COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  artificial heart valve Since taking Coumadin I have experienced severe headaches, body aches and hair loss. I have gained 7kg since my operation, but not too sure if I can attribute weight gain to Coumadin. The reality is that this drug is keeping me alive, and even though I hate the side effects, I have to take it until a more suitable alternative is available. I feel that the side effects of coumadin add to the frustration felt by patients after heart surgery. Rapid weight gain, headaches and hair loss in a short period of time does alter our perceptions of self. The new self that stares back at me in the mirror is like a stranger, but I think I can get familiar with him over time. M 42 8 months
6/15/2006
 3  DVT and PE massive weight gain. Had PE in March 08 and since then I have gained at least 30 pounds. Weight is really strange. Have gained all over body and looks different then the usual weight gain. this has made me very depressed. coumadin is not working. was put on it after a massive PE in March. While on the coumadin i had another clot in June. was told by my doctor that i will be a (lifer) as i call it. feel as if life is in a holding pattern. things will never be same. afraid of doing certain things because of bleeding and bruising. F 49 8 months
10/9/2008
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 3  Pulmonary Embolism/ left lung hair thinning, fatigue, easily bruised, teeth yellowing, weight gain between 10 to 15lbs, dizziness, uninterested (unable to focus), itchiness. I started taking it July of 2006 due to a miscarriage/ pulmonary embolism and subsequent diagnosis of Lupus Anticoagulant. I do believe this medicine along with prayers saved my life, however, I also believe that if some of the doctors that were perscribing this medicine had to actually take it, they would find a BETTER medicine to give. F 29 8 months
3/22/2007
 3  dvt left calf weight gain about 8lbs since Dec.2006 sometimes trance like state and forgetfulness. Has anyone had an experience with sunburn whilst taking coumadin. I have just come back from holiday where I sat in the sun for about 1hr just reading and finished up with severe burns, had to go local medical centre for treatment. I also suffer from ME and the fatigue from that plus muscle pain while taking coumadin is indeed hard to cope with at times although not too keen about taken coumadin i am sensible enough to know that something is better than nothing F 68 8 months
7/22/2007
 3  Pulmonary Embolism Extreme Fatigue, Bloating (esp. around my eyes), incoherent thinking and decision making, mild depression. I understand why I was prescribed this medication and am aware of how life threatening PE's can be...however, judging by my experience and reaction with Warfarin I would not recommend anybody should take it unless absolutely neccesary, and if so, find an alternative option if your condition is long term. I am not a person who has been exposed to a lot of medication throughout my life, but I can honestly say that even though this drug has the ability to prevent clotting, its side effects have the ability to destroy your own personal thought process and wellbeing. Take this drug with extreme caution if you have to, and make sure you warn family and friends of the possibility you may become quite a different person (see my side effects). Be aware your doctor will advise you that Warfarin is not responsible for your side-effects. Don't argue...but don't believe either. M 38 8 months
11/9/2009
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 3  P.E feeling cold, fatigue, depression, chest pains, i have had vaginal problems since. The one i am most bothered about is my mental state. i have never even questioned or thought that warfarin would ever make me depressed but i have realised that its when i started it 8 months ago is when my head started to go funny. it hasnt really changed my life style and it dosent make me worry or paranoid so i know its not me being silly. i went home for a few days and forgot my warfarin and it was actually my boyfriend that said that i've changed as a person and i'm alot happier and then it clicked and i said that my head does feel different. i know that if i say these things to a doctor they say warfarin has nothing to do with it. but i am certain it has. and seeing what people have said on this site has made me even more certain that i'm not making this up. F 22 8 months
10/19/2009
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 3  intracranial dissected artery Dizziness and vertigo, fatigue, weight gain Someone below asked about weight gain. I gained weight (about 10 lbs) without changing any behavior when I went on Coumadin, and it stayed on for the 7-8 months I took the drug. Within a month and a half of stopping the drug, I lost the weight -- without making any changes in my food intake or exercise. F 39 8 months
9/3/2008
 3  DVT Thirsty, irritable, headaches, easily bruised, always cold I have found that drinking lots more water helped my headaches. Also my mood swings were out of control. My doctor recommended taking St. John's Wort (available at grocery stores in the vitamin section). It has helped my mood tremendously, however, I have had to slightly increase my dose of Coumadin - presumably as a result, but I think it has been worth it! F 37 8 months
12/28/2007
