting a second opinion. For me, this mistake has cost me tens of thousands of dollars--and that pales in comparison to the harm that can never be fixed--I now have a scarred face, horrible skin, whereas before I had perfect skin. Obviously this is pretty important at 18 years of age. | M | 18 | 7 months | 11/27/2009 | 4 | Relapsing Polychondritis, Lupus | nausea, hair loss, headache, fever, chills | I am taking 150mg daily and tolerate it very well. It has changed my life. In some ways, it has saved my life. I do understand the risk of neoplasm, especially lymphoma and skin cancer. It is very real. I am taking Imuran as a last resort, but, without it, I would not have much of a life, so I love it. | F | 42 | 5 months | 11/25/2009 | 1 | UC | Neoplasm (and a large surgical scar to remove it), acne, hair loss, nausea, vomiting, worsening of UC symptoms, yellow skin, extreme fatigue | My doctor said this was safe--I hardly think a drug that can give you cancer is "safe." I would never take this again under any circumstance. I also have this piece of advice for anyone with UC or Crohn's: I'd be really skeptical of anything your GI doctor tells you--think about it: what sort of person wants a job in which they give rectal exams and such all day long? They're either in it solely for money, or they really like giving rectal exams (and such)--which is worse, I don't know... | M | 18 | 8 months | 11/24/2009 | 3 | Syst. Scleroderma/PulmonaryFibrosis | Extreme bouts of fatigue and weakness. Severe lower back pain. | My recent pulmonary function test and CT show improvemen. However, the fatigue and weakness have had a definite impact on my quality of life. In the past week I've developed crippling lower back pain. I'm also on Rituxan and Prednisone. I'm extremely worried about long term use and the development of leukemia and other various cancers. | F | 47 | 4 months | 11/22/2009 | 4 | autoimmune hepatitis | The only side effect that I have is tiredness, but I am not sure that the Imuran is the cause. | My last liver biopsy in 2002 showed signs of cirrhosis. I started with predinose, and was weaned off of it and onto imuran. Over the years my dosage has decreased from 150mg to 75 mg, with liver enzymes remaining in the normal range. | F | 58 | 7 years | 11/12/2009 | 5 | Ulcerative Colitis | At 50mg/day, I initially had nausea but it resolved after taking Imuran at night instead of in the morning. After 4 months, I then had severe tiredness and pain in my hands, knees, & shoulders. The bottom of my feet hurt so bad, I could hardly walk. I then reduced my dose from 50mg to 25mg and within 1 month, all my side effects resolved. | After having my life on hold for 2 yrs due to UC, I started Imuran. At 6 weeks, the Imuran finally kicked in and it was my Miracle Cure! I went from 20-25 bouts of diarrhea/day to 5-10/day. After 6 months, I now have 2-3 formed BM's/day. After reducing the dose from 50mg to 25mg, I now have the same energy I had before being diagnosed with UC and can eat anything I want, although I shy away from fried foods. It's a Miracle! | F | 50 | 11 months | 11/9/2009 | 4 | Crohn's Disease | Hair loss, nausea, perioral dermatitis (rash under nose and lips), insomnia, increased back and hip and foot pain (don't know if the pain is related to Imuran or just my bad luck and osteoarthritis-the hair loss, nausea, and dermatitis are definitely related). | I have cut back by half and haven't noticed much change. I plan to keep cutting back until I'm off the Imuran. It concerns me that Imuran increases my risk from H1N1, and there is not enough vaccine in my area for those identified as being in priority groups for the vaccine. So cutting back on a risk factor seems reasonable to me, at least until there are supplies of vaccine. And it wouldn't be so bad if some of my hair grew back while I'm waiting. What I wish is that my doctors could see beyond my gut and help me make this decision. | F | 52 | 3 years | 11/5/2009 | 4 | UC | I have been experiencing trouble sleeping but I am also on Ortho tricycline lo which could be adding to the fire. This medication along with asacol has litteraly saved my life! I have an excellent doctor who has me monitored very closley with bloodwork and frequent visits to make sure all my levels are stable. I would love to be off of this medication at some point to reduce my risk of cancer but at this point Ill take my chances after being in the hospital for a month and getting two blood transfussions and just got tappered from 20mg of prednisone! | F | 25 | 8 months | 11/1/2009 | 3 | Chron's Disease | My most severe was by getting a terribly painful rash on and around my lips. I