Drug Ratings for PLAQUENIL

Average Rating: 3.3 (589 Ratings)

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    Charts & graphs: Reviews Summary for PLAQUENIL  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR PLAQUENILCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
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 4  SLE? Stomach upset, dizzy at times. Its hard sometimes to distinguish what may be a result of the meds and what is caused by other factors......diet, exercise, age, etc. Had skin issue 10 yrs ago. Blood markers(low white cells and elevated ANA) were consistent with SLE. Have been reluctantly taking Plaquenil now for 10 yrs. Even though my blood results are now good Doc says "better to take it and keep the SLE in check than to try to control it with steroids if it flares...."Plaquenil is safer than aspirin". I REALLY DISLIKE this style of doctoring of you must take meds out of FEAR. M 58 5 years
200 1X D
10/13/2014
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 1  Supposedly Lupus I became very tired and weak. Had to be admitted to hospital because my platelets dropped to 1000 and blood count was 3. I had to get 6 pints of blood and 4 pints of platelets. After a couple of days my numbers dropped again. Was diagnoses with Medicatiion Induced Aplastic Anemia. Have not taken Plaquenil in about 5 months with the help of blood and platelet transfusions and ATG treatment to rebuild my immune system and bone marrow. My numbers are creeping back up. My doctor would see me every 3 months in which he stated that I had anemia. After reviewing medical records he wasnt sure if I had Lupus but still was taken medication. BEWARE..... WHATEVER WORKS FOR ONE MIGHT NOT WORK FOR ALL. F 37 1 years
200 2X D
9/30/2014
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 3  Rheumatoid Arthritis Initial hair loss (stopped after 6 months), skin hyperpigmentation I noticed a difference after about 3 months of taking it, but it took 6 months to be fully effective. I have been taking it for 3.5 years (with 1 year hiatus due to pregnancy). It worked great for a while, but now it is starting to fail. I'm a little disappointed that I can't use it any longer since it was so easy to pop a few pills with very minor side effects. F 32 3.5 years
400mg 1X D
9/8/2014
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 1  Erosive Osteoarthritis Rash that started from my chest and within 2-3 days had covered my entire body, told by my dermatologist that I was one step from Stephen Johnson Syndrome. I had a severe rash for 3 weeks and retained fluid, the pain was excruciating. My GP placed me on high dose of prednisone 50mg for 4 days reducing till I was at 12.5mg then to stop, when my rheumatologist prescribed this medication I was not told that a rash was a side effect, I called him to tell him I was getting a rash and he totally wasn't interested, just told me to see my GP, lucky that I did as I may not be here to talk about it. This medication takes approx 8 - 12 weeks to take effect so having a reaction 2 weeks into the course is quite normal, I also had excruciating bone pain about a week into commencing the medication. The dermatologist that I was referred to for the rash said that it is quite common for this to happen with this medication. GP's aren't too familiar with it. I am now having twice daily wet dressing wit More research needs to be done and better documentation on reactions needs to be noted. F 52 14 days
200mg 1X D
9/8/2014
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 2  RA Stomach cramping and frequent urination that leaves an annoying feeling after urinating with not being able to completely empty bladder. This happened during the day, but more so during the night. F
400mg 2X D
9/5/2014

 4  Skin lupus Stomach upset I haven't felt this good in years. Face is clearing, joint pain eased, wake up in the morning and feel normal. It's even helping with fatigue. A miracle & I have tried everything. My immune system was totally hurting me everyday. F 48 1 months
200 mg 2X D
8/13/2014

 5  mild lupus I don't think it agreed with me at first. I had brown urine, headache, no appetite...Dose got cut in half, then ok...I asked if I could try cutting it in half again to 200mg every other day...so far so good...as it takes a while to work, but builds up in your system... My energy is back!!!! but still have the aches at times... F 57 1 years
200mg 1X O
6/11/2014
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 5  Lupus Have been on this drug for many years with great results. Really helps with aches and joint pains and hardly any side effects F 45 7 years
200mg
4/26/2014

 2  RA Dizzy, upset stomach, back pain and side pain, abdominal cramps, leg cramps, rapid heart rate, anxiety and body felt covered in bruises Before taking Plaquenil my only symptoms were joint pain and fatigue. Now, after being off of the meds for a few weeks I still experience back pain, side pain, cramps, rapid heart rate and joint pain. My dr says the symptoms i am experiencing are not from the drug but I never felt any of these things until a few days after being on the meds.. F 19 3 months
1X D
4/17/2014

