REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Crohn's I'm no longer taking this medication. Post surgery did not get back on any Crohn's meds. I am 1yr 3 months post op. In the last year eating everything organic and juicing organic: beets, ginger, cucumber, carrots daily. Probiotics daily, bosweillia capsules (4 weeks on 4 weeks off), cordycep with Reishi mushroom (daily) and tumeric capsules daily. Cut out mostly red meat and pork, only eating mostly chicken. Organic juice (Knudsen). Went for initially follow up with GI (and I suspected he was going to try to push more Crohns drugs and had a MRI that suggested Crohn's fistula forming)-kinda funny. The doctor was saying prescribing meds is just a guessing game. Wrong answer, so I requested a CT for a better view and an unrelated location/affilation. GUESS WHAT!!!! No active Crohn's, no inflammation, no fistula. Doctor had nothing more to say. F 46 0 years
5 mg 1X day
3/21/2024
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Patient History
 5  Crohn's Disease I no longer have chronic pain to distract me from contemplating my miserable existence. A half-decade of remission with no real side effects. Hopefully I get one of those rare aggressive cancers associated with TNF-a inhibitors so I can quit my job and finally die. M 28 6 years
700mg 1X O
11/21/2023
 1  Crohns disease I was diagnosed with Crohns disease 5/24/2021. I was prescribed Remicade in May of 2022. I had my first infusion on 5/12/2022. Second was 5/27/2022. Third was 6/27/2022. Fourth was 8/22/2022. I had reactions ranging from: Chest and throat tightening. This occurred during infusions. I was told this was a minor allergic reaction, and to take Benadryl before infusions. Vomiting, occurred after infusions. Severe joint pain, swelling, and joint immobility. There were multiple ER visits for this: My jaw locked into place and I could not open it; my knees stiffened and swelled to the point I could barely walk; and my shoulder locked into place and I could not move it. When I told my GI doctor I was having these symptoms, this incompetent jackass told me that this was not the Remicade. He said it could be Rheumatoid Arthritis, and to see a rheumatologist. I started to notice psychiatric symptoms after the 4th infusion. I had an anxiety/manic/depressive episode, and increased aggression. I assumed it was my preexisting condition (generalized depression/anxiety disorder), and asked my PCP to increase my Buspar dosage. On 12/19/22, I had my 5th and final infusion, and experienced a severe adverse psychiatric reaction. Within 3 days of the infusion, I had entered a deep psychosis, believing I was the devil, could control the weather, and the government was after me. I had other auditory and visual delusions, hallucinations, and paranoia. I shaved my freaking head (I am a 28 year old woman), and I quit my job at the onset of the psychosis. This psychosis lasted 6 months, until the latter part of June 2023. I am still recovering. This poison should not be on the market. There clearly have not been enough studies into what this drug does long-term. F 28 6 months
1X O
7/7/2023
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 4  Crohns Mostly fatigue, none other. Only taking remicade, no other medicine. Worked well so far but a bit scared on side effects. M 17 3 years
500mg/kg 1X O
2/14/2023
 1  Crohns Update pathetic poison. After 8 months of recognizing the horrible toxicity of this drug I am still suffering the consequences of it. 5 visits to the ER. Loss of weight 60 pounds in 8 months. The last ER visit I was transported to a larger hospital where a picline was implanted to feed me. I am 5'7". My lowest weight was 100. A skeleton of myself. The remicade caused absolute loss of any appetite. I've caught a couple viruses and now have sibo. A skeleton body with a 9 month pregnant belly. Its been an ongoing costly nightmare. Most of my hair is gone and I look like I've lost 5 years of my relative youth. Readers, look into why you are having your symptoms. There are reasons. These biologics COVER the symptoms and introduce worse problems. I regret ever having that infusion needle in my arm. Stole part of my life and I'm far from better F 68 6 months
Every 8 we 4X O
12/16/2022
