COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  DVT Hair Loss, Headaches, Mood Swings, Nervousness, Weight Stabilization (I can't seem to lose weight) I developed a DVT after a bunionectomy. My hematologist performed lab tests & found I am Positive Factor V & also positive anticardiolipin. It seems that patients who have Lupus have the positive anticardiopin HOWEVER, I have tested negative on all counts for Lupus which puts me in the "rare" group. Due to these two positive lab rslts, I will be on Coumadin for the rest of my life. At the beginning, my INR was very regular. I have to be at a high(about a 3.2). However, in the past two yrs, my dr cannot stablilize my dosing. My headaches are recurrent & I was put on high blood pressure pills for my migraines. I feel as though this treatment is a cop-out. To this day, I still feel very strongly that my headaches are contributed to the Coumadin. When my dosage changes from mth to mth, it takes a toll on my body. This is when I become increasingly tired & without a doubt, more headaches are observed (BY ME!). It's as if my body is trying to adjust to the ch F 38 7 years
6/3/2008
 5  Lupus Like Anticoagulant I am cold sometimes and sometimes tired. I do have headaches, but I believe it is from lack of Estrogen. I take Topamax 2X daily to help them. My knees get achy, but I work in a job that requires me to stand and it is on a tile floor, so this could be the problem. I do take a nap when I am extra tired. I just listen to my body. My fingernails do not grow very well any more. I will be taking this for life, so I am just trying to make the best of it and living life to the fullest! I have not had any hair loss. No problems with weigh gain, as I do strength training 3 times a week, yoga one day and a couple days of cardio. I eat every 3-4 hours daily and I am very consistent with what I eat. I believe that my INR is in range because of my eating and exercise habits. This also helps my attitude. I do have to take name brand, Coumadin, not Warfin in order to stay in range. F 56 7 years
10 mg 1X day
3/14/2011
Email
 5  Bipolar pulmonary emboli At first, any cut or scratch that I got bled quite profusely for perhaps 5 minutes. I have the odd spell of mild dizziness, but don't know if that's from the warfarin or not. I've experienced mild chills when relaxing in my recliner, but I don't notice them when I am up and moving around. I bruise easily, but bruises are not painful. My first experience with blood clots in my lungs in Jan of 2004 saw me in hospital for about 8 days, on a heparin drip, and pills. Once my dosage was regulated and I was able to go home, I have had few problems with it. However, the internist let me come off it after two years, I was off it for approximately 3 months, and the blood clots came again, so now I am on it for life. It isn't a problem for me, no trouble regulating it, and have my blood test once a month. I eat pretty much what I want and it doesn't seem to affect it - i.e. grapefruit, cranberries and their juice, greens, etc. I always did eat all of those things and have not had to change my diet. The chills were bothering me a little, hence my interest in this site. They are not really bad, but are somewhat annoying, and I wondered if the warfarin could be causing them. F 84 7 years
4 & 4.5 mg 1X day
1/23/2011
 5  heart valve replacement Often feel chilled to the bone. Tired. Use to have a lot of patience and now get quickly frustrated. Bruise easily. Sick to my stomach all of the time. Take it to keep alive, however, long for a day when I am not sick to my stomach and feel cold,tired and edgy. Wish someone would find an alternative or a diet list. M 58 7 years
9/24/2004
 5  3 DVTs I'm always colder then everyone else. I didn't think it was the coumadin but now I see it might be that. I also think I get out of breath quickly. I feel like my blood is too thin. Today 7-1-05 It was about 85 degress and really humid. I was cleaning deck chairs with my son and by the time I finished I was sweating profusely and thought I was gooing to pass out. I get out of breath easy I can't walk up the stairs withoug getting out of breath. Yes I am overweight. M 49 7 years
7/1/2005
 4  3 DVT's lower left leg Have not really had any side effects. Have recently been having frequent headaches, but I don't know if that is truly related to the medicine. Found out after my DVT's in 1998 that I have a Factor V mutation and was initially put on coumadin life long. Had to switch to heparin while trying get pregnant and then pregnant w/my son. After that was told I didn't really have to be on it life long, so there was a gap of about three years of no medicine - and I worried every time I had a pain in my left leg. Was on Lovenox while pregnant w/my daughter (born in 2004). My hematologist told me that the opinion had changed and I really **should** be on life long anti-coagulant therapy so went back on to coumadin. Because of my insurance I had to switch to warfarin and have not had any regulatory problems - my INR has been between 2 and 3, and my dosage is 7.5mg M,W,F and 10 mg the rest of the week (I get checked once a month and have been on this dosage for five months). I truly do not like taking this medicine, but I feel much better about taking it rather than having more clots. I recently found out that both of my children inh F 37 7 years
