MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)Average Rating: 4.0 (82 Ratings)Filter ResultsCompare MESTINON with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on MESTINON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR MESTINON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | diagnoses with myasthenia march 09 | stomach cramps, loose unfinished bowel movements, urge to defacate, | although its cured my vision problems, associated to MG, the stomach problems and bowel movements are like a prison sentence to me, Im nervous about travelling, never know how Im going to feel one do to the next. | M | 54 | | 5/13/2009 | 4 | pps and unknown muscle problems | diarreha , dry eyes | some doctors don't like prescribing mestinon because I don't have myasthenia. Find when I'm on mestinon I always have more arm and leg strength and less leg pain. Dosage various but usually 4 to 8 60 mg tablets daily depending on what I,m doing been taking off and on since 1994 | M | 57 | | 3/20/2007 | 4 | GMG | increased muscle twitches in legs and arms, increased tear production | I have no problem with the side effects. Vision is improving and muscle weakness is nearly gone when I'm taking it. Only been 3 days. | F | 27 | 3 days 60MG 2X day | 11/18/2015 | 2 | To Test OMG | I have yet to experience any side effects | I am seeing double vision for at lest 6 mon with no other side effects other than the headaches caused by double vision and being tired all the time which I think is caused by the headaches. I have seen Dr. after Dr. and the last Dr. (a neurologist) wants to test me for OMG so he prescribes mestinon... It has only been 3 days taking 1/2 a 60mg pill three times a day and I have seen no improvement what so ever...from your experience does anyone think it would have worked by now if I really had OMG? ..do I need a higher dosage? Is is at all possible to have OMG and not respond to mestinon?? | F | 22 | 3 days | 3/14/2009 | 5 | myastinia gravis | abdominal cramps and diarreah that stopped about 4 months after starting the drug | the drug caused me to be symptom free and live a normal life for 4 years until i missed 2 6omg doses in a row. Symptoms returned with a vengeance, worse than ever. Doc says it will be about a week before symptoms are under control again. | F | 41 | 4 days | 11/20/2008 | 4 | familial autonomic dysfunction | some abdominal cramps, increased salivation. | has helped increase my muscle strength in arms and legs so far. (I'm usually so weak.) That has been great! | F | 21 | 5 days | 3/7/2007 | 5 | Ocular MG | No side effects whatsoever. None. zero. Eye symptoms improved significantly, almost 100% again. | If I haven't had any side effects so far does that mean I likely never will or have I just been lucky so far? | F | 49 | 7 days 30 3X day | 2/19/2014 | 2 | Neurologist guessing I have MG.. | Urinary incontinence.. a complete emptying of the bladder unexpectedly. Increased sweating of armpits, watery left eye. Has anyone else experienced incontinence? | I really can't take it long enough to figure out if it works or not due to the urinary incontinence. I am a medical mystery to many Neurologists, no sure thing to diagnose MG. I am sero neg, but the EMG was indicative of MG (not 100%). | F | 44 | 7 days 60 2X day | 1/20/2011 | 2 | Neurologist suspects MG | stomach ache and heavy breathing, face flushes at first (60MG) Then now reduced to half a tablet, not many side effects just still a tiny bit of heavy breathing at times. | Not sure if it is working as I still have muscle weakness and wasting, arms and legs are weaker but I don't know if that's the medication or just my symptoms. Neurologist suspects MG but test have all come back negative so far. Has anyone else experienced anything like this? I have symptoms for the disease but tests are not showing anything so it's very strange | F | 32 | 7 days 1X day | 7/17/2020 | 3 | myasthenia | I was diagnosed with mg 6 years ago. My eyes where almost to the point of always being closed. My muscles all weak and would give out. Started on mestinon, ivig and later immuran. I felt better but the side effects where horrible. Stomach cramps so bad I can’t even walk. Diarrhea so bad that I don’t dare get more than ten feet from a bathroom and vomiting at the same time. This lasts all day. I have tried everything including eating when I take it. Doesn’t help infact makes it far worse, doesn’t matter what I eat. Went off both immuran and mestinon. Just continued with the ivig, which helps immensely but not as much as mestinon. With mestinon my eyes where starting to become normal and muscle weakness and fatigue where also better. However with the side effects I am between a rock and a hard place. With mestinon I feel better and symptoms are better but the side effects make my life awful. Not able to go anywhere or do anything as well as cold and hot sweats. Without my eyes are far worse double vision all the time. Muscle weakness, losing use of legs and so on and fatigue. Eyelids almost closed making seeing hard. I don’t quite know what to do as neither is an option. Both make life unbearable | F | 52 | 10 days 60 mg-360 | 12/14/2018 | 1 | For low blood pressure | Charley horses in thigh and calves 3 days then severe pain legs arms for over a year and still have | It ruined our lives | F | 72 | 11 days 60mg 3x da | 7/23/2019 | 5 | Myasthenia gravis | As long as I take 1/2 tablets (30mg) no more than 6xs per day (Total 180mg) as needed I have very few side effects. Its interesting that most side effects that I see reported on here are actually many of my MG symptoms that Mestinon actual gets rid of vs causes. I must be super lucky... | Works best on my breathing, diplopia and swallowing. No more hacking mucous and clearing my throat upon laying down at night with 30mg prior to bedtime. Leg & arm weakness still occurs, but less. My fatigue is unpredictable vs constant. | F | 47 | 30 days 60mg 1/2 t 6X day | 2/15/2022 | 4 | Myasthenia Gravis | Terrible diarrhea until I started taking Loperamide Anti-Diarrheal evey day. Still get severe cramping in hands and fingers. Doc has prescribed potassium for cramping. Also get twitching eyelids when taking Mestinon. Vision has gone from 20/20 to 20/40. had | Seem to have to urinate every 5 or 6 seconds. Was also taking 60 mg Prednisone, now down to 20 mg. Still bruise or cut for no good reason. Still weak after 3 months. Tried to play golf yesterday and I hit the ball about as far as my 150 year old grandmother. Still get dizzy without warning. Followed up with bleeding ulcer that my doctor said was caused by Prednisone, then pneumonia, so 3 separate trips to hospital. Hope it's all over now. | M | 71 | 90 days 360 mg 1X day | 5/6/2010 | 5 | MG | Stomach aches if on a empty stomach. | works great and its fast. | M | 75 | 1 weeks 30.3x a da 3X day | 4/21/2022 | 4 | Myasthenia Gravis | diarrhea, stomach discomfort. I started with 30 MG three times a day. The first dose made me feel better than I had in months. The dose soon became inadequate. I now take a Timespan at bedtime. I feel great in the morning. I still take 30 mgs four times during the day. They don't seem to be effective. I just want to feel normal again! | I'm better with Mestinon than without. My other best friend is Imodium!! | F | 59 | 3 weeks | 10/6/2009 | 3 | MG | frequent urination, occassional incontinence, upset stomach | I had a sudden onset of symptoms about six weeks ago - drooping eyelids and shortness of breath - although looking back there were some symptoms that I wrote off to other things. The drooping eyelids was what finally sent me to the doctor/ The Mestinon has pretty much taken care of the droopy eyes, but my other symptoms (neck hurts when holding my head at an angle - get very short of breath - have to head to the bathroom A LOT) seem to be getting a little worse. Have only been to see the neurologist once. I do not have insurance, so this is going to be a hard thing to manage and I know some treatment options will not be available to me. | F | 56 | 3 weeks 60 MG 3X day | 12/26/2011 | 5 | mg | Frequent urination heavy sweating, sometimes headaches but on the whole has made life much more enjoyable, dosage just increased as previpius dose was not lasting 4 hrs only 3 then one eye would shut,and I would get tired, without mestion I would be a mess ,but now have never felt stronger side effects I can live with mestion amazing!! Mg is a horrible disease but with mestion you can look and feel somewhat normal!!!! | M | 46 | 4 weeks 360mg a da | 2/18/2014 | 5 | Sjogren's dysauronomia | A couple mild brief foot cramps at night. More saliva. I've gained 3.5 lbs in 6 wks. A tad harder to initiate urinary stream, but stronger bladder once stream starts. Occasionally little patches of itchy skin which may or may not be related. | Iife changing really. More energy, heat tolerance, less gastroparesis & constipation. Increased emotional reserve is mind boggling. Too much fight & flight & not enough rest and digest nervous system left me experiencing a "bad" thing as a "tragedy." Such a relief to feel more like I did years ago. Physically & emotionally I cope better on mestinon. I see there is research to support this | F | 58 | 6 weeks 30mg 5X day | 9/30/2022 | 3 | Orthostatic Hypotension | Very fast Weight and fluid gain, severe colic and nausea. I have literally gained kilos!! It began in my stomach and legs and is also very much fluid. I eat well, exercise every day. Walk 4kms daily so this weight gain is drug related. Only other drug I'm taking is Motillium for nausea and paracetamol. | It helps my OH but my muscles waste just the same I don't have MG, only OH and EDS. The weight gain has made me very very depressed. I don't even want to leave my home. I think I will be coming off or though nervous about that as I think my symptoms may come back :(((( Feel trapped by this illness!! | 60 | 6 weeks Half a tab 1X day | 1/30/2021 | 3 | MG | Existing uninary incontence much worse, no longer able to hold any amount of urine. Otherwise no other side effects. Blut the increased incontinence is so severe I am no sure it is worth contining using mestinon. Will check with neurologist about reducing dosage. | Notice a definite increase in strength. Able to do water aerobics for 30 minutes without undue exhaustion, which is a definite improvement. Seems to give mild relief to blurred vision when I am tired and facilitates reading for longer time period. | F | 70 | 6 weeks 60mg 3X day | 6/15/2014 |
MESTINON (PYRIDOSTIGMINE BROMIDE): Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function. (Sources: U.S. Centers for Medicare Services, FDA)