 1  diffuse joint pain, myositis quite severe depression, easy bruising, extreme fatigue, and more severe joint pain - was getting flare ups on it - some eye effects - I was getting so sick I thought I needed to take methotrexate - so I stopped the medicine and have never felt better in my life. No joint pain whatever, no flare ups no fatigue - this drug was like poison to me and I didn't realize it until I stopped it. F 55 4 years
200mg 1X D
3/21/2014
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 4  Sjogrens Farts are uncomfortable and embarrassing. I can't wait to get over this! I hope it works for my pain and swelling. F 54 2 weeks
200mg 2X D
3/12/2014
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 2  Rheumatoid Arthritis I was put on plaquenil and salfasalazine and I had terrible acid reflux and burning in throat and a lump in my chest, Rheumatologist said to stop the salfazine but stay on plaquenil but after an extra 2 weeks on it the symptoms are not getting any better so was thinking of stopping all the drugs F 56 1 weeks
400mg dail
3/9/2014
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 5  discoid lupus, R A TERRIBLE TERRIBLE SMELLY WIND - TOTALLY EMBARRASSING , FARTING ALL DAY F 58 3 weeks
30mg 2X D
2/16/2014

 4  hep c arthralgia Mild g.i.cramping and nausea that decreased after a fee weeks. F 60 6 months
40g
2/15/2014

 4  RA diarrhea and bloating i want to be able to take it but this diarrhea is awful! F 63 2 years
200mg x's 2X D
11/24/2013
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 1  Rheumatoid Arthritis Severe red rash started on my chest, abdomen and back, then gradually worsened and spread to the rest of my body. The rash was relentlessly itchy and continued to worsen even after I'd stopped the Plaquenil and been on Prednisone for several days, though it eventually responded to the steroids. F 33 12 days
200 mg 2X D
10/14/2013

 5  APS and Fibromyalgia Nausea, diarrhea, stomached cramps, gas I am working my way around the side effects because I have not felt this good in five years. I hope it lowers my blood clotting proteins so I can lower my Coumadin or get off of it all together. I feel almost like a normal mom of the best 7 year old girl in the world. F 42 1 weeks
200 2X D
9/8/2013
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 1  lupus/udmctd Depression, Bloating, gas, rapid heart beat F 27 8 days
400ng
6/23/2013
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 1  Lupus Awful drug, started 3 weeks ago, since then I have constant diahrea, headaches are worse, little red dots on my face, and woke up yesterday to a dark circle under my eye, and lost 4 pounds. Called DR. said there was no way it could be related to Plaquenil since I had been on it for 3 weeks and to continue. Ughhh at a loss never had these symptoms before. Has anyone had similar expierence? F 45 21 days
200mg 2X D
6/22/2013
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 4  Probable sjorgrens /lupus? Ra? Confusing had GI issues before drug, but daily nausea and heart burn is new. Fatigue less with drug, depression less with drug, pain less with drug. It was fast onset of disease,... So hard to tell if it is going away from drug, or subsiding naturally. Is the GI stuff from drug, or continued progression of disease. Only on it 3 months, got eye exam before taking drug for baseline. I'm gonna stick it out on the med and see Better than where I was I just hate medication F 43 1 days
200mg
6/19/2013
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 2  fibromyalgia Intestine issues Migraines The first night I took 2 pills (one AM, one PM), I could feel my intestines jumping all night long. After a few days I cut down to just one pill in the morning. I still felt on the edge of an IBS attack and experienced headaches nearly every day I was on this med. It did not help me and the side effects were awful. My dose was average to low, but my body is sensitive to medication. Drug has the potential to cause permanent eye damage, but my doctor did not mention the required periodic eye exams F 38 2 months
1X D
6/14/2013

 2  Seronegative Rheumatoid Arthritis Mild diarrhea only for the first few days. Other than that no stomach ache if taken with food. It may have started helping on or around the fourth month because foot pain eased and it was a little easier to get out of bed, I did have some of the worst flairs ever on it. Started getting flu symptoms, fevers, swollen glands. Had extreme dizziness and extreme hair loss. I don't know if the hair loss was from the BCP that I started around the same time or the Plaquenil, but it is copius hair loss. Very depressing. I quit the med because I didn't see a lot of improvement and I wanted to get rid of the awful dizziness and hair loss. If the hair loss continues then it is probably the pill. Plaquenil works for a lot of people, I will restart it if the hair loss is due to the pill. F 4 months
200 mg 1X D
5/24/2013
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 2  MCTD At the end if day two, I experienced the worst diarrhea I think I've ever had. It lasted well into the next day. It was very painful and even burned. I'm taking half the prescribed dose. Also have broken out with little pimples on my face, chest and back. 40 3 days
200mg/day
5/13/2013