 1  Crohns I left a review pathetic poison. Its now 90 days since my last infusion. Im still having some stomach cramping and back pain daily. I count the days until its exited! The crohns area is not much worse than when I started remicade. Im an active 68 year old. But losing 50 lbs in 6 months wipes the energy away. Let alone the other horrid symptoms. Im still so angry. After 2 visits to the ER because of remicade one doctor said, when you get a 2 month infusion you are kind of stuck....after 90 days since the last infusion im still in a deficit in all ways. I pray for you all. Please pray for wisdom for yourselves. Then act on that wisdom. Be your own advocate. Do deep research. Look for reviews rating 1-3 to get a clearer picture of this particular drug. F 68 6 months
Every 8 we 1X day
8/11/2022
 1  Crohns Pathetic poison. Scary stuff. All bad written above is on and off for months.Lost 40 lbs no appetite. Extreme nausea months. Pain back extreme fatigue. Muscle loss. Shell of me. Ruined my spring and summer. I warn everyone. Find other helps. Medicinal ghee. Remicade is unnatural. It goes against our smart bodies. Dr wanted me on it for years. So glad I said NO...until the last 5 months. Is THIS the best this medical system has to offer? Back to nature for me. Anti inflammatory foods. Please read the 1 and 2 level ratings. Not the 5s. Then make your decision. I just hope I don't develope some of the MANY worse side effects sneaking up on me! So thrilled its leaving my body and the symptoms are subsiding. Disgusted by remicade. Poison. I had a fecal transplant 4 years ago. A beginning back to health! F 68 5 months
1X M
7/31/2022
 5  RA Just makes me very tired and fatigue after having an infusion. Next day, I am full of energy like my old self. It usually last about 6 weeks and I take it every 8 weeks. I have taken enbrel, humira, Simpsoni aria, Orencia , Rituxan Remicade and Actemra over a 15 year period. Remicade has been the best and lasted the longest. Acterma caused me giant boils. It was awlful because they got infected with mersa. F 65 4 years
500 mg 1X O
1/21/2022
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 1  RA I have headache stomach pain back pain yeah it's a pain side pain all over my body pain I think my toes don't hurt. Lupus rash on faceJoint pain so intense. Pain is a 7 to 10 for the last 9 days. My tongue is swollen and my throat is very sore it's very sore I feel like I have a cactus in my mouth my tongue is on pins and needles. I have tried Benadryl however it is barely working is bleed working my neck hurts with a severe that's what they severe pain I will never ever take this medicine again. I don't even know if this is a 100% normal in the head to even have another dose after after having massive side effects with the 1st dose F 54 1 weeks
1X day
10/23/2021
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 2  Ulcerative colitis I really didn't have any side effects but two years later I develop Lupez I had a seizure and now I have a cute kidney disease and possibly I know they have a lot of lawsuits about it so I just wondered because I when I had my seizure that ended my job and I was seeing a neurologist for a year F 59 1 years
7 bottles 1X M
10/31/2020
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 4  Rheumatoid arthritis Fatigue dizziness insomnia or extreme drowsiness no in between. Helps with RA but feel miserable otherwise. F 26 1 years
450 1X O
10/17/2020
 4  Ulcerative colitis To date no serious side effects experienced After 12 days it seems to be working very well, further let's see how things will take place F 20 12 days
30mg 1X O
10/4/2020
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 3  Ulcerative colitis It has helped me loads as I was very poorly with losing a lot of blood but 2 days later it came back, I'm very tired have bad headaches and aches all over the itching is the worse part every single night not sleeping very well at all ! F 37 1 days
2X day
10/2/2020
 1  Chrohns This medicine killed my mother. This is not a duplicate post. My mother deteriorated over a period of two weeks from an on-the-go wonderful grandmother (to 20 grandkids!) as well as an avid gardener. A year or so previous my mother ate some meat which disagreed with her. My sister recovered but she developed diarrhea that wouldn't go away. She was running to the bathroom constantly and it limited her life greatly as she couldn't leave the house. Her doctor diagnosed her with Chrohns (with no previous history of any digestive/bowel issues)and put her on Remicade pills. The pills helped. She would wean off them and the diarrhea would return. (Prior she had a trial of antibiotics which really helped but because they were really strong her doctor said she couldn't take them for a long time thus the Remicade). The issue kept coming back whenever she weaned off the pills. In October 2019 she had a bad case of vertigo with no known cause. Many test were run and came back negative. She was in rehab for 1 month and was able to resume