ACTEMRA Reviews

Average Rating: 2.8 (57 Ratings)

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 Type: Biological Drug
  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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  Charts & graphs: Drug Safety Information

RATING  REASONSIDE EFFECTS FOR ACTEMRACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  RA Terrible joint pain and fatigue worse then what I was being treated for! Mental fog that kept getting worse every week. Not the drug for me! A week or so after my first sq dose at home my husband commented on how I seemed more tired and grumpy after I started the medication. F 62 2 months
2X M
7/26/2021
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 5  RA I don't experience any noticeable side effects, given I already have a lot of fatigue, stomach issues, brain fog etc. from the RA and my other medical issues. However the most difficult issue i deal with is that the injection itself is extremely painful. If it didn't work so well for me I probably would stop because of it but it's honestly been a godsend for me. Even though I have a lot of pain with the injection weekly, it goes away within a few hours and I can behave normally very soon. I actually had inflammation levels up around 15-20+ on my worst days and could barely move. I had to move to completely online my senior year of high school and missed out on a lot because of the excruciating pain that RA put me through. I had been through just about every single oral arthritis and lupus medication available because we weren't sure whether or not it was RA (seronegative RA). So I was not hopeful starting Actemra, I thought I would have to try a ton of biologics to find the right one. I am beyond blessed to have found the right one on my first try though. My inflammation levels have gone from around 15-20 to 0-3 and it just makes me want to cry. Even though I have to deal with other chronic health issues I feel so much freer now. F 19 9 months
162 mg 1X W
4/5/2021
 5  GCA Weight gain ( may have been from 14 months of high dose prednisone). Fatigue, headache, stomach pain. Concerned about Covid vaccine as no one knows reaction F 68 6 months
62 mg 1X W
1/25/2021
 1  Rheumatoid arthritis Headache, dizziness, extremely painful mouth ulcers, itchy skin, weight gain, cholesterol increase, abnormal liver test, no reduction in rheumatoid pain. Had high hopes this medication would be the one (my 4th). So disappointing... and painful. F 65 3 months
162 mg 2X M
11/23/2020
 3  Arthritis Extreme sweating and joint pain where I never had it before and nauseous that comes and goes F 79 2 months
1X M
10/30/2020
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 2  RA Tingling numbness in left hand , end of fingers feel on fire, 3 days after infusion in the wrist of left hand. Itchy skin. Light rash over body Really scared to take another infusion next week is due. F 71 31 days
200mg 1X M
10/21/2020
Email
 5  Giant Cell Arthritis Loosing some hair when combing but not to worried Get a little bit chilled off and on. Other than that very satisfied! F 64 7 months
1X O
10/4/2020
 1  RA After this injection I felt extremely dizzy and so tired. This morning I woke up with swelling on my face. So sore I can barely move. I should have listened to all the other reviews. F 55 1 days
162mg 1X W
8/15/2020
Email
 3  Giant cell arteritis Fatigue, intermittent eye pain, jaw pain, mouth sores, weight gain F 66 15 weeks
Wkly injec 1X W
7/17/2020
 5  Gca Was on prednisone for 1.5 years. Started 60 mg got down to 6 mg and inflammatory markers went up. Been on Actemra for 5 months now. Markers normal feeling good It works for me very well M 74 5 months
60mg
4/1/2020
Email
 5  GCA Don't have any that I know about. Was on 60 mg. Predisone for over a yr. before weaning down & have been off for 4 months. Total time on Predisone about 20 months & on Actemra for 14 months - 10 more months to go. I lost vision in right eye, but things are looking good & Actemra makes me feel confident it won't come back. The Predisone was horrible but thank god for it. I think I had an easier wean from using the Actemra. I self inject once a week, takes about 45 seconds. Easy-Peasy! F 72 14 months
162 mg.
2/25/2020
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 2  GCA My knees started to hurt (about a 3-4), but then I could not trust them, my right knees could give out if I tried leading with it. I have fallen twice: once down the stairs (no serious injury), once getting up from the toilet. Is this a stage to be worked through or my future? M 76 4 weeks
Actpen
1/8/2020
Email
 2  Rheumatoid arthritis Extremely painful joints in morning Panadol and hot showers. Whole body is effected can hardly walk. Suffering UTI at the moment 2nd course of ibilux 500 never had it before actemra. I donít know what to do. Have suffered RA for 30years Not as impressed as I hoped to be with this medicine though I was in for al life changing drug. M 66 3 months
162
12/17/2019
Email
 1  GCA Face edema rash on chest , lower leg and feet numbness and edema. Body ache and fatigue . Stopped after two doses. F 59 2 weeks
161 mg sc
11/8/2019
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 5  Rheumatoid arthritis Headache nausea fatigued weakness post infusion F 37 1 years
400ml
8/22/2019
 2  RA Sero-neg Dry/itchy scalp, dry eyes, intense shoulder and upper arm pain. Extreme fatigue and possible depression. Donít know if this med is right for me. 5th med in the 14mos since diagnosis. So frustrating. F 50 5 weeks
Biweekly
6/16/2019
 4  Rheumatoid arthritis I'm just really tired for about 2 days after getting the infusion. I had a GI bleed and stopped treatment for 3 months and restarted again 2 months ago. They were unsure if the bleed was related to this medicine or not. It has helped with the joint pain and swelling. I am also on Arava and Plaquenil. Hippie things continue to improve F 43 9 months
4/18/2019
Email
 4  Rheumatoid arthritis I'm just really tired for about 2 days after getting the infusion. I had a GI bleed and stopped treatment for 3 months and restarted again 2 months ago. They were unsure if the bleed was related to this medicine or not. It has helped with the joint pain and swelling. I am also on Arava and Plaquenil. Hippie things continue to improve F 43 9 months
4/18/2019
Email
 5  Adult Onset Still's Disease In the begining I would get a mild headache and exhaustion. I have no side affects from this medication as of today I know that Actemra helps to decrease my systemic chronic illness and allows me to exercise in order to maintain my weight, get plenty of sleep, and provides the benefit for my whole being to be much healthier. F 55 5 years
748 1X M
6/19/2018
Email
 4  Rheumatoid Tired, toenails splitting, rash on top of hands It hasnít given me pustular psoriasis on hands & feet. Not as strong as Humira or Enbrel. F 59 2 years
162mg 1x w
3/17/2018
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ACTEMRA  (TOCILIZUMAB):  This medication is used alone or with other medications to treat moderate to severe rheumatoid arthritis in adults. It is also used to treat rheumatoid arthritis in children (such as polyarticular juvenile idiopathic arthritis-PJIA, systemic juvenile idiopathic arthritis-SJIA). It helps to reduce pain and swelling due to rheumatoid arthritis. Tocilizumab is also used to treat giant cell arteritis. It helps to reduce swelling in your blood vessels so blood can flow more easily. Tocilizumab belongs to a class of drugs known as Interleukin-6 (IL-6) blockers. It works by blocking IL-6, a substance made by the body that causes swelling (inflammation).   (Sources: U.S. Centers for Medicare Services, FDA)

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