 4  Sjogren's Syndrome Started with name brand, then switched to generic. After several refills, I noticed that I was feeling like I wasn't taking any all at. My rheumatologist said that some patients do not do well on the generic, so she put me back on the name brand. I've been taking Plaquenil for 16 years, and except for the generic not being effective for me, I've had no problems. If I forget to take it, I can definitely feel it! I've always gone in for twice-yearly eye exams and so far, I'm doing very well and even my ophthalmologist is very surprised. Make sure your ophthalmologist does the "vision field" test every year as problems with peripheral vision is the most likely sign of damage from Plaquenil. F 68 16 years
200 MG 2X D
5/3/2013
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 3  UCTD, fibromyalgia Intially nausea and some gastro upset, but didn't last long. My concerns began after several years. I developed a heart arrythmia that was quite frightening at times. This would take place especially when I was ill or flaring. The other issue on this medication has been the hair loss, which is now pretty severe and loss of hair like I am in chemo. In recent months, have not noticed the benefits that I felt I noticed in the first few years.Now my autoimmune markers are dropping and I have been sent to an oncologist. Oncologists are scratching their heads because corresponding markers for suspect blood cancer are non-existent. The IG-M drop seems to be related to the plaquinel and also in recent weeks I have become susceptible to infections, such as facial cellulitis and so forth. I don't know what else to think except that this is the Plaquinel confusing my immune system. since it is an immuno suppressant. F 62 5 years
200 Mg 2X D
5/2/2013

 1  RA Severe abdominal pain, bloating, constipation. Increased leg spasms @ night. Hair loss, accelerated depression. At the 4th week, itchy, red dots appear along with scalp itching. I have been off plaquenil 3 weeks. Red rash is worse now. Itching driving me crazy! Was hospitalized for admonimal pain @ cost of 20 k all from this drug! This is insane! Have been given 3 rx for RA, after plaquenil....maybe the disease is better to consume me than killing myself with man made POISONING! Now I'm scared. Oh yea, I clearly told Rheumy I am allergic to sulfa and was told the kind and amount in plaquenil would not hurt me.. Patient BE AWARE! F 48 4 weeks
100 2X D
4/1/2013

 4  Sjogrens,Raynauds,Possible RA I am allergic to a long list of drugs. Nurses groan when I take the list of allergies. I did not have a single symptom on the brand name Plaquenil. None, no stomach problems, no diarrhea. I was waiting for the side effects and none occurred. Helped me to get out of bed, decreased fatigue. Not a great improvement but much better. After 3 months my rib pain decreased and knee pain decreased greatly. I thought it would be a cure though. Not so. My mistake. Definitely helps though. I would still be in bed without it. F 54 1 years
200 mg 2X D
2/6/2013

 2  primary sjögren's syndrome I had a lot of gastrointestinal upset the first few weeks-heartburn, diarrhea, abdominal pain, loss of appetite, bloating and excessive flatulence. F 25 2 months
400mg
1/31/2013

 3  discoid lupus Last 3 weeks, I started having a mild swallowing problem, like something is stuck in my throat. The feeilng comes and goes during the day even when I'm not eating anything. I'm also noticing that when driving at night, my vision seems less sharp. Is anyone else having unusual symptoms from taking generic of Plaqenil?? This is the only medication I take, so I believe it may be starting to cause some problems for me. I take 4-5,000 units of Vitamin D, 600-1,200 units of Calcium, and 1-2,000 units of Vitamin C daily - I don't think those supplements would cause any swallowing problems. I was prescribed generic Plaquenil for a scalp condition that was attributed to discoid lupus in April 2012. The scalp condition cleared up, but my doctor wanted me to continue with the medication because I have very high ANA readings with no other symptoms that indicate any systemic illness. I had also developed wrist pain temporarily -- I was told to wear a wrist brace at night and the problem cleared up, so maybe the wrist issue was not due to the medication. I'm getting regular checkups by an opthamologist to monitor any vision changes, but I feel like it might be starting to affect my vision, although the opthamologist said there were no meaningful changes from my last checkup. I concerned that I'm developing negative side effects from this drug and will speak to my doctor about this at my next checkup. F 60 8 months
300 1X D
1/6/2013
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 2  Autoimmune disorder I would be walking normally, then I would just fall forward. I went through many tests including a spinal tap. It is a very rare side effect of Plaquenil I was told. Since stopping it I have not fallen. F 53 90 days
1X D
1/1/2013