normal activities upon arriving home. We all breathed a sigh of relief with no one questioning her medication because her doctors didn't. At the end of May 2020 my mother's handwriting changed and she began to slur her words. We thought it was a stroke. She entered the hospital. All test came back negative for stroke and cancer. She deteriorated more and quickly. After multiple CT scans they thought they may have found a glioma at the brain stem. It wasn't showing in previous scans. They did a biopsy. It came back positive. Even though they saw no visual evidence of cancer during her biopsy she deteriorated to needing a feeding tube and, within two weeks, was gone. For six days she held on in our home proving to be the fighter she was and how strong her body was. The grief is unimaginable and difficult to surmount knowing that she would still be alive today if not for the Remicade. F 81 1 years
1X day
8/31/2020
 5  Psoriatic Arthritis Initial side effects were fatigue day of and then a few days after. First couple of infusions developed mild mouth ulcers. Brain fog had never been an issue in the past; however, I do experience for a couple of weeks - nothing severe, just forget talking points mid conversation. Experience nausea, but zofran helps greatly. I had an infusion a couple of weeks ago and I experienced the least amount of side effects ever! My dose is 8 vials every 8 weeks and to date I've had 7 infusions. Remicade allows me to walk and have a normal life. I have been on methotrexate, most biologics some with no success, and some like Enbrel and Humira who worked wonderfully and then stopped. PsA - most people don't understand the severity until they witness you being unable to walk. To me - the side effects do not outweigh my quality of life and fully functioning in my career. M 55 1 years
1X O
8/23/2020
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 3  RA If feel somewhat at ease the day of getting it .but seems 2 days afterwards I hurts so bad in my toes, knees , I just ache all over .. it's happened all 3 times . I've exhausted all infusions and injections. I'm still be open minded about the drug since I'm still on the lower dose of the drug and can still be adjusted . I'm holding out it will work . F 44 3 months
1X M
8/12/2020
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 5  Crohns colitis None Loading doses kicked me into remission for over a decade in combination with azathioprine which I continued to take after loading doses of infliximab. M 36 2 months
2X M
7/15/2020
 1  Autoimmune disease, fibromyalgia, I was given this drug 1 time, to treat a diffuse connective tissue disease, or autoimmune disease, by my Rheumatologist. The hospital that administered the drug, forgot or didn't bother to put a filter on the IV, which my Dr. ordered. I was so nauseated for a month afterwards, I couldn't function, that was my 1st & last treatment, to say the least! I got no relief, but I did get Non Hodgkins Lymphoma, 5-6 yrs later! I don't care what anyone says, I believe this drug caused my cancer, that was a st4, by the time they figured out I had it! I'm only 54yrs old, no Dr. should've given me this drug, in my 30's! Unless you're in your late 60's-70's & have severe RA, I don't recommend this drug to anyone. When I was given this drug, there weren't as many newer RA drugs out. Now, I'm sure there are better one's, that hopefully don't cause Lymphoma or Leukemia! F 54 1 days
Not sure
5/26/2020
Email
 4  AS Bit of a rash and fatigue but still helpful in decreasing severe joint pain. F 43 6 years
300
5/24/2020
 2  HS From first dose I had the most severe headache and back ache I’ve ever had. Lasting into a week or so. Also felt I was extremely moody even angry. I’m not an angry person. I’m very laid back and easy going. Next dose same effects and third one has scared me I feel like I’m going insane. My mind is not right, I’m thinking things that are not good. My mental health is very important to me so I’ve made people aware of how I’m feeling. But if this keeps up I may have to stop taking this drug. I don’t like how it’s making me feel. Also extreme lethargy and fatigue since day one. I should add I have been on anti depressants for a few years. I know what depression is and this is not it. This is horrors. Like a woken nightmare going on in my very much awake head. Will discuss this on my next visit and hope they have answers. Stay well. Smile even when it’s really hard to.💜 F 52 3 months
2/6/2020
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REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

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