COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  TIAS Dizziness no energy felt like my legs were on fire painful bones body ached all over could'nt understand what was wrong with me, my Dr. has now put me on baby asprin and the difference I feel is unreal feel like I am back to normal. F 67 8 years
11/5/2007
Email
 5  amputee, dvt tenderness of skin, no bruising, swelling or other visual signs. F 65 9 years
8/15/2004
 5  DVT, PE , genetic clotting Extremely lucky not to have side effects that bother me.. no headaches or weight gain. Hair loss, but guess that's more age than medicine. With my second blood clot, dr said I just barely missed having a "catastrophic event". I would be dead without coumadin. Both parents died from PE before family realized they each carried an inherited blood disorder. When I started on coumadin, dr told me not to change my lifestyle. Told me not to eat a lot of food with high vit K, but to go ahead and have salads everyday if I want and the dr would adjust my coumadin to my diet. I still play tennis 2-3 times a week (I do bruise badly if hit by a ball, but figure that is a small price to pay to be alive), and eat pretty much what I want. I have been on 10 to 12 mg daily for 9 years and my monthly INR stays pretty much in the acceptable range. M 59 9 years
9/29/2008
 4  Multiple DVT's Based upon what I am reading, one of the major side effects is weight gain. Since I've been on Coumadin this time is weight gain. I've gained approximately 50 lbs. over the last 9 years. I've had DVT's 3 times and a PE once since the age of 22. My last DVT's was 9 years ago. It was possibly caused by excessive air travel. Since that time I have been on Coumadin and will be on it for the rest of my life. F 50 9 years
17.5 1X day
8/11/2010
 5  I'm a clotter it runs in my family your either to thin or not thin enough , weight gain If it hadn't been for Coumadin : I wouldn't be alive today , I've had clots in heart my lungs and my legs and my brian as well, I even had 1 blow up in my lower part of my head I'm very very lucky to be living and alive the clot had caused a stroke and ever since then I have major migraine headaches daily and taking meds for them and will be to no end , Tho taking this med changes your life is because you have to be very careful, I have been on it for many years and will be for the rest of my life , I did gain weight while taking this med and yes it hard to lose it but it takes will power to lose it , eat a normal diet and you'll do fine F 47 10 years
8/5/2008
Email
 5  recurrent dvt and pe None I had to watch my diet and do blood tests but the routine became easy. I'm very grateful I could cure my clotting issues. I switched to Xarelto for ease and it's been very easy. No side effects from either. M 54 10 years
10
6/1/2019
 4  Several blood clots in left leg Burning in legs and butt area loss of hair brittle nails bloated stomach bruising cold tiredness but this drug saved my life Saved my life but I have to take name brand and it is expensive F 73 10 years
4mg a day
3/22/2016
 4  Several blood clots in left leg Burning in legs and butt area loss of hair brittle nails bloated stomach bruising cold tiredness but this drug saved my life Saved my life but I have to take name brand and it is expensive F 73 10 years
4mg a day
3/22/2016
 4  Anti-phospholipid; 3 strokes Tiredness and fatigue mainly. Some depression including one severe case. Disrupted sleep patterns - either too much or not enough. Also on a lesser scale aching legs, stomach cramps, bloating, and sensitive skin including sun burn very easily (ie while wearing sun screen). None of these things were a problem pre-Coumadin. INR fluctuates wildly at times and has never been considered stable. It is not the nicest thing to be told the drug you have to take for the rest of your life is a poison, but without it I would be either dead or brain damaged. Coumadin, for all its problems, has more than likely saved my life (which is why I rated it a four). I have often spoken to my doctor about the tiredness, had any number of tests but never put it down to the Coumadin. Seeing that about half of the respondents cited tiredness or fatigue I guess I have my answer. It sounds strange but it is oddly reassuring to read about the common experiences so many have had and feel "normal" for a Coumadin patient. Until something better comes along I will stick with it. Thanks to all for sharing your experiences too. Stay well. M 37 10 years
2/4/2008
 4  Factor 5 - two dvts different times WEIGHT GAIN, water retention, fatigue, joint/muscle aches, hair loss, dizziness I am told by multiple doctors I need to be on coumadin for life. I am tired of the side effects, and the doctors not listing when we, the patients, tell them of the side effects. The weight gain started when I went on coumadin, before that no issues. I walk four miles a day plus do additional exercises, watch my diet, it does not matter. The only time I have felt cleared headed, no joint pain, and lost weight since being on coumdain was when I had major surgery and used heparin instead of coumdain. I am going to investigate natural options such as foods that thin the blood and see if other things can be done instead of taking drugs. F 51 10 years
