MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)Average Rating: 4.0 (82 Ratings)Filter ResultsCompare MESTINON with similar:
Type: Rx Drug
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Results are sorted by Age from youngest to oldest (reviews with no age reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on MESTINON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR MESTINON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | occular mysenith gravis 2 | Breathing problems and since halfing it tonge problems | F | 4 years 150 | 7/29/2015 | 5 | Ocular Myasthenia Gravis (my son) | My son has twitching in his arms, legs and stomach every now and then. He gets stomach cramping sometimes and loose bowel movements. | My son was diagnosed with Ocular Myasthenia Gravis a little over 2 years ago, right before his 6th birthday. My husband and I noticed that my sons left eyelid was extremely droopy. After blood test and eye examinations he was diagnosed with Ocular MG. He started off taking 10mL of Mestinon 4x's a day, then about 6 months later it was reduced to 8mL 4x's a day. Towards the end of 2013 the neurologist took a dose away and he was taking it 3 times a day. Three months ago the neurologist took away another dose so he was taking it 2 times a day. We had an appointment yesterday and she still wants my son to take it twice a day, but she dropped it from 8mL to 6mL. This medicine is truly amazing. My son's eyelid has not drooped since he's started taking mestinon, and all of his muscles throughout his body are very strong. I am very thankful to God for this medicine and for his neurologist and ophthalmologist. Though he does have the cramping, twitches, and loose bowel movements from time to time, I think this is a great medication. | M | 8 | 2 years 60mg 3X day | 8/21/2014 | 5 | Occular MG | twitching, bloating, sweating | I've been taking this medication since I was 12 (which is about 4 years now) on and off since my OMG goes in and out of remission anywhere from a few months to a year... I'm taking 120mg three times a day, and the only side effects I experience are twitching, and occasionally bloating, sweating, and adominal cramps. Not often, though. | F | 15 | 4 years | 12/13/2006 | 3 | MG | Lots of muscle twitches and frequent urination. | Have been taking it to help with OMG. Taking it more to prevent flair up of other symptoms. Prednizone has helped with the double vision - highly suggest anyone with double vision as their doctor about it, it worked for me. | M | 19 | 4 months 60 4X day | 1/30/2012 | 3 | myasthenia gravis | when taken without food or when im hungry i experience severe twitching in arms, legs and stomach, eye lid. because ive taken it for such a long time, it's starting to lose its effects, so i take extra (take it as i need it) and if taken before the shower it does affect the heart beat. | F | 20 | 14 years 60MG 6X day | 8/16/2010 | 4 | familial autonomic dysfunction | some abdominal cramps, increased salivation. | has helped increase my muscle strength in arms and legs so far. (I'm usually so weak.) That has been great! | F | 21 | 5 days | 3/7/2007 | 3 | Myasthenia Gravis | Chest palpitations, loose bowels. | Mestinon works best for me when my symptoms are not that severe (ie blurry not full-blown double vision). Otherwise side-effects are very mangeable. | F | 21 | 3 years | 1/31/2005 | 4 | dysautonomia (most likely omg) | increased sweating, increase saliva, double vision, dizziness | this drug has been amazing at increasing my strength. before I used to dread having to walk from my car to a building and couldn't even carry my own back pack with my school books up the stairs. now I have my strength back to carry my back pack and not dread waking up each day because my muscles are so weak I can hardly move. the only thing that really bothers me about this medication is that it makes me dizzy and get double vision. (i gotta talk to my doc about that next time i see him.) | F | 22 | 3 months | 4/28/2007 | 4 | mg | Stomach cramps if not takin with food. Muscle twitch once on a while | F | 22 | 6 years 3x d | 5/4/2013 | 2 | To Test OMG | I have yet to experience any side effects | I am seeing double vision for at lest 6 mon with no other side effects other than the headaches caused by double vision and being tired all the time which I think is caused by the headaches. I have seen Dr. after Dr. and the last Dr. (a neurologist) wants to test me for OMG so he prescribes mestinon... It has only been 3 days taking 1/2 a 60mg pill three times a day and I have seen no improvement what so ever...from your experience does anyone think it would have worked by now if I really had OMG? ..do I need a higher dosage? Is is at all possible to have OMG and not respond to mestinon?? | F | 22 | 3 days | 3/14/2009 | 4 | Myasthenia Gravis | take your medication(s) on routine schedule everyday helps wonders to your system. When I was diagnosed and started on Mestinon I was having stomach cramps, loose stool every 30 minutes, had to go pee SOO BAD I was like a kid running to the potty but turns out only a little bit, even cr*pping or peeing my pants, bad nausea to the point where I had to lay down... Now that it's "in my system" and I take it in a routine schedule i only get diarrhea if it's from (no