COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  My father was taking it for afib My father developed fainting spells and was off balance where he fell onto the concrete floor in the basement. My father's cognitive thinking was not well as he repeated a lot of what he said - never did this before. My father did not feel well being on the medication and knew close to his death that something wasn't right. There definitely should be a black box warning for elderly people taking this drug. My father's afib did not help in taking this medication and I have found out since that there are new drugs especially for afib that would have helped him tremendously. The new blood blood thinner might have affected his liver but they rate it as 6 percent. M 74 2.5 years
5 mg 1X day
6/22/2011
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 4  dvt,pe tiredness, forgetfulness,, pain in joints, chest pain,heavy periods headaches funny taste in mouth hair loss weight gain bloating depression etc. started on coumadin spoke to M.D. about side affects, was told these symptoms are not typical for coumadin users. F 44 2.7 years
7.5 mg5mg 1X day
3/30/2012
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 5  Massive PE with extensive thrombus breathless, chest and uper back pain, swelling left leg, pain inner thighs,palpitations, dizziness,cold hands and feet, hair loss, extreme fear of it happening again but not surviving the next time! Anxiety is awful, concentration diminished, totally exhausted and fed up. Can't sleep, I am on this drug for life and would still experience most of the initial side effects. I get daily headaches now which is a thing I never suffered from. The anxiety of it happening again is the worst thing for me now. I purchased a self testing machine which has somewhat alleviated the anxiety as I can test as and when I choose, particularly if I want to have an alcoholic drink or have taken too many 'greens'. I will be on the drug for life as there were no factors why I should have had such a massive PE. I never took the 'pill', I didn't smoke, I was extremely healthy and mildly exercised. I am slowly regaining my pre morbid state but I will never be the same person again. However if this drug keeps me alive I will continue to take it.....obviously! F 43 3 years
1/8/2007
 5  pex2 and Dvt Factor V and Fx 2 Appetite not as good as it used to be. Started getting anxiety and mild depression about 3 months ago, wonder if it's related. My Dr. also mentioned that having a drink is ok, just not the night before a blood draw. I am nurse, that helps with the knowlege of it, sometimes to much I think. F 38 3 years
1/3/2006
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 5  DVT and PE The only real side effect I have is an itchy scalp. I occassionally get these little red dots on my right leg where the DVT is but other than that I don't have an issues with this drug I am a lifer - Factor V both genes not too mention I have 2 femoral in my leg - only should have one both severly clotted 3 years ago. Was on birth control at the time. My INR is usually all over the place - I go 1x every month to get it checked. F 36 3 years
2/2/2006
 5  double pulmanary large emboli none. Careful avoiding getting cut. Got clots on trans Atlantic flight. Hadn't had this problem before on long flights. Probably genetic. Had several genetic tests and they were negative including MTHFR. Sister carries double defective MTHFR gene. Have stayed at 4 mil.1x a day all the time for stable PT control. 68 3 years
12/23/2009
 4  lupus anticoagulant Anxiety. If inr becomes too high i feel fluish if inr is too low i feel very tired. F 33 3 years
8mg
9/30/2013
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 4  Aortic Valve Implant Hair Loss, Weight Gain, Heavy Menstration I had open heart surgery in December of 2006 (I was 33) as a result of a dissected aorta. Dr's decided to go with an Aortic Valve Implant which, in their opinion, will allow me to live a next-to-normal life without another surgery. Unfortunately, I will have to be on Coumadin for the rest of my life and I probably won't be able to have children because of the need for Coumadin. I've been working out (swimming 1 mile & Bike 4 miles five times weekly) for two months now and have been frustrated because, while I feel my body changing, I have not lost one pound. Now, I'm wondering if it's the Coumadin. If so, there is not much I can do about it other than keep working out. F 35 3 years
6/21/2009
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 4  Anti Phospholipid Syndrome Thinning hair, easy bruising. I drink alcohol on weekends. Concerns me. F 56 3 years
7.5
1/24/2019
 4  Antiphospholipid Antibody Syndrome Well, I have had my share of problems from an unstable INR. My theraputic INR is 3.5-4.5 because I have reclotted on Warfarin so many times. I also have to take a baby aspirin if I do not want to have a full blown stroke. I have APS via the Lupus Anticoagulant. It has caused numerous DVTs, TIAs, amarousis fugax, heart attack and the like. I will be on Warfarin Life Long. As I read others stories on here, I can't help if everyone has been tested for multiple coagulapathies. For more information go to www.apsfa.org. This was one of the last ones they tested me for and it was one of the culprits. 33 3 years
10/23/2005
 4  Mechanical Aortic Valve Excessive fluid build up in my lower legs. Pain in both knees like a burning sensation. I've been on different doses of coumadin since Mar 2003 and it seems like when I have to take 5mg or more per doctors orders I get an excessive amont of fluid build up in my lower legs. I also get moderate pain / burning in my knees that can be overwhelming to the point where I have problems with climbing stairs and other daily activities that require "bending the knees" Has anyone experienced these side affects since taking coumadin? My email address is [email protected] F 49 3 years
