COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Massive DVT - Left leg fatigue, weight gain, sick to stomach, tingly (ants crawling)on skin and head, forgetfulness, back pain, neck pain, nausea, slowed response time I was hospitalized in June for severe preeclampsia when I was pregnant with my son. They ended up delivering him by emergency c-section 2 days later because my body was shutting down. I had gained 60 lbs of water weight in 3 weeks! I was super swollen and miserable. Everything went okay with the delivery, swelling started going down and I started to feel like myself except for my left leg, it was super swollen still. My son was born at 33 weeks so he was early and had some problems. I was basically immobile due to the pain and swelling in my leg. I spent a week in the hospital because they couldnt get my blood pressure to regulate. A week later I went in for my 2 week postpartum check up and they decided to scan my leg to check for a clot and they found one that went from the middle of my thigh to my ankle. Bedrest and back to the hospital. I was put on lovenox shots and coumadin since I was pumping to breastfeed they didnt want me on heprin. Four days in the hospital again and I get released with the shots and pills. Check up every 2 days. INR finally stabalized and I was able to go in every 2 weeks then once a month. It was cake...no biggy just have to get rid of the clot and be on the meds for 6 months. Now during this time I was constantly exhausted but my son was still in the hospital 100 miles away so we were constantly going to see him and dealing with life and jobs and everything I thought it was life. Then when my son starting doing worse when he would F 29 6 months
6.5 to 8.5 1X day
11/17/2010
Email
 2  DVT LEFT INNER THIGH/ LARGE Fatigue is extreme. In the beginning, until just recently (1-2 wks ago) I felt nausea. My endurance is poor and my Drs. have still not been able to achieve a theraputic dose w/out sending my INR to 5.0. Skin heals extremely slowly. I dont like this drug BUT my clot has reduced by abt 45%. F 52 6 months
From 5-15
8/8/2012
 2  left leg DVT with massive bi-lat PE Horrible! 152 at Christmas in Dec 2011 DVT & PE Feb 2012 ---left hospital at 170 after 9 days on Warfarin (Coumadin) after 8 days requesting salads, fish, fruit. Upon being home, ALL I want to eat are salads, steamed vegetables, salmon, peaches. Went from 5 cups coder day to ZERO! Now, drinking ice water. Now it is June 2012---187 lbs!!! Diarrhea; forehead/hairline hair loss; weight gain all in my stomach area; loss appetite; increased depression; fatigue; lethargy; etc! Have suffered with Major Depression since 20---am now 48 years old, 2 teenaged daughters, a fantastic & supportive husband and cannot believe what this DRUG has done to me---as much as I certainly appreciate that it has kept me alive, I wish the Warfarin/Ciunadin Drug Companies would come CLEAN with the REAL side effects---especially for women in 40's and early/mid 50's! The physicians say "no correlation with this sudden mid-section weight gain! You MUST JUST be eating a lot!" I have 1/10th appetite I USED to jave befor the DVT/PE & when I DO eat, it's veggies, salads (no dressing), fish, water, peaches in natural juices! I am NOT EARING BUSHELS of vegetables/fruit, either! I have no appetite! I'm just praying that I can come off of this HORRIBLE drug---one year as I tested positive for Leiden ago toe V (a generic blood disorder that can thicken your blood & make you prone to leg clots). I'm discourages, depressed, uncomfortable, developing rashes due to weight gain, F 48 6 months
8mg
7/3/2012
 2  DVT & PE Freezing all the time, weight gain, heavy periods, fatigue Was in the hospital for 2 weeks on heparin, 10 mg coumadin and receiving shots in my belly twice a day. In those 2 weeks, I put 9 lbs on. I've taken one lb off since my release. There has been no change in diet or exercise to explain this. The fatigue has gotten better, but I am still not my old self. My DVT & PE are unexplained and looks like there is no end in sight for this med as my INR goes up & down so often. I can be at 2.0 on a Monday, 3.9 Friday and 1.2 a few days later on Monday again. I'm so over it all!! F 35 6 months
10 1X day
7/19/2012
Email
 2  P.E. right lung Got cold very easily even in intensely hot weather, bruising, bug bites would not heal, hair loss. My INR would never stabilize (I was on 15 mg once a week and 12.5 the rest of the time), I was only in theraputic range twice in 6 months. I had to stop eating anything with vitamin K in it to try and figure out what was causing the low INR readings. Try eating no salad, no watermelon, no salad oils, no cranberries, etc. when on a long-term weight loss program, and during the summer to boot! Needless to say my weight loss came to a halt during my time in coumadin jail. Doctors could never really explain the cause of my P.E. other than taking a stab at it and blaming my birth control (ortho tricyclen). My pulmonologist wanted me on coumadin for 9 months, I called it off at 6, no longer able to tolerate the constant doctor appointments and the eating restrictions. I have no clotting factors. My only concern now is that since stopping the coumadin 6 days ago, I seem to be extremely itchy! I thought at first it was bug bites, but I'm not sure. Anyone with experience stopping coumadin F 30 6 months