food in stomach, stressed out, too hot/cold, had a sezuire {I'm epileptic} , or walked (been on feet) too much or all day. I take protein or dairy based products to help night time cramps or help with the Time Release Mestinon. | Good luck to all snowflakes out there reading this😄😇 !! | F | 25 | 1 months 30mg | 12/24/2015 | 3 | Myasthenia Gravis | Sweating like crazy, stomach cramps,diarrhea (every day) and nausea(sometimes) feeling more hungry!!! Salivation and sometimes difficulty swallowing. | I am on a 3 x 60 per day for ony a month. It doesnt help me completely, far from that, but it is deffinately better since Im taking it. There are days when I feel really good and it reminds me of those lovely days without MG. But the feeling of my own body as it was before- is never the same. First I experience pain , weird pain, then weakness and then I just cant do what I was doning anymore. exmpl. Things fall out of my arms or I suddenly just lose balance in my legs. And I cannot sing like before (used to study singing) Double vision and eye muscles- they react the best to mestinon, legs worse. | F | 25 | 3 months 60mg 3X day | 2/12/2012 | 5 | Myasthenia Gravis | abdominal cramps | I have been taking Mestinon for almost a year now after being diagnosed with MG. It has helped greatly with increasing my strength. Before starting this medication, I was very weak. I didnt have enough strength to walk, comb my hair (as my arms were weak) or do any normal everyday activities. Mestinon has allowed me to live my life, full strength. | F | 27 | 1 years | 10/23/2008 | 4 | GMG | increased muscle twitches in legs and arms, increased tear production | I have no problem with the side effects. Vision is improving and muscle weakness is nearly gone when I'm taking it. Only been 3 days. | F | 27 | 3 days 60MG 2X day | 11/18/2015 | 5 | Myasthenia Gravis | Stomach discomfort. It gives me the worst gas known to man! It is just annoying more than anything. | I was diagnosed with sero-negative MG. I primarily have trouble breathing, swallowing, and chewing, but occasionally, my arm or leg muscles will get weak, too. When I first started this medicine, I was astonished at how quickly I noticed a difference! It has truly made a difference in my life. I almost feel normal, and only occasionally have a bout of weakness. | F | 28 | 1 months 60mg 4X day | 12/4/2010 | 5 | myasthenia gravis | Stomach ache if taken without food | LOVED this medicine! I took it for about 6 years until I went into remission. It made me able to live the life I wanted to. Not exhausted and weak. | F | 30 | 6 years | 9/29/2004 | 5 | Myasthenia Gravis | If took too much, made me weaker | I had to take this when diagnosed with MG in '98. I took it three times a day for 7 years. I had my thymus removed in '99 and went into remission in '03. This drug saved my life. I was so weak and tired, and my left eye was always droopy. This was the best drug for MG. I no longer have to take it...but was happy it was available when needed. | F | 32 | 6 years | 12/26/2006 | 2 | Neurologist suspects MG | stomach ache and heavy breathing, face flushes at first (60MG) Then now reduced to half a tablet, not many side effects just still a tiny bit of heavy breathing at times. | Not sure if it is working as I still have muscle weakness and wasting, arms and legs are weaker but I don't know if that's the medication or just my symptoms. Neurologist suspects MG but test have all come back negative so far. Has anyone else experienced anything like this? I have symptoms for the disease but tests are not showing anything so it's very strange | F | 32 | 7 days 1X day | 7/17/2020 | 2 | OMG | Absolutely hate this medication. I am begging my neurologist to take me off and put me on prednisone! Horrible muscle twitches that cause cramps in my feet and calf muscles especially. Constant eye twitching and tearing that just drives me crazy. Sometimes get stomach cramps or nausea that I relieved when I eat enough prior to taking, but that has resulted in weight gain. And, the gas is | This is the second time I have gone back to this medication. When I was initially dx 9 yrs ago, I tried it, and I had very few side effects, but I also had no symptom relief. I switched to prednisone and cell cept, and I had amazing symptom relief. After 4 yrs, I was able to go off all medications, and I was medication free until 7 mo ago. Now, I am at 60mg, 4x per day, plus 180mg time release at bed. No more OMG symptoms, but the side effects are almost worse. | F | 32 | 7 months 60 4X day | 8/5/2014 | 3 | Occular Myasthenius Gravis | Diarrhea, muscle cramps, muscle spasms, slurred speech, severe abdominal pain. | I seem to be one of the unlucky ones. I've only been taking it for about 9 months, but it's been a rough 9 months. There's days when I'm not so bad, then there's days when the medicine has me messed up bad. I've been to the ER once so far because of the abdominal pain and cramping. I can eat like a horse with it and be fine, or eat the same ammount the next day and be sick. Each day is a new adventure. On the bright side, my OMG is about 85% managed. | M | 33 | 9 months | 6/7/2006 |
MESTINON (PYRIDOSTIGMINE BROMIDE): Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function. (Sources: U.S. Centers for Medicare Services, FDA)