11/20/2006
 4  Foot to hip DVT twice and FVL Very disabling joint pain in my knees, ankles, and hips. Also, joint pain in my shoulders, wrists, and fingers, but the most disabling side effect is the joint pain in my knees, hips, and ankles. I also experienced hair loss the first year in 2007. I'd be washing my hair and it would come out in bunches in the shower. One good thing is I've noticed this summer 2010, my hair has begun to fill in a little bit thicker. The bad thing is my joint pain has just gotten worse. After 3 years on Coumdain, I still feel as tired as I began to feel after starting the drug in 2007, and I still feel cold when other people aren't. But none of the side effects are as bad as the joint pain. I'm on Coumadin for life until another drug is created. If a new drug is created, I hope it doesn't cause joint pain because I cannot walk unless I take hydrocodone for the joint pain caused by Coumadin. I can deal with the hair thinning, the cold, and the tiredness, but the joint pain is the most disabling side effect I have taking Coumadin. F 55 3 years
7.5 mg 1X day
7/6/2010
 3  PE, stroke, aortic valve replacemen since my stroke on 2-24-2010, They have been unable to maintain my INR between 2.5 and 3.0. Was sappose to go home today from rehab hospital but INR was 2.3 so they made me stay. They give me lovenox injections plus coumadin 7.5 mg daily but so far can not maintain INR level. Dont want another stroke. Any suggestions? M 54 3 years
7.5/5mg 1X day
3/25/2010
 3  aortic valve replacement short term memory loss, inability to focus at times, weight gain, bloody stool, dry skin, brief periods of being cross-eyed. I had my aortic valve replaced 3.5 years ago and began taking warfarin. My father had talked about warfarin making him feel like he was "in a fog"sometimes and I can really relate. I often get words crossed up mid sentence, or forget a point I'm trying to make, while someone else is speaking. I've been overweight most of my adult life, but after 2 full months of excercising 45-60 minutes a day, 3-6 days a week, I managed to lose only 3-5 lbs, which at my weight can be just fluid. I have had bloody stool off and on for the years since taking warfarin and as my blood gets thinner, it is a constant presence. Twice during a workout and once in a store, I suddenly found that my eyes crossed and looking around made me nauseous. Once it lasted an hour and a half, one only 5-10 minutes, and just today less than 2 minutes. M 38 3 years
10mg/day 1X day
10/16/2010
 3  dvt right arm and protein c defi Weight gain, tiredness, body pains, cold all the time, headaches, irritable, levels are never consistent, dizziness I have gained a lot of weight since I started taking this med. I also have hypothyroidsim and this med throws my levels off and causes even more symptoms. I don't like the way it makes me feel at all! F 39 3 years
15 1X day
9/8/2011
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 3  atrial fib weight loss, and (possibly related) osteoporosis M 3 years
3/11/2007
 3  3 PE's Tired all the time-hot-night sweats-anyone else-trying to look up side effects (not very specific)-has anyone tried that-Gold of pleasure (wild flax) oil found info at siberiantigernaturals.com M 55 3 years
3/20/2006
 3  Aortic Valve Replacement Where should I start? Migrane headaches, difficulty swallowing/having to clear my throat constantly, fatigue, numbness of the skin on my hands/extremities, and severe PUFFY EYES! I take it only because I have to. Since I have so many side affects I'm also worried about jaundice/liver damage M 37 3 years
10/19/2004
 3  Splenic infarct; multiple PE's The biggest concern is hair loss. As a 68 year old woman, I am terrified that I will soon be bald. In the 3 years on coumadin, I have lost more than half of my hair. I am truly weighing life as a bald person or taking my chsnces w/o coumiden. Does ANYONE have an alternate treatment that doesn't cause hair loss? Please help me. F 68 3 years
6/21/2009
 3  DVT in thigh, PE/Plumonary Embolism Swelling knees, back aches, often have difficulty sleeping due to lower back pain along the muscles of the spine, morning muscle aches from the kidneys upwards or muscle pain radiating out from between the shoulder blades, the lower trapezius. More frequent cramping in calves, fingernails are brittle (rip and chip more easily), fatigue/loss of physical endurance, slower to heal, sensation of blood rushing through my leg veins, maybe some minor memory loss as well, although it could be that I'm just getting older :) It is difficult to distinguish what might be a drug effect, what is due to clotting, and what is life, but it seems to me that since going on Coumadin the circulation in my back muscles is reduced when I sleep. I get woken up after 5-7 hours from the ache, and it only goes away with a massage or enhanced blood flow to the area from a little physical activity. Sometimes in the middle of the night I get calf cramps that I never used to get as well. Naturally I'm often more tired as I don't get the consistently unbroken sleep that I used to. The slight swelling at the back of my knees has made maintaining leg flexibility a challenge, but not an insurmountable one. My INR still fluctuates every few months between 1.3 and 3.4. All of this is a pain to manage but not life changing. As a seasonal labourer the most disturbing symptom for me is the fatigue/steadily declining physical energy reserves, although it may have more to do with hitting the 40s than Coumadin. Still, I am looking at other drugs like Rivaroxaban but the long-term side effects are unknown. Would love to go off Coumadin for 4 or 5 months a year so I could heal more rapidly during my work season. M 41 3 years
7.5 MG 1X day
10/16/2013
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