 3  Sjorgren's Syndrome Having issues with swallowing and feeling like food is stuck at the back of my throat? Has anyone else had this issue? F 44 1 weeks
200 mg
12/20/2012
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 4  MCTD, Sjrogren's Syndrome I have loss of appetite, but no nausea. My hair color seemed to lighten and my skin looks more tan-doctor said pigmentation changes aren't unheard of and not be concerned as long as no visual changes. My body seems to tolerate this medication fairly well. Definetely feel better on this medication than off it. It took about 6 weeks to work, but once it did, I noticed a world of a difference. My hands were once so swollen I couldn't wear my rings anymore, I was in constant pain, sleeping very poorly, and had absolutely no energy. After 6 weeks, the swelling went down. At two months, I started sleeping through the night and the pain had faded to a dull ache. Now I am virtually pain-free. I'm a preschool teacher, and I have more energy than my students! F 25 3 months
200 2X D
12/2/2012

 3  Lupus/UCTD/spondylitis At first was very difficult - not sure what was my illness and what was side effects. Low blood pressure and low blood sugar, shakiness, nausea, diarrhea. Lots has gotten better and plaquenil has really helped with my chest pain and joint pain - they still get red/swollen but don't hurt like before. Did make my blood work a bit wonky at the start. Make sure to get your eyes checked - my ophthalmologist said the people who have to worry are short people. I have had periods of easy bruising, hair loss and mouth ulcers but it's likely just my illness. I have had troubles sleeping and with nightmares. F 24 4 months
400mg/day
11/23/2012

 1  Possible autoimmune disease Migrating joint pain, itchy tiny rash with barely visible fluid apex, burning mouth, gastritis, malaise, a couple of welts on upper abdomen that I thought were boils brewing. I've tried to take this three times and I give up. I feel much more healthy not taking it. My primary complaint is fibromyalgia or possibly Lyme disease with a large side of IBS. F 57 3 months
200mg 2X D
11/22/2012
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 1  Connective tissue disease Nausea, severe stomache pain, tongue raw, gums swollen, sore, bumps on the roof of my mouth, my knee pain is better but side effects are intolerable not able to eat have lost weight F 47 2 months
200 mg
11/9/2012

 2  RA I have always taken this drug with food and have never experienced any side effects. About a year ago, I was diagnosed with both Osteoarthritis and Rheumatoid Arthritis. At first I was put on 12.5 mg. of Methotrexate per week but didn't really notice any relief. Plaquenel was added about 6 months ago, and although I haven't experienced any negative side effects, I also have not had any joint relief. I saw my Rheumatologist yesterday, and he now thinks I am only dealing with OA...Not RA. I feel like I am living from appointment to appointment and have e-mailed my doctor today requesting a referral for a second opinion. I definitely want to get off Plaquenel ASAP but don't know if I can just "quit" or if "tapering" is better. I would love to get some input from somebody who has gone through this. Many thanks...Nancy F 70 6 months
200 mg 1X D
10/3/2012
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 3  RA, Sjogren's vomiting, diarrhea,rash that itches, sun sensitive, return of menstrual cycle after 5 yrs. After this short amt of time I have less pain. My fatigue hasn't gotten better yet. My dr says it may take up to 3 months before it helps all my symptoms. F 48 26 days
200 2X D
9/2/2012
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 3  Mixed Connective Tissue Disease Still have deep pain throughout my body, have taken with Predisone, pain worse without Plaquenil, going to a Nutrionist and Endocrinologist because Metabolism is not working properly, have some symptons of Lupus, Just want to feel normal again; every joint in my body hurts F 54 7 months
200 mg 2 x
8/28/2012

