MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)

Average Rating: 4.0 (82 Ratings)

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 MYASTHENIA GRAVIS

 Type: Rx Drug

  

MESTINON  (PYRIDOSTIGMINE BROMIDE):  Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on MESTINON: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR MESTINONCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Sjogren's dysauronomia A couple mild brief foot cramps at night. More saliva. I've gained 3.5 lbs in 6 wks. A tad harder to initiate urinary stream, but stronger bladder once stream starts. Occasionally little patches of itchy skin which may or may not be related. Iife changing really. More energy, heat tolerance, less gastroparesis & constipation. Increased emotional reserve is mind boggling. Too much fight & flight & not enough rest and digest nervous system left me experiencing a "bad" thing as a "tragedy." Such a relief to feel more like I did years ago. Physically & emotionally I cope better on mestinon. I see there is research to support this F 58 6 weeks
30mg 5X day
9/30/2022
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 5  MG Stomach aches if on a empty stomach. works great and its fast. M 75 1 weeks
30.3x a da 3X day
4/21/2022
 5  Myasthenia gravis As long as I take 1/2 tablets (30mg) no more than 6xs per day (Total 180mg) as needed I have very few side effects. Its interesting that most side effects that I see reported on here are actually many of my MG symptoms that Mestinon actual gets rid of vs causes. I must be super lucky... Works best on my breathing, diplopia and swallowing. No more hacking mucous and clearing my throat upon laying down at night with 30mg prior to bedtime. Leg & arm weakness still occurs, but less. My fatigue is unpredictable vs constant. F 47 30 days
60mg 1/2 t 6X day
2/15/2022
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 5  Myasthenia Gravis Some runny nose, occasionally watery eyes. Occasional upset stomach. Mestinon seems to stop working or works minimally when combined with cannabis. This medication was and still is life changing for me. I have been so disabled and Mestinon has made it so I’m able to move my arms and legs again. I can breathe so much easier. And my right eye no longer droops. F 48 2 months
60 MG
4/19/2020
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 5  neurocardiogenic syncope abdominal cramps, face muscle twitching, diarrhea, gas, frequent urination This was the last resort medicine for my condition (off-label use), so thank goodness it worked, but the side effects are sometimes really annoying. I've gained weight on it because I found that the best fix for the cramping and twitching is to eat, and carbs/protein work better than fruit or veggies. Luckily I take the ER version, so the worst of the side effects happen once a day, and as long as I catch it in time with a snack, it's ok. The frequent bathroom breaks have become a problem, but it's usually manageable. Wearing "light days" panty liners helps in case of accidents. Sometimes I sigh for the old days when I didn't check for a bathroom everywhere I go... F 42 3 years
905mg 1X day
6/30/2017
 5  Myasthenia Gravis Some muscle cramps (feet and toes) and occasional diarrhea (if taken on empty stomach). Love this medicine in both generic tablets and Timespan caplets! (Taken in addition to IVIG, prednisone, and imuran) Could not function without it! F 52 10 months
90mg 4-5x/
7/23/2016
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 5  Myasthenia Gravis Some muscle cramps (feet and toes) and occasional diarrhea (if taken on empty stomach). Love this medicine in both generic tablets and Timespan caplets! (Taken in addition to IVIG, prednisone, and imuran) Could not function without it! F 52 10 months
90mg 4-5x/
7/23/2016
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 5  Ocular Myasthenia Gravis (my son) My son has twitching in his arms, legs and stomach every now and then. He gets stomach cramping sometimes and loose bowel movements. My son was diagnosed with Ocular Myasthenia Gravis a little over 2 years ago, right before his 6th birthday. My husband and I noticed that my sons left eyelid was extremely droopy. After blood test and eye examinations he was diagnosed with Ocular MG. He started off taking 10mL of Mestinon 4x's a day, then about 6 months later it was reduced to 8mL 4x's a day. Towards the end of 2013 the neurologist took a dose away and he was taking it 3 times a day. Three months ago the neurologist took away another dose so he was taking it 2 times a day. We had an appointment yesterday and she still wants my son to take it twice a day, but she dropped it from 8mL to 6mL. This medicine is truly amazing. My son's eyelid has not drooped since he's started taking mestinon, and all of his muscles throughout his body are very strong. I am very thankful to God for this medicine and for his neurologist and ophthalmologist. Though he does have the cramping, twitches, and loose bowel movements from time to time, I think this is a great medication. M 8 2 years
60mg 3X day
8/21/2014
 5  Ocular MG No side effects whatsoever. None. zero. Eye symptoms improved significantly, almost 100% again. If I haven't had any side effects so far does that mean I likely never will or have I just been lucky so far? F 49 7 days
30 3X day
2/19/2014
