MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)

Average Rating: 4.0 (82 Ratings)

Filter Results

Compare MESTINON with similar:
 MYASTHENIA GRAVIS

 Type: Rx Drug

  

MESTINON  (PYRIDOSTIGMINE BROMIDE):  Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Age oldest to youngest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5


More on MESTINON: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR MESTINONCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Myasthenia Gravis Unpredictable and strong bowel movements. Loose Stool. Some Diahrria. Contracted full blown MG in March 2009. Breathing, swallowing, eyes and tongue paralyzed. Spent 9 weeks in the hospital and 4 weeks in rehab. Currently taking one 180 MG Timespan pill per day. Tried increasing it to two per day to improve swallowing difficulty, but bowel problems were too bad. Had 5 IVIG infusions which helped a lot. Plasma Phoresis really helps, but is risky. M 79 8 months
180 MG 1X day
2/13/2010
 5  MG Stomach aches if on a empty stomach. works great and its fast. M 75 1 weeks
30.3x a da 3X day
4/21/2022
 5  ocular myasthenia gravis some gas, esophagal spasms if gulping food down without thinking, shortness of breath, right branch of heart has a bundle block and Mestinon may be assisting this from getting worse... I have had reiki treatments by a lady who could re balance my energy shakras (s?)e and it worked for about 6-8 weeks at a time..but she is no longer available where I live...Felt like I was on top of the world afterwards.I am going to try it again (no side effects!) www.reiki-for-holistic-health.com/chakra-balancing-healing.html M 74 10 years
180 mg 2X day
8/20/2012
 1  For low blood pressure Charley horses in thigh and calves 3 days then severe pain legs arms for over a year and still have It ruined our lives F 72 11 days
60mg 3x da
7/23/2019
Email
 4  Myasthenia Gravis Terrible diarrhea until I started taking Loperamide Anti-Diarrheal evey day. Still get severe cramping in hands and fingers. Doc has prescribed potassium for cramping. Also get twitching eyelids when taking Mestinon. Vision has gone from 20/20 to 20/40. had Seem to have to urinate every 5 or 6 seconds. Was also taking 60 mg Prednisone, now down to 20 mg. Still bruise or cut for no good reason. Still weak after 3 months. Tried to play golf yesterday and I hit the ball about as far as my 150 year old grandmother. Still get dizzy without warning. Followed up with bleeding ulcer that my doctor said was caused by Prednisone, then pneumonia, so 3 separate trips to hospital. Hope it's all over now. M 71 90 days
360 mg 1X day
5/6/2010
Email
 5  M G iam taking mestinon about 6 years now along with imuran i have just been told i have a skin cancer a side effect of imuran any advice welcome M 70 6 years
60 1X day
7/10/2012
 5  ocular myasthenia gravis Initially, some tearing but now none. Two or more solid bowel movements a day. That is all Miraculous drug. Double vision was terrible. Now, to date, I am symptom free. M 70 10 months
10/17/2008
Email
 3  MG Existing uninary incontence much worse, no longer able to hold any amount of urine. Otherwise no other side effects. Blut the increased incontinence is so severe I am no sure it is worth contining using mestinon. Will check with neurologist about reducing dosage. Notice a definite increase in strength. Able to do water aerobics for 30 minutes without undue exhaustion, which is a definite improvement. Seems to give mild relief to blurred vision when I am tired and facilitates reading for longer time period. F 70 6 weeks
60mg 3X day
6/15/2014
 3  Myasthenia Gravis Leg, foot and hand cramps. Diarrhea. Urinary urgency and frequency. This is a delicate balancing act. Must use discipline to correctly titrate dosage. Too much causes side effects to be worse. Too little causes lack of effective control over MG weakness. The proper dose is very often a function of how your MG symptoms present on any given day. So it can be an exercise in reading your body well or a guessing game. Need to get very good at evaluating your status. M 69 6 months
60mg 3X day
10/8/2020
Email
 4  Myasthenia Gravis I have taken 720 mg per day at first plus 150 mg of imuran and it took 36 mouths before the imuran started to work properly. At high dosages 60 mg @ 5 plus a day diarreha plus bleeding as dosage increased. I have worked myself down to 60 mg x 2 now but i have had problems with Erectile Dysfunction for 10 yrs and high blood pressure. After about 12 months i was able to return to work but stress ended that in 5 months. I adjust my dosage myself and i am going to try to stop the Mestinon completely and just rely on the imuran. It dose mess with urination, more spiting, nasal draining. M 67 15 years
60 2X day
11/9/2017
Email
 4  MG Loose bowel movements, heavy sweating, vomiting I had read a comment about otc meds to help side effects, I bought Acidophilus at Rite Aid and I take one caplet with my morning med and I am good all day. This is really the two miracle pills in my life. My muscles are improving daily. F 66 3 months
60mg 3X day
4/18/2015
Email
 5  have mg cramps in hands, calves and muscles in back of shoulder. loose stool I take 90mg four times a day. Using this medication let me regain my life.I take Mestinon along with a anti rejection drug named cellcept (Mycophenolate generic). My symptions of MG were diffuculty breathing,drooping eyelids, chocking,couldn't support my head upright, extreme muscle weakness,sleeping approx. 22 hrs per day. Doctors didn't expect me to make it. Good doctors and good medication and a great creator. M 65 5 years