spent 5 months and saw 7 doctors (GP's, Gastro's and Dermatologists) before they could figure it out. It turned out to be a simple fungus infection caused by normal fungus and bacteria on the skin but got infected because imuran severely hurt my immune system. | Although I had this side effect for the chron's, I have had a lot of success with imuran for chron's. I was diagnosed when I was 15 and went on imuran about 6 months later. It has helped very much, with 2 flare ups requiring IV steroids. The last one was 3 years ago and have been in remission since. | M | 20 | 4 years | 10/13/2009 | 4 | Central Nervous System Vasculitis | fatigue, hair loss | unable to discern which side effects are from Imuran and which from the Prednisone....physician wants to wean off the Prednisone and go solely with the Imuran....taking 100 mgs of Imuran daily with 15 Prednisone. Vasculitis was diagnosed following a stroke, also have fibromyalgia for which I am also taking separate medications which offers its own menu of side effects. | F | 63 | 1 years | 10/7/2009 | 3 | Crohns | Tired when I started to take Imuran but that passed over. May be a bit of an itchy scalp lately.Bit of weight loss as well. Cant tell if that is due to drug but I have been eating well so my calorie intake was good. | I am taking Imuran to help with perianal crohns which can cause Fistula's. I have not had one since I stared taking imuran 5 months ago. I have a wound from an abcess that it has only started to help improve so I hope it keeps going. | M | 29 | 5 months | 10/6/2009 | 3 | Sjogrens/Lupus | Stomach upset & tiredness after dose increase, dizziness | So far, Imuran has been OK, but I am concerned about long term side effects. Hopefully I wont have to take it too long | F | 28 | 1 years | 9/19/2009 | 1 | Rheumatoid arthritis | Vomiting, headaches, raised liver tests | F | 62 | 1 months | 9/8/2009 | 3 | auto immune hepatitis | extreme muscle and joint pain-feel like someone with a high fever(same kind of aches and pain) been on imuran for 3 1/2 months-on 100mg a day-just came off prednisone last week-muscle pain began shortly before coming off prednisone-don't know if this is coincidental or not | F | 39 | 3 months | 8/31/2009 | 1 | UC | My father took this medication for 3 years and was diagnosed with a rare skin cancer. (Merkel Cell). Please do not take this medication. His doctor did not monitor him very well on this drug because I have the medical reports that state that my father had the flu a lot. At one point he had pneumonia and the doctor never decreased the dose or stopped giving him this drug. We are taught to listen to our doctors but this drug took my father's life. I am learning through these blogs that my father has not been the only one. Please email me. Maybe we can still fight for our loved ones, if we all stick together. I was thinking of passing a law that would require patients to sign a consent form before taking this drug. The consent form would list the known benefits but all deaths that followed after taking this medication. I live in IL. Does anyone know how we can start such a law if we are all from different states? Will anyone stand behind me? Please email me. | My father was 79 when he passed away but was given this medication at 73 and diagnosed at 76. Why did his doctor give this medication to an older patient? Why didn't the doctor stop when my father complained of a having the flu? Does anyone have the drug write up from the pharmacy from 2001? I do not think cancer was listed because my father was also suprised to learn he had cancer. | M | 79 | 3 years | 8/28/2009 | 1 | UC | My father took this medication for 3 years and was diagnosed with a rare skin cancer. (Merkel Cell). Please do not take this medication. His doctor did not monitor him very well on this drug because I have the medical reports that state that my father had the flu a lot. At one point he had pneumonia and the doctor never decreased the dose or stopped giving him this drug. We are taught to listen to our doctors but this drug took my father's life. I am learning through these blogs that my father has not been the only one. Please email me. Maybe we can still fight for our loved ones, if we all stick together. I was thinking of passing a law that would require patients to sign a consent form before taking this drug. The consent form would list the known benefits but all deaths that followed after taking this medication. I live in IL. Does anyone know how we can start such a law if we are all from different states? Will anyone stand behind me? Please email me. | My father was 79 when he passed away but was given this medication at 73 