COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Factor V Leiden/3 Pulmonary Emboli cold hands and feet, always cold, have been experiencing chronic fatigue for the past 2 months, and decreased sex drive since beginning Warfarin. INR is always fluctuating. Must do weekly not monthly INR tests. F 20 1.5 years
5-7.5 1X day
9/28/2012
 3  Bilateral PE's Always cold! I have a hard time remembering names, this did not happen before I started coumadin. Had to go down to San Diego for evaluation for PTE surgery and was switched over to lovenox before I left. Due to some reaction with coumadin and lovenox, I ended up in the ER puking up a total of 5 units of blood. Almost didn't make it. I have not been having side effects such as hair loss or pain, but I'm still not a fan of the drug. I ended up having the PTE surgery, and will be on coumadin for the rest of my life. I'm trying to find better alternatives! This all happened when I was 18-19. But then again, it could always be worse! M 20 1.5 years
alt. 5/7.5 1X day
2/24/2012
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 3  Factor V Leiden/ clot in Kidney Cold (chill to the bone)feet all the time some times there is nothing that can warm them,hands too but not as much, tingles in toes and fingers, Have noticed hair thinning, Dizzy upon standing almost passing out sometimes, tired, Compared to a clot I guess it's not bad. You can definitely tell when your levels need to be checked. I am considering going off coumadin for a time this year to see if symptoms come back. When I was off about 4 years prior to my clot, I would get severe double vision out of nowhere and I would have to wait for it to pass. I went to several Doctors but none thought of clots. My Doctor now said they could have been very small clots. I was also on the "pill" so that may have added to it and being off of it may help not to have these episodes with clots. It would be nice not to be cold all the time. Anyone else experience this? F 30 1.5 years
12/6/2009
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 2  Recurring DVT in left leg fogginess, no motivation, severe headaches, achiness and fatigue F 27 1.5 years
20 1X day
4/25/2011
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 1  Dvt/PE X2 Awful! FREEZING FREEZING FREEZING all the time! Numb painful arms. I finally convinced my Dr. to switch me to XARELTO I am hopeful I feel better on this! BAD stuff moved to XARELTO!!!! M 41 1.5 years
10 1X day
7/10/2012
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 5  anti-cardiolipin syndrome Hair loss, weight gain and a little more chilly than others. I spent a month in the hosp. after the birth of my son in 2001. I had multiple blood clots in my left leg and blood poisoning set it. It was scary... but I was so sick I don't remember much of it. Coumadin can seem scary, but the alternative of clots scare me much more. Feel free to e-mail me regarding this disorder. It is genetic and my mom and sister also have it... luck is on my children's side though, neither have it. I take 14mg daily. I wasn't actually dignosed until my mom was.. she had a clot in her portal vein (liver). F 38 2 years
4/7/2006
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 5  Have 2 artificial heart valves Bruise very easily and bruises take longer to heal. Any cuts I get seem to take longer to heal (and also bleed lots more than before.) I notice my heart beats faster at night, sometimes keeping me awake. Don't know if it's related to Coumadin or something else. It (heart pounding) has happened since my valve replacement surgery. Haven't noticed hair loss or weight gain. But, I'm much more sensitive to extremes of heat and cold now. I'm taking Warfarin. 5MG 3x's/week. 3MG the rest. I'd rather not be on this drug, but I have no choice. I'm thankful to God I was able to get new valves to keep me alive. Taking the medicine is necessary for my artificial heart valves. It was overwhelming, at first, learning how certain foods could impact my blood thinning. I'm used to it now. What I really hate is having to get my blood tested every 2 weeks... and realize I'll do this until I die. F 52 2 years
7/2/2006
 5  Blood disorder I have been on Coumadin for 2 years now. I use to go get my blood drawn every 2 days. Now I am at every two weeks my INR is always changing. I am on 5 and 6 mg a day. I had a P.E after they found clots in my left leg. Side effects cold and bruising, nose bleeds, and heavy periods. Nothing that I can't handle. I have a rare blood disorder Proththian Gene Mute (I think it is like the V-factor) where my system does not break up clots. They just found this out 2 years ago. I was born with it. And it did get passed on to my son even though they said it is rare to pass it on to him. They said I didn't need to get him tested but I did thank god because he has it as well. But he is healthy and just has to be aware of it he does not have to take anything. But needs to notify doctors before surgery or if he gets in an accident. Clots are scary I had one in my lung they didn't even know about until after the fact. So thank god for Coumadin I will be on it the rest of my life. Yes it is a pain getting tested all the time but better then a clot:) F 44 2 years
11/14/2006
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 5  mech heart valve none I'm lucky and have yet to have a single real problem past first week brusing while dose was all over the place and also on amioderone. I exercise hard, work hard, ski, bike, and take an occasional bruse that I expected to change my life but I've never had an event more serious than a handnail that bled for 2hrs or 50% more severe bruses when I really banged myself up. M 43 2 years
9/2/2007
