COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Atrial Fib Hair loss, itchy sensitive scalp, decreased sex drive, bit of weight gain Dr. doesn't think scalp itch is from drug and I don't see many people with this side effect on board but I know it started right after he put me on it. I've switched shampoos to see if any difference and am using something from dermatolgist but it still persists and I swear it has to be from this drug. M 45 9 months
9/16/2006
 3  PE I have had tingly hands and feet. Around 15 lb weight gain. Always feel swollen. I am very tired all the time...not like me at all. I decided a week ago to stop taking coumadin and try natural blood thinners such as fish oil, vit E, asprin and garlic. The swelling and weight gain was a constant battle and I work out and eat healthy. I went through many panic attacks and anxiety about having another PE. I am frustrated at hearing doctors tell me the weight gain is from PTSD. F 36 9 months
11/30/2006
 2  DVTs,thrombosis,PEs,TIA,Thrombophia extreme fatigue,hair loss,severe depression,unable to focus,abdominal pain,back pain,headaches,heavy,painful menses,dizzyness,numbness of hands,heat and cold sensative,legs swelling,anemia,nosebleeds,feeling of my brain rattling in my head,fainting I have been having problems with bloodclots,and other weird health issues for about 10 years,actually i started with horrible varicose veins at age 19 with my first pregnancy and bleeding into my 2nd trimester but it wasnt until my first PE in 6/09 which they thought was pneumonia first that i have been told that i will be on coumadin for the rest of my life i have an inherited disorder from my mother,grandmothr,and great grandmother im a thrombophiliac so no matter how much of this drug i take now seems not to work for me my INR should be at 3.0-3.5 its only been theraputic twice in all this time i just had PEs again and im soooo tired i dont think i can truly work anymore. i can hardly stand up much less work my lab tech job at the hospital everyone has noticed i am not the same but much as i try i cant will myself better my health has deteriorated so much i cant believe it and to top it off i am considered disabled at 41 years old with 4 children and a grandchild who need to be checked for this same disorder,i want to live to be a senior citizen but my health keeps getting worse and my doses keep going up i am on Lovenox shots for months at a time with no significant changes as soon as i stop my INR goes down to nothing and i have another crisis ..there really should be another medicine to manage these health issues..i miss my vegatables too im not allowed any! F 41 9 months
15mg/20mg 1X day
2/21/2010
 1  Thrombosis Sweats back lower stomach pain anxiety F 58 9 months
5
9/6/2016
 5  DVT/PE Dry mouth/always thirsty, Muscle/Joint pain like when you have the flu, WEIGHT GAIN of almost 15 pounds, hyper-sensitive areas of the skin from time to time, changes in hair and skin (dryness), kind of spacey, hard to concentrate sometimes, get really hot at night without sweating, cold chills like before you get sick w/flu or common cold, thinning skin, purpura, overly fixated on getting ANY kind of injury, stiffness in neck and other joints in addition to mild pain. Have fallen twice during my drug therapy and FREAKED OUT! Both times my ample ass saved me..once slipped coming down stairs at home, once tripped on vacuum cleaner cord. I had DVT that progressed to PE's after some extended periods of travel and being immobile in bed with the Flu. Dr thinks that HRT gave me my risk factor\are calling it a "provoked" event. I have been on Coumadin since March 3, 2008. I have had 3 CATs of the chest, 2 leg dopplers, and maintain an INR of 2.0-2.5.I no longer eat hardly anything w/Vit K. Got a list off the internet that gives amt of Vit K in different foods.Site is Dr Gourmet. Helps me manage diet. I keep gaining weight no matter what I do. Supposed to get off Coumadin at 1 year anniversary but would be lying if I said I wasn't nervous. No genetic/blood risk factors or disorders. Had symptoms for MONTHS but didn't put them all together until after the event. Am married to a Doctor and he didn't even put it all together until I couldn't breathe. I can't seem to get the e-mail on this site to work. Anyone who would like to e-mail me can do so at [email protected]. Would love to talk to anyone who was on F 54 10 months
1/25/2009
Email
 4  DVT right leg/PE right lung Hair loss, weight gain, depression, anxiety I have been on Coumadin for 10 months now, the initial side effects did go away after a few months, nausea, headaches, so now I do feel better, except for the hair loss and depression at times, but that could be from this experience itself and not the drug. For everyone here looking for more answers please go to www.robprince.net/dvt/forum.asp?action=success , these people are friendly and will help you understand a lot of what you are going through - they completely got me through the first months after diagnoses. I hope this helps. M 44 10 months
