ACTEMRA Reviews (TOCILIZUMAB)Average Rating: 2.8 (63 Ratings)Filter ResultsCompare ACTEMRA with similar:
Type: Biological Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
Charts & graphs: Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ACTEMRA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | I have Ra | I get some headaches but not bad enough that outweigh benefits!! Get some hot flashes from it I believe. | It has made me feel almost back to normal! I love it! | F | 57 | 6 months 162mg | 12/5/2016 | 5 | RA | none | A great drug for me. It honestly began relieving some pain after 2 weeks, and only got better. After 4 or 5 weeks I was in full remission. Now after 7 months, just a bit of pain now and then, actually decided to go on prednisone for a week and that did enough for me to get back to almost remission again. | M | 68 | 7 months 40 mg 1X O | 9/21/2016 | 2 | Seronegative RA and fibromyalgia | I had my first infusion 2 days ago. Have had a dull headache and neck pain since infusion. Extremely tired. More severe pain than before medication. Can hardly use my hand due to pain. Cannot touch my arms due to severe pain. I had high expectations of this drug after failing Enbrel, Orencia and Xeljanz. Now thinking that no drug is going to work for me. It's a daunting feeling. Willing to try another dose of Actemra to see if it will work. | F | 45 | 2 days 1X M | 6/16/2016 | 3 | rheumatoid arthritis | At the beginning, first few months, I would have mild headaches, or runny nose, but nothing special. The only problem was that I had various infections, don't know if that could be related with Actemra, since it happened also prior to taking the med. | It worked for about 6-8 months. Now I have been taking it for 18 months, and last 5-6 months I feel worse and worse. My rhummy is thinking of switching the med. Hope the next one will work better. | F | 39 | 1 years 560 | 5/2/2016 | 5 | RA | No side effects | RA IN REMISSION WITH MONTHLY IV INFUSIONS. Failed MTX, Enbrel and Humira. | F | 28 | 2 years 50mg | 4/10/2016 | 2 | RA, Fibromyalga | Rash, dry lips that crack and bleed, fatigue, bleeding gums when brushing teeth, I feel worse then with Remicade. Remicade I had several terrible flare-ups. This med is not for me. I've had four treatment and I feel lousy everyday with headaches, sore hands, my joints are inflamed all day and I have a terrible time walking because my muscles are soooo sore. Also, my hair is falling out. | M | 63 | 1 months 2x | 4/8/2016 | 1 | RA | I began developing consistent headaches and symptoms not improved! Developed HTN after second dose now on meds. My head began hurting day 1 & doesn't let up...haven't had issues with my migraines for quite a while. This drug is a joke!! I want to stop it immediately | M | 39 | 2 months 8 mg | 1/31/2016 | 2 | Rheumatoid arthritis | I have put on lots of weight :-(...and my gums bleed a lot when I brush them and I have a desperate taste in my mouth and smell of my breath... | I inject myself once a week | F | 41 | 8 months 162mg | 11/27/2015 | 4 | Severe Rheumatoid Arthritis | Mild to moderate injection site reaction. Mild to moderate headaches 2-4 days after injection and lasting 2 or 3 days. I was told by an RN to load up on fluids prior to injection day and after; to stay well hydrated and this would help prevent headaches. Am hoping the headaches lessen or subside once my body adjusts to the medication (as was the case with MTX, in pill form, which I also take at 20mg/wk) I am also taking Prednisone 7.5mg/day, a reduction from 10mg/day, in an effort to wean off of Prednisone. It's possible this reduction might also be causing or contributing to the headaches. | This drug seems to be working. I have noticed a definite lessening of fatigue, along with less pain and stiffness. Prior to this, I had failed Arava, Plaquenil, Enbrel, Humira & Orencia (last three all SC injections+with MTX). I had only a mild