1/24/2006
Email
 4  Massive PE 2001, PTE surgery 2002 Clouded memory, word mixing, short term memory issues, extreme nervousness in stressful situations... As for my Weight gain I believe this to be due to too many cheeseburgers and not necessarily the warfarin. I have days where I feel like crap, but I put my mind towards getting off my behind and doing something constructive. Usually after I start doing something I feel better. I am a lifer on this stuff. Have been taking it for 7 years now. I do find that I have trouble mixing words in stressful situations like giving presentations or talking to my boss...makes me feel like a retard sometimes...Oh well, I just get over it, life is way too short to stress especially over what other people think. I do not have any other issues really...I play bass in a rock band and do not have problems learning songs so doing what I love is not affected by this. Yes it is a poison, but so is breathing Los Angeles air. The choice is yours, and a positive attitude is 100% the solution. M 29 7 years
7/2/2009
 4  chronic dvt, 4 blood clots hair loss, weak left leg (no more heels), extreme fatigue, heavy periods, memory loss, nausea, bloating, leg swelling I tried to take myself off of Coumadin 3 times. I hate the drug, but I love life so I deal with it. Each time I took myself off I ended up with another blood clot in the same leg. F 49 7 years
10mg 1X day
8/27/2015
Email
 3  3 DVT in right upper thigh Headaches, heavy periods, irritable, itchy skin, hair loss, hot and cold all the time. I have been taking coumadin since 2000, 2 months after the birth of my daughter. I was on coumadin for a year and a half. Doc said it was ok to get pregnant again. 6 weeks into that pregnancy, I got another clot in the same area. Then a 3rd clot in 2005. I am now on coumadin for the rest of my life. I have constant pain and swelling in my leg. I have to wear the anti-embolism stocking. I have had all the genetic testing done and everything comes back negative. However blood clots have been on both sides of my family. No one can give me an answer as to why I get blood clots, so therefore I can't go off the medication. I take Zoloft for stress, and was taking Topamax for my headaches (which made me feel like I was in another world). I took myself off of the Topamax, and now the headaches have returned. I hate having to deal with this everyday, especially for the rest of my life. I have also taken Lovenox and Heparin injections, which make me more sick. I cannot get my INR at a F 29 7 years
1/28/2008
Email
 3  Aortic and Mitral Valve Replacement Cold in winter, very tired, spacey, slight to moderate depression, no weight gain, lost weight, no hair loss, sex drive lowered Taking it for life 10mg per day, able to stabilize PT/INR level as I measure my lettuce, greens, etc very carefully, have been stabile - on same amount - for years. M 45 7 years
6/29/2007
Email
 3  DVT in my right leg from taking Yaz Fatigue, memory loss, dizziness, bruising, headaches.. In general I am not the same person I was before. I can no longer work in the field I was in for 24 years. I was in the Meat packing industry, but my doctor advised me to leave my job due to the medication and my usage of knives. After taking Coumadin and knowing how it makes me feel, I could never do my job as a Meat cutter again, I do not have the energy or the strength anymore. I have shortness of breath as well and I never had that prior to taking this drug.. F 47 7 years
7.5mg 1X day
2/11/2013
Email
 3  Dvts and PE's Always tried, numbness in fingers, hands, feet and toes. Aching muscles. Not sleeping well. Weight Gain, heart palpations, out of breath and lack of concentration. Always forgetful. And I have just been diagnosed with mild osteoporosis. After reading all the comments, I started doing more research. All the symptoms listed are for anemia. Thin blood. The symptoms are real but there is nothing else to treat long term clotting and the side effects do not outweigh the results. It’s a struggle but I will continue to look for alternate treatment for blood clots F 52 7 years
7.5 1X day
9/26/2011
Email
 2  aortic valve replacement I have had migrains for over 25 years, now the headaches are worse, with new dx of occipacal neralgia (nerve HA). Mood swings very irritable and snappy. Gastro upset (bloating, gas, pain in right side) ct, xrays and US all negative. Pretty much feel crappy all the time with no energy. Just thought it was me until I read this sight. I am a CMA and work at a clinic. Thought I was going crazey until I see many people feel the same. There is hope, Im in the medical field and the drug companys have been working on an alternative drug which wouldnt interfere with food and vitamins. This is the most frustating thing with this med. I like my greens, sneeky trick one large salad/broccili one drink, keeps your INR in range. For people that complain about chest pain check your magnezium level, mine was low due to decreased vit k intake. Low mag. causes muscle spasms, which your heart is one big muscle. Im sensitive to any adjustment done on my med., for people that dont stay in range, the generic has a tendency to flucuate your INR. I pay a higher copay for coumadin and my ranges are now stable. Plus the generic gave me the worst acid reflux I had ever had. Hope some of this helps others. Wish the ins. company's would read this sight so I wouldn't have to pay 40 instead of 10. F 43 7 years