 3  RA Severe stomach pain, it has gotten better but still has not gone away after 3 months, Headaches and itching. I have small itchy bumps all over my body. Plaquenil has really provided tremendous relieve from the pain, but the side effects make it almost impossible to tolerate. F 47 3 months
400 2X D
8/28/2012
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 5  Lupus I have been taking this for more than 20yrs. If you give it a chance barring side effects it does work. I got a little diarrhea at beginning but calms down. Best to start slow then increase. I have tried not to take it and my joints get very bad. I am faithful about eye exams. Very satisfied. F 56 10 years
200 2xd
7/18/2012

 2  Rheumatoid Arthritis Stomach & eyes seemed to tolerate it well, but I did get shingles, a complex breast & axillary (arm pit) cyst on the opposite side most affected by the shingles & a nasty bronchitis-type infection I'm still fighting off a month after stopping it. I'd never had bronchitis before that I recall. Seems like my immune system just couldn't handle it. My hair color changed from blonde to brunette (friends & family asked if I had my hair dyed - I didn't, and have quite a few gray hairs now I didn't before & hair loss too.) It did help the RA pain quicker than I thought, so getting sick, the breast issue (which seems benign, but we're not sure if it's a benign cyst or cancer, which in some women apparently this drug can cause - I suspect because it can suppress your immune system? I'm not sure, but I still have breast swelling, itching & a fairly large cyst(s) - my right breast is heavy, chest wall is painful, itchy at times & red. Antibiotics didn't do anything to h This drug seems to work well for the RA pain & it's my understanding it helps slow or even halt the bone damage, but the problems I had clearly outweigh the benefits, so my rheumatologist took me off it. I also have hepatitis C, which was likely from blood I was given during surgery as a child, which is why the doctor couldn't give me methotrexate (MTX) and many other RA drugs, I had Graves' disease as a child (thus the surgery, that involved quite a bit of blood, that in those days wasn't screened for hepatitis C & although my levels of hep. C are very low, may be why I didn't tolerate this drug. After about 2 weeks I did notice a bit less joint pain & by the 3rd week it was very clearly starting to help (the rheumatologist said it could take 6 months for it to work, but I'm VERY sensitive to many things & I did notice a change for the better for the joint pain until I got sick, then it was far worse. The 4 rating on this site says, "This medicine helped", 3-"Somewhat Satisfied - this medicine helped somewhat" yet a 2 says, "this medicine did not work to my satisfaction", thus my rating. This medicine worked for the RA, yet because of the complications, it clearly wasn't worth it for me. My sister had similar problems, so it may have to do with this medication and genetics. Hopefully some day they'll be able to test genetics in advance, IF that is the cause of the problems (she doesn't have hepatitis, or other problems F 48 37 days
200mg 2X D
7/18/2012

 1  tendinite polimialgia diverticol vista appannata , sonnolenza , 2 incidenti auto ho avuto 2 incidenti auto e problemi agli occhi . sparito pene , problemi vita sessuale a zero per il pene sparito . il beneficio mi sentivo bene calmo e guidavo auto da cinque a venti kilometri ora per paura e tutti dietro a suonare clacson . vorrei smettere prendere plaquenil M 62 22 days
20 2X D
7/6/2012