6/18/2008
Email
 4  DVT in right calf Weight gain, seem to sweat much more, more sensative to extreme temperatures. As many others have commented, I too experience weight gain after starting coumadin(warfarin) treatment. Part of the gain could be attributed to the fact that I could not maintain my excercise routine for several months after diagnosis. But even after I resumed, the weight did not come off as I expected. If I miss any days it seems to re-appear rapidly even though I try to watch my diet carefully. Have not experienced any hair loss or body aches / headaches as many others have stated. My levels have been very stable, so my dosage has been consistent (4 mg/day). Hoping this is not a lifelong treatment. M 43 10 months
5/15/2006
 4  PE/Lupus anticoagulant antibodies Slight headaches, dizziness, lethargy, anxiety, slow to heal, chills, trouble focusing. Fear of accidents has curtailed my Mt Bike exploits somewhat. I have a rare genetic blood disorder which caused a massive PE last year. I have been on Coumadin since and my levels (8mg) have been fairly stable. I have been in therapy to deal with the anxiety (works!) and I go to the gym regularly to keep in shape. No weight gain but maybe some hair loss. My Stanford specialist Dr. Leung says they are working on something new in the next 5 years so here's hoping. Does it work for me? Yes. Do I like not feeling myself? No, but we learn to live with it. M 52 10 months
8/19/2005
 3  mechanical valve replacement light-headed, loss of vision in half of eye at times, fatigue, chest pain at times, cold, depression, short term memory loss at tmes Was told that these are not side affects from coumadin. I have never felt so awful. I have no energy at all. I still work a full time job and love t. Prior to surgery, I was always "on the go" doing so many things.....now, my life has changed.....it's terrible. I think, at times, that I would have been better off w/o the surgery....at least I had a life. F 69 10 months
9 mg 1X day
9/2/2012
 3  DVT. PE. Weight gain. Dry, itchy scalp with sores. Dry, itchy skin. memory not as clear as it used to be. Loss of hair on arms, legs and eyelashes. Loss of libido. Tired (but not to the extent that I am overly bothered - I just sleep more lol). I am taking Warfarin, and whilst it is doing its job I will certainly put up with the 'not so good' bits. What I can't understand is that if everyone on here have very similar symptoms, why are the doctors saying that Warfarin doesn't have any side effects, we can't all be wrong, and as someone else said, we are the people taking the medication. F 47 10 months
1/19/2009
 3  PE left Lung NO sex drive. I use to make advances to my wife at least 3 times a week. I've been on Warfarin 4mg for about year and now I go a couple of weeks before I realize we haven't been intimate. somewhat depressed, weight gain - i've gained 25 pounds in about 10 months. I have a factor 5 blood clotting disorder. Basically, my blood clots in overdrive. I woke up in January 2008 unable to breath and my wife took me to the hospital, where I found out the good news of my disorder. I started out on coumadin and b/c of insurance, I now take the Warfarin brand. I have basically lost my sex drive, I feel bloated no matter what I eat, and I feel like I'm depressed. M 30 10 months
11/15/2008
 1  dvt developed blood clot above knee after breaking fibula below knee,very tired,bad stomach pain,hair loss,2 times had massive unbearable pain in right shoulder couldn't move arm for 2 days nothing helped, anxiety, bad mood swings, night sweats, have period every 2 weeks for 8 days and very heavy after being on it for 10 months I am on 20 mg and 15 mg every day inr's never consistent but I don't experience the bleeding at all if i cut my leg shaving the blood dries up in about a minute and the blood is sticky I also don't have any bruises at all.On lovenox and coumadin had massive cut on my knee requiring 3 stitches inside and 6 outside bleeding stopped pretty quickly. But I am so tired all the time and it's a different kind of tired like i'm dying tired. I have good days and bad days, mainly bad.Everyone tells me i'm too young to be this tired but glad I see others going through the same thing. I work on my feet about 12 hours a day and have 2 teenage kids so it's hard to rest but now it's different.My stomach hurts so bad not nauseated but intense pain but no blood in stool (plus I hate to throw up and have not had that happen yet) did cough up blood about 2 months after being on coumadin went to emergency room and doctor thought i was crazy for coming in. It was bright red b F 40 10 months
4/28/2008