response to Enbrel & Orencia. I had not much response to Humira, except for an extreme drop in white cell count and two very severe flares after discontinuing that drug. The Actemra+MTX combo is the first really good response I've gotten since beginning treatment for RA in 12/2009, so I am very optimistic and hoping for continued improvement. | F | 50 | 6 weeks 162mg 1X W | 8/1/2015 | 5 | Rheumatoid arthritis | Tired the day of infusion and after a few months on it I noticed I was losing more hair than usual. Nothing that concerned me though. | Actemra has been my miracle drug. I have tried LOTS of other medications, but this medication has helped me enjoy life again. It did take about 2 and a half months to notice the full effects but I am so happy to have found this medication! | F | 32 | 5 days | 5/27/2015 | 1 | severe soro negative RA | Since I started Actemra I had headaches, cystitis,hypertension (after my second infusion 18x10), nasopharingitis,extreme fatigue,mouth úlcers and no change pain. Worst drug I ever take | F | 56 | 2 months 408 mg | 4/26/2015 | 1 | RA | hot flashes and mouth ulcers that just wont quit. Mouth ulcers came on slowly, Since they started over the holidays thought they were caused by eating rich holiday foods, but kept getting worse and worse. Was having night sweats rivaling the worst part of menopause. Stopped the Actemra after reading the side effects and seeing mouth ulcers in the comments. have been to dr and ENT guy, and still working on getting rid of them. this med might work for some, but it sure didn't for me. | F | 63 | 6 months 400 mg 1X M | 4/13/2015 | 2 | Rheumatoid Arthritis | huge flare still ongoing after 3 infusions. Another infusion this week. Looking for relief. Tired sore muscles. Knees, hands, shoulders all on fire. | M | 56 | 3 months 80 | 3/3/2015 | 3 | Unspecified Inflammatory Arthritis | Mouth ulcers the first month after each injection. Upper eyelid rash. Severe joint pain now in both knees. | First 6 weeks I gave injection every two weeks. Swelling in fingers and ankle went down but joint pain remained. So for the pain,a week ago I began weekly shots and the pain has subsided a bit. Actemra may have caused an infection in my knee prosthesis and will have it aspirated in a few days and fluid analyzed. Sure hope not! | F | 50 | 2 months 162 mg | 2/13/2015 | 2 | Rheumatoid Arthritis | Headache, nausea, tired after infusion for 1-2 days. | It did not work for me. Began to help after 2 months then stopped. | F | 50 | 6 months infusion 1X M | 12/18/2014 | 1 | RA | Headaches, hot and cold flashes | Three months into weekly injections and I'm worse than when I started. Required to give the drug 3 months to see if it worked. It didn't :-( I'm in constant pain especially hands, wrists, feet and shoulders. | F | 65 | 3 months 176 mg 1X W | 11/13/2014 | 1 | Severe rheumatoid arthritis | No change in flare up. Continued joint pain. Swearing profusely for about 3 days after. Headache. Nausea. | F | 20 | 5 months | 5/25/2014 | 1 | RA | After my first dose I am having the worst flare I've had in a very long time! Especially wrists and fingers. Looking online it seems to happen to some people. This sucks. I'm telling my rheumy on Monday to see if I stay on it or not?? | F | 1 days 1X day | 2/8/2014 | 3 | rheumatoid arthritis | Sick , horrible headaches, profuse sweating, feeling like my body is on fire, cannot sleep,Breathing difficulty when I first take the actemra real bad. weak, tired, just sick is really all i can say. | F | 51 | 4 months 1X M | 8/6/2013 | 1 | RA | Opposite of Intended. Next day, my RA stiffness and pain increased to unpleasant levels, almost as bad as I have experienced in 9 years of RA. | My Rheumatologist had no explanation, and no, NONE, no help for the pain or stiffness. I asked him if I should resume heavy NSAIDs and increase prednisone to 15mg, and he said yes. | M | 83 | 1 times per calc 1X M | 6/25/2013 |