 4  Lupus/Rheumatoid Arthritis This has been a miracle drug for me. At age 16 I was unable to get out of bed due to pain and fatigue. After a month of taking plaquenil 400 mg. each morning I slowly improved. I had no hives or allergic reactions. My vision has grown increasingly blurry and I have noticed this fluctuates depending on how stressed or tired I am. I am 25 now and have to wear 1.75 strength reader glasses, and anticipate having to wear glasses daily within the next decade, but this side-effect is worth it considering how helpful Plaquenil has been for me. I read a lot of the reviews from other patients and my sympathies go out to all of you. We all know our bodies are very sensitive, so I would not write off this drug, it really does work miracles for some people. I have found that high doses of Vitamin D (5000 I.U. every day for 2 weeks) and high doses of buffered Vitamin C (1000 mg. every 2-4 hours) has really helped my inflammation and well being. Good luck to you all. F 25 9 years
400 1X D
6/30/2012
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 5  Ray's, Fibro and undiagnosed Extreme stomache cramps and some confusion but overall starting on 100mg and increasing to 400mg after 3 days, I've been feeling better and better since day one! F 34 9 days
400
6/28/2012
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 4  probable sjogren's some GI discomfort initially, but it went away. itchy rash on trunk for around 2 weeks before it went away. sun sensitivity. some mood issues, but mild. initially some wild dreams. took a few weeks to feel effects, and then i swore i'd NEVER quit taking the drug - my joint pain left and my energy returned. doc mentioned decreasing the dosage and i gradually left off one dose/day, but had a flare up and returned to full dosage. the second time my energy returned, but still some joint pain, particularly in elbows, wrists, hands. also fairly photosensitive. F 61 7 months
200 mg 2X D
6/24/2012
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 1  Fibromyalgia/lyme/bartonella took the edge off my pain but doctor never told me about eye problems. Tons of eye problems that have not gone away even though I've been off Plaquenil for some years!! About 9 months after starting Plaquenil, started having vision issues, difficult to explain. Couldn't see or focus on fast moving objects, blurred, like a thick film over my eyes. Could see a fast moving ball in maybe three spots on its trajectory but otherwise blurred. Difficulty reading, same kind of film sensation over my eyes. Symptoms have not improved. Eye tests don't show much of anything...some pigmentation dislodging and loss. Not getting better at all. Would not have taken Plaquenil if had known about visual effects but doctor never told me. M 44 4 years
? 2X D
6/19/2012
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 2  SLE lupus I have been on plaquenil for 4 yrs at first it seemed to help with the joint pain & fatigue & i am a lover of the great outdoors, horseback riding, gardening, ect. But know am having serious gastro, bowel, (afraid to leave my home for fear of accident)headaches, severe depression, spoke w/dr. We will now discontinue the plaquenil and start benlysta. Have taken it before it did not seem to be as effective for the pain, but did help w/other symptoms. Was at least able to have a social and active life again. One other note my eye site was always blurred after taking the plaquinel as well. Never could get good eye exams and have glasses that are the correct strength. F 50 1 years
2x d
6/16/2012
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 4  RA No side effects whatsoever at first. A few weeks after I went down to 1 a day I noticed floaters in my eyes. Didn't make the connection until about a week later that they were caused as a side effect from medicine. Love this drug. Besides the eye effects, I would much rather have it then the pain & stiffness of RA. I will continue to get eye exams every 6 months, so far so good on my eye exams. I usually only take this medicince half the year, when needed. F 36 10 days
200mg 2X D
4/17/2012
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 2  RA headache,nausea,extreme gastrointestinal upset, muscle cramps and frequent copious nocturnal urination (anyone else?) I have had severe arthritis symptoms for about a year now. Initially treated with a combo of NSAIDS and prednisone, I experienced great relief. As time went on these meds stopped working and Enbrel was added...finally plaquenil was prescribed to enhance the others meds..I feel like with each pill I am taking poison..I've never had a medication affect me so profoundly..with each dose I am more sickly than the day before..after reading the reports of others, I can't help but have severe reservations about continuing this medication..considering living with a higher acceptable level of pain vs unbearable nausea...I have temporarily stopped taking it until I consult MD F 51 8 days
200MG 2X D
4/1/2012

 5  Sjogrens and Lupus Its wonderful. Only symptoms were the first 2 or 3 days I was a bit depressed. My appetite is a LOT less but then I needed to lose some weight. But after that, I felt better and better. Its been a miracle drug for me. My eyes stopped being dry; mouth no longer dry either. Increased energy; better spirits. My joints only hurt a little now so I take some tramadol. Overall, It's a miracle drug for me. I love it and I don't know what I would have done over the last 6 months without it. It saved my life. F 65 6 months
200mg 2X D
3/26/2012
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 2  ??? +ANA/possible SLE or MCTD ?? Headaches daily, fatigue, weakness, flatulence, depressed 1st week with anxiety, generally ill-feeling. F 36 3 weeks
400mg 1x/d
3/21/2012

 3  SLE On the original dosage I was suffering from chronic diarrhea and hair loss within two weeks. Second time around (with 200 mg taken at morning and night 4 days a week) these have taken longer to kick in. Have started to experience a lack of motivation and feel like I am not quite connected to the world. I am also quite anxious for large parts of the day and having never been a big sleeper I am sleeping even less which isn't helping me cope with anything else Am relieved that I am not going mad with respect to the anxiety and the insomnia, but I agree that the benefits even after such a short space in time have been worth it already. F 46 28 days
200-400mg 1X D
3/17/2012