 5  DVT None I am on Coumadin for life. I have taken the Lovenox shots for 7 months through a pregnancy and after the 3rd DVT. I have never experienced weight gain and actually have lost 20 pounds in the last 2 years. On the other hand, I have experienced enhanced side effects from taking other drugs while on Coumadin. Zoloft made me feel drunk. The side effects of antiepileptic drugs of Gabepentin and Lyrica (dizziness, disorientation, loss of balance, and excess sleep)were magnified to such an extent that I chose not to keep taking them. I just wish there was more literature out there about the way Coumadin interacts with negatively with prescription sedatives. F 51 2 years
5/21/2007
 5  Atrial Fib Bruise easily - even from somehting as benign as a massage. 2 years
3/9/2005
 5  aorticmechanicalvalvereplacment Headhaches couple days each month, some bleeding in gums, numbness in right or left armand feeling of tightness in back seems once a week. Any prices on warfarin testing machines? F 44 2 years
10mgperday
2/14/2016
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 5  PE both lungs w/ DVT lower rt leg Had my PE & DVT in Apr '06 and been taking Warfarin/Coumadin ever since. Occasionally I get cold hands or full body, but only during the winter. I tire very easily but that may well be due to potential lung damage from the clots. I tend to sunburn easily too, however I have NOT had any memory or hair loss or most of the other things others are having. No problems sleeping however I am experiencing a few small bouts with depression lately and am going to my Dr to sort that out. I do not think its related to the Coumadin as this is 2+ years since I started taking it. Spent a week in the hospital with it all. D-dimer test had a reading of over 5000 and I was told by the Dr that I was extremely lucky to be alive after I passed out. Many die within the first 60 minutes. I was given a 'test' drug w/ my approval to break up the clots and clear them out, plus I had a filter installed for a couple months, otherwise I'd have been on oxygen for a minimum of 6 months. The Dr thinks the PE may have damaged my lungs somewhat, thus my tiring easily. Otherwise I'm a happy camper with it. Until something better comes along I'll continue to take it as I'm told I'll be a Coumadin (Warfarin) lifer. M 59 2 years
6/9/2008
 5  1 DVT + 6 PE,Prothrombin Factor II easy bruising, heavier and markedly more painful menstrual cycles, hair loss, always extremely cold, bleeding gums, extended bleeding episodes when I cut myself or have dental work I started Coumadin in 12/2007 after suffering 7 clots post surgery. I was then diagnosed with genetic thrombophilia (Prothrombin Factor II). Coumadin saved my life. After my sister died from a single PE and the same blood disorder, I was put back on Coumadin for life. My doctor will NOT permit Warfarin (generic) because he states it is not as closely regulated for dosages in generic form. Name brand only for me. It saved my life -- and keeps me alive. http://stoptheclot.org F 39 2 years
7/28/2009
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 4  Clots, both legs & both lungs Easily bused, very temperature sensitive (especially to the cold), had blood in my urine for the first couple of months, occasional discomfort in my chest, mood swings and depression for the last year with thoughts of suicide. The mood swings and depression may be related to having twins this year and not getting very much sleep. I have Antiphospholipid (aPL) antibodies but they are not connected with Lupis or Cancer. I average 7mg of Warfarin everyday and normally test my INR weekly. The swelling in my left leg has gone down with the use of Warfarin and a compression stocking on my left leg. M 40 2 years
8/16/2008
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 4  Stroke I am extremly cold now when I'm not excersising. That's the only one I can pick out though. I started it about the same time I started Neurontin (for seizures), so some of the initial side effects may have been confused with neurontin side effects My blood's all normal now, no more blood clots in my brain! F 20 2 years
11/12/2004
 4  mechanical mitral valve I get very dizzy and headachy when my INR is high. I also get visual disturbances, clear-like spots that impede my vision when my INR is high. It is very hard to regulate even though I stick to the schedule prescribed. I would rather die that have a stroke, so I am very good about taking it exactly as prescribed, but, it is not as easy as talked about before my surgery. I resent the fact I need to do this after being such a health-nut and eating and exercising the way I should my whole life. It is though the price I pay for being alive! F 54 2 years
10/24/2006
 4  Recovering from DVD Hi Various side-effects including tiredness and nausea. The entire set of presently available food supplements seems to augment the 'blood-thinning' action of Warfarin. I want to take pycnogenol but I know it'll increase my INR value and the clinic will try to prevent me using this valuable supplement. In this connection, Warfarin is a nuisance but one must have it. Can't we have a better - more user friendly anticoagulant? Aspirin is just useless. M 70 2 years
8/19/2006
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 4  DVT left leg Actually taking Warfarin: headaches, COLD, tired, anxious, weight gain, nails & skin are changing, hot flashes much worse but they help me get warm! Mouth burns constantly, mood swings, strange dreams, rarely sleep the night through. The cold is simple to explain - thinner blood, but I never related the other symptoms to the drug. I'm having extreme joint pain & ran across this in the search. Clot due to HRT, so I thought a lot of symptoms were from eleminating HRT. I noticed the mood swings & severity of hot flashes increase or decrease with drug changes. F 54 2 years
8/3/2006
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 4  PE & DVTs, Thrombophilia foggy brain, headache, achy joints w/ numbness & tingling in hands & arms in mornings, mild to moderate hair loss, irritable, depressed, fatigue & not sleeping well disipated clots & prevented further clotting F 41 2 years
2.5-5MG 1X day
6/7/2011
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