 5  mg Frequent urination heavy sweating, sometimes headaches but on the whole has made life much more enjoyable, dosage just increased as previpius dose was not lasting 4 hrs only 3 then one eye would shut,and I would get tired, without mestion I would be a mess ,but now have never felt stronger side effects I can live with mestion amazing!! Mg is a horrible disease but with mestion you can look and feel somewhat normal!!!! M 46 4 weeks
360mg a da
2/18/2014
 5  MG Increased salivation periodically. Abdominal discomfort if taken on empty stomach (2 Ritz crackers with first dose preventive). Very rare diarrhea. Not a cure but much improved. Diplopia now problematic only when I don't get enough sleep. Can walk on level without difficulty. Hills a problem (walking hills brings on diplopia despite sleep). Slow walk no symptoms. M 63 3 years
60 4X day
3/7/2013
 5  ocular myasthenia gravis some gas, esophagal spasms if gulping food down without thinking, shortness of breath, right branch of heart has a bundle block and Mestinon may be assisting this from getting worse... I have had reiki treatments by a lady who could re balance my energy shakras (s?)e and it worked for about 6-8 weeks at a time..but she is no longer available where I live...Felt like I was on top of the world afterwards.I am going to try it again (no side effects!) www.reiki-for-holistic-health.com/chakra-balancing-healing.html M 74 10 years
180 mg 2X day
8/20/2012
 5  M G iam taking mestinon about 6 years now along with imuran i have just been told i have a skin cancer a side effect of imuran any advice welcome M 70 6 years
60 1X day
7/10/2012
 5  MG Sweating is the only consistent side effect. I experience stomach cramps and twitching/tics if med is taken too soon between doses. This is my miracle drug. After over 20 years of undiagnosed belching, esophageal spasms, and choking, I began to lose control of my constantly twitching tongue, which caused slurred speech. A neurologist suggested we try mestinon to rule out mg. Blood work was negative for mg, but mestinon has saved the day. F 45 1 years
60 mg 3X day
6/24/2012
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 5  Myasthenia Gravis Wild twitching in legs, and sometimes arms and face. It's actually amusing to watch my legs and toes, reminding me of the scarab beetles in THE MUMMY undulating beneath the skin, and my toes moving independently in ways I could never do intentionally. As my MG goes into remission, and I have reduced my dosage, the twitching is abating. Currently I am taking 3/4 tablet at 6 am, 10 am, 2 pm, and 6 pm, and then 1/2 time-span tablet at 10 pm. This is a wonderful drug -- a miracle, in fact. After a sudden onset of MG, I had a lateral robotic thymectomy. Prior to the surgery I was experiencing respiratory crises several times per week, had double vision, had become a clinical wimp. and was taking 90 mg of generic Mestinon every 3 hours around the clock. The surgery seems to be having its effect, and I am confident that I am headed for a significant remission. M 62 5 months
45 mg. 4X day
10/6/2011
 5  Autonomic Mild twitching if use cooling vest or forget I took it some hours before. Great medication. Unbelievable that one medication alleviates so many symptoms. F 45 1 years
2X day
7/3/2011
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 5  myasthia gravis stomach cramps fatigue water eyes diarrhea gas it has help me a lot because i couldn't walk, talk,see,or breath i was in icu for 1 month. i was treat by 3 hospital. i was on life support.they had to bring me back 3 times i have been through a lot since november 15 2009. i was a single mother with 5 children now i am married. jerome has been by my side since day 1 and i love him with all my heart .i am still having a hard time but i am dealing with it,thank for the mestion F 38 1 years
90mg 6X day
1/21/2011
 5  Myasthenia Gravis Stomach discomfort. It gives me the worst gas known to man! It is just annoying more than anything. I was diagnosed with sero-negative MG. I primarily have trouble breathing, swallowing, and chewing, but occasionally, my arm or leg muscles will get weak, too. When I first started this medicine, I was astonished at how quickly I noticed a difference! It has truly made a difference in my life. I almost feel normal, and only occasionally have a bout of weakness. F 28 1 months
60mg 4X day
12/4/2010
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 5  MG Excessive salivation and diarrhea when starting drug, muscle spasms in feet and occasionaly experience muscle twitching Started 5 years ago when in ICU with MG crisis, intially 4 x60mg now it's 3x60mg along with immunosuppressive drug daily. Virutally symptom free of MG for 5yrs no longer need steroids, had thymectomy and am now about 90% back to normal functioning. Muscle twitching only lasts about an hour or so after taking Mestinon and is annoying but happens infrequently. F 57 5 years
60mg 3X day
8/3/2010
 5   cramps in calves and feet. unexpected bowel movements. these side effects are well worth dealing with since i have the strengh back and am able to go for walks again. mestinon has really helped the muscle weakness that was making my life miserable. I still have trouble with double vision even following surgery to help increase the strengh of the eye muscles. however the doctor wants to redo the right eye. maybe my double vision has hope. F 60 3 months
60 mg 4X day
6/17/2010
  

MESTINON  (PYRIDOSTIGMINE BROMIDE):  Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function.    (Sources: U.S. Centers for Medicare Services, FDA)

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