 4  SLE Lupus First two weeks had minor nausea and some bloating. I have major IBS so I didn't even realize it was from the drug until looking back on it later. I have noticed a bit more occasional IBS symptoms depending on what I eat since being on it but really not much worse than I have been in the past. Wholistic stuff and Prilosec helps with that and again, I have always had major stomach issues plus I take a ton of other stuff for sezuries since the Lupus is in my central nervous system. Other than that no side effects and I am a side effect type of gal. Before the drug I was non-functioning. Couldn't work, couldn't spend time with my family and I had no life. After three months I started to notice some energy returning. After 6 months I was hiking again. Now the initial big energy boost didn't last. The Lupus flares did return but overall I would saw I am better on Plaquenil than off. Lupus still sucks big time and it is always up and down but I wouldn't be funtioning without Plaquenil. F 37 18 months
400mg 1X D
3/14/2012
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 5  SLE Stomach sensitivity, doctor told me to take Prilosec which helped. I use to be on Prednisone for 3 years and it helped in the beginning but later I was in a lot of pain. Plaquenil is like a miracle drug! I feel like a different person, today i can run, go to the beach, and stay very active (the sun doesn't bother me) and had consistently perfect blood work in the last year. F 34 2.5 years
200mg 1X D
3/10/2012
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 3  Rheumatoid Arthritis Flatulence, headache, diarrhea, upset stomach UPDATE to my posting on 1/14/2012: I have been on Plaquenil for 7 months now. For the last two weeks I have found that it has reached it's limit on helping my pain and that my joints are constantly stiff and achy. I have been taking Naprosyn 1-2x a day to help the pain, but it is just barely taking the edge off. The upset stomach, flatulence and headache are gone. My rheumotologist is now adding Methotrexate to my regimine, but not taking me off of Plaquenil until she is sure MTX is working, so that I don't lose all of the benefits of the drug and be in more pain. While the medicine worked for the first six months, it was nice being pain free. But not all medications work for everyone. Explore your options before settling on or rejecting a medication. F 29 7 months
200 MG 2X D
3/9/2012
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 2  discoid lupus woke up one morning with severe rashes on back, chest, neck area, and buttucks area, went to see my dermy, and waiting for biopsy to see if allergic to it, or flare up stopped taking it after I noticed the rash, not sure how long if I was allergic to it that the rash will go away F 50 3 weeks
200 1X D
3/9/2012

 4  Sjogrens Syndrome I had rashes on face, neck, inside of elbows, behind knees and all of Sjogrens symptoms. When started taking plaquenil I had crazy dreams at first. After 3 months I feel so much better. My energy is not back 100% but I feel that I can function with my busy teenagers schedules. The rashes are much better and if they start to come back I just use some hydrocortizone lotion in addition. I worry about my eyesite and if it will stop working over time. Have pain in joints during the night if I miss a dose. F 46 3 months
200mg 2X D
3/3/2012
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 1  Lupus and Fibromyalgia After 2 weeks of being on Plaquenil had allergic reaction. Broke out in hives from head to toe, also had to go to emergency room due to face, lips and throat swelling. I was prescribed Prednisone for allergice reaction and also had prednisone injections. Was overdosed on steroids which caused physocisis, mania and terrible heartburn. It has been six weeks since taking plaquenil and still having hives. It has been awful experience F 46 2 weeks
200 mg 1X D
2/28/2012
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 1  Inflamatory arthritis Nausea, stomach cramps and diarhea, headache, weight loss, fatigue, general "unwell" feeling. i was on generic plaquenil for a month. Took myself off of it because the side effects were worse than the disease. My rheumatoligist talked me into trying brand name plaquenil last week, saying that possibly it would not affect me as the generic had. After taking it for less than a week, I am having the same problem I had with the generic. Also talked with my opthamologist and decided that the risk to my eyesight was not worth it. Now I'm just trying to get it out of my system so that I don't feel like this. I can cope with the joint pain better than with the side affects caused by this drug. F 65 1 months
200 mg 1X D
2/19/2012

 4  MCTD, Sjogrens, Reynauds, Fibro Occasional nausea, diarrhea, gastro issues, HTN with tachycardia. Nothing that would outweigh the benefits I have experienced. Also got itching on legs that turned into severe ugly bruises about a month into taking meds and then went away until it happened again about a week ago. However I am on a few other meds and cannot say for sure it's the Plaquenil causing this. Seems to be working great for me! I also believe that I feel well due to my positive mind set and the fact that I am very active. I've been at the other end of the spectrum before with negativity and depression and I see a world of difference! Good luck to all of you suffering with auto immune disorders... if Plaquenil isn't working for you I hope you find something that will! F 35 5 months
200 2X D
2/9/2012
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