10 mg 1X day
8/11/2010
Email
 4  DVT 2X and Pulmonary Embolism 2X Often experience cold hands and feet. Beginning of hair loss may be side effect. I am grateful for this drug since it is keeping me alive but I want to be off it sooo bad! I want my life back...I want to play hockey and football again without the risk of getting serious bleeding. M 37 10 years
9/16/2005
 4  DVT - right leg Obviously, bruise easier now. Definitely get colder easier than before the coumadin - kind of a deep chill that takes a long while to go away. Cold hands & feet. Stomach upset, especially gas. (Also take Plaquenil, so I get a combined effect.) Have had no recurrence of DVTs, but have antiphospholipid syndrome, so will remain on the meds indefinitely. Have had a few problems with ovarian cysts & had one rupture about 3 years ago - not a good thing when taking coumadin - bled out & had a clot form in my abdomen the size of a honeydew melon. Also have Lupus, so hard to say whether the coumadin is a factor in my fatigue. Dosage has been very stable over the past few years - now only have to get tested every 6 weeks. F 33 10 years
10/14/2005
 3  pulmonary embolism Extremely annoying tingling sensation and sharp pin-like pain in feet,legs and hands when I am in bed at night or if seated for too long. Used to get numbness in face,legs and arms but that had subsided. I am grateful for this medicine because it has helped me. However,I do not enjoy the side effects I get by taking it. I wish I can say I'm looking forward to the day I no longer need it. That wish was crushed when my doctor said I have to take it for life. 😭😭 I'm glad to know that there are people out there on coumadin who are experiencing the same side effects as I am. I was made to believe that this medicine has no side effects. The crazy thing is, none of those people are on it. 😕 F 43 10 years
7 mg/daily
2/9/2016
 3  DVT I took this medicine for 10 years. I thought I had all of the side effects everyone else is complaining about.... However, I have recently quit and I still have headaches, stomache aches, insomnia, blurry vision... Maybe it wasnt the coumadin.. F 44 10 years
11/19/2009
 3  Dvt Itchy skin. Bruising. Phlebitis cellulutis. Hemorrhages heavy periods constipation aches pains. Cold summer and xtra in winter. Runny nose. No growth in my nails. Restricted to concieve a baby. Doctors tried to tell me i wasnt allowed to have a kid. Its a pain having ur arm pricked every 2 weeks or week. Whens this warfarin going to be replaced with xarealo? Compression socks are unfashionable unsexy and are like bin a grandma. Theres too many strengths of tablet and why cant there just be one single tablet instead of pinks browns plus blues etc that u have to count urself. M 42 10 years
19 mg
4/13/2016
Email
 2  Heart valve replacement Cold, itch if blood is thin,headache, bruises They can't get it right F 68 10 years
10&12.50
10/4/2016
Email
 1  DVT Hair loss tired all the time, body aches headaches legs hurt a lot. I hate taking it . I did stop taking it at one time but blood clots got much worse. So have been back on it again for years . I thought it was all just me until I read what others are having the same thing . F 73 10 years
5mg 1X day
10/18/2011
Email
 1  Doctors misdiagnosed me Fatigue, severe hair loss, nausea, severe head aches, stomach aches, pain throughout my body to the point of not being able to walk, skin discoloration, skin falling of my leg, hives, severe itching, bloody eyes, blood blister hanging from my eye, shortness of breath, weight gain, irritable, exhausted all the time, facial problems - veins popping, breaking out, 10 years instead of six months of Warfarin, rat poison, I feel have slowly taken away my life. F 60 10 years
4 mg 1X day
6/17/2011
Email
 5   Just the usual bruising and a little additional bleeding when I cut myself. I have a blood clotting disease, APS, Coumadin has saved my life. M 76 11 years
7/5/2009
Email
 4  Factor V Leiden I have been on Coumadin since 1998 got my first blood clot in 1995 and after surgery in 1998 was diagnosed with Factor V. Really I haven't had any side effects. If it wasnt for coumadin I would not probaly be alive.. Living with Factor V you have to be on coumadin the rest of your life. Right now I am off the coumadin and taking Lovinex shots for I am having 6 teeth pulled. In 2005 I had a tooth pulled and ended up with a clot in my colon..that was scarey.. have had clots in my right leg and lung.. F 47 11 years
12/13/2009

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