MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)Average Rating: 4.0 (82 Ratings)Filter ResultsCompare MESTINON with similar:
Type: Rx Drug
|
Results are sorted by length of time drug was taken longest to shortest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on MESTINON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR MESTINON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Myasthenia Gravis | Double Vision, weak arm & legs, laboured breathing, dizziness, very tired even after a night sleep.Cannot walk far, round a SMALL supermarket exhausting. | Having been in remission for about 15 years. MG is now back, I was very lucky and was diagnosed early in 1962 because my optician's cousin, was head of Neurology in Manchester UK. Mestinon was prescibed. I am now back on it & having all the usual cramps, so I am taking a anti-spasam tablet which helps enormously. After reading some of notes, I am SO lucky to live in the UK and have an almost free good National Health Service. | F | 62 | 40 years 480mg 8X day | 3/14/2010 | 5 | I have been taking Mestinon for 40 + years for Myasthenia Gravis. I have never had any problems unless I took to much. Then there was the usual problems of cramps, weakness, etc. I always try and keep the dosage as low as possible. Mestinon usually has to be combined with other meds. I just wish that someone made a generic version. Long term usage get very expensive but I am glad that it is still around. | F | 63 | 40 years | 9/23/2005 | 5 | MG | occasional muscle cramps in legs and feet; loose bowels occasionally; have to pee 20-30 minutes after taking meds; muscle twitching if take too much (doses too close together) | still nothing better for my MG....have had MG since I was 12 and been on Mestinon since then. Also take Prednisone (30 years); Mestinon still makes all the difference in my vision and day to day life. Have never been so healthy and strong. Also had thymus taken out 6 months after diagnosis | F | 45 | 33 years 45mg 4X day | 6/1/2010 | 4 | Myasthenia Gravis | I have taken 720 mg per day at first plus 150 mg of imuran and it took 36 mouths before the imuran started to work properly. At high dosages 60 mg @ 5 plus a day diarreha plus bleeding as dosage increased. | I have worked myself down to 60 mg x 2 now but i have had problems with Erectile Dysfunction for 10 yrs and high blood pressure. After about 12 months i was able to return to work but stress ended that in 5 months. I adjust my dosage myself and i am going to try to stop the Mestinon completely and just rely on the imuran. It dose mess with urination, more spiting, nasal draining. | M | 67 | 15 years 60 2X day | 11/9/2017 | 3 | myasthenia gravis | when taken without food or when im hungry i experience severe twitching in arms, legs and stomach, eye lid. because ive taken it for such a long time, it's starting to lose its effects, so i take extra (take it as i need it) and if taken before the shower it does affect the heart beat. | F | 20 | 14 years 60MG 6X day | 8/16/2010 | 4 | Myasthenia Gravis | gas, stomach cramping, bloating, loose bowels, sweating, increase in saliva, eye twitching | My dr. started me out at 120 mg every 4 hours which caused WAY too many awful side effects. I now take 60 mg every 4 hours when I'm in an exacerbated symptom state and the side effects are much more manageable. It's also always better for me to eat with it, and I tend to take the pill in the middle of the meal. When I got hives a few months ago I started taking Allegra daily and the stomach cramping was so severe I had to switch to Claritin. Could have been the combination of Allegra and Mestinon. | F | 37 | 13 years | 7/9/2006 | 5 | post polio syndrome | diaherra , eyes watering | used off and on for post polio syndrome and unknown nerve/muscle disorders depending on which doctor I have. Most test determine muscle problems but unclear on specific reason. Always gives me more arm and leg strength. 120 mg about every 4 hours is usually the dosage I need if doing physical things. Great medication | M | 57 | 10 years | 2/5/2007 | 5 | ocular myasthenia gravis | some gas, esophagal spasms if gulping food down without thinking, shortness of breath, right branch of heart has a bundle block and Mestinon may be assisting this from getting worse... | I have had reiki treatments by a lady who could re balance my energy shakras (s?)e and it worked for about 6-8 weeks at a time..but she is no longer available where I live...Felt like I was on top of the world afterwards.I am going to try it again (no side effects!) www.reiki-for-holistic-health.com/chakra-balancing-healing.html | M | 74 | 10 years 180 mg 2X day | 8/20/2012 | 4 | MG | mild sweating, stomach cramps, loose bowels, and twitching in legs... | I find the liquid dose is alot more tolerable on the GI then the pills. I take Nexium and that helps with the stomach cramps and diarrhea. Dont drink milk or eat dairy products with an hr of taking this med, if your lactose intolerant. WIll cause more gas and other issues.