Reviews for REMICADE

131 ratings: (taken because of ra rheumatoid)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Date added.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  RA Just makes me very tired and fatigue after having an infusion. Next day, I am full of energy like my old self. It usually last about 6 weeks and I take it every 8 weeks. I have taken enbrel, humira, Simpsoni aria, Orencia , Rituxan Remicade and Actemra over a 15 year period. Remicade has been the best and lasted the longest. Acterma caused me giant boils. It was awlful because they got infected with mersa. F 65 4 years
500 mg 1X O
1/21/2022
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 1  RA I have headache stomach pain back pain yeah it's a pain side pain all over my body pain I think my toes don't hurt. Lupus rash on faceJoint pain so intense. Pain is a 7 to 10 for the last 9 days. My tongue is swollen and my throat is very sore it's very sore I feel like I have a cactus in my mouth my tongue is on pins and needles. I have tried Benadryl however it is barely working is bleed working my neck hurts with a severe that's what they severe pain I will never ever take this medicine again. I don't even know if this is a 100% normal in the head to even have another dose after after having massive side effects with the 1st dose F 54 1 weeks
1X day
10/23/2021
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 2  Ulcerative colitis I really didn't have any side effects but two years later I develop Lupez I had a seizure and now I have a cute kidney disease and possibly I know they have a lot of lawsuits about it so I just wondered because I when I had my seizure that ended my job and I was seeing a neurologist for a year F 59 1 years
7 bottles 1X M
10/31/2020
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 4  Rheumatoid arthritis Fatigue dizziness insomnia or extreme drowsiness no in between. Helps with RA but feel miserable otherwise. F 26 1 years
450 1X O
10/17/2020
 4  Ulcerative colitis To date no serious side effects experienced After 12 days it seems to be working very well, further let's see how things will take place F 20 12 days
30mg 1X O
10/4/2020
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 3  Ulcerative colitis It has helped me loads as I was very poorly with losing a lot of blood but 2 days later it came back, I'm very tired have bad headaches and aches all over the itching is the worse part every single night not sleeping very well at all ! F 37 1 days
2X day
10/2/2020
 3  RA If feel somewhat at ease the day of getting it .but seems 2 days afterwards I hurts so bad in my toes, knees , I just ache all over .. it's happened all 3 times . I've exhausted all infusions and injections. I'm still be open minded about the drug since I'm still on the lower dose of the drug and can still be adjusted . I'm holding out it will work . F 44 3 months
1X M
8/12/2020
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 4  RA None I didn’t realize how much this drug was helping me until I was forced to discontinue because my new insurance would not pay for it. F 63 6 years
1X M
1/21/2018
 5  Rheumatoid arthritis Nausea and feeling worn down and icky the day of and next day after infusion. Only twice did I have trouble breathing during infusion, but that was due to not being able to be on remicade for 6 months due to insurance change. Even though I've had two scary moment where I could not breathe, my nurses took wonderful care of that and I've had no issues since. I absolutely love this drug! I was bedridden for 2 years!!! At 28 years old!!! Now I have my life back!! I am willing to deal with occasional nausea and fatigue just to be able to walk! I take the double dose every six weeks as the normal dose and 8 weeks didn't help much. I have very severe RA. Humira and enbrel did nothing for me. I am on 1cc methotrexate weekly as well. I personally recommend this drug for RA. It has saved my life! F 31 2 years
10mg/kg
9/8/2017
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 1  rheumatoid arthritis Achilles tendon rupture can't stand to walk Quit giving people poison and making them think they can feel better but more problems come F 2 days
30mgachill
6/17/2017
 2  Ulcerative colitis rectal bleeding Had infusion once so far and going to doctor tomorrow to see what I can do to help tolerate the side effects before I would have my second infusion. Severe body aches, headache, tired, nausea, stomach pain, weakness. Every day seems to be getting better but still feeling sick. F 24 4 days
5 mg
3/9/2017