9/12/2006
Email
 2  Sinus Venus Thrombosis It started with extreme weakness, irritability, lack of appetite which came back an then some. Very confused, dizzyness, short memory loss, problems with language and vocabulary, lalck of concentration. Very tired all the time, and depressed. Numbness in the am of hands, very distracted at times, and vision sometimes blurry. I was diagnosed with SVT in June 07 from a sever headache I thought. Started heparin and coumadin in the hospital, released in July, and my racking horse fell with me in Sept. 07 which cased a terrible head and face injury. My brain bled (subarachnoid hemorrage), the docs stopped coumadin, now that the brain has stopped bleeding and I am out of the hospital, they have me back on 7.5 mg a day and want to increase it. I plan to talk to doc and come off the med and go on aspirin or plavix or some other anticoagulant.Sorry, I do not recommend this med for a long period of time. I would also like to hear from others with same or like experience. F 41 6 months
12/25/2007
Email
 2  PE steady weight gain, brusing clots are cleared after 6 months of therapy, off the drug, but still can't lose the weight despite watching diet and working out 6 days / week. F 42 6 months
2/18/2009
Email
 1  Supposed DVT On Coumadin x 6 mos,felt bad entire time. Cannot get PT/INR at appropriate level no matter what dose. Tired, feeling out of sorts, can't sleep, you name it. Since being on Coumadin, never got PT/INR right, going to office once a week, finally had enough now go only every 3 weeks. Have been as high as 7-9 mg day to as low as 2.5 mg day depending on what nurse I see. Never have salads/greens any more. Not too much bleeding unless on high dosage. Feel worn out on high dose. I am definitely feeling like stopping real soon. M 65 6 months
11/25/2007
 1  dvt during pregnancy Weight gain, lethargy, memory loss Stopped injecting heparin 6months post partum then went on Coumadin. Had to stop breast feeding due to coumadin which I hated. When I told the doctors in the US about my side effects they laughed and said it was because I had a new baby. This may be true..but the side effects stopped as soon as I took myself off the Coumadin (6 months post partum) and now am taking aspirin. This was OK with my doctors on Europe. This drug is a lifesaver, not doubt about that, but doctors in the US are afraid to let you stop taking it. F 37 6 months
7/15/2008
 1  PE Dizziness, rashes on hands (skin so thin), no appetite, lethargic. Doctor says it has nothing to do with it! Yeah right! All side effects started a month after taking the medication. I'm on quite a high dose for my age and I will be seeking help of a Naturopath and Chinese Medicine Doctor for alternatives! F 19 6 months
9mg 1X day
8/24/2012
 1  Congenital heart disease. Mech valv I was told about how it will effect your life, but this is horrible. Nausea, fatigue, INR up and down, watch what I eat all the time, the bruising, bleeding, bright redness on my hands and feet. My skin is tan then those parts turn horrible. I am turning 34 tomorrow. This valve replacement...I wish I would have taken the pigs valve, but they said at my age I would have to have come back in 5 years. Well now with coumadin in my life, I wouldn't care. Plus the damn a fib I picked up with this operation. My 3rd operation. I wish nature and God's own build of me would have just taken it's course. with Good luck people. I love you all for fighting and surviving! Ciao. M 33 6 months
5-6mg 1X day
9/9/2011
 1  grandma was having strokes bleeding from rectum doctor switched her to pradaxa and she starting bleeding to death. Had to have 3 blood transfusions and almost died after prodaxa. She got taken off it and is fine now. F 82 6 months
50 1X day
2/3/2012
 1  2 DVTs, 2 pulmonary embolisms Depression, hair loss, foggy memory, complete personality change, irritability, loss of appetite, fatigued. I'm on coumadin for the rest of my life. I'm not sure if the depression and personality change are symptoms of coumadin or if they're a result of the experience I had with DVTs and embolisms at such a young age. F 21 6 months
10mg 1X day
11/21/2011
Email
 5  DVT & PE See immediately below. No more blood clots as of December of last year, 2006, per ultrasound on my legs. F 41 7 months