--> I know from experience and other MG patients. This med has allowed me to keep wkng and be mobile...although I like to push it, my legs will give out after to much walking. Because of more frequent bowel movements, I do not absorb the vitamins and nutrients we need to be healthy, have started a supplement of VIT D and VIT B's...helps with energy. Living in a tranquil lifestyle helps the immune system to stay calm and not over react...which is where our issues are...God Bless and keep positive don't let this control you, YOU control the illness. | F | 48 | 8 years 45mg 3X day | 8/29/2012 | 5 | Myasthenia Gravis | If took too much, made me weaker | I had to take this when diagnosed with MG in '98. I took it three times a day for 7 years. I had my thymus removed in '99 and went into remission in '03. This drug saved my life. I was so weak and tired, and my left eye was always droopy. This was the best drug for MG. I no longer have to take it...but was happy it was available when needed. | F | 32 | 6 years | 12/26/2006 | 5 | M G | iam taking mestinon about 6 years now along with imuran i have just been told i have a skin cancer a side effect of imuran any advice welcome | M | 70 | 6 years 60 1X day | 7/10/2012 | 5 | myasthenia gravis | Stomach ache if taken without food | LOVED this medicine! I took it for about 6 years until I went into remission. It made me able to live the life I wanted to. Not exhausted and weak. | F | 30 | 6 years | 9/29/2004 | 4 | mg | Stomach cramps if not takin with food. Muscle twitch once on a while | F | 22 | 6 years 3x d | 5/4/2013 | 5 | MG | Excessive salivation and diarrhea when starting drug, muscle spasms in feet and occasionaly experience muscle twitching | Started 5 years ago when in ICU with MG crisis, intially 4 x60mg now it's 3x60mg along with immunosuppressive drug daily. Virutally symptom free of MG for 5yrs no longer need steroids, had thymectomy and am now about 90% back to normal functioning. Muscle twitching only lasts about an hour or so after taking Mestinon and is annoying but happens infrequently. | F | 57 | 5 years 60mg 3X day | 8/3/2010 | 5 | have mg | cramps in hands, calves and muscles in back of shoulder. loose stool | I take 90mg four times a day. Using this medication let me regain my life.I take Mestinon along with a anti rejection drug named cellcept (Mycophenolate generic). My symptions of MG were diffuculty breathing,drooping eyelids, chocking,couldn't support my head upright, extreme muscle weakness,sleeping approx. 22 hrs per day. Doctors didn't expect me to make it. Good doctors and good medication and a great creator. | M | 65 | 5 years | 11/25/2009 | 4 | MG | Diarrhea, stomach cramps, nausea. Muscle twitches if too much is taken. | Even with side effects, this drug is amazing. I was completely unable to function at almost any level before finally being diagnosed and started Mestinon. It has brought me back to about 75% of what I was before MG. | F | 43 | 5 years 60 mg 6X day | 5/9/2010 | 5 | Ocular Myasthenia Gravis | When taking the Timespan Version slurred speech, weak jaw, abdominal cramps - None when taking 60mg Mestinon | This medicine helped me through two pregnancies as it allowed me to get off the prednisone which can have really bad side effects after long term use. I can lead a symptom-free life on this. I started on the Timespan version and only got the normal version when there was a shortage of mestinon and no chemist could get it. What a blessing in disguise as the 60mg version works fantastically without any of the horrible side effects that I used to get with the Timespan Version. | M | 35 | 4 years | 9/24/2007 | 5 | Occular MG | twitching, bloating, sweating | I've been taking this medication since I was 12 (which is about 4 years now) on and off since my OMG goes in and out of remission anywhere from a few months to a year... I'm taking 120mg three times a day, and the only side effects I experience are twitching, and occasionally bloating, sweating, and adominal cramps. Not often, though. | F | 15 | 4 years | 12/13/2006 | 4 | Myasthenia Gravis | Loose bowels and stomache cramps which last only minutes when taken without food.This medicine has allowed me to live a full life, since I have 2 teenagers and I work and go to school full time.If I over do it, I will experience weakness but usually I know my limits. | F | 38 | 4 years | 1/28/2008 | 4 | Myasthenia Gravis | Muscle twitching, diarrhea, increased sweating, increased saliva | Mestinon causes stomach pain if I take it on an empty stomach. It also makes me weaker if I take too much of it. Sometimes I am not sure if the weakness I have is from my MG or taking too much Mestinon. | F | 39 | 4 years 30 mg | 10/27/2019 |
MESTINON (PYRIDOSTIGMINE BROMIDE): Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function. (Sources: U.S. Centers for Medicare Services, FDA)