 1  Ra After third infusion he got fungal meningitis and fungal pneumonia was in and out of hospitals for two years he also had colitis on his legs and eventually went Septic and died. Never ever ever did admit any wrong doing now I am alone with MS and can't fight them their attorneys have no heart Please contact me my address is 9400 Fairway View Pl., Apt. 2120, Rancho Cucamonga, CA 91730 I phone number my phone number is 909-660-1714 I have all his records F 70 3 days
1X day
11/26/2016
 1  Ulcerative colitis Throat closed. Heart rate was below 50 for a week. Fever and my heart rhythm changed. I took my second dose of remicade and ended up having what I considered a severe reaction tot he medication. While at my infusion clinic 30 minutes in my throat felt like it was clising, head started getting red hot and going to explode. I was able to tell my nurse she did nothing! I had to tell her while I could barely talk to turn off the medication. She gave me no help she asked me to take my own Benadryl. Luckily I was able to swollen my OWN pill. Later that day I woke with a fever of 102. Went to the hospital and had a high heart rate. Ended up being admitted to the hospital. Later the next day my heart dropped to 45 then down to the 30's. I was told it was normal but then my QT intervals started to separate which was a bit concerning. Stayed in the hospital for 6 days! I usually have a higher heart rate so this was not normal for me. For another week my heart rate went up and down and thankfully back to normal. Was a horror sotory for me. F 28 2 weeks
300mg
9/21/2016
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 4  Ulcerative colitis Oh geez. I had remicad even before. I'm now on my second dose and had no problem until my second dose for this time around. My head started feeling like it was going to explode. I felt like I was on fire and my throat was closing. I was going to die!! Sadly the nurse called it a panic attack and didn't do nothing about it. I still am having pains in my chest. Remicade does work for me. Pretty much cleared up after the 1 st infusion. But the 2nd was truly a horrir for me. F 28 2 weeks
300mg
7/7/2016
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 3  Pyradurma Gangrenosum After recent increase of dosage having extremely painful periods. F 41 1 years
10mg
6/8/2016
 5  ulcerative colitis After my first remicade dose I felt like I got my life back. I was severely ill - could not attend school at all, could not walk, stooled 20-30 times a day. Remicade took my pain away, decreased my stool count, and made me feel energetic. No side effects for me. On top of a strict diet, golden. Life saver! F 18 3 years
5mg/kg
5/21/2016
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 2  Ulcerative colitis Okay I was diagnosed with UC seven years ago. I started remicade six months ago. I have not gotten any better. At all. And I'm experiencing hard bloody scabs on my scalp. And peeling which is causing awful dandruff. Is this normal for remicade patients? I honestly feel like I'm getting worse, and my energy continues to deplete. M 16 1 days
Differs
4/29/2016
 4  Ulcerative Colitis Fatigue, tired muscles, weak, bloating. Numb face. Over the course remicade has become easier for me to tolerate. I recover more quickly now. I've been on it three years. I drink plenty of fluid during the infusion which seems to help so much. Before I was told to do that I was exceptionally fatigued for 4-5 days. Now I just factor in one bad day after. Numbness in my face (left side) is unexplained. Started with my first infusion but has never got worse. Seems to be more noticeable when I'm tired. I've had one bad chest infection while on remicade which developed into pleurisy. I had to delay my infusion to make sure I had completely recovered. F 3 years
unsure 8X W
2/23/2016
Email
 1  RA My husband took remicade in the beginning it worked. The past two years has Been a nightmare. He got a bacterial infection in the joints that he had RA in. This spread into all his bones. He never should have been put on this because of all his years on prednisone. I do not think the doctors are connecting illnesses to the fact a patient is on remicade he spent a week in the hospital with all the symtoms of this bacterial infection that is a cousin to TB. Not one Dr said oh you're on remicade. He also had to have his foot amputated last year because of the damage. He has had over 20 surgeries. Make sure if you're sick with a high temperature and chills you tell your dr or hospital you're on this drug. I think this Bacteria was I his body a long time. My advice DO NOT GO ON THIS HORRIBLE DRUG!!!! M 68 7 years
2/5/2016
 4  Rheumatoid Arthritis Fatigue, joint pain first two days, then feel much better F 60 1 years
300 mg
12/11/2015
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REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

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