and diagnosed at 76. Why did his doctor give this medication to an older patient? Why didn't the doctor stop when my father complained of a having the flu? Does anyone have the drug write up from the pharmacy from 2001? I do not think cancer was listed because my father was also surprised to learn he had cancer. | M | 79 | 3 years | 8/28/2009 | 1 | UC | My father took this medication for 3 years and was diagnosed with a rare skin cancer. (Merkel Cell). Please do not take this medication. His doctor did not monitor him very well on this drug because I have the medical reports that state that my father had the flu a lot. At one point he had pneumonia and the doctor never decreased the dose or stopped giving him this drug. We are taught to listen to our doctors but this drug took my father's life. I am learning through these blogs that my father has not been the only one. Please email me. Maybe we can still fight for our loved ones, if we all stick together. I was thinking of passing a law that would require patients to sign a consent form before taking this drug. The consent form would list the known benefits but all deaths that followed after taking this medication. I live in IL. Does anyone know how we can start such a law if we are all from different states? Will anyone stand behind me? Please email me. | My father was 79 when he passed away but was given this medication at 73 and diagnosed at 76. Why did his doctor give this medication to an older patient? Why didn't the doctor stop when my father complained of a having the flu? Does anyone have the drug write up from the pharmacy from 2001? I do not think cancer was listed because my father was also surprised to learn he had cancer. | M | 79 | 3 years | 8/28/2009 | 2 | ulcerative colitis | I have experienced extreme fatigue to the point that I don't want to get out of bed unless absolutely necessary. The joints in my fingers, hands and wrists feel stiff and like they are on fire at times. I get that achey, eye burning feeling as if I was coming down with the "flu." Was taking it at night and would walk up feeling nauseous. | I don't think imuran helped my UC much. I was able to stop prednisone but I think it was just determination, slow taper and diligent use of rowasa. My disease was getting worse on imuran and colazol so (not wanting to go back on prednisone) I started on Remicade in April and I think that has helped. I told my GI how tired and horrible I was feeling and she thought it was just the UC and that as I continue on Remicade it will get better. She was going to take me off imuran in 3 months. So I just saw another GI (a very seasoned and well recommended guy) and he thinks my symptoms are from imuran and told me to stop taking it now. I'm hoping that this will help. I also have insomnia, muscle aches, dificulty concentrating and am going to see a rheumatologist with some expertise in fibromyalgia to see what he thinks. | F | 53 | 20 months | 8/18/2009 | 1 | Crohn's | got Shingles | looking at the side effects that people who are pleased with Imuran mentionit makes you wonder I took Remicade and Imuran for 12 months. My Abscesses got worse during the period and I got Shingles I nearly lost an eye. Anyone who is taking this drug and is eligble for the herpes-zoster vaccine is a fool not to take it. It didn't exist at the time for me. My Dr. denied that there was any possibility the Imuran could have facilitated the Shingles outbreak. $100,000 a year for Remicade is hard to pass up. | M | 62 | 12 months | 8/15/2009 | 4 | UC | Hardly see any side effects so far. | I have been having UC symptoms for 4 years - acute diarrhea, anemia, hight PLT level. I was diagnosed with UC 2 years ago. I have been taking Imuran for more than a year (100 mg per day) along with Salofalk (3000 mg per day). That was the drug dosage my doctor prescribed to me after I was hospitalized twice in 4 months. Each hospitalization started with 50 mg corticosteroid (Methylprednisolone) and slowly decreasing to 20 mg per day. After that I was sent home with a 'nice cocktail' of drugs including Methylprednisolone, Salofalk and Imuran. I was told I should slowly decrease the dosage of Methylprednisolone (5 mg every 2 weeks) until I stopped taking it at all. I stopped the Methylprednisolone 8 months ago and I have been taking only Salofalk and Imuran now. I do blood tests each month and I am watched closely by my doctor. My blood results are good and I have been feeling well. I have not had symptoms for 8 months since I started taking Imuran. I realize it is a risky drug but my doctor says I can stop it when my disease get into remission. | F | 29 | 8 months | 8/1/2009 |