ORENCIA Reviews (ABATACEPT)

Average Rating: 2.8 (74 Ratings)

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 IMMUNOMODULATORS

 Type: Biological Drug

  

ORENCIA  (ABATACEPT):  This medication is used to treat rheumatoid arthritis, a condition in which the body's own defense system (immune system) attacks healthy tissue. This leads to swelling in the joints, which causes pain and makes it harder to move. This medication is also used to treat other types of arthritis (such as juvenile idiopathic arthritis, psoriatic arthritis). Abatacept works by weakening your immune system. This effect helps to slow down joint damage and reduce joint pain and swelling so you can move better.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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  Charts & graphs: Drug Safety Information

RATING  REASONSIDE EFFECTS FOR ORENCIACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  RA and psoriasis Headache, sore throat and back pain and tenderness near both kidneys for 1-2 days after subcutaneous injection. I have not benefitted much in terms of relief from swollen joints or stiffness. Hands, knees, feet still painful around joints. I was told to give it time but not impressed so far. Began taking methotrexate ( (6) 2.5 mg tabs, 1X per week) during second month but no improvement noted. F 55 3 months
125 mg 1X W
9/28/2014
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 5  RA After using Remicade and Humira I have been on Orencia for 4 years. The doctors are using it to control pulmonary fibrosis and rheumatoid lung in my case. No bad side effects. The Orencia reduces the inflammation in my lungs and allows me to breathe so much easier. I am having the infusion every 21 days at this time. Humira and now Orencia has stopped the progression of the scarring in my lungs. I now have only 20% working but after an infusion I can do most things without getting short of breath if I'm careful. This stuff saved my life! M 64 4 years
Maximum 1X AN
8/27/2014
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 1  psoriatic arthritis Started with just mild fatigue, and nausea the first week. By week 3, felt like I had a bad case of the flu, minus respiratory symptoms. Severe nausea, loss of appetite, and severe diarrhea. I felt like I was hypoglycemic all the time! To top it off, I got no relief from the psoriatic arthritis at all! Would never take this drug again!!!! Oh by the way, I'm an RN! M 61 3 weeks
125 mg
8/2/2014
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 1  RA None. No help for RA, and no known side effects. My original comment was the second listing [above] for this drug. Waste of money and time. Since I had read the time to be effective might be stretched out, I went the 5 months. M 83 5 months
IM-self 1X W
2/21/2014
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 3  RA Anxiety, depression, horrible smelling urine, heightened sensory reactions (hearing things/ seeing things out of corner of eyes), breathing, severe heart burn and digestive issues. I get it as an IV. The side effects come and go, they are not constant but they are bad when they occur. Had some of the same problems with enbrel. Was on methotrexate at same time, but stopped taking that two weeks ago to see if it would lessen the side effects, and also to see if the Orencia is working on its own. Still have minor arthritic flares even on the medications. F 43 8 months
750 mg 1X M
2/10/2014
 3  RA Can't tell yet. Enbrel worked for 4+ years, then 2 years ago, stopped. Been through most other biologics and can't do MTX. I understand Orencia takes 4 months for some, and I hope it will kick in for me, hence the 3 rating for now. I will revisit as I determine it is or is not working. As of 7 weeks no negatives, but no symptom relief either. M 83 7 weeks
1 IM shot 1X W
10/1/2013
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 5  Rheumatoid arthritis No side effects. Hed to increase dosage to eliminate any flare ups between treatments. I do not take methotrexate with it. Was on humira but was not as effective F 46 9 months
1X M
1/9/2012
 3  PsA Dull heavy headache. Flares up to painful sometimes. I took Enbrel for 3 1/2 years and it stopped working. I am waiting for the Orencia to kick in. I'd like to see more ratings from people with Psoriasis and psoriatic arthritis. F 56 3 months
750mg. 1X M
2/14/2011
 5  RA for the first few days after the IV, flu-like symptoms, back pain specially in the kidney area,neck pain, jitteriness, odd smelling urine This drug worked so slowly that I did not notice it working at first, but it seems to be working great now, if I can make it through the first few days after the infusion. I have been on Enbrel, but it stopped working after about 3 years, Humira did not work at all. I also take mtx, but am considering stopping it because of the side effects. I am very happy with the Orencia so far. F 58 5 months
1000 1X M
2/5/2011
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 2  RA migraines All drugs are poisonous eventually; I have found a cure with the honey and vinegar diet (which also cures migraines) and vitamins! M 55 30 days
1X day
12/6/2010
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 5  rheumatoid arthritis none This drug has been a blessing for me. Humira and Enbrel helped very little, plus I had terrible injections site reactions. The sites would swell up, turn red and itch like crazy for several days. I still take Methotrexate also. My RA is pretty well controlled at this point. It took about three months to get the full effect of the drug. F 53 3 years
12/14/2009
 5  rheumatoid arthritis Some redness and bruising at injection site. Usually tired and achy for first 24 hours. No problem after this. I had tried Humera, Embril, methotrexate, nothing was helping. Orencia has been great. My doctor told me to be patient, that it would take 4-6 months to help. It took 4 month and I really started noticing a difference. My doctor said my joints are the best she ever seen them look to date. I feel more energetic and my pain is reduces to about two thirds of what it was. F 45 7 months
12/9/2009
 1  RA Terrible Migraine That WOULD NOT go away. It started minutes after starting the IV and grew worse through out the day. After my second infusion my headache was so bad I went to the ER and they couldn't find anything wrong. They gave me major pain killers but nothing worked. I stopped taking the meds and it took about 2 months for the pain to go away. I would NEVER take this drug EVER again. F 21 2 months
12/9/2009
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 3  rheumatoid arthritis Some redness at the IV site after administration. Otherwise, well tolerated. It's a bit bothersome to have an IV medication-- just because of the time factor, IV, etc. If you can, have the infusion at a private office. I've had the infusions in a hospital outpatient center, and each infusion takes about 1 1/2 hours because it takes an hour for the medication to come from the hospital pharmacy. BE SURE to go to the Orencia website--- www.orencia.com to sign up for the promise program before your FIRST infusion and they will pay your co-pays for the first few months. You can find the infusion schedule on that website also. I have been on several other medications Humira, plaquenil, Arava and have not had success in controlling my RA with them. I can't tell much difference yet however with the orencia. F 32 1 months
7/19/2009

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