12/1/2007
Email
 3  Mechanical Mitral Valve I've experienced fatigue, forgetfulness(short term), depression, loss of motivation to do "anything"; I just don't feel and act like I used to. After my first mitral valve repair, I felt good and had energy. Then after the second surgery and the valve being replaced with a mechanical valve (and the coumadin) I feel like I've been sliding away as each year passes. The first two years post surgery, my INR was across the board 1.2-9.2 and we couldn't get on top of it. I experienced several TIAs which led to neurological tests, a home INR monitor and several years of coumadin futzing. Now that I am not in a stressful(management)at work and I have a regulated schedule (sleep/food) my INR stays within range (3-3.5), the side effects seem to have increased in intensity. It is helpful to read that others have similar experiences with Coumadin. And I agree with those here who've been looked at in disbelief by doctors when they describe side effects not listed on the Rx, I just know that I have to take this for the rest of my life and that is disconcerning for my quality of life. M 40 7.5 years
12.5/15 1X day
9/9/2010
Email
 5  3 DVT, 1st when pregnant, Factor V Just some bruises from time to time. Normal to get a bruise, but they are darker since on coumadin. Being on coumadin saved my life! I had endometrial cancer post menopause, and it allowed me to bleed sooner than if I had not been taking coumadin, thus catching the cancer at a very early stage. F 62 8 years
6mg 1X day
5/5/2011
Email
 4  pigs valve F 63 8 years
5 mg 1X day
8/15/2010
 4  Mechanical Aortic Valve, a-fib Excessive bruising, some weakness in legs. vary between 3 & 5 mg daily. No real change in 'quality of life'. It is a pain in the butt when you need any type of surgery, the get 'off' then back on. M 75 8 years
7/10/2007
 4  AFIB None I can identify. I test at home each week on the same day & time. I call it in to a Company named Alere Home Monitoring. I got the original company name B/4 3 buyouts and consolidations from our daughter who does home health care. All your doctor needs to do is call in an Rx to them and they will send a kit to him to train you on how to use it. Their phone no. is 1-877-262-4669. They use a finger prick to get the blood sample. Also, if you are a little shaky you can support your arm (I use the original box the equipment came in and have taped it closed again, I also taped a white piece of paper over where I set the meter and guide my (with the other hand) finger to the test strip for the blood drop, as the test is movement sensitive while it is being evaluated. I then call it in to the company and if out of limits they contact my doctor, who then tells me to up or lower my dosage. I also, track everything I eat to keep other health life style concerns/problems under control I may have or want to avoid. To better get a handle on controlling my INR/PT/% (depending on which part of the world you live) I have gone to the United States Department of Agriculture www.usda.gov website and looked up "Home and Garden No. 76" which has over 98 pages (35 lines per page)of foods and over 40 nutritional values for each food. One of those is a listing of about 28 pages of foods with Vitamin K. By tracking K I have some control the amount of Vitamin K I take and i M 76 8 years
2.5to10
1/21/2015
 3  Protein S Deficiency Ever since I have started Coumadin 8 years ago, I got better but I feel like my body is going downhill. I keep having so many other problems especially in pain after I get hurt. I am a letter carrier for the post office and I tend to get hurt. After getting hurt, I struggle to get better and it taken forever to get better. I have a lot of burning sensation on my feet and hands.. The dr thinks it's all in my head.. They said it's not from Coumadin! No matter how hard I tried to tell them that the medicine is giving me problems! Am always complaining that I am in PAIN!! Yes I am also COLD!! Is there anyone here can really noticed that we have problems with the Coumadin and wake up those doctors and realize that there's a serious side effect. I can't go on working with all those problems!! Doctor don't get it!! F 49 8 years
10mg
4/29/2015
Email
 3  DVT AND PE AFTER C SEC TIRED, HAIR LOSS, WEIGHT GAIN, HEART FLUTTERS FROM TIME TO TIME WITH CHEST PRESSURE, NUMBNESS IN ARM, MEMORY ISSUES. ITS SCARY, I HAVE ALWAYS WEIGHED 110-115 NOW WEIGH 155 AND HAVE WEIGHED UP TO 163. I HATE THE MEMORY ISSUES AND ITS HAPPENING MORE FREQUENTLY. I HAVE NO ENERGY AT ALL. I HAVE SPOKEN TO DOC ABOUT ALL THESE THINGS AND I GET THE SAME ANS ITS NOT THE MED. AND I HAVE BEEN TOLD ITS A FOREVER THING FOR ME TOO. I WAS TOLD I WOULD BE A WALKING TIME BOMB WITH OUT IT. SO WHAT CHOICE DO I HAVE? F 42 8 years
9 1X day
5/23/2012

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