11/25/2009
 5  MG Increased salivation periodically. Abdominal discomfort if taken on empty stomach (2 Ritz crackers with first dose preventive). Very rare diarrhea. Not a cure but much improved. Diplopia now problematic only when I don't get enough sleep. Can walk on level without difficulty. Hills a problem (walking hills brings on diplopia despite sleep). Slow walk no symptoms. M 63 3 years
60 4X day
3/7/2013
 5   I have been taking Mestinon for 40 + years for Myasthenia Gravis. I have never had any problems unless I took to much. Then there was the usual problems of cramps, weakness, etc. I always try and keep the dosage as low as possible. Mestinon usually has to be combined with other meds. I just wish that someone made a generic version. Long term usage get very expensive but I am glad that it is still around. F 63 40 years
9/23/2005
 5  Myasthenia Gravis Double Vision, weak arm & legs, laboured breathing, dizziness, very tired even after a night sleep.Cannot walk far, round a SMALL supermarket exhausting. Having been in remission for about 15 years. MG is now back, I was very lucky and was diagnosed early in 1962 because my optician's cousin, was head of Neurology in Manchester UK. Mestinon was prescibed. I am now back on it & having all the usual cramps, so I am taking a anti-spasam tablet which helps enormously. After reading some of notes, I am SO lucky to live in the UK and have an almost free good National Health Service. F 62 40 years
480mg 8X day
3/14/2010
 5  Myasthenia Gravis Wild twitching in legs, and sometimes arms and face. It's actually amusing to watch my legs and toes, reminding me of the scarab beetles in THE MUMMY undulating beneath the skin, and my toes moving independently in ways I could never do intentionally. As my MG goes into remission, and I have reduced my dosage, the twitching is abating. Currently I am taking 3/4 tablet at 6 am, 10 am, 2 pm, and 6 pm, and then 1/2 time-span tablet at 10 pm. This is a wonderful drug -- a miracle, in fact. After a sudden onset of MG, I had a lateral robotic thymectomy. Prior to the surgery I was experiencing respiratory crises several times per week, had double vision, had become a clinical wimp. and was taking 90 mg of generic Mestinon every 3 hours around the clock. The surgery seems to be having its effect, and I am confident that I am headed for a significant remission. M 62 5 months
45 mg. 4X day
10/6/2011
 5   cramps in calves and feet. unexpected bowel movements. these side effects are well worth dealing with since i have the strengh back and am able to go for walks again. mestinon has really helped the muscle weakness that was making my life miserable. I still have trouble with double vision even following surgery to help increase the strengh of the eye muscles. however the doctor wants to redo the right eye. maybe my double vision has hope. F 60 3 months
60 mg 4X day
6/17/2010
 4  Orthostatic Intolerance/Hypotension Gut pain, nausea, muscle cramps all occurred first few weeks then became manageable. Major weight gain and fluid retention. Slowed urination and caused constipation. Headaches and tiredness. Mestinon helps my symptoms but I gained weight very fast over my whole body but very heavily in legs. I'm eating well and exercising everyday but still can't lose weight. Very depressed. Mestinon works for my symptoms but it is destroying my body and self esteem. It changed my toileting. I'm very bloated and just want my body back. Doctor has suggested midodrine not sure if it will be any better. Caught between a rock and a hard place. The drug works but the dude effects are causing me major depression and I'm very unhappy. Dr says Mestinon doesn't cause weight gain but I absolutely disagree with him. Not sure what to do. Feeling very down and lost. F 60 3 months
30 2X day
3/17/2021
Email
 3  Orthostatic Hypotension Very fast Weight and fluid gain, severe colic and nausea. I have literally gained kilos!! It began in my stomach and legs and is also very much fluid. I eat well, exercise every day. Walk 4kms daily so this weight gain is drug related. Only other drug I'm taking is Motillium for nausea and paracetamol. It helps my OH but my muscles waste just the same I don't have MG, only OH and EDS. The weight gain has made me very very depressed. I don't even want to leave my home. I think I will be coming off or though nervous about that as I think my symptoms may come back :(((( Feel trapped by this illness!! 60 6 weeks
Half a tab 1X day
1/30/2021
Email
 4  MG Gas, loose bowels, best if taken with food but I handled it ok when I just took it straight. I take a 180 time span at night and feel great in the morning and then I take a 60 mg 2 times a day. Keeps me going. It is a very effective drug for MG. I have had Mg for a little over a year and it made a lot of difference. I had my thymus removed and I am getting along pretty well. I am about 75% of what I was before. The mestinon is making life good again. M 59 1.2 years
180 1X day
3/9/2010
Email
  

MESTINON  (PYRIDOSTIGMINE BROMIDE):  Pyridostigmine is used to improve muscle strength in patients with a certain muscle disease (myasthenia gravis). It works by preventing the breakdown of a certain natural substance (acetylcholine) in your body. Acetylcholine is needed for normal muscle function.    (Sources: U.S. Centers for Medicare Services, FDA)

      Next Page

BACK TO TOP