 1  DVT This is my 3rd blood thinner! They've all been horrible sore muscles sore joints and even my skin hurts, it is been HELL! Never had a blood clot till I was 68 I'm going off of this tomorrow, can hardly get out of bed in the morning!does anybody know of any natural remedies, please tell me! The first medicine I took was Eliquis thought I was going to die but I think it's on the get rid of the blood clots, then I took Pradaxa it was horrible now each day the Coumadin is making me worse F 69 10 months
5mg
3/4/2017
Email
 1  atrial fibrillation (non-valvular) joint pain, bruising, weight gain, fatigue. too many food and drug interactions. difficult to get INR in range due to taking NSAIDs for chronic low back pain. Great news for all of you taking coumadin for atrial fibrillation. new FDA approved drug that can replace coumadin is called PRADAXA. go online and check it out. THIS IS REVOLUTIONARY!!!!!!!!!!!!!!!!!!!!!!!!!!! M 60 10 months
4mg 1X day
11/20/2010
Email
 5  Blood clots caused from chemo. Some weight gain of 10-15 lbs. Some fatigue. I developed pain in my right hip, but don't know if it is from the warafin. I bruise very easily too. I developed blood clots in my jugular and my right leg after my first chemo treatment. Took Heprin shots and started on coumadin and now I haven't had any since I started on the coumadin- been on it about a year and will be off it as soon as they remove my port. I don't know about the hair loss because I lost my hair from the chemo. It has come back in, but not as thick as before and that may be due to the coumadin. Thank goodness there is a drug to help! F 54 11 months
8/15/2007
 4  DVT throughout left leg/pelvic area Feeling cold, itchy skin, easily bruised, fatigued (taking repliva for low ferritons and saturation), somewhat heavier periods, rollar coaster ride of physical, emotional, and financial issues related to this life changing thing, loss of appetite whenever dose is increased. 'Taking coumadin for almost a year, since 1/31/07. At present Taking 12 1/2 mg of coumadin; INR levels go up and down regularly. Have to wear compression stockings and now support wear for protruding veins in pelvic area. I hate taking medicines and having to be tested regularly. I do what I have to in order to try to live. Ultrasounds show DVT still there. F 51 11 months
1/20/2007
 4  PE left lung They say I got the PE from taking Birth control pills. The only thing that came back from blood tests as far as anything wrong with me is both genes from MTHFR. However, my homyocystine level is normal. Really, it only took about a month and a half to get my INR steady between 2.5 and 3.0. I don't eat a lot of salads or greens, which I don't like, so I'm not thrilled about that, but I'm alive so that's what really matters. This drug really is a life saver. For about 2 or 3 months, I was very tired and didn't feel quite like myself, however I really don't know that this was all due to the Coumadin. A clot is a serious issue and your body adjusting to things like this take a toll on you. I have been on the drug, since Feb 07. I shed a lot of hair, it wasn't coming out in clumps, but it was shedding in the shower and all over the house, and really wasn't growing much either. My hair was noticably thinner. It was until about Nov or Dec that the shedding really stopped and now a F 28 11 months
1/31/2008
 3  SVC clot after PICC line insert Fatigue, weakness, weight gain >30 pounds. Leg and foot cramps, sleep disturbances due to racing heart I do not understand why the drug companies and dr's are allowed to say "no side effects" are associated with this drug. F 53 11 months
5/4/2008
 5  Warfarin None really. INR has been kept within the region of 2-3. Currently take 5, 5 and 6mg respectively for approx 14 days until next INR test. Regular testing for INR since having DVT in lower left leg Oct. 04. Scan showed clot to be behind left knee. Was given immediate shot of Klexane in abdomen at the hospital and had approx 9 further injections thereafter ( 9 days). Warfarin given as well. The INR should be within the specific region of 2 to 3. Above 3 and bleeding, bruising may become a problem. Opposite effect below 2. Have been down to 1.9 but Warfarin adjusted accordingly. Unable to comment on Warfarin as such other than problems may occur if INR rises above 3. Last year I had a bad cramp, pulling sensation in my lower left leg which hurt very much when walking etc. Ankle became swollen and red. Indication of DVT. Also pain when foot moved backward and foreward when leg in straight position. Very very important to get help as soon as possible with DVT. The period of ankle swelling also has hard calf condition. Family history of DVT hence prolonged anticoagulant therapy. M 47 12 months
10/12/2005
 4  pulmonary thrombosis none of major consequence although I do seem to get chilled slightly easier. M 56 12 months
6.5 mg 1X day
12/2/2010

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