1/3/2007
Email
 5  DVT & Minor blood clot in each lung Heavy periods (like the 2nd or 3rd day--hate it :p). I just discovered I can't take my night walks anymore when it's in the 30's because my legs get really cold so I go on my walks during the day instead, lol. I have to go for additional blood work sometime this year to see if my blood is "hyperactive" in the clotting mode (hospital goofed and didn't do this testing on me first apparently because they wanted to get me on the heparin right away) without coumadin. If it clots too much, I'll have to be on Coumadin for the rest of my life; but if the blood tests results are fine where my blood does normal clotting, then I'll be able to go off of it which would be nice. The only thing I'd be worried about is in case it ever comes back. :( It has literally saved my life. Unbeknownst to me, I had it. At first, I was having trouble breathing--couldn't even walk a few steps without gasping for breath (and I don't even smoke and am not on birth control pills), it was that bad. Thought I had either pleurisy or pneumonia. I couldn't understand what the heck was wrong with me. I checked myself in the hospital the day before Mother's Day in 2006 and found this out through the dye injection and it showed two dime-sized/shaped clots (one on each lung. Had to be bedridden for 3 days and stay an extra 2 days because I was also supposed to be intraveniously fed with heparin for 5 days in addition to getting the correct dosage of coumadin. Also had an ultrasound on my legs and I had DVT from the top of my left leg to below my knee which was how the blood clots came to be in my lungs. I am sooooo fortunate Someone was watching out for me that day. The happy news is I had an ultrasound on my legs the other week (in December) and F 41 7 months
1/3/2007
Email
 5  pulmonary embolism F 34 7 months
3/29/2009
 4  Factor V Leiden / DVT 7/8mg daily. Minimal hair loss, mood changes (slightly apathetic at times), acne (likely from stopping birth control), bruising, excess bleeding (gums and menstrual). The first few months on Coumadin are the worst in terms of side effects. Eventually your INR will stabilize and the side effects will become less and less. I still have some very minor hair loss, but the bruising and bleeding has subsided. It may seem frustrating at first, but try and stick with it. I know it's not ideal, but for those of us with Factor V it seems to be the dominant option so try to make the best of it. F 26 7 months
12/4/2007
 4  DVT, Leiden V unusually tired, particiularly in late afternoon; feel cold most of the time; experienced some weight loss when I first started on warfarin but that's over. I got the news in December that I need to be on this drug "indefinitely" because they don't have a good reason for why I got this clot. The specialist told me there is a 30% chance I'll get another one if I don't stay on the warfarin so I will continue to take this drug. F 45 7 months
2/11/2008
 4  DVT Left Calf I experienced many side effects initially including loss of appetite, weight loss and I was always hot. After a month of the medications many side effects have subsided. After my initial weight loss, I had some weight gain (which I don't blame on this medication). However, try as I might, I have not been able to take off a single pound and wonder if the medicine has something to do with it. Most side effects could be explained because of my condition. After being diagnosed with a small blood clot in my leg I was put on coumadin right away and told to go on bed rest. Prior to all this happening I was active, doing an exercise video several times a week at home, taking kickboxing 2 days a week and bike riding with my family. While on bedrest, my clot worsened and now I have total blockage. The pain was so intense I didn't want to do anything except cry. It hurt all the time, but anytime my leg was vertical was particularly brutal. To avoid using the bathroom so much, I greatly reduced eating and drinking (also the fact that if nobody was around to serve me the pain wasn't worth it). So I attribute my initial weight loss to that and the fact that the muscle I had built was turning to fat. I believe that I was initially hot because it was such an ordeal for me to get around. It was like a workout to walk into the other room. Thank goodness for the blessing of a new F 39 7 months
3/18/2008
Email
 4  a-fib excessive bruising,blood in urine,hair loss i had open heart surgery for blocked arteries in october 2008 and developed a-fib. i am on multiple drugs for high blood pressure and high cholesteral. i want to come off of the coumadin and am considering having an ablation procedure to correct the a-fib. F 58 7 months
5/24/2009

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