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 3  DVT in left calf, PE Constant headaches, moodiness, weight gain of at least 20 lbs, sometimes can't sleep at night, still have chest pains,sad and unsure if depressed. Thank goodness I found this website! I agree with a lot of people about the weight gain. Doctors are hush hush about it! If you see how many times it is mentioned on this page it is ridiculous. I can't wait to get off of it. I want to see if there is a change. Feel free to e-mail if you have questions or just want to talk. It's good to know you aren't alone or going crazy! F 27 8 months
5/21/2008
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 2  Atrial fib, stroke, heart valves I have a 20 lb weight gain after YEARS of maintaining a large weight loss. Edema. Swollen face (ugh!), legs, body. Hair thinning and weak. Kidney, muscle and joint pain where NONE existed before. Cold intolerance. Dry, itchy skin. Loss of stamina, sex drive, the zest for life. I used to be very pretty and young for my age, but Coumadin has made me look and feel old before my time. I HATE THIS RAT POISON, but I'm terrified of having another stroke. Catch 22. F 52 8 months
7/20/2005
 2  Aortic Valve Replacement Bloating, weight gain, heavy periods I have to take this the rest of my life so I guess I'll learn to deal with these side effects. The doctor tells me coumadin doesn't cause weight gain, but I have gained 10 pounds in 8 months and I'm more active now than I have been in years. F 39 8 months
12/6/2005
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 1  blood clot in my lung Weight gain,cold sleepless nights,depression. I am stiil on it. My dr. has me taking any where from 20-20 mg. and I do not feel at all comfortable taking it. F 54 8 months
8/18/2006
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 4  celulitis hair loss! mild head aches over all tired feeling F 37 9 months
10/13/2005
 4  DVT None Other than the narrow theraputic range fluctuations, no major issues. M 38 9 months
4/27/2007
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 4  DVT left leg Very tired; mind very foggy; forgetful!; weight gain; aching knees; muscle stiffness; extremely, extremely heavy periods. Dr. recommends to be on coumadin for 1 year for best chances of 'dissolving' DVT. It's been 9 months. Going to make appt. to get off soon. Interested to see if there is a difference - or if it's just age! F 44 9 months
10 mg 1X day
6/29/2010
 4  blood clot after knee replacement Bruised easily -- to be expected. I experienced a great deal of hair loss. My doctor says it saved my life -- how can I say anything too negative. I would take it again if another clot developed. F 52 9 months
8/17/2009
 3  DVT pelvis to knee 3mos post-partum Hair loss, bruising, random nosebleeds, swelling in hands and feet, increase in headaches, sores on my legs I have been diagnosed with two genetic factors which affect my clotting: Factor V leiden and Lupus Anticoagulant...when asking the hematologist when I would be done with the meds...he told me that I will probably be on them for life due to my two factors...when asking my primary care physician...he said with weight loss and active lifestyle, I could most likely go off of it and live a long, healthy life without it. I'm shooting for the latter. F 28 9 months
12/11/2008
 3  DVT/Factor V Cold. Muscle cramps. Memory loss and confusion while on the generic. Take 4mg per day. I was given Warfarin and my side effects were even worse until I got off of Warfarin. Now just cold and a few cramps. I take vitamins to control the muscle cramps. I requested/insisted on the real stuff, Coumadan and the side effects are now minor. I am a bit cold and can't loose weight. Within a day or two after switching I felt like my old self once off Warfarin. I workout everyday with no fatigue problems. My Doc seems to think that I will be on this forever and that is something that will not happen. I think they are affraid of being sued. INR levels are fine currently and can be maintained with diet changes in addition to plain old aspirin. I have no problems having a few drinks on a weekend. The Americian Heart Assoc. has a great piece on factor V and do not recommend a lifetime on Coumadin. Go look at this piece and you will see the odds are very small for a recurrance. A lifetime of rat poison is not for me. Can't wait till May and goodbye Coumadin. Doc and I will battle then. M 60 9 months
2/11/2009
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 3  pulmonary embolism in left lung i am still always out of breath, freezing cold constantly, starving, lost 20 pounds, and we have no idea how or why i got the clots to begin with. my inr fluctuates weekly, and i still get weekly inr tests. i have 5 more months to go. F 33 9 months
4mg 1X day
11/29/2012
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 3  Lupus anticoagulant thinning skin, hair loss, mental fogginess and most recently, severe headaches. It's funny how the docs don't mention any of these side effects. I thought it was just age why I was experiencing these things until the headaches started and I went looking online. I would be interested to hear more from anyone who has taken nattokinase or lumbrokinase as I have come to learn that these may be more appropriate in preventing clots from forming which warfarin really does not do. It thins the blood thereby helping to remove clots that have already formed. I would rather be proactive. F 52 9 months
7.5 1X day
7/31/2011
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